Anyone from Peterborough on here

[Gary23]

Anyone from Peterborough on here, if so just like to know what help or treatment you get? I have Fibro and I am from Peterborough.

[Hidden]

Hi, I'm from Ramsey near Peterborough. I was diagnosed with Fibro last year, since then I've been backwards and forwards to Hinchingbooke Hospital and have had to see a different physio for each bit that hurts lol. I've asked my Doc if I can see a specialist at Addenbrookes who will treat me as a whole person. I'm seeing my Doc this week and I'm hoping he will have sorted something out. Other than that I've been left to get on with it. I hate having this stupid condition, I don't understand it and I don't know why I've got it but I don't let it beat me, it doesn't stop me doing anything, I try to ignore it and I don't take any painkillers unless I really have to as I am so used to the pain now. You are the first bloke I've heard of with Fibro. Do you get better treatment in P'boro?

[Tinamarie]

Hiya,I live near Bourne in Lincolnshire,but go to Peterborough Hospital.I went to a pain management course in the then Edith Cavell Hospital,complete and utter waste of time. Sadly in Feb 2011 I had a stroke whilst having an angioplasty,this has confused things cos FM is giving me the same symptoms of after stroke. I am not getting any help with my FM at all really,my Dr,bless him,doesn't really understand FM,I am 55yrs old and have been having joint pains since I was 4yrs old,I think my Dr use to thnk it was all in my mind! Ironically I was diagnosed by a locum Dr who was 100% FM aware,I do wish she was still at my surgery.I am given Paracetamol for pain cos alot of pain killers upset my stomach,but if I take 6 paracetamol a day for a couple of days,my stomach hurts! so I am mainly without pain killers.I am a great believer in Deep Heat rub and a crepe bandage,tho it does become a problem when you have 1 bandage and 6 joints of the body could do with it!! I really dont think Peterborough or Lincolnshire NHS are aware of FM,or if they are they dont fully understand it.What I would like is for the DLA to recognise us,we need a famous person to highlight our plight,and I am thinking of contacting Fiona Phillips in the Daily Mirror,she has just highlighted the plight of Altzeimers people/carers,so perhaps she would like to get her teeth in to tackling the Government for us.........maybe we should all write to her.Anyway I wish you all the best and take care.Tina

[Gary23]

Hi Sammy & Tina, thanks for your reply’s, well it would seem that we all get the same sort of help “none.” Sammy I would be interested in what treatment you get from Addenbrookes if any, my GP does his best but I always come out his surgery and just feel like I want to scream. Tina you have had the Tennis Ball Treatment at pain management clinic have you, I went on a pain management course at Edith Cavell and have to agree what a waste of time. I have lost my job and had my life ripped out of me with this dam Fibro, if it was not for my wife I am not sure if I would cope. I take Amitriptyline supposed to make me sleep, Gabapentin to help with the pain, Tramadol painkillers, if your medication is upsetting your stomach ask your doctor about Omeprazole they help me. On top of that, lot, I have to take medication for blood pressure and Cholesterol. Tina if you have ago at the Fiona Phillips thing I would be happy to back you, I always thought about trying to start a Fibro group and if we got enough members we could put pressure on local NHS to do something for us. It would be nice to keep in touch with you both and hope other people join us good luck to you both.

Gary