Friends !!!

[larissa]

Iwas curious , how many of you have a friend nearby who has fibro ? someone you can have a chat with once in a while ? I have a really good friend ( my move a body friend i call her !) but i do think it might be nice to have a friend who has fibro too ? so , let me know your stories ?

[Ginsing]

Hi Larissa,

I read your blog and sat here at 5,00 in the morning thinling about it. It is now 6.00 I am still pondering do I have a friend with fibro the answer is no I have a couple who I talk to mostly I talk to you lovely guys on here. My daughter has CFS but it is different we do talk obviously but I still have my mummy bear hat on. Do we need a compadre well not really this site is brilliant for venting when times are tough and also for making us think about others in our situation.

Am I missing out on a chat with a mate with the same thing NO I battle on regardless I think we all do.

This site has the added benefit that we all come from different areas with differing symptoms as primery or secondry pains, I am sure others will answer better xgins

[larissa in reply to Ginsing]

Hi ,

I am so grateful to this site ,theres always someone there when you need them and to share experiences with .

I am with you , i dont feel i am missing out but i think the more people you have in your life that understand you and connect with you the better , especially when you have an illness like this one x

[Speedqueen9]

In a way lucky is a weird choice of word as obviously nobody is "lucky" to have fibro but my talk to friend is my eldest brother, how lucky is that? We pick up the phone and rant, or just sit there bawling our eyes out or just generally talk out all the frustrations of a bad day. I have a friend who listens but she doesn't have fibro so although she is very sympathetic and helps me however she can, nothing can beat a family member with the same illness for letting it all out..

soft hugs speedy x

[larissa in reply to Speedqueen9]

Yes , very lucky lol People with the same or similar illness have an enhanced level of understanding even though i wouldn't swap my move a body friend ,for the world ! x

[Hidden]

Hmm well I am like Gins here is my fibro life .... In real life I just do what I can and say nope sorry to what I can't .. As I had fibro before I met my OH and had my son they know if I say I can't do something they just accept it. I have a friend who we meet up once a week for coffee and gossip and unless either of us can't make it we have stuck to that for years and we just set the world to rights have a laugh and talk about family .... Health is off the menu as we both have health issues and we use our coffee and cake time to chat and have a laugh

VG x

[larissa in reply to Hidden]

mmmmm coffee and cake , sounds scrummy !!! I suppose , for me , if i didnt have this site to turn to i would feel a lot more isolated and would long for others to talk with and share and always have coffee and cake lol but i have a wonderful friend and family so i am very blessed x

[cloflow]

i work with someone who has fibro, makes such a difference having someone who understands or sticking up for you when your off sick!!

[larissa in reply to cloflow]

Yeah i bet it does ! Thats good ,no-one quite has the level of understanding as another fibro person ! I work with generally good people , but there has been times when i feel not understood at work and have had to learn to be really assertive when my boss is being pushy about staying on for meetings etc and dosent get it that i cant do too many hours even though i've told her ,( sorry, rant alert !!!! ) Anyway , thats enough moaning lol Good for you ! x

[LinCodd]

Hi I read lots on here and just answers now and again. I don't know whether you would call me lucky but I have five fibro friends. We used to go to a support group that closed, as we all used to chat at meetings we decided to break out on our own. We meet for lunch once a WK different days due to anyone having apps, nothing glam cheap pub meals we change pubs.we are all on benefits so its cheap and cheerful.we all help each other at the moment we have a lovely man that fills our forms in and one of us goes with who ever needs a friend at medicals and stuff. If we aren't up to lunch and cancell the others understand,we all have a moan and a catch up of how we have been,so I suppose we are all lucky we have our fibro friends to support' us all.

[larissa in reply to LinCodd]

Sounds great x

[Mdaisy]

Hi Larissa,

As Lincodd mentions probably the best way to meet other with Fibro is attending a local support group, that is certainly how I have most of my Fibro friends.

On the FibroAction website we have a list of independently run groups in our directory, maybe there is one in your area. Here is the link for you to see if this is an option to meet others living with Fibro near you

fibroaction.org/Pages/Suppo...

Please let us know how you get on

Emma

[larissa in reply to Mdaisy]

thankyou x

[hunnybee]

I don't have any fibro friends no while we're at it I have no friends either side getting ill also there's no support groups near me xxx

[larissa]

Well , all i can say is thank god for this site ! i do hope a support group will start up in your area soon and theres always someone on this site to turn too for support or if you just want to have a bloody good moan or laugh or whatever ! Take Care xx

[Sthandra]

I had a friend nearby who has fibro but when she split with her oh she wanted me to go to court and say that I had seen him beat her children, but as I had never seen him do it I asid no she hasn't spoken to me since, that was about 8 years ago I have tried to contact her since but she just ignores me, I contacted her 3 years ago when my mum passed but still no answer we used to be very close, I think I'll give it up and just chat with my hundreds of friends on here. Sithy

[larissa]

I couldnt live with myself if i had lied about something like that either !

I think having a connection is good ( fibro ) but its no guarantee you will always see eye to eye on everything . it must have been upsetting though , as you were so close but well done you for standing up for your principles x