Sorry if I'm in the wrong place? Been... - Fibromyalgia Acti...

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Sorry if I'm in the wrong place? Been told today I have CFS

Gymbabe profile image
4 Replies

Been ill for 2 years and they were looking down the MS route. I asked about CFS 12 months ago and they said no but today they say yes, and it is being made worse by me having mixed conective tissue disease.

Not sure what to think or where to look. Any ideas

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Gymbabe profile image
Gymbabe
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4 Replies
haribo36 profile image
haribo36

Good afternoon gym babe and welcome to this lovely site full of people who are very kind,caring and supportive of one another.You are very welcome here as the symptoms of fibro and m.e overlap and are very similar.How much(if any)info have you been given about your condition and have you been prescribed any meds yet to try?xxx

jillylin profile image
jillylin

Hello and welcome,

you have landed on a great site where you will find everyone welcoming and supportive. CFS and Fibrimyalgia share so many issues you will find. And CFS and Fibro seem to go hand in hand with other issues like Hypermobility syndrome.

Grab a cuppa and make yourself at home.

Hugs

Jillyxx

spiro profile image
spiro

Come on in Gymbabe, you're in the right place. They told me I had "chronic pain with fatigue" to begin with but now the pain clinic have confirmed its fibro. They all overlap. Anyway, as the others said, there's loads of relevant info to be found here.

Gymbabe profile image
Gymbabe

Thank you all for the warm welcome.

Nuero did not give me any information, I asked about medication and he said keep on as you are. I take Pregablin and Tregatol for nerve pain, plus medication for my bladder and CTD and Raynards. He said he would refer me for CBT, took 7 month wait when I had it for depression. Not even sure when I need to go back to hospital, nurse came in and rushed me out! Must have gone over my allotted time, but clinic was already running 30mins late.

Do you think I should go see my Gp now I have a Dx?

Found a local support group and have emailed them for meeting info.

Thanks again

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