What medication do you find personall... - Fibromyalgia Acti...

Fibromyalgia Action UK

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What medication do you find personally is most helpful in reducing the myriad of Fibromyalgia symptoms?

Mdaisy profile imageMdaisy285 Voters

Please select all that apply:

55 Replies
Mdaisy profile image
Mdaisy

Please Note: Please accept my apologies for posting this poll again, as a member rightly pointed out some drugs names were accidentally placed within the incorrect medication group. As before polls are based on subjective responses however they often prove good starter for discussion

Thanks and apologies again :)

Jude666 profile image
Jude666

Nothing. Still hoping

soozbalooz1970 profile image
soozbalooz1970

Oops sorry, new to posting.

soozbalooz1970 profile image
soozbalooz1970

Is this the right place? Nothing works for me

Mdaisy profile image
Mdaisy in reply to soozbalooz1970

No you're all good it's just as I made a mistake on the last one I needed my comment of explanation to be at the top and you beat me to it ! :)

Firefly1508 profile image
Firefly1508

I dont use ANY of the above as i have to have a clear head to drive and cant loose my licence as i have mobility issues( waiting for a hip replacement) i use 2 topirimate am 2 at lnchtme and 3 at 6 pm.with massage and acupuncture,and the Thecane on the trigger points. To disperse the lactid acid build up,yes it hurts,but afterwards. Feel like a brand new woman 22,50 from Amazon, better than being dependent on meds.AND i sleep like a baby afterwards!!!!!!

Treewade profile image
Treewade in reply to Firefly1508

Trigger points and lactic acid build up is that a cause please explain more thanks treexxxxxx

ChrissJ profile image
ChrissJ in reply to Treewade

It's quite a lot to explain but you really should have a google, it is important for people that suffer from FMS. All the best.

MariLiz profile image
MariLiz

I’ve filled it in again, I don’t think my answers were changed.

MsJangles profile image
MsJangles

None, I have had no change in medications as I was already taking those that would be prescribed for existing conditions.

Wildherb profile image
Wildherb

Plus Naproxyn. Works well for me

justdee profile image
justdee

I’ve tried all, except for the Opioids. Nothing seems to help me

greenpeel1969 profile image
greenpeel1969

Was put on HRT, after 5 yrs of suffering now I’m 90% better. I’d would suggest ladies of a certain age - get yr hormones checked!

headingforretirement profile image
headingforretirement in reply to greenpeel1969

Hi there. My doctor has just suggested I go on HRT to see if it helps as I am a woman of a certain age and have only recently been diagnosed with fibro but I haven't had my hormones checked. Could you tell me more about your experience. I am reluctant to start HRT because I also suffer from chronic migraine and am petrified that HRT might make my migraines worse.

Roselil profile image
Roselil in reply to headingforretirement

There are alternative herbal products instead of HRT. I got through at the time by taking Agnus Castus.

Summers1261 profile image
Summers1261

Cbd

Roselil profile image
Roselil in reply to Summers1261

I have tried the Cannol massage oil, but no great help really. Better with the Magnesium lotion. I have bought some CBD drops, but not tried these yet.

Debbs73 profile image
Debbs73 in reply to Roselil

Hi. Just a word of advice. When taking the c b d oil i would have a hot drink at hand for after u swallow the oil. I took water after my first dose and the taste of the oil is vile. The hot drink seems too help get rid of the vile taste. Hope you don't mind me commenting.

Dorimori profile image
Dorimori in reply to Debbs73

I only used it for a short time, I didn't think it worked for me but I used to have a drink of milk ready, that really works on the vile taste! Try it. 😷🤗

Summers1261 profile image
Summers1261 in reply to Roselil

Hi Roselil.. make sure you buy high quality of cbd as the cheap versions dont tend to work. You'll have to experiment with the dosage too. I vape my cbd which helps me get through the day.

Roselil profile image
Roselil in reply to Roselil

Still have not tried the CBD drops yet.

Pips04 profile image
Pips04

Amitripline, unfortunately is great but it piles the weight on and you feel depressed with the weight gain.

lefraorchard profile image
lefraorchard

To be honest, my fibromyalgia is mainly ignored by doctors, I'm just left to cope and get on with it. I've tried other medications, but didn't like the side affects., so I stick to my Amitriptyline whether it's working well, I don't know. Also, I do have other medical illnesses I'm coping with at the moment. People cannot see fibromyalgia and always say, how well I look!

oncesunny profile image
oncesunny in reply to lefraorchard

You must live in the US too.So hard to find doctors who really listen as they r so busy writing on their iPad than Listening.. I have other medical conditions too which makes life so hard! Good luck to You!

Emmawag profile image
Emmawag

I find aloe Vera and 240 ml a day really helps me

Roselil profile image
Roselil

I take Panadol, which is Paracetemol with caffeine but in liquid form. Also Brufen rub, but when my pain is so terribly severe, then I have found Serrapeptase enzyme a great help. It is natural, from the silkworm. I cannot swallow so have to take out the powder from the capsule and take it in increments during the day. It is not nice, but it is the only thing that works for me, to ease the pain and get some movement back. I have recently found that a Magnesium lotion helps in between the severe flares.

Roselil profile image
Roselil

I have shelved almost all known drugs, as I am just too sensitive and allergic to them.

Nattilydressed profile image
Nattilydressed

I haven't found anything to be very useful, to be honest.

TIDDLYF profile image
TIDDLYF

I find Diclofenac helps most when pain is bad

Roqueterra profile image
Roqueterra

I take Palexia 100mg every 12hours.

Chickapea profile image
Chickapea

Horizant and Nucynta

cmarie profile image
cmarie

I use CBD oil now. It completely relieves my pain along with an anitidepressant.

valerienesbitt91 profile image
valerienesbitt91

all the tablets above I am bad reaction to

lilygill profile image
lilygill

I thought that Pregabalin wasn't helpful, that's until I started on a withdrawal programme. I was very slowly reducing and things were going well. I had reduced by 100mg X 2 daily. Great 200 a day less. So pleased. After a week or so, pain was really awful. I have other illnesses as well as Fibro. I also take other medications including Tramadol. It was agreed that maybe I increased my Pregabalin by 25mg X2 daily. I'm just about managing at that level. Not great, but what is?. I don't think that there is any medication that works totally. I just pray that one day, there's a cure at best, an effective medication would be a good start.

trudym profile image
trudym

It doesn't take the pain away, only takes the edge off unfortunately...😒

Duchessx6 profile image
Duchessx6

I chose Gabapentin because it's the only one that I've had. It has seemed to help though.

Tracey_Everton profile image
Tracey_Everton

I also take meloxicam. But I have osteoarthritis and scheurmanns disease as well, so these tablets are to treat all illnesses

Treewade profile image
Treewade

I use paracetamol cos I'm allergic or have reactions to a lot of the others and hey if paracetamol are still working why move up the medicine chain.

Bjosephine profile image
Bjosephine

there are no meds that can really take away the pain it's finding a combination of everything to ease your pain...

Dorimori profile image
Dorimori

I don't think we will ever be able to get complete pain relief, i am happy with medication that makes it bearable, as I'm sure is every one of us! We are made of strong stuff us fibro warriors.!!! 🤗🤗🤗

AmySholay profile image
AmySholay

Candesartan for reducing pain.

Koko-12 profile image
Koko-12

i have started on Turmeric tablets in last month along with black pepper i do not take any other meds now and my pain has reduced significantly. stiffness is still there but not as significant as before.

Nenagh21 profile image
Nenagh21

I get "Bowen therapy " or "acupuncture ", diffene gel and diffene tablets and neurofen as needed...I also use a foam roller and heat for the aches.. I sleep and rest a lot as I had to give up my job. I have osteoarthritis and other health problems as well..it's a struggle alright..x

kagz profile image
kagz

I take dhyrocodeine 60mg 2 a day and it helps but that's it tried lots of others but just made me woozy I work an have family so need to be, on the ball so to speak

MTB123 profile image
MTB123

Nothing has worked so far. Going to try muscle relaxants next. If the GP will prescribe them

bonnkerzz profile image
bonnkerzz

Also take Lorazepam if required, and Nitrazepam for sleep.

hamble99b profile image
hamble99b

paracetamol

tinyblonde profile image
tinyblonde

A mix of opioids, tricyclics, gabapentin, diclofenac gels, CBD oil, and my stress ball. During the day just the gabapentin, CBD, gel, ibuprofen & stress ball have to make do since I drive to and from work.

Roselil profile image
Roselil

I am trying more natural methods, despite my fibro being so intensely painful, that I can hardly bare to place my feet on the floor. Right now I am taking Turmeric and using a Cannol massage oil. My legs, hips and lower back are unbearably painful. I let you know if there is any help with these. I do take liquid Panadol and an occasional half a diazepam, but rarely.

Have swallowing problems.

rosie-2015 profile image
rosie-2015

I find gabapentin helps me, and solpadol x

Chrisbel profile image
Chrisbel

curcumin, magnesium malate, magnesiun bis glycinate, vitamin d3, vitamin k2, fish oil omega 3, hyaluronic acid, accupuncture, to name but a few.

Sunnydays1 profile image
Sunnydays1

I found zopiclone helped with pain but not so much now as have to take every day and have built up a tolerance to it but can't get off it now due to the severe side effects:-( :-( :-(

Lia18 profile image
Lia18

I find that only pregabalin actually comes near to easing the pain. But I hate the side-effects. I've gained 3 stones that I can't shift and also, my brain is scrambled. I have serious short term memory problems which are really getting me down. Discussed this with my GP last week and she suggested lowering the dose. Hope it helps. :-/

I'm new to this forum and I'm very glad to find it. Thanks for the warm welcome and good wishes to all.

I have diazapam if the nerve pain and cramps get too bad, but I only take them at night, during the day I rarely take anything, if I do I take naproxin

kagz profile image
kagz

I'm on Dihydrocodeine & Pregabalin which work for me,but it's the tiredness tho but no pain 🤷‍♀️