Hi everyone I seem to be losing my gr... - Fibromyalgia Acti...

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Hi everyone I seem to be losing my grip on reality and im not sure this is fibro fog do you think I should see my gp.

pinot profile image
26 Replies

I am finding it very difficult to follow a conversation and forgetting what im talking about half way through a conversation. I am also finding it difficult to count money. Today I found £600 in a handbag and had no recollection of putting it there that was in sept 2013 and had no idea it was there paying bills is another thing I forget to do I do online banking and have had to stop as I cannot remember how to do it and password s are difficult to remember im begining to freek out about this twice I put a wash in the machine only to discover I had not switched it on. Help advice needed asap.xxx ty you all.

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pinot profile image
pinot
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26 Replies
anbuma profile image
anbuma

this is a fibro thing.i cannot hold a conversation or take in what is beign said or express myself .i have to write everything down when i go to the doctors i pay all my bills by Direct debits would never remember to pay them if I didn't.i know this shouldn't be done btu I have my password and details written down(in part)so I don't forget them.my main problem is turning the oven on and forgetting have done so or forgetting i have put a pan of fat on and going away to do something else until i smell burning

Hi Pinot,

It can be scary when these things happen for the first time, but all of those things have happened to me & this was before my diagnosis, I honestly thought I was going senile, in my 30's was so relieved when I was finally diagnosed and had proper info on all the areas of your life Fibro effects. I have done similar in waiting for food to cook & then half hour later realising I hadn't even put oven on. Remembering names or knowing that name in your head but as your try to say it half a dozen others come out is something that gets me, or start talking about something & if for a second I get distracted I completely lose the power to remember first conversation. I hope this puts your mind to rest

Karen

pinot profile image
pinot in reply to

Ty so much Karen you have reassured me! This is such a frustrating condition. I was talking to myself today in the shop and a man said you do realize your talking to yourself quick as a flash I said and I answer myself back too. Lol

in reply to pinot

I too talk to myself and objects in my flat & also reply lol, this site is great for instantly being able to put people's minds at rest about something when we can all say yes that happens to me, obviously if those things change and people are saying not that doesn't happen, you know it's time for the dreaded dr visit lol,

To be honest I was pretty shocked as to how many areas of the body this dreaded disease effects, most people know if the pain & exhaustion but who would think simple words you can practically taste on the end of your tongue get lost on such a short journey out & it is part of this condition I find so frustrating, I have to always use kitchen timer because if I do actually put the cooker on, I convince myself I will remember when 30 mins or whatever is up but if course so many burnt dinners show me otherwise. If anyone comes into my flat they are always saying you should turn kettle cooker & toaster off at wall & I just say I have to do what works for me & that way if I'm

Even up to cooking I've got a chance if having hot meal lol.

Take care & enjoy your self chats :0)

Karen x

Mrs_Somerset profile image
Mrs_Somerset in reply to

I am so pleased I stumbled accross this forum, I cannot say what a relief it is to hear that others are going through the same things I am - and again I am surprised reading this thread - i had honestly thought it was one of the many side effects of the pain medication that made me so the strangest hings - and as you say I can taste the words on the tip of my tongue - it is soo frustrating - I love wordplay and have always been able to hold my own in conversations in a number of languages, I am a scientist with a commercial law background so technical terms were easy - but since this started I have now become someone who dreads a conversation - anything from tripping over the simplest words - earlier today I could not get the word "blue" out ! but it does not stop at words I even just phase out completely in the middle of a sentance and end up staring at them, having forgotten I even started a conversation - leaving others thinking I am bonkers or just plain rude!

Nice to know this is normal :-)

pinot profile image
pinot in reply to Mrs_Somerset

Oh! Mrs.s. I so feel for you yes losing the thread on coversations and can't get simple words out is so embarrassing as well as frustrating. But what can we do? Not much but at least we have each other on this website and I feel blessed knowing how much every one is the same or worse but everyone helps out and weeven find hhumour when we are going through such madness. Keep on keeping on and im sending you a big squishy hug xxx

lynzard profile image
lynzard

Morning Pinot, I agree with the other 2 people who have replied. Like you, I thought I was developing dementia!!! One of the main things I find difficult is when I'm speaking with someone and the word I want to use just disappears from my mind and I sit there like with a blank look trying desperately to find the word I need! :) Hope this is reassuring tho it doesn't help make hings better for you. Take care and hope you have a good day.

agtf1 profile image
agtf1

Hi, unfortunately (as has already been said) this is Fibro fog. It's just another horrible part of Fibro and can be very scary. I use lots of post-it notes and alarms on my phone to remind me to do things. I also find that the more you stress about it, the worse it gets. I've explained to good friends about losing the thread of conversations and that it's the Fibro and not a case of not being interested, so now when it happens I just say "sorry, I've gone again!" and we laugh it off. Hope it helps to know you're not alone. Still worth mentioning to GP when you next see them and I also keep a diary of any new symptoms so I have a record. X

stevros profile image
stevros

brain fog is awful. leaves with with no idea what you are doing or done. there is no cure for that, just have to deal with it unfortunately. do very little when it occurs as you end up upset when you can't do stuff or forget

Ginsing profile image
Ginsing

Yes the Fog leaves in the dark sometimes more than others this is where it helps if you have a patient partner who can accept you putting things in silly places. Or having conversations when you loose the track because you meet a blank wall inside and there is nothing to say , you know you know the place or person but the brain goes blank.

It seems to happen to us all just be patient with your selves.

Only good thing is you get to have coffee with friends more often well you dont know when you last saw them!!

xgins

hi there Pinot, I have had problems with brain fog for years before diagnosis and learnt then how to laugh it off or blame it on tinnitus when i could not understand what was being said to me. Just recently I have told my hubby that I was eating my shoes. forgotten the word for rain, tried to put the wet washing in the freezer and lost the knob off the cooker. Thats besides the usual thing like leaving gasses tuned on.We all have to develop our own way of dealing with it. Mine is to laugh its not so embarasing when everyone is laughing....Sue Oh and at least now that I have lost the knob I have one less to remember to turn off

Hi Pinot I echo everything said here too.

Bill paying was a nightmare so we're on meters now and as for the docs I also write a list or I get home and kick myself for forgetting something. Funny thing is that even with a list I still forget :o

My OH won't let me use the cooker as I was forgetting it was on all the time and also find conversations difficult, not all the time its ebbs and flows like the sea.

Around the time of my period is the worst time as I find it difficult to even decide if I want a cup of tea or coffee and forget people's names and as for re-calling information well that's a no-no most of the time too. I also have tinnitus which, when in busy places makes it ny-on impossible to make sense of anything anyone says, my OH has to translate for me which I often find embarrassing :o ;) :o

I didn't know what it was and thought it was dementia and I was only in my mid 30's and it was only 2 years ago (40 now) that I realised what it was through talking to a friend who had fibro, in fact it was that friend who told me to speak to GP about fibro.

I've gone from being a multi-tasking energetic person to becoming like a sloth, the only thing missing is the tree LOL

Got to laugh in order to get through it and hopefully if you get back on track with your relaxation regime it will help to alleviate some of your fears. If it becomes really bothersome have a chat with your GP about it so together you can decide what it is and what to do :)

Huge calming lavender fluffies on route to you

:) xxxsianxxx :)

Guess what!!

Writing on here I forgot I had a bath running........... good job there's an overflow on the bath :D

LOLOLOL

Saskia profile image
Saskia in reply to

LOl…! Made me laugh, Zeb. Bless you! Hugs, Saskia. XX

XX

in reply to Saskia

That's not the best bit..............

................. I get all my stuff together and just about to get on the bath lift when I swished the water as you do and it was stone cold :O the gas had gone off :o

Had to run another bath............ put my timer on the second time though :D

How are you? lavender fluffies for you

:) xxxsianxxx :)

Saskia profile image
Saskia in reply to

Oh dear Sian, that must have been disappointing. Poor you. Thank you for the lavender fluffies. They are much appreciated. Hugs Saskia XX

bluebell10 profile image
bluebell10

im exactly the same,as for passwords i use same almost for most things.i also forget things,stop half way thru conversations,so your not alone,im just getting used to it now it's very frustrating tho isn't it :) x

haribo36 profile image
haribo36

Hi there,I can echoe everything that has been said already Hun.Iam having it bad at mo as my pregabalin dose was changed so I feel super fuzzy headed and not with it lol.I think it's a combo of fibro and meds probably.The irony is that the meds for pain actually make some of our other symptoms worse like Fibrofog! Xxx

You do make me chuckle bluebell xxx

Me and OH are like the blind leading the blind too :D LOL

Lizzyear profile image
Lizzyear

Like all the other people, think this is the dreaded 'fibro fog'.

Not sure if it's the fibro or the meds! But today's ditzy moment goes like this.......

I'm sitting at my desk and as I was taking a sip of my tea, I turned to my husband and said ' are you putting the kettle on for a cuppa?' He just gave me one of those 'are you being serious' looks................it was then that the penny dropped, I was actually drinking this cuppa already!! Everyone in the office just laughed. I always says.....it's all the meds I am on!!

Hope that bought a smile to your face.

Keep positive and try not to stress, sure that makes it worse

Lizzy

in reply to Lizzyear

yep! made me chuckle LOL xx

RIBBONPINK profile image
RIBBONPINK

Hi i go through same the frustration of it,i panic about money,i loose things all the time.i lost money it just turned up unexpectedly.i stutter every now and then it is not a nice feeling.i do banking every day in a set routine.write every thing down and it does help me.you are not alone in thisx

jillylin profile image
jillylin

Hi,

When this first started happening to me I went to my GP because I thought I had developed dementia. Much to my relief she told me it was fibrofog! You will learn to manage it and even see the funny side of it. I find it tends to be worse when I am stressed and/or anxious. Learning to be gentle on yourself when this happens does help.

Hugs

Jillyxx

Saskia profile image
Saskia

Hi Pinot, I am exactly the same and after reading all the replies realise that you and I are definitely not alone. Some of the replies really made me smile as I can identify with so much of what people have described. My OH is used to me talking rubbish. "Whatsitsname" is one of my most frequently used words and when I start using that word in just about every sentence my OH knows he'll be in for a day of guessing what I am trying to say! We just laugh about it but, like so many of you, I do get a bit embarrassed when I am talking to other people and I just cannot find the right word. The other day a lady introduced her friend to me. A couple of minutes later I said "Oh Veronica ……" She said "My name isn't Veronica" I was so surprised and I apologised and said "Oh, I am sorry what is your name then?" She said "It is Rosalind" She did give me bait of an odd look. She must have thought I was just stupid!!!! I certainly felt it!!!! Hugs, Saskia XX

in reply to Saskia

And the chuckle was returned LOL you made me laugh too

:) xxxsianxxx :)

Saskia profile image
Saskia in reply to

Glad I made you chuckle Sian! Good job we have all got a sense of humour. We certainly need it with our affliction! have a lovely evening. Hugs Saskia XXX

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