hello, im new here: Hello, im new here... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,343 members66,394 posts

hello, im new here

lottybear profile image
15 Replies

Hello, im new here, I was diagnosed with fibromyalgia in august but i have had the symptoms for years. Im struggling to cope with the diagnosis. I have anorexia, anxiety and ocd for 12 years. I don't have anyone i can talk to about it. If anyone has any advice i would be really greatfull.

Thank you

Lotty

Written by
lottybear profile image
lottybear
To view profiles and participate in discussions please or .
15 Replies
Lucyhobbit profile image
Lucyhobbit

Welcome Lottybear. I am so sorry to hear of all your problems, but you've found a very good and supportive home here.. We don't always have the answers or a magic wand but we do a nice line in cuddles, hugs and shoulders to cry on - as well as advice, support and madness (virtual trips are a speciality) Everyone experiences fibro differently and different things work for different people, but people are always willing to share what works for them (for example I use a wheat-filled heat pack a lot)

I'm quite tired right now, so I'll leave you with some ((((((((extra gentle hugs))))))))) and don't feel you're alone - you've found a good place here.

Hello Lottybear I would also like say welcome.please dont think that I am being rude not saying more but brain not working too well at the moment hugs Sue

Mdaisy profile image
Mdaisy

Welcome Lotty to our FibroAction community

Here you will find many lovely members who will share their experiences with you including myself about Fibro. You can also find up-to-date evidence based information at our website fibroaction.org.

Please feel free to browse the website at your leisure and if you need to contact us please do so, info@fibroaction.org.

You'll find plenty of people here to talk to and members say they find it a very supportive site with a good atmosphere, which is nice to hear. The community works well as we all support each other the best we can.

You also mention Anxiety, OCD & Anorexia. For more support you amy wish to join other HealthUnlocked communities like;

healthunlocked.com/anxietys...

healthunlocked.com/ocduk

healthunlocked.com/anorexia...

These may be of help, please do take you time to look around the other communities as you may find others that you can join too

Meanwhile, please grab a cuppa and enjoy talking here in our community

Best Wishes

Emma :)

FibroAction Administrator

TheAuthor profile image
TheAuthor

Hi and welcome lottybear.

I hope that you are feeling well today? I find the site really useful and very user friendly so hopefully you will find the answers that you are looking for. There are lots of lovely people who are always willing to try and help online. You take care and keep in touch.

All my hopes and dreams for you.

Ken

Ginsing profile image
Ginsing

Hi Lotty a Happy New Year and welcome from me, so glad you have found us all - we are a great group who look after each other and there is always someone to talk to - for those moments when you need someone who understands what you are faced with. It is really hard coming to terms with Fibro and how it affects our every day life, just remember we all stand in the same boat and understand where you are coming from - need a chat let me know xxxgins

agtf1 profile image
agtf1

Hi Lotty and welcome. I was diagnosed about 2 years ago and it is very difficult to come to terms with this condition and accept the changes to your life. I found that the pain clinic were very helpful in recommending coping strategies, also cognative (spelling?) behaviour therapy may be helpful - ask your GP about both. Unfortunately we seem to have to push to get any help, but don't give up because there is help out there and help here online. It's also helpful to share information on Fibro with your friends and family, to help them to understand what you are going through, so that they can help and support you.

I hope this is of some help xxx

crop profile image
crop

Hello and welcome. This is a lovely site xx

moonstonebright profile image
moonstonebright

Hi Lotty, I am sure you'll find this site helpful, I certainly do. There are so many things I could tell you about but you'll find lots of information on here to help you. The main one for me is the chronic pain group that my doctor referred me to. I did a short course on chronic pain which was so useful and also was referred to the chronic pain team. I see the nurse on a fairly regular basis who has helped me by advising on different pain relief medications plus tens machines etc all of which has been really helpful. I know that this service isn't available everywhere, maybe ask your doctor or google it. Reading other peoples posts on here has helped me lots as there is always someone who understands exactly what I'm going through. I'm sure you'll make some friends and you can then help each other. I'm not on here as much as I'd like to be but if you'd like to talk to me anytime I'm more than happy to do that. Best Wishes

April x

mistymeana profile image
mistymeana

Hi Lotty, sorry you've had cause to find your way here - wonderful though the support is, I think we'd all be happy not to need it. You're by no means alone in being knocked sideways by your diagnosis. I went into complete meltdown when I was first diagnosed and I'm sure many of my lovely fibro friends felt the same. I'd just like to say give yourself time and please don't beat yourself up for how you're feeling. There's so much support here and there's guaranteed to be someone who's feeling or has felt exactly as you do. It sounds to me as if you could do with a little formal support to help you come to terms with life at the moment. It might be worth contacting your local Wellbeing team if you have one as they can help you find coping strategies which might also help your anorexia etc. Also, if you struggle with everyday activities, ask your GP for a referral to occupational health. I went along rather reluctantly and found someone who completely understood what I was going through and helped me enormously, not only with physical tasks but with pacing myself and coming to terms with the diagnosis mentally and emotionally. I swear I'd probably have been locked up by now if it hadn't been for the OC team! It does get easier to cope with I promise x

bourne profile image
bourne

hello my fibro friend i was diagnosed in September iv only just started to tell my work colleges, you are right the hardiest thing is accepting your diagnosed illness and learning to live with it. you have found a great site here , this site has help me lots im sure you will benefit from this site good luck for the future

Fibrofoggiest profile image
Fibrofoggiest

Hi lotty, welcome to our little bit of loveliness in-spite of Fibro.

I think this is one of the very best places to come for friendship, support and knowledge as many others have already said. We also try to have a bit of fun here and there, to take ones mind off pain and what we are going through. We are all ready to support you in what ever way we can, and I certainly understand all of your illnesses having experienced them myself.

Take care and keep posting :-)

Foggy x

Cookie72 profile image
Cookie72

Hi there loftybear welcome to our loving listening laughter fibro club, it a great site to be on, we are all friendly and have shoulders for you to cry upon, we are all in the same boat so can fully understand how you are feeling, look forward to reading your posts...gentle hugs to you...Dee xx

jillylin profile image
jillylin

Hi,

Belated welcome. You have found a wonderful place. I can empathise with everything you have having similar issues myself.

Gentle hugs

Jillyxx

lottybear profile image
lottybear

Hello, thank you for all the lovely replies. everyone is very friendly. im newly diagnosed so still learning about fibromyalgia, but i am very grateful for people replying.

hope everyone is ok

lotty

Weelamb profile image
Weelamb

Hi hi , feel free to ask us anything, we're all in the same boat!

You may also like...

Hello im New to the site

other problems so i decided to join here to be able to talk about it with other sufferes I do keep...

hello, im new to fibroaction

hello everyone, I was told I have fibromyalgia on Friday, I have had S.L.E (lupus) since 2005 and...

Hello I’m new to here

Hello I have just joined this group, hoping to get to know other people with Fibromyalgia And other...

Hi, im new here

Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment...

Hello I am new here :-)

Hello I am new on here, I am 49 years old, married with children and a dog. I was diagnosed with...