How Do You Feel That Fibromyalgia Has... - Fibromyalgia Acti...
How Do You Feel That Fibromyalgia Has Affected Your Sleep? How Long Do You Sleep & What Is The Quality Of Your Sleep? Multiple Choice Poll
TheAuthor601 VotersPlease select all that apply:
I have throughout most of my adult life been an insomniac and I cannot truthfully say that Fibro has affected my sleep pattern to any noticeable degree. I think it may be a little worse or it could be that as I have got older I notice it a little more? The only tangible aspect of my sleep pattern nowadays is that I never feel refreshed when I wake up.
All my hopes and dreams for everyone
Ken
Mine is so hit and miss often go to sleep and in a few hours can wake up 30 times etc plus tired but can't get to sleep or wake up in middle of the night and awake for hours
I want to genuinely wish you all the best of luck my friend.
I struggle to sleep most nights but then other days I can't wake up especially in the daytime 2/3 hours up not refreshed at all 💤💤
I want to genuinely wish you all the best of luck my friend.
There are days I wake refreshed and days I wake like I've run a marathon
Many times feel worse than i did day before sometimes wish didnt go to sleep
Tired in day wide awake at night
Yep. right there with you 😕
I want to genuinely wish you all the best of luck my friend.
Many bright blessings and thank you for your kind words. I wish for you a peaceful heart, mind and body.
Thank you 
I want to genuinely wish you all the best of luck my friend.
it all depends I can have less than a hour at a time or sometimes I can't come get out of bed. then sometimes I'm on and off sleeping for days on end.
What I would give for a good nights sleep , it affects everything to do with your life .
This is so true cx
I usually end up asleep on my sofa after waiting for the next time I can take my meds. I fall asleep from exhaustion rather than natural sleep. I'm awake now and it's 04.37hrs.
All I can yell is "C**P"!!!!...for years I had Ambien because of this and now Kieser recommends (demands Seniors do not get rx'd because they might fall) TICKS ME OFF!!! (69 y.o.)....
I want to genuinely wish you all the best of luck my friend.
its hard to sleep with pain just lying there and the morning birds start to tweet somtimes i just cant get up these are my worst days in pain wen ive had to use oromorph as painrelief and as for refreshed lol WHATS THAT doesnt exsist in my worldxx
I find that when I don't take my herbal sleeping tablets, I don't have a restful night. However, when I do take them, my sleep is restful and I wake up feeling refreshed. I must emphasise that the tablets are herbal and therefore have no side effects.
Hi there what are these herbal tablets called please 🙂
I want to genuinely wish you all the best of luck my friend.
Can I ask what these are called plz
I never get a restful sleep,xx
More times than not I used to sleep on the sofa but even if it was an hour I would wake up with terrible pain so I found that if I fail asleep while sitting upright on a chair just noding off even for 5-10 mins at a time I would feel a lot better and in less pain. Weird or what?
I can't sleep without Zopiclone. It gives me 4 - 6 hours and I wake up feeling alive if not without pain. When I can't get off to sleep I sit in my armchair and usually go off easily. Like you Helloyou I find it much more comfortable even than bed and feel good mentally when I wake. Breathing is less restricted and I seem able to get into a position where most bits don't hurt.
I want to genuinely wish you all the best of luck my friend.
dont sleep well at night but could sleep all day
I want to genuinely wish you all the best of luck my friend.
I have broken sleep. I wake up with pains and aches, restless legs. I am very irritable with everyone as I am in pain 90% of my day. I have to push myself to get through the day. I lack a sense of humour. Everything is such an effort. I don't really socialise with people if I cant get out of it I do. I cant concentrate anymore. I feel I have aged dreadfully. I am 46-47 in January and I look so much older and haggard for my years. I feel I am spent. 😒.
Mirrors me exactly, I cry a lot due to utter frustration & the impact it has on my 12 yr old as there is just the two of us!
I want to genuinely wish you all the best of luck my friend.
I'm just turned 49 n I feel like I'm an old lady 👵 most days 😩 I stagger to the toilet in the night like a bloody caveman as I can't straighten up, it's ridiculous! I'm so nasty 😷 n irritated with everything and everyone, snapping n being a basic bitch. Hate being like this, could cry 😭 at the slightest things. What kind of life is this? 😢😢
I want to genuinely wish you all the best of luck my friend.
All of the above. My sleep is chaotic and no amount of taming works for more than a day or so especially at the moment. Pain management has a big impact on this. So winter is worse due to the impact the cold has on pain. It is a rare joy to feel any tinge of refreshment from sleep. I rarely make it beyond the first R.E.M. Cycle without waking even if it's to move for pain reduction or pee for the billion-eth time
omg exactly!
Most of the time I could just drop to sleep anywhere I am always exhausted
I bought a fitbit to look at my sleep pattern and found that I'd think I'd slept 6 to 8 hours but I was so restless my fitbit would only, typically, record half the time as sleep. The nights my fitbit said I'd had 6+ hours I'd wake feeling refreshed. Fascinating but also helpful in backing me up in discussion with my GP.
Most nights I don't sleep at all
I want to genuinely wish you all the best of luck my friend.
I only manage a couple of hours a night but I am so tired I try my hardest to not sleep in the day hoping I can sleep better at night but it doesn't happen
Fall into a deep sleep for about 2-3 hours then thats it. x
Its a constant battle i can usually fall asleep but only last 2-3 hours then im awake and aching everywhere . What i wouldnt give for my life back , i feel exhausted, tearful and frustrated i hate everything and everyone , i never go out and feel a total misery. Everything is such an effort im 51 and im struggling to stay in work been watching the clock since before 3am but didnt want to wake everyone in the house up so lay there in pain with my brain in overdrive !
I wake about 4 am then keep waking every hour with pain increasing so eventuallyou it is best to get up
my sleep is interrupted with pain so eventually I give in and get up
I can't recall the last time I actually had a dream as I never quite achieve a deep enough sleep state to be able to dream! Some days having had about 4 hours of broken sleep I wake up feeling worse than what I had been before getting into bed 
I want to genuinely wish you all the best of luck my friend.
In that sleep I wake up god knows how many times
I want to genuinely wish you all the best of luck my friend.
I'm woken up after just a couple of hours with pain. It's frustrating as I've gone from going to the gym 3 times a week to not being able to do much at all. On the days that are "Good" I try to catch up with my chores only to be laid up for days again.
I usually sleep 3-5 hours of intermittent light sleep, if I DO manage any deeper sleep my back seizes up and I wake in agony and unable to move. The only way I manage to function at all is by cat napping in the day.
I used to feel unrefreshed when waking then I had a temp GP who was from America and worked in a Fibro Clinic in the states.
She urged me to have checks for sleep apnea of which It was discovered I had mild apnea,since using the machine I sleep well most of the time and this has made a huge difference helping me to battle with all the other problems that change frequently,as the condition dictates.
I fear lots of people live with sleep apnea alongside Fibromyalgia or ME and never know?
It does pay to have these simple checks!
I agree! I didn't know I had sleep apnoea, til my daughter told me I stopped breathing during the night! Had severe apnoea!!
I want to genuinely wish you all the best of luck my friend.
I want to genuinely wish you all the best of luck my friend.
I very rarely sleep more than an hour and that's good for me .i can't get To sleep tjTs my real problem .
I've had many varying degrees of sleep.
1. I can't sleep
2. I sleep but wake up feeling like I haven't.
3. I sleep for hours and hours - 8-10 hours.
4. When I wake up feeling like I've been hit by a bus.
Currently at no.3
Also a very light sleeper and every time I wake, need to get up for the toilet. I find using ear plugs helps me get a better sleep and would recommend them, particularly if you are struggling to get to sleep. Also in pain when sleeping in certain positions and this is often why I need to get up.
I want to genuinely wish you all the best of luck my friend.
I get the same.... I am physically and mentally exhausted most days, I love my bed and sleeping but fear the waking up part as like you said feels like being hit by a bus EVERY MORNING! 😫 it normally takes me 1-2hrs to get to sleep and I tend to wake up around 4-4:30am most mornings...and of course in pain. Then on and off in sleep as my body clock knows I have to feed my cat at 7am and get up for work. Sometimes the cat will get fed later as I am in so much pain I don't wanna move and I'm exhausted but at same time laying there makes it worse. Argh! I'm generally a light sleeper as always on alert I think lucky if I sleep right through....but even then don't feel refreshed.
I go between some nights getting just a few hours, to then over sleeping maybe getting 12 hours, have tried all sleep lengths, still wake feeling poo!
go to bed ablout nine sore wake up about 2am sweating cant get back to sleep after
I wake up during the night a lot. Sometimes it can be 2 or 3 times an hour. Even when I've had a good night I still wake up tired! I do not sleep during the day at all in the hope that I will have a better nights sleep.
I want to genuinely wish you all the best of luck my friend.
Can fall a sleep fine but wake up a few times trying to get comfortable and always wake up stiff and in pain but always get up because I've got 4 children from the age of 16 months too 15 years so even if I don't want to get up or struggle I still need 2 x
I dnt get no more than 20 min naps at any one time sometimes I go nearly unconscious for days and just sleep all the time
I want to genuinely wish you all the best of luck my friend.
pain wakes me all through never get a whole 4-6 hours without waking a few times
No problems getting to sleepits staying asleep normally get 2/3hrs an that's my lot spend rest of night tossing n turning .been given lots to help relax but nothing works
My sleep is more disturbed than before fibromyalgia. I dream strange dreams that often wake me, or wake to go to the bathroom. Sometimes my aches and pains mean I can't get comfortable enough to sleep. The dreams may be linked to some of the medications I am now taking.
My sleep is at its worst.. very broken an about 4 hours... i cant even remember when was the last time i woke up feeling all refreshed...wake up in pain go to sleep in pain😭
Hi
It has affected my sleep I either can't get off or wake up an hour after then lay awake, some times its the pain or restless legs keeping me awake, or my brain is going ten to the dozen and won't shut down, I don't get up as I think at least my body is resting. I have heard that the less sleep you have the more pain you get so if only they could give us something to sleep we would all feel so much better.
Love & Hugs
I want to genuinely wish you all the best of luck my friend.
I have anxiety attacks now. At night. In bed. My body has anxiety symptoms. I don't actually worry more than usual, but now I get palpitations and tightness and shortness of breath. While on my back. Hard to sleep.
Have you told your GP about these symptoms TeriAngel . They could be quite separate from fibro.
One big vicious circle. If I get to sleep, my body ceases up from lying in one position which then wakes me. I hate having fibromyalgia as it rules my life.
I want to genuinely wish you all the best of luck my friend.
Takes ages to get to sleep, often poor quality sleep
I want to genuinely wish you all the best of luck my friend.
Even though I can sleep 4 to 6 hours it is broken sleep . I will move in my sleep which then causes pain so wakes me up or my body involuntary jerks which wakes me or I can't get my breathe and start coughing . I can usually go back to sleep after a short time and 5 night's out of 7 often sees me on the sofa . sometimes getting up to take pain relief makes me feel wide awake until the meds kick in again . Linda x
I want to genuinely wish you all the best of luck my friend.
At the moment I fees more refreshed when wake up than I did a few yrs ago but rarely sleep for more than3/4 hrs Currently I am waking up at 3 am wide awake...for about an hr or so then sleep again for a few hrs.
Always had trouble getting to sleep...
At the moment I seem to be fibro free. It used to keep me up at night, tossing and turning. But I increased my thyroid NDT by .5 grain, went for a walk in the evening, I take magnesium malate throughout the day and one as I go to bed along with a potassium, valerian and I think 3mg or 3mcg of melatonin, and a small piece of cheese and maybe a banana in the evening. I must say that my fibro disappeared, I now sleep like a log, I use a hot water bottle on my feet which stays warm all night and stops my cold feet and cramps. I do though wake up and want to stay in bed, maybe due to the cold outside and not needing to get up. I don't feel refreshed until an hour after rising and I am very stiff. I have been sleeping well on this regimen for several weeks. My palpitations have nearly completely gone, just the odd one during the day. If I do have to pay the bathroom a visit I go straight back to sleep. Its so great to be pain free at last. I care for my Mum with dementia during the day so I don't get a lot of exercise and have a lot of stress but I still sleep.
Pain wakes me up when I do sleep
I want to genuinely wish you all the best of luck my friend.
I never feel like i have been to sleep always feel like i need to sleep always feel done in like i have been on a run that never ends and the pain never goes away but you just can't stop running
I want to genuinely wish you all the best of luck my friend.
I wake up several times per night. sometimes awake for an hour. Never get quality sleep to repair my body. Has an effect mentally, emotionally and physically.
I want to genuinely wish you all the best of luck my friend.
Hi
Since I was about 12 yrs old I took my self to bed at 9pm and I would spring up at 6:30 -7am. A real morning person.when I was 18 I went at 10 pm that's been my pattern for 20yrs unless I'm ill then I can sleep all day and night.
the last 10yrs my sleep is not refreshing, I still want to do more in the morning but not energised enough.
If for some reason I don't get to bed before 11:30 my cycle is ruined and won't be able to sleep until 2 am. adds or Triggers a flare up of symptoms.
Take good care of yourself
Lydiah
Like most others, it varies from very little to completely zonked.
I do set my alarm now for10hrs sleep unless I have had several nights of little or no sleep, I find the routine wake up time helps. If I need to sleep during the day I just doze sitting on the sofa so I know I won't go into a deep sleep. I find if I lay down or go to bed I'm there for hours, if not right through the night in a sort of hazzy comatosed state and then I take days to properly get back to normal.
I have found after many years, the more I sleep the more I need to, whereas around 10 -12 hrs sleep gets me through the day, mostly.
Needless to say I only work a couple of part time days now.
If I sleep , it is 4/6 hours if I can get off , but it's rare ,and it never before 4 am, but pain stops me getting off to sleep , or lack of sleep stops me getting off to sleep , sleep medication very rarely works , slightest noise wakes me up so never really get a deep sleep ! I think I go through periods of no sleep at all ! I tend now to stay in bed till midday not sleeping but resting then I can at least function for 4 hours a day before fatigue really starts to kick in again but never fully have the energy to do anything constructive! Unless I get really bl**** minded and bite the bullet and like yesterday and cleaned my fish rank now today my legs don't work ! 😞
I want to genuinely wish you all the best of luck my friend.
I never seem to have a good quality of sleep I'm usually up 3 or 4 times then fall asleep in the morning after my breakfast or early afternoon never feel refreshed
I sleep for 4-6 hours most of the time. If I have a flare it is considerably less than that. I never feel refreshed and can wake between 10-30 times during the night. Sometimes I wake up in the small hours and can be awake for hours. At other times I have problems going to sleep. Fatigue for me is as big a problem as pain.
Whether I sleep for 4 hours or 12 hours, I never wake up feeling refreshed, and energised for the day ahead. I assume that, as a result of discomfort and pain during the night, I never have 'deep sleep', waking up at least once every hour or so. I would do just about anything to have a really good sleep!!
I want to genuinely wish you all the best of luck my friend.
I struggle every night with pain trying to get comfortable if on a very rare occasion I sleep well i don't feel refreshed from it. We need to put this on our wish lists zombie mode is all we have been granted with fibromyalgia and all our other medical conditions.😴😴😴😴 Rest up well Helen 🤗
its not good
I know exactly the reason why I came down with the illness, its all to late I cant turn back the clock
Sleep deprivation is hellish to cope with .I feel tearfull out of shear exhaustion
I want to genuinely wish you all the best of luck my friend.
I'm hating my life. The pain the irritability of my legs and arms, I feel like my life is over. When really I should be able to enjoy it.
I want to genuinely wish you all the best of luck my friend.
I hope this poll is used for property research into Fibro.
I can fall asleep on a Saturday afternoon and not wake till a Tuesday evening. I wake feeling battered. Even the soulster of my feet.
That alone is destroying my life and relationships.
I suffer from anxiety which makes it difficult to sleep sometimes but I am developing a fear now because I don't know how many days I might lose if I do go to sleep.
Once asleep in can't be woken so it doesn't matter how important and appointment is if I've fallen asleep the day previous I will miss it.
Also when sleep hits me it is like a knock out blow. I know I have to find somewhere safe straight away because I'm going. I can literally feel lifes energy ebbing from my body.
I've had to leave events and get in a taxi and go straight home or a friends car to sleep if I'm to far from home
Hope all the responses received will help others
thats just like the ALIEN tiredness i described so true pudd xx
My sleeping is erratic, sometimes I can't sleep for pain, a lot of times its my legs. I canot make any sense out of why sometimes sleep evades me & then other times need to sleep longer, could be because due to aches & pains don't feel like I've been to sleep properly. Walking upstairs exhausts me, my immune system is shot, I'm permanently ill and pick up every bug going. It's not a life neither for me or my 12 yr old & I'm coming up to six yrs in Feb 17.
Was sleeping better and waking up feeling refreshed after sleep apnoea dx...now have cpap machine..then L knee replacement, sleep disrupted by pain, and even worse, restless leg, only left one! Now 4 months down the line still not feeling refreshed, still tired. Have stopped all pain relief, tramadol and paracetamol for knee, was on gabapentin for fibro, and on diclofenac for arthritis, only now on seroxat. Gabapentin doped me up, diclofenac has caused reduced kidney function..grrr.
I want to genuinely wish you all the best of luck my friend.
4-6 hours if I'm lucky but never in one stretch, wake up several times in a night. Certainly don't feel refreshed.
I want to genuinely wish you all the best of luck my friend.
My sleep was very poor, I felt like I was in a shallow, half awake state all night. My doctor prescribed me Amitriptyline, and explained that sleep is the body's best healer, and I would feel better after getting proper deep sleep after a while. He was quite right. I'm by no means cured of course, but it helps me manage the symptoms of Fibro enough to function reasonably well,bad flare ups are reduced to about 4 episodes a year. I have had to learn to pace myself, and if that means stopping what I'm doing at the first signs of stiffness/pain, or having an afternoon rest or an early night, then I've found I can get by. I do often wake at about 2am to go to the loo, but can usually go back to sleep afterwards, then OK until about 5.30 am. Any sleep after that is of the "shallow" variety.
I find it hard to get off to sleep and I can waken up during the night but really a hit and a miss, I got the sleep apnoea machine home and I apparently do something 7 times an hour (I can't remember what it is fibro fog ) 😂😂 but some days I feel I haven't slept at all.
I have had Fibro for 26 years and in all that time I have not woken up refreshed. I have rouble falling asleep so take medication to help. Then I struggle to wake up.
I consider myself lucky that taking Amitriptyline has helped my sleep pattern considerably. I now sleep between 6-8 hours a night but I struggle to get up in the morning. I never feel refreshed but better it's than before medication. When I couldn't sleep for more than 2-3 hours.
I want to genuinely wish you all the best of luck my friend.
I had years of no sleep until i collapsed due to exhaustion. I had restless leg syndrome 24hrs a day, i couldnt even sit down to eat a meal.
Since taking ropierole and Amtriptlline things are a lot better. Unfortunately i now have acid reflux. So i could either be awake all night with restless legs though not often now or i could spend the night coughing up flem from the acid that gets breathed in.
Some times i just cant nod off and just lie there with my thoughts racing. at the moment the only thing that will wake me up is needing a wee. If i didnt have to go im sure id sleep all day aswell.
It doesnt matter how long or short a sleep i get i am still ready to go back to bed before i have finished my first cup of tea.
I want to genuinely wish you all the best of luck my friend.
Struggle, body just crashes wen exhausted... Been up hours......
.
Feel like s**t
I want to genuinely wish you all the best of luck my friend.
I rarely get to sleep before 4 am. I have tried all the tricks, warm milky drink, reading, trying to tense my muscles then relax them, medication, having a busy day, anything and everything. If by chance I manage to have more than six hours I try to replicate what I had done that day but it never works. Sometimes I feel I am nodding off so put down the book, take off my glasses, snuggle down, light off, BOOOM! Wide awake. I don't know why.
Some mornings I am so stiff it takes a while to get out of bed, but funnily enough it is after those nights of good sleep. I guess if I am tossing and turning my joints and muscles don't have time to "set" Totally bizarre.
I want to genuinely wish you all the best of luck my friend.
Pain, restless legs, needing the loo, brain not switching off. A combination or all of these symptoms. Every now and again approx once a month I will sleep 10 hours plus finding it hard to get out of bed at all the following day.
I'm lucky if I have 2 hours sleep at night, but I need to be up for 6.45am for girls going to school make there packed lunches jump back into bed and could sleep almost 6hours straight, hear nothing then when I do get up I feel I could go straight back to bed, but if I do, I can't sleep, head bursting in so much pain, I just about had enough. My oh doesn't understand he says I have turned day into night, I'm constantly exhausted, it's getting so boring moaning, I just wish other people ( like g.p etc could understand) x
Meant to say sleeping medication is zopiclone 7.5mg, amatripline 20mg, diazepam 5mg if needed and mirtrazapine 45mg enough to knock out an elephant and still can't sleep, but can sleep 6 hours in morning with morning meds x
I never have a good nights sleep as always wake up every 2 - 4 hours ,never get up feeling refreshed for long have episodes of overwhelming tiredness , weakness aches and pains.
I want to genuinely wish you all the best of luck my friend.
I say it all the time, in fact 10 mins ago lol..I either can't get out of bed & sleep for England or I can't sleep at all. I think I slept more when I was first diagnosed with Fibro but now I sleep a lot less.
Peace, luv n light
Jan x
Most days I wake up but am not well rested. I love the days I feel I've slept enough and feel refreshed. They are very special and happen once or twice a week. I also love when I wake and know God is present. His presence makes it okay that I'm not refreshed. I'm at peace with my lack of sleep because his presence brings peacefulness. It's truly an awesome experience and I treasure it every time.
I want to genuinely wish you all the best of luck my friend.
I've had Fibro since 2009, since then I haven't had one good night's sleep. I don't even have a good chunk of sleep. I cat nap, toss and turn trying to get comfortable which is impossible with RLS that drives me to tears when it's really bad in the small hours. I sit up for a drink of water or to suck a TicTac mint as I feel nauseous, then it's the umpteenth trip to the bathroom! I must stagger miles wandering around at night! Then i go downstairs where the dogs look at me as though I'm bonkers which is how I feel half the time with this new version of my life. I feel stifled anger at what I've become - I was always happy, often called the life and soul, good for a laugh. Also very social, very fit and active, never tiring. My late hubby called me a cyclone, then Fibro hit me! My cyclone days are long gone. I feel exhausted, lazy, idle, antisocial as I only want to be at home where I feel safe. I don't mix well any more, I blag it when I have to be with people and I'm too tired to care most of the time. I miss me! Now I'm a new widow in my early 50s, I can't work sadly doing the job I loved, my days are always the same from one month to the next. No sleep, no energy, my get up and go has left the building. I don't look ahead as I don't see anything but I'm not depressed and I just accept this is it how for me now. I feel guilty as though I'm wasting this precious gift of life, I'm always determined that one day a miracle might happen and my quality of life will return. Miracles can happen sometimes and perhaps even some restorative sleep! How amazing would that be!
I take dosiepin before bed. It is an early tricyclic, similar to amytrip. I have taken it for many years and usually sleep well. When I'm in a flare my sleep is lighter, but still adequate. This medication has been a godsend, and allowed me to work while suffering from CFS
I have micro sleeps or nod off in the middle of conversations for a minute up to 20 minutes.2 to 4 hrs uninterrupted sleep is unusual.
Firstly, I'm not certain that my sleep issues are specifically related to fibromyalgia, as my main condition is ME and I have always had sleep issues with that. I have also this year had a diagnosis of restless leg syndrome and functional neurological disorder, and all these conditions affect sleep so it's difficult to pinpoint the exact cause of issues.
However, I have ticked 'I never feel refreshed' and 'some days I can't get out of bed' as they have been issues for a long time.
With regard to the length of time I sleep, I haven't ticked any box as my sleep pattern is all over the shop. I can get just a few hours sleep or over 12. It can be one solid sleep or broken into several short bursts. It can start early in the evening or gone two in the morning. And I can wake up anytime from seven onwards to midday. Plus I keep fluctuating between it all and there is no pattern and no rhyme or reason as to which scenario is going to happen on any given day.
The only constant is never ever feeling refreshed.
my sleep was very bad, maybe 2-3 hours a night. until my doctor put me on trazodone 300mg, I was already on amitriptyline 50mg. from then I get about 6 hours a night. my citalopram was also stopped, that can prevent you from sleeping. my heart goes out to all non sleepers x
I want to genuinely wish you all the best of luck my friend.
I can be awake for up 15 times in the night and up to 30 times restless according to my fit bit!.....
My sleeping pattern is different every day.
I want to genuinely wish you all the best of luck my friend.
On Amitryptiline 20 mg which definitely helps me sleep but effect only lasts about 5 hours then Zing! someone puts the light on (metaphorically speaking) soo tired of being tired.
I have found that if I sleep in later than 6.30am as time goes by it becomes increasingly difficult to get up and my pain levels increase. I try to get to bed no later than 10.30pm and the routine has improved my sleep pattern slightly.
Since developing Fibromyalgia I have always felt as if I'm lying on rocks, even after buying a rather expensive Tempur mattress! I also was finding increasingly difficult to turn in bed so I got a slide-sheet- what a revelation that was! I don't want to break any forum rules by mentioning the manufacturer's name but if anyone wants to know please message me 💖
I voted for never feeling refreshed. Since I stopped working over 2 years ago I have basically no demands upon me. My wife keeps everything ticking over. Most I do is get out with dog on mobility scooter. So I spent most of my days just sitting. Despite this I have no energy. Smallest activity wipes me out. I wake feeling wiped out. No respite from this.
I just cant get to sleep and can lay in bed for hours before sleep comes. Getting out of bed in the morning is hard because I don't feel I can move without pain. During the day I have to fight to keep my eyes open and never have any energy. I have fallen asleep while eating breakfast several times.
I sleep between 6-8 hours but restless sleep throughout the night, I also have to sleep/rest in the afternoon for around 2 hours due to fatigue......I never feel refreshed after sleeping and always feel tired most days........ best wishes everyone. Xx
Varies anything between no sleep to 12+ hours of sleep. Hardly ever wake up feeling refreshed
I want to genuinely wish you all the best of luck my friend.
What sleep ??? 2 hrs nodding if I'm lucky is the norm
I want to genuinely wish you all the best of luck my friend.
I seem to get 20 mins sleep at a time then I'm awake for hours again
I want to genuinely wish you all the best of luck my friend.
Always feel tired never feel rested
No two days are ever the same when I've had a few days of no sleep I go likecan unconscious state for days at a time just waking up for bathroom
4-6 hours . woke 2.30 am then toss and turn trying to get away from pain. I give up in the end and feel ill. Am drained of strength and feel so zapped through day
Always woke up tired, fatigued all day. Actually never woke up. Had to be wakened! However.. Diagnosed with severe sleep apnoea.. Now use cpap machine.. Tremendous improvement. Been fatigued again recently, but have stopped all pain relief, trying to cope with nothing, other than 20 mg paroxetine. However, also under a lot of stress..elderly father having multiple hospital appts and procedures done.
I want to genuinely wish you all the best of luck my friend.
I feel constantly drained but put on my face until I can get back to bed! Don't seem to enjoy much about life as I really do not have the energy and sometimes am on countdown til bedtime!
I want to genuinely wish you all the best of luck my friend.
It is the amatryptoline that makes me tired. Also I have 2 people in the family I care for.
I never go straight to sleep, I lay awake for hours. Then I toss and turn all night. I sleep on average 3-31/2 hours a night. I wake feeling like I have been hit by a truck.
MST continue has helped my sleep but it is a medicated sleep .
I want to genuinely wish you all the best of luck my friend.
I cannot fall asleep at night anymore... Then when 8am comes I doze off completely... It's a good thing I don't have work in the mornings -_-
My problem is either one extreme or the other....either I dont get enough sleep, (also an insomniac) or I'm so completely exhausted I can get out of bed for stretches at a time....never a medium.
Sometimes I can be so sore I can't sleep then most of the time my fatigue makes me sleep very often but I dream co scantly and wake up often.
Never had a problem with my sleep pattern but now over the last few years fibro Dx about 8years ago my sleep is horrendous... I either stay awake for hours on end all through the night...then typically will sleep as soon as its the time most people are getting up!
Or do something like go out for an hour in my electric wheelchair and feel so exhausted i slept for literally 17hours woke up ate then sleep another 10 wake up refreshed NO Not at all!
The quality of my sleep is very strange its as if I'm awake but I'm actually asleep..then I mix up my dreams with why is real and what was a dream! I guess that's fatigue ?
Most nights I cannot sleep. I go to bed after taking pain killers and using ibroprophen gel which do no good at all. Then after trying to get to sleep I go downstairs and get a hot water bottle which sometimes helps. Most nights I just get up as I know it is a safe of time trying to sleep because of the pain.
I have to take a sleeping tab before I go bed so at least I can get a few hours my pains can wake me up to can't pull myself together in the morning
