Brings a whole new meaning to sick to death of...

[tulips123]

I am sick to death of the pain, the emotional rollercoaster is driving me insane. I've had enough. What on earth am I supposed to do with hands I cant use, a body that can barely move, and a brain turned into cotton wool?

That's it really.

[Hidden]

On the positive side you have managed to post on here in a completely lucid way so we understand how you feel ... Today was the lovely sunny day I have been waiting for and I ache all over and my arthritis is playing up .... Why I have no idea the warm weather is supposed to make us. Well me at least feel better ... So have a good rant here and call out your GP if you can't get to the surgery on Monday and ask for help .... I know its sounds silly but I have cut out some pain meds and actually feel better for it... Not well, not pain free, but more manageable pain .

Vg x

[tulips123 in reply to Hidden]

know what you mean. just so fed up. lovely day out there today. mobility is poor, cant use my scooter, my hands are affecting my driving and its not safe to drive, not for me or anyone else. bored witless, physical disability i'm sure is contributing to mushy brain syndrome (my own turn of phrase). my gp is doing all she can, i'm waiting to hear from the consultant. sometimes, with the best will in the world, nothing anyone can do. blue sky/sunshine doesn't always work, when it doesn't it seems to make things feel worse. long cold winter, nice day but i'm still stuck here.

ocd tends to turn me into a perfectionist. it takes me a long time to text, and correct many times 'cause I struggle with the right words/punctuation, but i'm still not satisfied with the end product. gp has recently changed meds, maybe i'll feel better when they start to kick in. my gp said if she had a magic wand she would use it. I'm inclined to believe her! xx

[Hidden in reply to tulips123]

Your GP sounds great ... I too have has to give up driving , my neck doesn't turn right ... Ok I could drive left only but my meds slow my reaction time down so I know I am not safe.....

Fingers crossed your meds kick in soon

VG x

[tulips123 in reply to Hidden]

It sounds like you and I have a lot in common, I used to cope so much better though, lost my sense of humour a few months ago. I am very lucky with my gp. sometimes when I read posts on here it makes me so angry. I tend to the old fashioned idea of doctors/nurses with a vocation, which requires compassion. sadly lacking in far too many cases these days.

Thank you. The support I get on here helps so much. x

[Hidden]

.......A good rant helps too Your among fibro friends, we all understand and sympathize,

Maybe find a hobby that you can do when your stuck indoors... A word puzzle game, they are brill for fighting fibro fog days, I'm training myself to be a juggler seeing as I keep dropping stuff

Be safe, not to beat yourself up about it too much,

Lots of fluffy hugs, xxx

[snowbell]

Know exactly how you feel. Had bad flare up for months. Sometimes nice weather is just ad bad as cold. I find my muscles expand in heat and are just as painful as in winter. Finding a hobby you can do when you are feeling really crappy is a godsend. Luckily for me I have taught myself lots of arty crafty things to do, some for when im okish, then others for the varying levels of mobility below that? Does that make sense!? Anyway, I then have something I can do no matter how crappy I am that day, last resort is reading on my kindle, which I bought when I found it difficult to hold a book and turn pages.

Its not easy, but with a little research, I am sure you could do something similar depending on your own interests. Frustration is a killer, as is boredom, or thinking bout all the things you cant do. Try and find things you can do even when you are at your lowest ebb. Hope that makes some sort of sense and help, bit foggy at mo due to pain!xx

[tulips123 in reply to snowbell]

Really good suggestions, thank you! x

[jillylin]

Gentle hugs

Jillyxx

[tulips123 in reply to jillylin]

Received with thanks, and returned! xx

[pondminstrel]

i know how you feel,and so do all of us on here,i find [as probly all of us can relate to] when im having a good day i overdo it and then the next day i pay for it...i did yesterday...was so tired i went to bed at 10.0clock..woke up at 11.30 the next day.. with a migrain and could hardly move! so took a wafer for migrain{ they work in 10 mins] and pain killers for my body pain..ice pack on my head..god i look ravishing!..7.30 woke up! obviously migrain gone..feeling like iv been run over..hey ho i will never learn!...as i speak im planning on what im going to do tomorrow!...lol xx ,,so i would just say hunny...enjoy the good days and cuddle yourself the bad days...i live on my own so i can do what i want..i realise if you have a husband :[..its not that easy... stay happy do whats good for you...and tell everyone else to take a hike! I AM NOT INCLUDING CHILDREN IN THIS STATEMENT! lol WE always manage to care for them xxxx

[tulips123 in reply to pondminstrel]

Fantastic. Can you tell me a bit more about your migraine cure? Sounds interesting - 10 minutes? Wow!

By all means tell me to mind my own business, but i'm curious re.origins of pondminstrel?

That's how sad my life is! Have to say, people on here are so kind. I do feel better.

Enjoy the rest of the SUNSHINE bank holiday. xx

[pondminstrel]

hi tulips 123..i am now singing tiptoe thru the dam tulips! lol...and of course i dont mind! thats what we are here for to help and more inportantly,to make friends!..the migraine wafers i take are called MAXALT.. they come individualy.they are in a blue plastic box,with three wafers in each container...and they disolve on tongue..or under tongue..you dont need water so ideal if your out and about..i take mine then lie down with my trusty ice pack..i do sleep but they work just the same when your awake...i must stress that they DONT work on regular headaches...my doctor said i was taking to many and asked if the pain went after taking them ..i said yes..he said fine..as they only work for migrain...[think im repeating my self now! pardon!!}..they do leave your throat a bit funny but who cares! lol..your doctor may try and prescribe something similar as MAXALT are expensive..i did try others but they didnt work so dont be fobbed off!...PONDMINSTREL...ahh that was the name of my beautifull greyhound that i rescude from death..he was a top racer ..he ran at bel view etc then of course when they get older they are killed or left to die without food or water!..or tied up and abandoned..sadly after i had had him three years he was attacted and died from his injuries two weeks later.. ..i saw it all and im finding it hard to move on..he was so precious to me.. and im scriking my eyes out as i speak...he was called ASH...and his racing name was PONDMINSTREL..i loved him very much..he had the life of riley with me for three years..but thats no consulation..sorry my heads gone now and i cant spell! lol..he was all black and beautifull..better than any man!..i used to tell him how much i loved him every day...and that if he could french kiss i would never need another man!! lol..xxxxx

[tulips123 in reply to pondminstrel]

That is so sad, i'm sorry to bring sad memory to mind. I do not understand how they can spend years training, and presumably caring for these greyhounds, and then just abandon them! There is a charity not far from where I live, a shop sells donated items and the money is used to save these beautiful animals, I used to call in regularly. Cant get there anymore. It sounds like Ash had a loving, caring home for 3 years when it could have been a very different story. I'm sure you must get some comfort there.

I will talk to my gp re. maxalt. At the moment I use Sumatriptan. They do work, but over a period of a few days migraine comes back a few times. When they go, I'm left feeling like a limp lettuce! I hate all these blasted tablets and medicines. I wouldn't mind if I could take 1 or 2 and then be able to function at a reasonable level.

Here I go again, moan, moan, moan. That doesn't help either! In fact I suspect it makes things worse. I'm going round in circles. Stop it!! My daughter is coming over tomorrow with the family (son-in-law cooking!) so I must go to bed. Take care now. xx

[pondminstrel in reply to tulips123]

you arent moaning! we all have to sound off at times..i think of ash every day,so you dont need to say sorry...i thing that sumatriptan is what he tried to get me to swap to..i think maxalt works so well as it desolves on contact..if you think of heart tablets they work fast and they go under tongue..anyway have a great day tomorrow...speak ..jenny xx

[Gillian45]

You said it all, that's exactly how I feel, I can actually cope with the pain but physiologically I have had it up to here too ............. You made me feel better by actually making me feel I am not totally mad and alone with it all - Take care

[tulips123 in reply to Gillian45]

Struck a cord? Sadly, there seems to be far to many people in similar position. I'm so glad it helped, def. helped me. Wish you well. xx

[lleryb]

Yes I know what you mean it is 12.45 am I cannot sleep, no position is the right one. I read, but I have to get up to do that as I cannot hold a book for long. I write story's short ones, maybe one day I will try and get some published. But right now it takes my mind off the pain for a while. Do not give up fight the good fight there will be times when you feel better. not out of pain just a bit better.