Fibro,Fatigue, and with all the rest we suffer is there hope?

[MariG]

Hope I write as I mean is there anything anyone can do? I don't bother with GP anymore only to review my meds. All they do is offer another type of medication for you if you ask for help and if not they refer you to another specialist in anything so you will go away. Don't you feel like this. I 've lost my job as I was off so much, they changed things conveniently so there wasn't a position for me anymore. Benefits well is there any point I can dress myself, feed myself and been refused a blue bage so end up going round and round for a parking space nearby or go home. Don't get me wrong I'm not depressed (yet) I've just come to the point where i think what is there out there for us?

[Mdaisy]

Hello MariG,

I must say I think whether feeling low or not we've all felt like this sometimes. It is sometimes hard to keep struggling on but I think we should try to keep hope alive as best we can that research will continue and this will hopefully reveal better treatments for us all.

Meanwhile I think we have to make the best of what we have and the loved ones in our life. For the things we have lost and probably mourn like our job, freedom and mobility are indeed huge changes in our lives which sometimes we cannot comprehend. Nobody says these changes will always be this way, I think we should try to strive towards positive changes and getting the treatment we deserve.

Can we bring new projects and things to life to occupy our mind? Yes, I know this isn't a solution but it may change the way we think about what we've lost and may help as we try to adapt to living with Fibro. Of course for some this way of adapting takes time and may come after acceptance which in it's self takes time. For me it was starting our local support group and trying various hobbies I has always wanted to try , for a friend it was making things and selling a few things here and there !

Huge strides have been made in understanding of the condition in recent years and research continues to be carried out to push this understanding forward further and develop more and more effective treatments for the condition.

The top Fibro experts consider that Fibro is "eminently treatable" (Daniel Clauw MD, August 2008). (Lindsey Middlemiss Founder & Trustee of FibroAction 2009)

fibroaction.org/Pages/What-...

Please don't give up hope, we are stronger together and new developments are happening all the time. I am so sorry your GP is dismissive something else which I feel is another thing which is commonly experienced by people living with Fibro. You can see another GP or change surgeries if necessary.There are treatments recommended for Fibro and with a combined approach these may lead for some people to a point where the condition is manageable. It can be difficult but it is possible for some to achieve an optimum health for them if they continue with the same approach which has reduced their symptoms of Fibro.

fibroaction.org/Pages/How-I...

Sending you strength and positive thoughts

Keep Strong!

Emma

FibroAction Administrator

[TheAuthor]

Hi MariG

I am so sorry to hear that you are suffering so much at the present time. I read your post with an exceptionally heavy heart for your plight and I will say openly and honestly to you, that there is a fine line between being unhappy and being depressed. I sincerely hope that you can find some resolution to your issues before you cross the line to depression, as many others on this forum will tell you that it is not an easy climb out of despair.

I sincerely understand your reluctance to see your GP but I would implore you to see him / her and explain exactly how you feel. Your GP may be able to help in areas that you may not have considered such as benefits, as GP's help with claiming ESA (employment support allowance), so it might be worth a visit. If your GP can help in this department then you have resolved two issues and once, and surely this will give you some hope? Simply talking openly and honestly with your GP may help. You have already made the first move by posting on here, so I truly believe that you still do have hope? reach out and accept the help that is offered to you.

Please feel free to PM me if you ever need a friend to talk to.

Ken