Theres always somat wrong never a god dam day off !!!!

[Donna17]

My knees keep buckling my legs feel so so weak like jelly all the time , I live in my bedroom , fed up with that , I only go across landing to loo n im out o puff like I've run to shop im so fed up

[Ginsing]

Hi Donna can you not get down stairs for a change you could stay down for a bit might help you feel differently When did you last see your GP getting breathless in such a short difference is not good - can he not help.

No wonder you are fed up I would be too at least I get down stairs and up again at night.

I hope the site keeps you smiling.

xgins

[pip_r]

Hi Donna,

Sorry to hear you're having such a rubbish time. I spend most of my time in the lounge and it does drive me completely nuts at times. Do you have things to occupy part of the day? I know it's not like having a life particularly, but I'm in a routine of watching a bit of TV, listening to music if I can't concentrate on the TV and using my iPad to check email, go on the Internet and, of course, visiting and posting 'funnies' on the FibroAction site.

It doesn't stop the pain and other uncomfortable and awful symptoms we have, but it gets me through the day. The days I feel really down, I'll either email a friend to get all the negative thoughts out of my head (with a note to say, no need to reply, I just need to get this out) or if I'm up to it, see if I can call someone just to distract myself from feeling down.

I realise my strategies won't work for everyone, but I hope it helps to see that possible ways to get through the day. Gins is right too. Maybe see the dr if you are getting out of breath so quickly.

Pip xx

[Donna17 in reply to pip_r]

I have severe ibs and lack of bladder control so that's why I stay in my room I i can't even go out , good job fir games on my I pad lol n tbh my doctors an asehole xx

[pip_r in reply to Donna17]

That's not good re your doctor, though from this site it seems too many people have rubbish doctors. I'm lucky I have a good one.

I see why you have to stay in your room and certainly appreciate the problems of IBS and irritable bladder. No wonder you're fed up. I hope some of the humerous posts on here give you a laugh.

I'm glad you have an iPad - a bit of a lifeline for sure!

Pip xx

[Hidden in reply to Donna17]

Hi there

Have you had any investigations of your bladder?

I went through this earlier this year because I was so sick and tired of constantly needing to pee.

If I went out somewhere the first thing I had to do was find out where the toilets were.

When I had a social life people, even strangers were commenting about the amount of times I went for a pee. It was so embarrassing.

My GP referred me to the Urology Clinic, and in June I saw one of the consultants at the hospital.

He decided to put me on some medication to help with the constant urge to pee and it works a treat.

I now only go a couple of times per day (and in the night!) instead of going pretty much every hour or sometimes more, but still feeling the need to wee when I got off the toilet.

It took a few appointments to get there, but I did in the end.

Is this something your GP would be prepared to help you with?

If not, change your doctor or surgery. Easier said than done I know. But sometimes we have to keep nagging our GP's to help us.

I hope this may help in some small way.

Hugs

Coz xx

[Donna17]

Thanks im gonna try see a different dr , I had a cystoscopy yrs ago but atm im so bad I had to pee on the kitchen floor coz i couldnt make it to looor I can just have gone n be walkin back to bed n pee just comes out x

[hamble99b in reply to Donna17]

have you had an assessment by the social services? they might put in a stairlift, provide pads and at least offer you a commode.

regards,

sandra.