whatdoes anyone else think? - Fibromyalgia Acti...

Fibromyalgia Action UK

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whatdoes anyone else think?

anbuma profile image
52 Replies

I have probably asked this already and had replies but i cannot recall.my weight has increased by about 2 stone and it IS all abdominal and I still cant see how it can be bloating-not at that amount.and considering my dr only first mentioned bloating a couple of months ago when suffered for over 2 years.

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anbuma profile image
anbuma
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52 Replies
di-inpain profile image
di-inpain

Hi. I have the same problem. I used to be size12/14 & over the last 18 months my weight has ballooned & am now having to buy size 18. Mine is my stomache & my boobs. I look like an egg on legs.

anbuma profile image
anbuma in reply to di-inpain

has you GP given you any advice and if anything can be done.

sue32 profile image
sue32 in reply to di-inpain

Me too!!!! My boobs aren't too bad but I look permanently pregnant!! And I'm 56!!! XX

anbuma profile image
anbuma in reply to sue32

hello sue

what does your GP say

sue32 profile image
sue32 in reply to anbuma

She just says 'lose weight'!!! XX If only it were that easy eh?? I think these people who have never had a weight problem don't know or understand the first thing about excess weight!! X

anbuma profile image
anbuma in reply to sue32

don't they realize that you are"normal"size everywhere else and weight gain is all abdominal?? i have told my GP this so many times ever since he said I was obese .got info pack from lupus uk yesterday and it said that drs should not only rely on blood tests but listen to the patient too.drs dont listen these days??maybe I should show that tohim??

kate_penney profile image
kate_penney

Hi I all so have put two stone in weight on. My GP keeps saying lose weight will help you ,so thinking it was me being lazy I joined slimming world, guess what I am sticking to the diet and in a month I have lost get ready for it drum roll please......................two pounds, everyone else one stone etc. My GP says keep up the good work, what good work I said he said losing is better then putting on. But I ask you two pound!

anbuma profile image
anbuma in reply to kate_penney

my rheumy commented that I had gained 11kgs in 7 years and needed to diet.put him right saying it was in 2 years and I couldn't diet cos I don't eat anything-no cakes biscuits snacks puddings and little fried stuff- so how can I i diet.until someone sorts my swollen abdomen out then the weight will never go.

Morwenna profile image
Morwenna

I also put on 2 stone all tummy soft and flabby breasts also they were big enough before :/ aww kate I am thinking of going back to slimming world and it is very hard to lose with this type of flab so you have done well really to lose that :)

Hi

Ive been a size 8 forever. In the last few months I've gone to a size 10, then a 12 now I can hardly fit into a size 14. The problem is it's just around my stomach. I look seven months pregnant. Because I'm petite everywhere else and have learned tricks to hide it, no one will take me seriously. I've got to the point where I won't look in the mirror anymore.

I've seen various doctors who have all said different things.

I'm already seriously depressed and this is dragging me down so much it's unbelievable.

Do any of you feel the same?

After a meal (and not a particularly big one) I'm so uncomfortable I don't know what to do.

Coz x

anbuma profile image
anbuma in reply to

what do the drs tell you.?mine only mentioned bloating after 18 montsh of me suffering.still think it is cyst related.

in reply to anbuma

I've been told it's fat (in which case why isn't it everywhere), I was tested for Ovarian cancer but got the all clear, I've been told mostly that it is my age (I'm 52), and that all women my age get a thickening of the waist. But personally I think going from a 26" waist to a 39" waist is a bit more than that. I've been going through the menopause for about 4/5 years so why suddenly would I put on all that weight in just one place. I've put on well over a stone in weight :((

anbuma profile image
anbuma in reply to

I know mine isn't all fat cos I don't eat "JUNK" FOOD ETC and ive lost weight everywhere else.my waist has gone from 28 to 45"so defo something more.why don't they tell you anyhting anymore.see how i get on with the dr on tuesday.-someone must be able to do somethign

in reply to anbuma

I honestly barely eat hardly anything at all. I don't eat breakfast or lunch and only have a small meal in the evening. How can you cut down on that!? I lurch from one major problem to another which means every time something goes wrong my appetite plunges through the floor and I feel too sick to eat. Also, I don't know about you, but my stomach is solid and hard. If it was fat wouldn't it be soft? Please let me know how you get on tomorrow morning. I've given up on asking my doctor. Good luck x

KimLH profile image
KimLH in reply to anbuma

Junk food in your diet is not the only source of weight gain, I do not eat chips, burgers or other Junk style food, take aways or home cooked, some people think that they eat a healthy diet, but is it a balanced diet??, do you eat bread and or cake, the flour etc.. in them are known to cause medical or health issues like stomach bloating (you dont need to be a coeliac for them to affect you) try cutting wheat products for a week you may be suprised by the results.

I also know of a lot of people that have fruit/veg smoothies, they don't add sugar or anything else and assume that for that reason it is healthy, but ones you cook or blend fresh/frozen fruit you are releasing sugars that can be just as harmful as putting 6+ t/spoons of sugar in your tea/coffee.

I have lost 2 stone in 9 weeks on the slimming world diet, I am surprised as I can do little exercise and thought this would hold me back. I go to the meetings every week for weigh-in and always try to stay for the chat and see how everyone else is doing, getting new ideas for mealtimes etc... and to listen to some confessions from the people that have strayed during the week and given into a small glass of wine, or a mini chocolate bar or three lol, but that's not a bad thing, as long as they count it as syns correctly they will still loose a pound or two, or maybe just maintain last weeks weight. I would advise anyone to give Slimming World a try for at least a month, you never know they may even loose some weight. It is not so much a diet as a healthy eating program that chsnges the way you cook and eat the things you love. gentle (((((HUGS))))) Kim PS. No I am not a slimming world consultant lol xx

anbuma profile image
anbuma in reply to KimLH

i do not eat cakes biscuits puddings,snacks and v little fried food-only that that has to be fried to cook.(financial reasons so stopped buying things like taht 4 years ago)i stopped eating burgers after the horsemeat scandal and fro the last 2 years have been eating more healthily.i rarely eat bread except for the odd slice of toast(wholemeal) and I stopped having wheat cereals fro a week sometime ago and it made no difference.the My DR recorded me as being obese when he measured my BMI andi objected to that because I am only a size12-14 and no way fat pointing out to him that the weight gain was all abdominal and nto thru my diet and until they do something about it,i wont lose weight.i did lose weight a couple of months ago but that was sudden weight loss onm y arms legs and bum.like Coz1 says I only have breakfast,a small meal at lunchtime -normally finished off by my dogs cos I cant eat it all and that's all. my stomach like Coz's is solid and hard and very lumpy ,i do ahve abit of fat and htis is soft.like Coz i said to myrheumy "how can i diet wheni dont eat anythign?"do have a bit of chocolate daily as an energy boost.drs have dismissed my symtpoms over the last 2 years -he once said to me -when I said can something be done about my stomach -his comment wa s plastic surgery??and when I ahd bruising round my eyes eh said wear "make up".ignored a cough ive had for a year

KimLH profile image
KimLH in reply to anbuma

I also only used to have a small breakfast, a light lunch and smallish evening meal, I have since been educated in the fact that although they were small portion's they were made up of the wrong food, I hardly ever had bread but did at pastry (wheat content in that) maybe look at the slimming world website and follow the diet for a week or two before you dismiss this a rubbish, I was only trying to help, you seem so negative that the problems are diet related and your positivity that it relates to health which your Dr seems to dismiss is quite worrying, maybe if you tried various eating plans for a week or two each, keep a food diary so that you can show your Dr what you have been doing and any bad/good results from that plan he may have a little more to work on and agree to do some tests and hopefully help you to reach a solution that you are happy with. xxx

ladytelita profile image
ladytelita in reply to anbuma

That sucks anbuma. I've had a cough with phlegm for about 10 years now. The only thing they ever do is a chest x-ray which always comes back clear. Yet I get repeated infections and still I cough, especially when I laugh!

Do you have asthma? Just curious as one gp tried to blame it on my asthma. They kinda ignore it now since I'm clearly not dead, so it's isn't serious, lol.

The stomach thing truly sucks. I fully sympathise. Mine seems to have stopped growing for now, oddly with the upping of food intake (guess I really wasn't eating enough). With so many allergies and food issues in my family I'm very careful about what I eat, and drink so much water now. Actually that's a very odd thing. I find I need to drink way more than I used to. Just wondered if that might be something to consider as a possible sign of a problem?

P.

anbuma profile image
anbuma in reply to ladytelita

mine has got bigger the last couple of weeks-could it be somethign to do with having gallbladder out?i do drink more water (to take meds with)no fizzy drinks and coffee just now and again i dont htink i have asthma,my dr did give me an inhaler last year btu I couldn't work it..told him that but he said no more.my boobs alsofeel tender and sore now.

Glenys profile image
Glenys in reply to ladytelita

Hi Ladytelita. I had a chronic cough at night for many years, which kept me awake, and docs all thought it was asthma until I found an article on GERD. Stomach acid was spilling up into my oesophagus (because of the muscle relaxant effect of the Amitriptyline I was taking) and irritating the throat and around the chest area. A couple of weeks of Lansoprazole, and I was much better.

Hubby had a cough with phlem everytime he had anything to eat, and was always "clogged up" after icecream. He is now on Omeprazole, as he started to get indigestion bad in the evenings. The cough, and bad breath goes when he takes it regularly, but on the times when he has tried to drop the dose I can always tell because the cough comes back, and urge him to take them again (that men for you...).

Also, My chiropractor told me that if the body doesn't get enough to drink on a regular basis it actually stops "asking" for fluid by suppressing the thirst reflex, after all what's the point of asking for liquid if it is going to be ignored. He followed on to say that once you start drinking regular again your body starts letting you know when it is thirsty again! Magic! I wonder if that helps?

XHuggles G

ladytelita profile image
ladytelita in reply to Glenys

Hey Glenys, that was a suprisingly accurate answer! I was on Omeprazole for a couple of weeks for acid problems and it made a big difference. I haven't had it since and the acid came back of course.

I never used to drink very much so being thirsty all the time now also makes sense but it does seem a little over the top, like it's making up for lost time.

P.

WeatherfreeK3070 profile image
WeatherfreeK3070 in reply to

I am the same, when I first started with fibro I weighed 63kg, within 6months I had gained 9kg I now weigh 74kg, all around my middle, after eating a normal sized meal I can't move, can't bend down, can't sit comfortably, my stomach seems to push into my chest and makes me short of breath.traceyx

anbuma profile image
anbuma in reply to WeatherfreeK3070

Hi tracey,iahve had pressure on my ribs(which protrude on my left side)and its worse when I eat or lie down on that side to sleep and get heartburny type pain.

anbuma profile image
anbuma in reply to

I feel the same-not depressed btu very low.i haven't gone out without a coat on all summer even on a hot day because of it and now its even more swollen.how do you hide it?itold the dr I saw today that I couldn't wear my jeans /trousers over my stomach and my tops ride up over it.when is it goingto stop?at least today she confirmed my glands were up-another med to take -and she said see how it goes.its always so hard to get an appt with my gp so if the locums are good then I will see them.a fresh pair of ears somwetimes helps

Ermintrude75 profile image
Ermintrude75

Can I ask what medication your on? Ive put on weight when I was on amitriptaline and gabapentin. When I came off the gabapentin Ive lost the weight.

Is your weight gain due to medication?

anbuma profile image
anbuma in reply to Ermintrude75

no doctor has ever said any meds will make me gain weight buti did come off amitriptaline cos thought I was gaining weight from them.

Ermintrude75 profile image
Ermintrude75 in reply to anbuma

The doctors never tell you anything like that but if you read the patient info leaflet it usually says in there

bbstport profile image
bbstport in reply to Ermintrude75

i am also on gabapentin and amitryptaline and other meds as well but i have put on 10lbs in a year and i feel awfull now no clothes will fit me - i dont look in the mirror and i hate it - i have been a size 10 for ages but now i need a size 12 - event my pj s are too tight x

di-inpain profile image
di-inpain

I am on Amytriptalin. I haven't bothered going to GP as it will be a combination of meds, retiring from work & stopping smoking. I have just bought a juicer & am going to try to eat more healthily.

ladytelita profile image
ladytelita

I put on weight massively before I was diagnosed. It was one of the things that drove me to the gp in the first place (along with all the aching etc). If I had been over-eating, fine, but I really wasn't. I was seriously dieting, eating less and less til it was making me ill itself. I was highly active (ten mile walks several times a week, high level rider training for 4 hours one day a week and swimming). Despite all I did it was still going on. Didn't make sense, then the gp told me to eat less and exercise and I almost exploded all over her. Thankfully my mother was present and I contained myself although I used some strong language before leaving. She turned out to be so totally wrong when they found the infection within the week. I know I've said about her before, but it bears repeating, gp's make mistakes.

Naturally I now eat a little more sensibly and more than I did then but of course the weight isn't going away at all. It's all on my belly, which is wierd for my age, and I don't like it! I just know any pills are going to make it worse too. Why can't they come up with pain killers that make you lose weight! How popular would they be. :D

P.

KimLH profile image
KimLH in reply to ladytelita

No need to eat less just eat a balanced healthy diet x

chellshock profile image
chellshock

I have the same problem all round my stomach. Look like I'm pregnant, it is just silly.

Morwenna profile image
Morwenna

ohhhhhhhhh @ Ermintrude75 on both of those

kate_penney profile image
kate_penney

thanks for the reply's mine is all around my stomach too, I am on the change too, I have just come off the above tablets about two months ago still have not lost weight. Why do doctors always say "well your weight don't help",I know someone who as just been told she as fibro and she only a size 10.I would put my hands up if I sat all-day stuffing my face but I don't. My husband does the shopping because I cant because of this horrible illness and he don't buy junk, so there is lots of fruit and veg in our house, I must eat at lease 8 portions of fruit and veg a day. If anyone as any tips please let me know. I get so depress over this going to Evans to buy my clothes are not good, I think its why I don't go out much as well I am seeing a head doctor at moment. Anyway I have taken up enough of your time thanks for reading this.xx

Sarah-Jane profile image
Sarah-Jane in reply to kate_penney

Be careful, some fruit is high in calories, some in sugar which converts too. Weight watchers, slimming world, rosemary Connelly are all good guides.

pip_r profile image
pip_r

Hi,

I have put a lot of weight on (again for me it's mostly around the tummy area) and I thought I was eating fairly well. However, I've been doing weight watchers (online - I can't go to meetings - not my thing) and while I've continued to eat the same food, I have realised that in order to maintain or lose weight I have to reduce my portions big time. It's amazing how many points a big bowl of cornflakes is, and I thought that wasn't too bad to eat.

As I can't do any exercise, weight loss has to be by food reduction alone. I have learned a lot about how just a few naughty/extra things mean I either don't lose or I actually put on weight. I've been doing this since May and I aim to either hit or be just below my daily point limit every day. If you don't eat enough, this doesn't mean you lose more (as I found out). So, since may I have lost 27 1/2 pounds (1/2lb off 2 stone :) ). It's coming off slowly, which is the best way to do it for your body.

I do feel so much better, eg. I can bend to put my socks on easier. I'm making myself eat more fruit and veg (0 points) to fill me up and, given my current daily limit is 31 points, find it much easier to refuse the slice of choc cake which is 13 points. It's made me much more aware of what to eat and how much to eat.

Sorry I'm repeating myself now. I'm not saying it's easy, or that this would work for everyone, but it is working for me so far :) It's not a miracle cure for fibromyalgia (as so many people say... arghh..!), but it means I don't exacerbate other issues, eg. osteoarthritis in my hips.

Again, this is simply to say what I'm doing to lose weight. It's hard, but it's working :)

Pip xx

anbuma profile image
anbuma

what if its not due to diet?

KimLH profile image
KimLH

Hi Pip I also ballooned after I was diagnosed, the fact that I was less mobile and I gave up smoking I also have an under active thyroid (may be worth asking for a check if you not had one) I just got bigger and bigger, I tried all sorts of diets, some left me starving others were bland etc etc.. so I gave up and accepted that I was going to fat for the rest of my life, then the worst happened my brother 7 years my senior passed away, he had a heart attack, he ate healthy food, didnt drink or smoke and walked etc.. regularly.

I must say this was a HUGE kick up the bum for me, I wanted to be around to watch my g/kids group and have kids of their own, my daughter-in-law had just given me my 8th g/child (a girl) and was attending slimming world to shift her baby bump, as she had done 2 years earlier after giving me a g/son, she suggested I went along with her, so I did this was probably one of the only diets I had not tried over the years, after nine weeks of attended the group I have lost 2 stone...YES 2 STONE I am over the moon, The best thing about slimming world is that you can eat what you want, in fact I eat more than I did before, this diet educates you on healthy eating, I still have my pudding after dinner but they are healthy ones with just a little naughtiness in them.

I would recommend Slimming world to anyone that needs to loose weight without a punishing exercise plan. I have been to 2 different meeting (one was on my holidays so went as a visitor because I didnt want to miss weigh-in so early in my weight loss program, I won slimmer of the week and was given my prize of a bag of fruit & veg and a couple of little treats, I tried to refuse it as I felt it should go to a group member there, only to be met with cry's of "you are a member of slimming, it does not matter where you go to be weighed etc... we are all part of the same Support network" and that sum's it up for me.

Look up o the internet or purchase the slimming world magazine available in most shop/supermarkets, you ail find a week's eating plan in there give it a go for a week, you will be surprised at the results, I hope you and any other's that read this find it of some use xx gentle (((((HUGS))))) Kim

Matrix profile image
Matrix

Hi ,I'm right there with you I had 3children and stayed a size 8 then 12years ago it started piling on and I promise you I don't et much not enough to gain stones .I suffer with lots of Heath issues not just fibro ME which makes it hard to move around the house never mind excersise .x

Riles-17 profile image
Riles-17

OMG yes amitrptilyne I also have put two stone on i was always a 10 on bottom and 12 on top I have now ballooned to 14 on bottom and 16 on top. The side affects of amitriplilyne is breast enlargement. What a joke as my boobs are massive. I watched my weight just go up nod up until it reached its peak. Mind you I am going through premature menopause so,hormones have something to do with it. I take hormones and i am sure they have put weight on me.

Fibrofoggiest profile image
Fibrofoggiest

Anbuma, you have raised this question previously, you have spoken with your doctor about this and if my memory serves me right, he has assured you that it is not linked ovarian cancer or any other such thing? I'm afraid I am puzzled why you keep coming and asking for advice and people respond, but you still are convinced that there is something majorly wrong. I pray to God that this is not the situation, but if you keep getting different advice time and time again, because what has affected other people isn't necessarily what is the answer for you.

Yet again I find myself saying to try to take on board all the answers the medics have given you instead of trying to convince yourself that the worse case scenario is what you have, though if you are not going to take the doctor's advice, then maybe asking him about it would be futile as you dismiss his advice.

Foggy x

anbuma profile image
anbuma

sorry foggy I disagree with some of your comments.i dont think i am dismissing his advice. he has on some occasions dismissed what I have told him of hasn't told me what bloods he is testing for.it wa s18months after I first went to him with stomach probs andhe said things like "do oyu want palastic surgery??" or "icant feel anything" "wear make up".none of these exactly give reassurance that nothing was wrong.

,now I have had op and htye ddint find anything else ,just wanted answers that the docs never gave and the others here havethe same experiences as me.

Fibrofoggiest profile image
Fibrofoggiest in reply to anbuma

I take that on board anbuma, maybe you really do then need to change to a doctor who has a much better understanding of your condition. It does sound a bit like he's not taking you seriously. Asking questions like do you want plastic surgery and the other would make me cross and i wouldn't want to be his patient any more ! I didn't mean to come across as harsh, but on re-reading, I apologise if I did. I hope you can get a doctor to help very soon

Foggy x

Sarah-Jane profile image
Sarah-Jane

Hi, I have put on so much weight I had to change the size of my wheelchair and went up two sizes. I was already too heavy but doing s something about it. I was getting to the third floor fast without being out of breath when my knees complained followed by bursitis. However this did lead to my diagnosis. One positive. But I am on Amitriptyline and Lyrica (Gabapalin) and I think both are connected to weight gain. Personally I think I put on weight because I was mourning the loss of freedom to go where I wanted, when I wanted. I'd got myself a dog to get fit with but couldn't walk her for months. I got a mobility scooter and she learned to run alongside. Depression is a big cause for over eating. I've done all the diets and could do it again, but you have to really be ready to change your life style. No biscuits with tea, crisps with a drink, no chocolate biscuit either. An apple has calories, raisins are the worst, grapes too, all high in sugar.

The diet that surprised me (which I can't recall but not WW) said don't mix carbohydrates with protein. I lost a fair bit on that one but ought to look it up.

If you think you have a medical reason, ask for a second opinion.

Good luck.

anbuma profile image
anbuma

hello Sarah Jane.are you new here?if you aren't then you would have read my posts.

as ive said I don't eat cakes biscuits snacks puddings v little fried food and only fruit I eat are bananas.and i am not depressed .I have 2 dogs that are walked twice a day so I get a good amount of exercise.my weight gain is all abdominal as ive always said -and ive cut out wheat for 2 weeks and made no difference.my stomach is just increasing daily and theres nothing can be done about it.??had swollen stomach fro 2 years and got no answers then he said about 2 montsh ago -its bloating.

To Foggy

There is no way I am able to change practices. .I have already changed surgeries once before cos the dr at teh first surgery was just rude and ha dno bedside manner.i do see otehr drs in the practice if I like them.some are a complete waste of space.

sue32 profile image
sue32

My stomach is huge!! I can't remember when I first became really aware of it, but it's so noticeable and awkward. I would probably be a size 18 if I didn't have it, but I'm having to buy size 30 clothes just to cover my tum!! I eat a low carb diet; no starchy carbs, bread, pasta, rice or potatoes, only 2 pieces of fruit a day, plenty of protein and veg, yet I still can't lose the weight. I'm also unable to exercise so my portion sizes have to be quite small. I drink plenty of fluid - no alcohol, but it won't shift. I mentioned it to my GP but she said nothing can be done until my BMI is within acceptable levels!! Fat chance. My diabetologist did say that injecting into the stomach can cause a hardening of the area and also my diabetes medication will make me gain weight. He never comments on my weight or tells me I need to lose some!! I just feel like a beached whale most of the time!! XXXXXX

anbuma profile image
anbuma

mine has been a problem for just over 2 years. know mines not down to diet-the only real thing I ate regularly was wheat cereal and I stopped that fro 2 weeks but made no difference.i ve stopped it again this week but my stomach is getting bigger.where does it stop?i am a normal size 12(14)-and am 45" around my middle-had a disagreement with my dr cos he said I was obese based on BMI.said "how can you say that when you know it is all abdominal?" and told the rheumatologist the same when he said I need to lose weight as you've gained 11kgs".i said to him "the only way your going to get that is to sort out my stomach-and I told him everything I don't eat"fell on deaf ears/.

in reply to anbuma

What meds are you taking for Fibromyalgia?

anbuma profile image
anbuma

imipramine and paracetemol.also take nifedipine,omeprazole and 3 others but cant remember what they are right now.-

panther237 profile image
panther237

Hi I was exactly the same, I have been on slimming world for 12 months now and already lost nearly 5 stone, I struggled with my weight I discovered I had a vitamin D deficiency and the doctor put me on medication, it would be worth it for anyone suffering with Fibro to get a vit d test as this can affect your weight. Also if you have omega 3 in your diet regular then this will help with weight loss, if your on a healthy diet. Hope this helps gentle hugs xx

basketcase54 profile image
basketcase54

WEIGHT GAIN thats me as well all round middle i want to stick a pin in me so i go down slowly oh that would be lovely my weight is up and down i was 13 st 4lbs then within 12 mths i had dropped to 11st 3 lbs no idea why now im gaining the weight AGAIN dont know why but within 9mths ive gone up2 13st 6lbs i cant bend cant sit comfortableymy BRA is digging into me leaving marks my pants wont fasten i used to be a 14 top and 10/12 bottoms now im bordering on 18 top and 14/16 bottoms im only 5ft 2in its sooooooooooooooooooooooooo uncomfortable i feel lik and look like im 6mths preggies and i nearly 56 i hate having to leave the house as feel embarrased

angie x

anbuma profile image
anbuma

hi Angie, to stick a pin in to deflate my stomach would be great if it were possible.i am just 55 and haven't gone out without a coat on all summer cos my stomach is so huge.a couple of years ago I said to my DR I want something done about my stomach(no one had ever mentioned "bloating")his response was "plastic surgery"????it is more swollen now and worse since I had my op.besides not eating cakes etc I have stopped buying (boiled)sweets altho I have to have some chocolate every day.

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