What Medications Do You Find Most Eff... - Fibromyalgia Acti...
What Medications Do You Find Most Effective For Your Fibromyalgia? This Is A Multiple Choice Poll.
TheAuthor569 VotersPlease select all that apply:
I take Pregabalin, Nortriptyline and Cocodamol. However, I do suffer with chronic Migraines also and use Sumatriptan for those.
All my hopes and dreams for everyone
Ken
Hi Ken, I take sumatriptan for migraines too. X
Hi @Tinkerjack1912, I find them a life saver! x 
Me too. I'm no use to anyone without them. I hope you are well.
Hi Ken, can you please tell me what strength pregabalin you take and how many daily.. I take 100mg 3 x daily which I've just been increased to. I do feel they make a difference but I take them with my cocodamol. I do start to decline when they become due again so just wondering if I should take them separately.. I know your not a Dr but your advice would be most welcome.. Thank you ken..
Love and hugs
Spirit xx❤️xx
Hi spiritof25 I take 75mg in the morning and 150mg at night. My pharmacist says that I should not be taking Pregabalin and Cocodamol at the same time x
Hope you feel better. I know how you feel having migraines. I get them 5 days in a row and I miss my Imitrex shots but unfortunately I don't have insurance yet but I'm on 100 mg tablets. Hugs and pain free.
Warm wishes,
Clara
Guaifenesin 600mg ×2 times a day. It really does help. I know it's just a cold medicine.
Hi Sarah, where do you get the guaifenesin 600mg tabs from?
Thanks
Hughbro, Belfast.
I live in the US so it's sold over the counter in Musinex extended release tablets. I get it at any pharmacy.
Oh right, I'm in the UK.
Thanks anyhow.
I'm sorry.
I am in Tasmania Australia the place that re-invents the wheel consistently. I have no hope to ever been able to use medical cannabis at any time. Morphine is not problem, but Cannabis is not in. The pharmaceutical companies would never agree with it. Human lives do not count when financial issues are involved.
It's a shame the way big business has taken over the medical field. Human suffering shouldn't be controlled by the almighty dollar.
you got that right, Sarah, but sadly they seem to make the biggest fortunes through human suffering. Just look at the cancer industry. Millions of people die and don't have to and millions of people suffer incredible pain and don't have to. Nobody wants to kill the goose that lays the golden eggs.
Do you think you can get your doctor to write you a prescription for Guaifenesin 600mg.?
I have asked my GP if he could prescribe it, he looked at his PC for a moment an then said we don't...!
Although he is gona ask practice manager for me if I can have COQ10 so here's hoping...!
Tizanidine...sorry I don't know where this goes in your questioning.
It's a muscle relaxant how do you find it? I found it made me too dizzy to function haha
I have had everything. But wondered if anyone is getting any success, when asking for Sativex?
Edited By Admin
What price is it if you are not in pain!
It should be given to chronic pain sufferers, can't believe how expensive it is though . Is there a difference between normal cannabis and herbal ?
Dusky, the normal cannabis makes you stoned the other one does not as it does not contain this substance that makes you stoned. Sorry I forgot the name of it.
No problem, thanks for clearing that up for me x
THC is the substance that makes you stoned, this is removed from medical cannabis.
Thanks lampain 2, spot on.
THC is the part of marijuana that gets you stoned. High CBD is the other part that doesn't give a person the euphoria.
Cannabis is illegal here where I live. They rather give us opiates. Does the herbal cannabis take care of your pain?
If by here you mean the UK you can take the cannabis without THC. Clearly it would be better delivered as medication than smoked for obvious reasons.
In Australia you would be arrested for using Cannabis overtly. They rather let people suffer.
I used to take gabaoentin. Codydramok, tramadol, diazepam, duloxetine, zopiclone for sleep but have stripped everything back and now take none or (only very few when desperate) of these. I'm not saying I am any better for being off them but certainly am no worse and my liver is all the better for it. I have been prescribed thyroxine and take vit b12, coq10, lcarnitine for chronic fatigue and magnesium to relax muscles and help me sleep...(not working tonight!!) I have cut out gluten and dairy and various other food intolerances, such as tomatoes and peppers and do feel the benefit there. There was occasions when on the prescription drug cocktail that I could barely function and think straight and was disheartened by all the side effects. Duloxetine was hell to come off of
wishing you all the very best and hope you find something to ease your pain 💞
Oh ...and Epsom salts baths help too (magnesium again!)
you did well thanks God
i was on duloxetine too and it was hell to come off, im glad i did stop it though
How long was the withdrawal period?
Sorry for delay .. I was on 90mg? Dukixetine and tried to go cold turkey! Big mistake!! I managed to reduce to 60mg but even weaning off it was awful. I felt my brain was a ball bearing inside a cup and the pain was excruciating every time I moved. Thankfully it passed after a week of eventual cold turkey but I will never go there again even though it perhaps took a slight edge off my nerve pain. Take care and look after yourself Jax 💕
I had a bad experience coming off of cymbalta as well! I also stopped taking all of my meds completely and don't even go to a Dr. Anymore. It's not tolerable with humidity and cold weather though.
I'm dreading winter here too. Just need to keep warm and keep taking vit D3. Sunshine definitely helps more that my 3000iu a day spray along with vit K2 which I forgot to add to my list 💞
The only thing they offer us here in Australia is prednesolone which has more bad side effects than any medication I ever tried. My rheumatologist told me that there is only one other medication but that cost 'trillions' (his way to say it is not affordable for most.
OMG, that prednisolone is bad stuff. I had to take it once when I developed a blood disorder. Gained 13 lbs and completely changed my personality. Lost my spleen, but got off pred!
I am lucky that codeine is ok for now. .. it takes the edge of so I can cope with the pain but some days it doesn't touch it. ..... gentle hugs for everyone .
What are nsaid's, I take Naproxen
Non steroid anti inflammatory drugs.
I was on naproxen 2 x 500mg tablets a day for few years.I was taken off them due to my kidney function been low,check with your doctor x
Non steroidal anti inflammatory drugs. Naproxen is one of them.
I've tried some of the drugs. They work for some weeks and then stop working. So now I don't take anything. I'm still in pains though 😬. Anyway, have a good day everyone. 😊
I find that I have to keep changing as the effect soon wears off. At the moment just on Paracetamol.
You are vert lucky if paracetamol are enough to control your pain and if your digestive system can deal with it.
I do meditation and pacing but still have a lot of pain and especially fibrofog.
That's true. I'm 48 and was fine for the first decade but for the past 8 years I've had a lot of loss in my life and more stress and I can't function. I've seen different specialists bc I also have arthritis but I'm told it's not that bad and it's fibro making it worse!
I'm on quite a cocktail and still in pain for the majority of the day! Some days I feel so desperate I want to stop this pain in any way but I wouldn't do that to my family so I put up with it. Hugging a hot pack at the moment and moving it around. The last specialist told me I will admit me to try radiotherapy and ketamine infusions for 5 days. So pissed I have to join private cover and wait 12 mths for it when my regular neurologist could give it to me in a public hospital!
I have the same experience but I find if I only take them like once a week or for a full week and then stop for 2 and then another full week my tolerance wears down a bit and they become partially effective again
I am currently taking neffopam, baclofen and matrifen 75mcg patches for the pain along with vit b compound strong, omoprozole for the side effects off baclofen and montlukast to help my asthma from the patches, used to have Tramadol as well but doctor stopped these as the patches were stronger. Just waiting to see pain consultant in Nov, but will all the meds this does not take away the pain in my hips and they make me feel low at times, trying to stay positive.
I don't know what to do. I take pregab aline and still i fill pain
Just a small word of advice, something that I have learned after having fibro for 37 years. It's not about NOT feeling pain. Nothing I have ever tried, and I've tried SO MANY things, has ever completely relieved me of pain. It's about being able to live with the pain, yet being a functioning member of society. Unfortunately, having fibro or arthritis of MS or many other of these auto-immune disorders means living with pain. But finding a treatment that helps you to cope is so very important. Good luck in your search!
Totally agree with you fibromite. I only take as much morphine to be able to function and to get around in my garden, enough to take the edge of the pain and to be able to use once limbs. Pain is a daily companion.
Love and light !
That is so true. There is no pain pill that will take fibro away .it is learning to deal with the pain.I'm on cocktail of meds.and and still in pain and that's 10 years.37 years that is so long to live with the pain and all the rest that goes with fibromyalgia. Hugs x
I take 4x300mg 3 times daily of gabapentin, 8/500 cocodamol which does for fibro and chronic migraine. Among other tabs for different ailments.
hi, have you ever tried beta blockers for your migraine. My doctor prescribed them because he said they quite often help. Since I started them 3 years ago I have not had one migraine. I used to cry with the pain of migraines. I still have Fibro but at least the migraines are gone, kind thoughts Andrea
Id just like to point out if anyone gets ease with paracetamol, take them as cocodamol can leave you constipated. I know some of us paracetamol can be no good but im just stating a fact. Also dissolving painkillers well some are full of salt . Just a small pointer of info. Marty
Paracetamol is a good Base drug and build others on it as it enchances there effect.x
I take Tramadol 150mgs twice a day. Most times still leaves me in pain. I've asked numerous times about Sativex, but the consultants are severely restricted and can only use it in certain cases of MS because that's what it is licensed for.
Hi my ex husband is in a care house with ms and from the neck has no control of his body are daughter has begged many of times for it wasn't until last year she had enough of the consultant not listening to her she broke down in tears then he did listened to her and put him on it last year we know there's no cure but it makes his life easier with the pain god bless him and our daughter I'm very proud of for standing up for her dad she worship's him .
I take CoCodamol plus Codeine to top up with if needed for pain. On top of that I take meds for hypertension, cholesterol, warfarin, Propanolol, colofac, Xanax, Loprazolam that I've taken for many years.
Edited By Admin
I won't be a Guinea pig with the other meds like Gabapenten which can give you nasty side effects, because if they don't know the cause, how can they treat it!
Xxx
I take ibuprofen, I can't tolleate the other drugs.
Be careful longterm use of ibuprofen and naproxen attack the kidneys.short term used okay.I now attend kidney clinic,x
Hi Ellie, I'm being as careful as I can be and only use ibuprofen when I really have to. I have reflexology every two weeks and this helps.
Ketamine infusions; low dose naltrexone
I have Butrans patches 10mcg per hour over 7 days. For breakthrough pain I take Codydramol 500mg twice a day - can go up to 3 daily if necessary. Citalopram keeps me out of that big black hole. Omeprazole twice daily copes very well with IBS for me. I also take Zopiclone 3.75mg x2 at night. It gives me 6 hours sleep most nights so I consider that part of my FM medication.
Have a good day Ken xx
Is low dose naltrexone (LDN) or ketamine infusion therapy used for fibro | chronic pain in the UK? I've not seen it mentioned and both have helped me in ways nothing else has been able to mitigating some of my chronic, full body pain.
I take daily LDN. I find it really helps my mood which helps me tolerate pain better.
Never been mentioned to me by gp or pain clinic.
I take paracetamol 1g three times daily in addition to 200mg pregabalin twice daily.
I've found that steroids help me. I know this as I have genetic emphysema and when I have an exacerbation I'm given steroids and I have a few days of non pain.
its a bit contradictory but i had duloxotine for years and it works perfectly, however i had to come off of it for a while and it was hell, and now im off it, ive no desire to take it again, i use mild painkillers in need be
Sorry voted wrong should have been 2nd one
I take oxynorm / paracetamol & patches versatis 5mg also numerous other medications for Angina/heart & BP / anemia
The reason I chose amitriptylene is that my rheumatologist said that my Fibro is caused by sleep problems, and since getting good sleep with amitriptylene my sleep has improved as had my Fibro.
That's very interesting as my pain consultant also said fibro is caused by sleep problems and wouldn't prescribe any medication for me at all. He couldn't get me out of the door quick enough and said there was nothing he could do so referred me back to GP.
Just a suggestion but ask your GP if you can be prescribed amitriptylene. My Rheumatologist said that 100mg was optimum dose for sleeping and nerve pain. It really has made a huge difference for me. I take it at 8pm, my eyes are closing by 10/11, I sleep like a baby and baby 8am I am happy to get up. I don't get the severe Fibro pain any more, or at least not the way I used to. Sadly it's one of those drugs that either suits you down to the ground, or makes your life miserable. It has got to be worth a try though? Xx
I was on sleeping pill and it helped along with diazepam to relax me,they have stopped giving out these drugs so now I can't sleep and pain worse,I still get 6mg diazepam but sleeping med did help as you say if you get restful sleep your pain is better.x
What a jerk! Why is he a pain consultant if he's not going to help you with pain. Ugh, that makes me mad!
I know your so right diazepam relaxed me and my sleeping pill helped but he took them off me,was on half one a night,I still get 6mg of diazepam but I've to stop that to.if they had the pain we had I'd like to see how they would cope x
I only take a very rare Co-Codamol as I'm clearly very sensitive to Codeine. It does seem to reduce the pain and restlessness I get but mostly it sedates and nullifies. I'm sort of out of it fir 24 hours after taking so try to avoid. Did anyone see programme about the Dr who gave up drugs? Two parter, only seen first. Was pointing out fallacy of painkillers and all the nasty side effects. Placebos just as effective.
I agree with what you said about codeine. My GP tried me with co-codamol, the pain was the same but I realised that I was less bothered by it. When that intense pain went I stopped the co-codamol and only take it when I have an area of intense pain and want a better nights sleep.
I take gabapentin, nortriptyline, I have advanced arthritis and use lidocaine patch on my spine at night time. Never pain free. I did have morphine patches last winter but I had torn my rotator cuff and needed hosp treatment...but was really good. Pain consultant switched to lidocaine as he said I would just need to keep increasing morphine dose. I had a small glimpse of what my life used to be like 20yrs ago pain free. Have a peaceful day.
I take Pregabalin and Amitiptyline. As consultant & GP won't prescribe opiate based pain meds, I take CBD paste costing under £20 per month inc p&p.
What's cbd paste?
What is CBD paste
CBD paste has a slightly higher CBD present at 7%. However, it still only has 0.2% TCH which makes it legal. I cannot imagine that it helps more than the other products that you can buy in a health food store as the TCH is usually what counts? And 0.02% is the legal limit.
I take tramadol but the question says what do you find most effective there should be an answer of none as it only cuts the pain a little bit
Nefopam, along with tramadol, pregabalin, fluoxetine, naproxen and paracetamol- I read that the paracetamol taken with the tramadol is more effective and have to say my experience supports this. Also on B12 injections for life but as korakes said all they do is dull the pain, although when switching from morphine to tramadol I had a reminder of what the pain is like without the opiates and I don't want to go back there, I would be bed bound!
I take nefopam and paracetamol because I am unable to take opiates and NSAIDs due to reaction
I take nefopam and paracetamol as I am unable to take opiates and NSAIDs due to reactions
NDT & T3 have been more effective than anything I've taken alone, or in combination. The cost is about £15 a week.
Before this, I found magnesium either chelated or as epsom salt baths, helped more than prescription drugs, especially with regard to sleep.
Why prescribe something cheap & effective, when pharmaceutical companies can make billions peddling ineffective drugs.
I also take Zolpidem and Duloxetine and quinine for the cramps then just extra vitamin E and folic acid
.
I am lucky for the most part I can manage on 25mg of Amitriptyline and cocodamol. Occasionally I have had to have Robaxin for muscle spasms and maybe Diazepam.
I try to take as few conventional painkillers as possible. So easily a vicious circle can develop of taking more and more painkillers to less and less effect. But, when desperate I do take ibuprofen, paracetomol or aspirin.
I use alternative treatments which help a great deal to keep this condition manageable. Baths of Epsom or sea salt, massages with pure essential oils such as ginger, benzoin, juniper or rosemary. But there are many other oils which not only ease muscle pain but help raise the spirits - we are suffering from a complex condition here.
Not forgetting homeopathy; daily doses of Rhus tox with Ruta help a great deal with muscle pains and stiffness, and Arnica helps with over-exertion.
Hope that this personal information is helpful and good luck to everyone.
I take zapain not sure if or what category it fits into joanne x
I already took meds for other conditions - Osteoarthritis & Nerve Damage plus Chronic Long-term Depression so following diagnosis of Fibromyalgia no change to my meds was possible.
Regular pain killers don't work for me. I get better relief when I take an occasional Tramadol if things are really bad. But I've found that dealing with food intolerances has reduced my pain so that I don't need to take daily pain killers anymore anyway. I take LDN every morning which helps my mood and helps me tolerate pain better. And I take Nortriptyline at night.
Hi, what foods have you avoided to help you?
I did a food intolerance test which showed quite a few foods were a problem for me: gluten, eggs, pea, dairy, refined sugar, yeast, potato, celery, soya, sunflower seeds, maize, nuts ... it's quite a big list. I've had help and support with the diet but it's not easy. But it has reduced my pain.
See my latest post: healthunlocked.com/fibromya...
And the original post about the food intolerance test: healthunlocked.com/fibromya...
Thanks Dryad
Modafinil
Fights of the fatigue
No point having no pain if you can't get up and do things cause your always asleep!
Never heard of that
It stops you from feeling exhausted and fatigued. Some of the Olympic athletes got ban'd for using it as it enhances performance. It is used to treat narcolepsy.
Provigal is Another name for it.
I take 200mg first thing in the morning and after 15 20 minutes I feel awake even if I've had a bad night. Also found that my sleeping patterns have change and I get better deep sleep
It isn't normally proscribed for our condition but I saw my GP and told him either let me try it or I would seek out an amphetamine drug dealer as I can't deal with this fatigue any longer.
I was sleeping for days. And I mean days, don't wake to pee don't wake to eat don't wake to watch tv. And when I did wake up I'd fall asleep while peeing or nodd off in my dinner etc!
i have try everything nothing works so i have stopped taking everything so i just put up with the pain all the time and lean to live with it
I also have RA so take steroids sulfasalazine and Hydroxychlorine and use ibroprofen gel
I take Modafinil/Provagil. It makes all the difference to me. I recently had a week's 'drug holiday' from it and 1) I couldn't for the life of me stay awake and 2) was unable to do anything. And I mean barely out of bed type anything. It helps me greatly with clarity of mind and exhaustion. My present Psychiatrist (I have a sort of 'soft' bipolar) is not that keen on me taking it, but I've fought to stay on it as it works for me. For general info, it's not registered (or whatever the phrase is) for Fibro and can only be prescribed by a consultant.
Low dose Nalrexone.
☹️️
Morphine, nortriptyline, ibuprofen, mirtazapine
It's gabapentin and cymbalta for my Meds
Palexia SR 200 mg prolonged-release tablets Tapentadol 1 every 12 hours
I stopped all drugs, side effect to this is I pass out every couple of months, Hospital have decided this happens because of my pain threshold which is very high body shuts down, I know when it's going to happen it's starts in my neck goes into my shoulder and left arm and my right leg once I pass out I am pain free for about a week small price to pay, but at least the rest of the time I have pain but is not zombies out.
I have bad side effects from the painkillers prescribed by my GP, weak opioids, so I have to manage with Cymbalta 60mg daily, if I am desperate I do take the weak opioid option but very rarely.
I take Tramadol and Amatriptyline but they do not help with the pain.
I also take Fexofenadine for multiple chemical sensitivities, Hydroxyzine for allergies and anxiety, Ropinerol for Restless Leg Syndrome.
I can only take these due to endless Allergies. I also have other Medical conditions such as Brittle Asthmatic,Sinus Problems, Type 2 Diabeties.
And Being Allergic to Steroids is not good
dont want to fill my kidneys and liver up with anything for the long term
i take cocodamol when i cant stand the pain aches anymore or when ive got to do something i cant avoid .
was give the last one in the list forgot already what it was and it was amzing no pain whatsoever but my head was so numbed i could have hammered nails into it then it dropped my blood pressure so gave that a body swerve .
nefopam that was it lol
I also used douslupin which helps.
The worst thing I ever took was Prednesolone, it nearly killed me. All I am taking since getting off that stuff are pain patches, like Norspan and they enable me to live an almost normal life.
My support worker told me that all pf her clients who were treated with Prednesolone, ended up diabetic. My long term effect of it was cataract in both eyes.
If our politicians would not be such cowards we could use Cannabis oil which has no side effects what so ever.
I found Nortriptyline to be most effective for relief of leg cramps, muscle spasms and RLS however I've had to stop taking it recently as I developed a very fast heartbeat from it. Since I stopped using Nortriptyline, my heart feels weirdly calm!!
I'm now taking Quinine Sulphate for muscle cramps etc and also using Magnesium spray.
Pain killers just do not work for me. I also have Hashimoto's hypothyroid disease and have been self-medicating with T3 for the past 8 months, as my GP and Endo have refused to consider prescribing it for me. I have done this after a lot of research and monitored it with private blood tests as T3 is not a medication to be taken lightly.
Getting better control on my thyroid issues has reduced my fibro pain somewhat, though I do still have flares if I don't pace myself and I still have very little stamina compared to how I used to be. I'm just glad that I'm managed to reduce my pain!
I'm now trying to address my sleep problems, I can't get to sleep until the early hours of the morning, no matter how tired I am, so I'm having private stress hormone tests (type of test not provided by NHS) to check my adrenals. If I can get them back in sync, I may be able to crack the sleep problems that I've suffered for decades, oh, to get get a good night's sleep....!
None.
None
I am also taking:
Quetiapine 100 & 200mg, one of each daily for anxiety
Cyclizine for anti sickness 3 x daily
Mintec for IBS 2 x 3 times daily
Lactulose for IBS and to help cope with the side effects of the Tramulief SR 200mg as req.
Paracetamol 2 x 4 time daily for pain relief
Sumatriptan for migraine as req.
Trazadone 300mg x 1daily for depression
and other creams and oils to use on my skin for eczema and sensitivity.
As I am sure you can imagine, everytime I pick up my meds it's a huge shopping bag full! Sx
Have never been perscribed anything for it,doctor that diagnosed was flippant about it and treated like it is all in the mind,the pain definitely isn't in the mind
I take paracetamol, nsaids, dihydracodeine, Gabapentin, Tramadol, fluoxetine, trazodone and Oramorph for pain. Fibromyalgia - arthritis - inguinal neuropathy.
I have been given Versatis patches. They are slow release Lidnocaine and I can use 3 up to 12 hours in every 24hr period.
So I can apply them wherever I hurt most in terms of say my thigh one patch my shoulders 2 patches. I like the control and it does not upset my stomach a win- win really
I have never been offered medication for fibro, I was diagnosed and that was it, since I had been taking paracetamol for cervical spondylosis and a shoulder problem for which I was told I need a complete replacement for my shoulder, I have just struggled along with paracetamol only, for all these problems, but I have to add that I don't want to take strong medications to which I might become addicted OR have side effects from, so I just don't go to the doctor to complain, because I have found that a lot of medications give me added problems of stomach pain and nausea etc. so I just put up with the pain and take 6 or more paracetamol per day which at best dampens the pain down a little.
I don't take any medication, paracetamol when I have a headache. I try to manage with exercise, healthy eating and lots of rest.
I take Gabapentin, oramorph, paracetamol and diazepam for pain relief, muscle spasms and sleep. I have several flare up per month, and not sure if meds are really working. Oramorph with paracetamol does help, but makes me feel like a zombie, and then I sleep too much. Going to try changing diet, and see if that helps, as fed up taking meds, if not working. Don't like putting all these chemicals inside me!
I rake Gabapentin 3 times per day, alongside, 30mg of Amytriptylline every night, and Tramadol as and when required, not forgetting Hydroxchloroquine 2x200mg daily.
Please if you are taking taking naproxen or ibuprofen or diclofenic. Check with doctor as I was taken off naproxen a year ago due to my kidneys.I was on it few years x
Pregabalin
By the way gabapentin and pregabalin are completely different in effectiveness even though they are sister drugs and it looks like you have them in the same category.
I find the strong opiod drugs and pregabalin etc left me unable to function properly. I find the occasional use of a muscle relaxant (diazapan 2mg) helps when my muscles go into spasm.
IMy specialist did not give me anything for my Fibro, I did take Pregabalian for a bad back & Siatica but it did not agree with me , neither did Gabapentin. So I take nothing. Wish I did but a lot of the prescribed tablets don't agree with me.
I also take dosulepin as a muscle relaxant
Really if I'm honest, nothing really works, I've tried different medications, but don't like the side affects from them so stick to Amitriptyline. I feel as though this illness is ignored really, I have dystonia as well.
I have tried a number of different pain killers including Naproxin, Tramadol and Morphine. I was first told by the doctors that it was Polymyalgia and put on steroids. They worked almost overnight and I was pain free for the first time. But I was later told by a Rheumatologist that it was Fybromyalgia and given Gabapentin, but this made me so unwell that I have stopped taking any pain killers as I seem to be getting more and more side effects from them. Don't know which is worse the pain or the side effects!
I stopped taking anti-depressants, painkillers as side effects were making me much worse. I put up with the pain and lie down when I need to. Rather have bad pain than no life through drugs.
It all depends on the level of pain I am in that day !
I use tramadol slow release 150mg twice daily. The normal tramadol works out very fast and makes me drowsy.
Think I reported instead of replied, am not very good with technology as I also have brain damage due to RTA... I used to take LDN until I couldn't afford it, my FM attacks became less frequent and less aggressive, this has continued to be the case even though I stopped the LDN about two years ago Painkillers didn't really work for me...
I use baclofen for sever muscle pain. Works really well for me.
I take tramadol amitriptyline fluoxetine gabapentine ranitidine desunuin paracetamol
Nothing appears to work on it's own or fully. The condition forces you to 'manage your symptoms' as best as you can instead.
I've found that you need to take various combinations at different times and for different intensities of pain or flares.
Having said that, sometimes using gels or sprays, hot or cold therapy, soaking, massage or acupuncture may work well for many people on their own on in combination with meds.
I was on cortico steriods for an ocular condition - I had far less pain, have now stopped medication and familiar aches and pains are back. I don't find co-codamol or neproxin help at all with background pains although I do sleep better if circumstances (lower back pain) mean that I resort to them.
Hi Ken, I have voted for Gabapentin, (I've recently come off Pregabalin due to seriously nasty nasty thoughts). Gabapentin is the first drug tried that doesn't make me feel dizzy or off my face on drugs or depressed and It is definitely helping with the migraines. However as i'm not drugged up I feel the muscle cramps much much more.
I don't know how I would get along without tramadol. Aleve also helps when added to tramadol if I'm having a really painful day. Another non drug thing that I would like to recommend is an elastic bodysuit. I had a tummy tuck and breast reduction this summer, which has also greatly helped my upper back. But after that surgery, you have to wear compression garments until you heal. I have been wearing mine for 4 months now, and it is a nice support for my back. You might not have to wear a full body suit, but perhaps a wide support belt if you have mid or lower back pain. My pain started when I was 20 years old in my lower back and penetrated through my abdomen. I used support garments here and there, but this body suit has really made a difference. Its called Lipo-Express, cause it makes you look slimmer, but any firm elastic support might help. Might be worth a try!
Oh, another thing. I take Prozac, (fluoxetine) for depression. I have tried many others, and was having great success with Celexa, but then the pharma people decided that tramadol and celexa were dangerous together, so I changed to Prozac. I don't get quite as much depression relief with Prozac, but its better than nothing. Have wondered about going up to 60mg. Any advice?
These medications only help with pain levels but not the underlying problems of fibromyalgia They all have side effects which can lead to other health issues. I would love to be off all medication and see how I feel not doped up all the time.
Thanks
I take hydroxychloroquine and prednisolone for lupus symptoms as well as being lucky enough to still get co-proxamol, (Distagesic) They are the most effective painkillers for me, even better than morphine. They are now unlicensed but I get them as a named patient and every time I get a repeat prescription I wonder if it will be the last one as the patient note always says this medication will be withdrawn.
I have Acupuncture which I find helps me a great deal. Great to help me relax and I very rarely have those awful migraine type headaches now since starting the treatment. I also have Tramadol for back up, which I only take when absolutely necessary. The rest of the time I try to manage with paracetamol.
Oxycodon liquid
Mine was other.
If any remember what i tried as researched so much &got into so many places probably from my Autism/Asperger's way of working but tried zoely a female pill but natural E in it did for two weeks changed my Fibro thing a lot pains was so low lost pain in base of spine&bladder slept better and felt far better it also brought my t levels up! some things came back later plus many that did was changed it sort of reset your system yet none of them wanted to work with me on it as i worked out where/how fibro type things work on us.
But yet when was on Tgel/hrt made me so bad was in constant pain pushed my BP really high ended up having a TIA/mild stroke from t plus gave me breathing issues&problem with my fore arm.
I don't take any meds if can get away with it never really have before got ill either prefer to learn way body is and use rest/sleep and what eating etc as meds just mask things don't really work only make med corp pockets bigger!
At present, I just switched to Cymbalta 30 mg and finally feel a sense on relief during week 1 but I need to increase the dose and figure out how to manage this uncontrollable internal itching all over. I can't find any relief. 😭😭😭😭😭😭
The Gabapentin don't work,my gp flatly refuses to prescribe anything else,not even any painkillers because he says that they all have nasty side effects,so I have to wait until early next month to see a rheumatologist at msk clinic in Oxford,I pray that he can give me something for the pain that is with me 24 hours a day.
I take naproxen which doesn't seem to ease my pain whatsoever. I have tried patches but I'm allergic so basically it would seem I have to get used to living in constant pain
I take mst morphine low dose twice a day. Started on tumeric and having good results.
Think I should make it clear that the 2nd tim I went on Cymbalta/Duloextine, I insisted on going on it gradually re reduce the serious side effects. Took 3-4 months to get upto 60mg.
I think it's time we looked more at nutrition and improving body functions rather than keep medicating.
I am becoming more and more reliant on medication to help with pain, to help me sleep, to keep me awake, - it all seems so 'reactive' we need to look at being 'proactive' and we need the information and knowledge to do this, any offers gratefully recieved, 🤔🤔
I'm on Tapentadol which is a strong opioid based analgesic but it has a different effect on the opioid receptors in the brain and has a reduced opiate load compared with morphine and suchlike. It doesn't help with the burning or aching pains, for that type of pain the only things that take the edge off are capsaicin patches that I get from the USA and sometimes IcyHot with Lidocaine (also from the USA) can help aching joints. I tried gabapentin and pregablin but they just made me put on weight and messed with my eyesight. Duloxitine gave me lots of unpleasant side-effects, as did amitriptyline. I take NSAIDs for osteoarthritis, they don't help with the Fibromyalgia pain.
I meant to add that the Tapentadol was prescribed because I have spinal injuries (and osteoarthritis), not for the Fibromyalgia. I had been on Fentanyl (morphine) 50mcg patches but my pain specialist said that Tapentadol was better for long-term use. I stopped taking paracetamol a few years ago as it's very toxic to the liver long-term (and people often take doses too close together or double dose with co-codamol/co-dydramol etc which is dangerous to say the least), even more than morphine according to my specialists. I also take Pramipexole for restless leg syndrome but it doesn't seem to work as well as it did a few years ago. I take natural supplements of magnesium, CO-Q10, calcium and vitamin D, B12, zinc and vitamin C, plus turmeric with ginger and bromelian. I'm qualified in several holistic therapies including nutrition but tweaking my diet for intolerances and nightshade plants didn't help. I self-treat with hand reflexology and taught hubby to give me the occasional massage which is lovely when he has time. Reiki helps a bit with relaxation but more so meditation. I have to laugh when anyone suggests mindfulness to me, I've been a practising Buddhist for 7 years so it's a standard part of my practice! CBT (cognitive behavioural therapy) was useless. Best wishes to you all xx
Fluoxetine capsuls & Movlat cream sometimes Paracetamol
I take much the same cocktail of pills, cocodomol, naproxen, omoprozole, amitryptilene, lyrica, duloxene, tramadol. as they say the pills only numb it a bit and help you to cope with the presence in life.
I put on 4 stone in pregablin and still needed angelesics
I came off in august this year gabapentin as other than helping me to sleep the pain didn't go(fibromyalgia)I was advised by pain management consultant, as all they did was make me gain more weight which I have problems with anyway. I now take on his advice a very good antidepressant called duloxetine aka Cymbalta, it took a while, but the neuropathy pain has eased, & I don't feel as depressed & suicidal as I did before taking them, I only take 1 daily with omeprazole, but other problems they won't fix with this condition, unfortunately. But I do take paracetamol to help me relax & for headaches, ibuprofen for pain. Failing that I go bed early & read till I fall asleep then I'm not in pain at all. Phew. 😉
Just got put on Zoloft this week. I'm praying that it works. Can't handle stress, mood swings, anxiety attacks, etc
i take 80mg twicw a day 12hr slow release, oxy norm, tramadol, .amatripyle zoplidem, those are a few to mention lol
chrisbrookes9 I want to genuinely wish you all the best of luck my friend.
I dont need luck I need a miracle. Lol, As you can see by the pills I take words from my GP would put a sane person in hospital for a month in a coma. And they barely touch me. As you can see I have major issues with pain management. Im fighting with the hospital at the moment and decided to be transfed to a hospital over 200 miles away to see another Nuro specialist. Every time had back scans done they have come back back everytime with massive changes same as the brain scan. But not prepared to say its anything else and every year I get worse every year and im now in a chair and have a full time carer. Thats how bad things are. As well as the fibro I have over 8 sub illnesses which some.GPs say its fibro related 20 others say its MS and Lupas related but no straihht answers after 3 years. Simple little things hearing eyesight incontinance sexual isfatigue chronic fatigue cognetive issues memory gone cant remember anything short term and that worries my GP, list all my issues be here all day Lol I found the best painkiller is canabis but were so far behind other countries in getting it in the market and hetting licences. I dont know what the canabis does to trick your brain but that short time your pain free. I no i sound down cause i am fed up with been in chronic pain and still been in 24/7, my illness killed my marriage of tjats another story enough me depressing people lol.
I do t take the medication unless I'm really in pain, but I find they do help especially the anti inflammatory tablets.
Regenovex is the only thing that has helped. Amiltryptiline helps but I feel like a zombie the next day. Since taking Regenovex I sleep all night with no pain.
I take Gabapentin, Cymbalta and Meloxicam. I have also started to take a magnesium supplement
I am sensitive to a lot of medications and so i can only take co codamol and ibuprofen. These are not totally effective which makes it harder to cope.
