FIBROMYALGIA SYMPTOMS - WHAT FIBROMYA... - Fibromyalgia Acti...
FIBROMYALGIA SYMPTOMS - WHAT FIBROMYALGIA SYMPTOMS DO YOU SUFFER WITH? THIS IS A MULTI CHOICE POLL SO PLEASE TICK ANY THAT APPLY TO YOU.
TheAuthor914 VotersPlease select all that apply:
I suffer with pain and muscle stiffness, as well as RLS. I have been an insomniac for most of my adult life and suffer with chronic migraines for which I am under a Neurologist. On occasion I do suffer with Fibro fog and it is very unpleasant!
All my hopes and dreams for you all
Ken
All of what you asked I had you hit it on the nosejymup
I think I hate the Fibro fog more than anything else, closely followed by fatigue. 😟
I'm a bit like you regarding the fibro fog, I find it really embarrassing xx
I'm the same. A few times it has happened to me at work when people were trying to explain things to me and I felt so humiliated. It's a really cruel symptom of this illness. Good to know that I'm not alone though xx
I also suffer terrible itch all over
And me
Sorry Ken forgot to add this - the dreaded itch
Me too - the itchiness wakes me up in the night, then I can't get back to sleep - or it stops me sleeping at all.
The itching could be some of your medication, you should discuss this with your GP. Mine was worried when I said I have a problem with itching.
yeah i was itching like crazy, turned out to be the tramadol making me itch! i'm fine with codeine and morphine though. :/ lol
Recognise that as well!!, feels like ants are crawling over my back in particular, my back scratcher is a vital piece of equipment!
Lyzzie x
I have 3 back scratchers. Hardly go anywhere without one!
fibromite35 You just cannot describe the bliss of scratching the watsit out of that itch can you? almost better than chocolate, actually, think it is. Lyzzie x
You're so right, except it's hard to think of anything that's better than chocolate!! I've had this itch in the same spot on my back for 20 years. Drives me nuts!
fibromite35 Well, there is that, but the itching is like have ants crawl over your back, have you seen that advert on tv with the bear rubbing its back on a tree? Ive no idea what the adverts for, Im just going with the bears blissful look!! Lyzzie x
I have actually done that, scratched my back on a tree. It feels fantastic!
fibromite35 you hedonist you!! He really looks as though he's really enjoying it doesnt he, you can almost hear him saying, left a bit, no down a bit...Lyzzie x
Lol! Wish I had a tree at this moment. The itching has been bad the last few days. I think the slight change in the weather and the new presence of ragweed might be the reason!
I put this down to RLS moving into my back, that's what it feels like to me.x
Phyllis, could be side effect from meds. Also sign of Kidney disease , maybe have your kidney function checked by GP? Do you get lower back aches ? 😘
Me too!. I can't decide if it's the fibro or side effects of medication. Maybe both! UGH!
I'm also itchy and have developed psoriasis on my head
I honestly believe that this illness - and prolonged period of chronic pain - even before I was formally diagnosed, has fundamentally changed my personality - not necessarily for the better.
Reyku
I think after everything thats involved with our bodies and minds its no wonder our personalities change, especially if your not getting any understanding or support. This Fybro is a very sneaky and tricky disease to cope with. Hugs, Angie xx
Yes it is a complex and difficult disease to cope with, finding that the only port of call is the doctor, who should, even if he does not understand fully about fibromyalgia, he should hear what patients say and as he is there to provide a service, should try and help with whatever medication is available to the patient, so they can at least try out medicines to see if they are of any help, then let the patient tell the doctor what helped, doctor provides this service... that for me is pretty simple and straight forward.. it makes this rotten health problem that little bit easier to accept.. unfortnately this does not always happen.
I feel my personality changed too i was a nice amiable person but not now
I try to be a good person even though i am in constant pain, i think actually because i had severe mental health problems which pre-date my fibro, it's given me a new perspective somewhat, that i was lucky to be able bodied where as now.. not so much. yes that gets me down too and i do feel like my attitude has changed towards people and things, they didn't realise things i was doing for them and can't do now and took for granted. now i can't do them at all they are finding themselves a bit short.
it's made me realise i should never be taken for granted or do anything or buy anything for anyone who doesn't deserve it. it definitely has changed my personality in that way.
i guess it's made me more "real" if that's the right word to use. not sure if it is- it is 2am lol
True but I have a saying PACE PEOPLE ATTITUDE CALMNESS ENJOY
I agree to pace yourself. And concentrate when doing things. I hsve had falls but also have rhumatoid and austio arthritus
Hmmmm. I know some on the forum are much better at pacing than others. Me, I'm rubbish.
I do my best - I even have a PACE print on my wall - but always end up doing as much as I possibly can, whenever I get the slightest burst of unexpected energy.
That's familiar. I don't have bipolar, but I try to fit in as much as I can when I feel more able. As I don't know when it'll next hit. Just an hour later and I'll be in bed. I do try to pace myself though....
i'm so rubbish at pacing, if i feel even a tiny bit better i just get on and do EVERYTHING! then i'm in bed for a fortnight recovering again and they cycle continues lol
I agree . Pain does anyway . I find that when you are in more pain it's the first thing on your mind so anything else is sort of in the background somewhat irrelevant. We seem to almost very constantly concentrating . It makes your more highly strung I thing . Less tolerant of nonsense and so on and admittedly quite snappy at times . I find me time helps and meditation and fresh air x
I agree with you on that ,changed personality, I used to be happy go lucky kind of girl but not anymore,.
Perhaps we should all meet up for a relax day
wouldnt that be lovely? Ive always wanted to try a spa day, massage, reflexology and all that, sounds perfect doesnt it. Lyzzie x
I would love that too, except I live in America. Kinda hard to travel that far, ha ha!
I believe this too Reykua. I used to be so cheerful and smiling all the time. Now I'm very moody and so so impatient. People just don't understand that standing and chatting is not an option for me. I can't stand more than a few minutes without my feet just killing! Being social is barely an option either, never go anywhere anymore. Even to church, which I've done my whole life. Just can't get involved anymore. 
Hi fibromite...
I'm exactly the same, I was in a lot of church activities especially street evangelism, now I hardly even go out at all, maybe once a fortnight to give out tracts...!
Blessings to ya.
Hughbro N Ireland.
Blessings to you Hughbro N Ireland! It helps me to hear this. Sometimes I think God is displeased with me for not carrying on singing in the choir and traveling with my music. I used to live to sing for Jesus, but I have hardly sung a note in the last 6 or 7 years. Just don't have the desire to do anything after working all day, which completely exhausts me. My faith has definitely suffered after praying for 37 years to be rid of this pain, and it all only getting worse as I get older. But I guess we'll never really know God's ways this side of heaven, so I just keep on believing the best I can! I'm glad you're there. It helps to have a Christian to talk to who understands! God bless you and heal you brother!
Hi again Fibromite...
It's true that not everyone is healed this side of eternity but we have that great hope an know by faith that someday our pain will cease forever as we are changed from mortal into everlasting painter immortals in His soon to come perfect kingdom, font know what I'd do if I didn't have this hope...!
Blessings an love to you
Hughbro 
Typo; pain-free not painter lol
I also suffer with aching thighs and upper arms (similar to flu) when flaring.
I think I'm in a flare at the moment, my upper arms and shoulders are really painful and my hips and outer thighs hurt so much that it's painful to sit or even lie down. I'm sensitive to the slightest touch, and noise and I'm having problems with very dry eyes and mouth as well as vertigo and sweating head although I'm not sure if all of the symptoms are related to fibromyalgia?
Speedy recovery
I have all your symptoms except the sweating and extreme sensitivity. My senses are all heightened and cannot handle noise. My personality has also changed. My tolerance levels are now very low.
That sounds like me shelly . Try and get referred to ENT if you haven't already x
believe so shelly, I never realised that the excessive sweating in particular area was a fibro symptom until I read about it, like you my hair ends up soaked, and I have long hair, my friend said once "Why is your hair greasy" it wasnt, it was wet!. I sweat under eyes as well, which is irritating for glasses, they wont stay on your nose!!. I get very down and cranky when I have a flare up like that, its takes weeks to shut up and go away doesnt it. take care wont you. Lyzzie x
We all have so much in common and its nice to share it with each other. My work collegues have all fallen put with me because they thonk putting it on! And they are all health professionals!
then they are idiots and should be glad they dont have to cope with the illness. Have you got an immediate boss? is he/she sympathetic enough that you could explain whats wrong, or give them some information? I suppose that expecting too much from them, like you, I enjoy this site, my friend meg was laughing as another friend Angie had said Ive always got my head in the laptop, either chatting on here or doing my family history stuff, the site has helped me a lot. Lyzzie x
Lyzzie,I have been having the head sweats most of ten years and recently I just go to the corner store and as soon as I sit down at home I just start sweating and my hair gets wet and drips off my ears. I feel for you (HUGS).
I get vertigo too - real proper wobbly dizzy spells. And get really sensitive - with all my senses.
i get the weird pains on my outer thighs (on/near my hips) noise is awful for me loud noises are just the worst!
i hope you're feeling a bit better soon xxxx
Shelly, I have the same thing. My hip bones lock on me, my shoulders hurts, my Lumbar hurts bad when I sweep or mop. I was first diagnosed with carpel tunnel and I was getting shots and Neurotin 800 mg and after a while it went away but I have to take Neurotin 3-4 x's daily, xanaflex 6 mg for my back and Percocet 10 mg. Just recently after 2 years from moving and seeing another Pain Managment, he sent me to have an MRI on my spine and discover I have 2 lower herniated disc. As time goes by my feet hurts when I get out of bed, my legs hurts when I bend down to get something and hurts tremendous when I back up again. Now, I don't have insurance because I couldn't keep up with my job so, it's cost a couple of hundreds to see my Pain Management and get my Meds. The only way I get less pain is staying in bed but of course it makes it worse. Hopefully I can get disability because of my condition. I have everything you are dealing with but its getting worse. I hate it. I'm glad that I moved to a different state where it's cold bcz the heat makes it more irrable and uncomfortable.
Me to
My shoulders/neck also get super achy. It just makes me feel ran over.
I was diagnosed with Fibromyalga in Dec 2015 but I have a fractured back and Sarcoidosis, which I have suffered with for 4 years and continue to battle on, I have been back at full time work for 3 years but it's a constant battle with fatigue and pain, add the fog and some days make no sense.
Pace People ATTITUDE CALMNESS ENJOY
I also suffer an intense itch especially on my legs and depression
everyday suffer with my back pain and have trouble bending and lifting with joint pain and stiffness.sometimes flu like flare ups with terrible weakness in my arms .often have dry eyes and blurred vision .often radiating achey feelings running through me .....difficult life changing and insolating.
Yes I forgot the blurry vision. Takes me a good while in the morning to focus.
I have joint pain for example whole hands hurt when i hold the plate for 1 minute. I have pain on my hips my lower back my feet and my knees. If I stand for 5-10 minutes I get muscle pain in my legs and when I worked out the muscle pain is intensified by about 6x
I suffer from the same.xx
Same. My hands can't cope well with using the phone or typing. I have to take breaks as I get pain.
I also suffer from depression, anxiety, indergestion, severe dry skin, the list just goes on
Foot pain, ankle pain, carpal tunnel
Me too. Feet and ankles not good in mornings particularly
Hi
I also have dry eyes, itchy skin, and TMJ disorder for which I receive Botox injection with a good result. I work full time and excersie as able.. Listening to my body is key to my management of my FS symptoms .
Take care everyone X
I have facial swelling and pain in my face, neck, shoulders. I also get pain in joints, numbness and burning in my hands and feet, dizziness. I have a free floating anxiety at times. I have allergic reactions to range of things. Sensitivity to light and noise.
Extreme foot pain, prickly heat type itch, dry eyes and blurred vision, chronic back pain which prevents me from having longer than couple of hours sleep at a time and this is on top of the usual fm symptoms such fatigue, fog, muscle fatigue etc. It's definitely changed my personality and not for the better. You can't possibly be the positive cheery person you once were when your tired and sore all the time.
I agree but PACE PEOPLE ATTITUDE CALMNESS ENJOY
My eye sight. Some times It's so blurry I can't see
Problems also with hands
I can tick all the boxes plus I get depression and I have ra they say I have secondary fibromyalga!
also my skin feels sore if any one touches me i be though the roof. numness eyes get sore noise gets to me. pain horendues. no pain killers have work. ptsd. includes anixity panic. server depression. have bladder problems.
Let's see, depression, sensitivity to smell & light, severe itchiness to the point I break the skin scratching, bruises appear from no where, sensitive skin that scars/marks so easily, aches like flu which intensifies with flares, short tempered - if get frustrated either with self or someone else get angry & shouty, severe pins and needles in feet and arms, eyes water for no medical reason, muscle twitches/spasms, pain in joints and a spine that likes to lose its curves which causes pain! Oh god, looking at that list, remind me why/how I get out of bed on a morning! I've e missed so many things too, I just can't remember them all - I had 2 pages of typed A4 full of things when I went to the rheumatologist I'd note one down whenever I suffered from it for a few weeks before my appointment and he read through them, my referral & did the points test thingy then diagnosed me - I remember at that point not caring that he'd told me it could only be managed but just being so overjoyed to have a name for it all and not being treated like some dillousional hypercondriac! How times change and the whole thing just grinds you down!
I know where you are coming from, although being told you have fibromyalgia isn't great I think it's good that I now have 'a box' in which to put all my various symptoms. 😀
Pace People atttude calmness enjoy
I also have under active thyroid, itching so bad I make myself bleed and osteoarthritis which apparently is now wide spread. X
Dreadful itching, migraines, small fibre neuropathy and 3 autoimmune conditions. I think that's about it!
Also get visual migraines now...... itchy skin..... anxciety and severe depression..... word loss...... plus my incontince has been put down to my brain sending the wrong message to my bladder.... my consultant thinks it could be part of my fibro....also vibrations in my skull and down my arms...... pins n needles in feet
.big cyber hugs
Lolly
Restless leg syndrome, nausea, numbness down the right side of my body. Vision problems, spasms, urine problems
I started having urine retention in my 30's. I also had numbness down the calves of MyLegs and my perineum. Meuroogist said i was... Well.... Imagining it. Then i had an accident and wollop.... Full blown fibro. This year i have decided to fight back. Im currently Touring Scotland ( slowley) and have hired a cleaner at home. I know its a bit extravegant but i use all of my injury money on her to take the strain off me. Ok im broke, but im sane.... Ish.
Good idea Jules12, having a cleaner. My house is not huge, just a normal 2 level, no basement, about 2300 square feet. But it is so overwhelming to me now. I used to be able to clean the whole thing over a weekend, now I can't even fully clean one room in a day. Just surface stuff. The whole thing needs to be deep cleaned, but I just can't do it. Sometimes I wonder if I'm just getting lazy, but I've never been a lazy person, always loved keeping busy and taking care of my home. Very discouraging!
also suffer from burning skin sore eyes. blader problems. ptsd. anxiry panic attacts. server depresion. not being able to walk much cand be round noise
I also have depression and low mood
Mine is mostly extreme tiredness, memory, foggy brain, pins and needles and numbness. Feeling itchy.. Spelling is a real pain!!!
Tea123 😱😡
Same here
Low mood - emotionally volatile, poor skin condition, dry eyes, weight gain, muscle cramps, soreness to feet and hands.
Same
I've been confused by my ongoing health problems since well before I was diagnosed with Fibro some 2 years ago and continue to be so. I also have a degenerative spinal condition revealed via MRI which specialists essentially downplay? This is in terms of what, symptoms wise is attributable to it. I have my own views on this. However it's fair to say that reading myriad postings here suggests or more accurately evidences the massive scope and depth to which Fibro shatters lives.
It is said not to be progressive but essentially everything that ails me is getting worse. I struggle to clearly clarify to myself, let alone others but the easiest comparison is to say that most of the time I feel like I've got flu minus a high temperature. I ache in my upper back, down my spine, across my neck and shoulders, my arms and down to my finger tips. I feel like I've been in a massive accident or been beaten up. I have hardly any energy. I do virtually nothing. Like so many others here, the person I was once, continues to disappear.
Pace
People atttude calmness enjoy
I also suffer with flu like aches and pains, wrist pain and pain in my hip 😢😢
Also get nerve pain, numbness in fingers, sensitive to touch, cold weather exacerbates symptoms but hot weather helps to reduce them and sweats when others feel cool.
Sensitivity to light sound and smells can trigger an episode of biliousNess which can include vomiting / falling and falling asleep /panic attacks and depression /What a wonderful world o yeahhh
I also have haitus hernia copd raynards
Also suffer from hot flushes/sudden feverishness
Sensitivity to touch, noise,smells and light
I never know how I'm going to wake up, what I wouldn't give for a symptom free day. All I can ask for is an easier day.
I suffer with all of the above ,including blurred vision ,depression,balance problems,numbness in hands and feet and noise intolerance .and suddenly pouring with sweat with a burning feeling all over then feeling ice cold 🤔
Itchy all over and feeling of insects crawling on legs and head. Pain in the jaw/face.
Very sensitive to smells/noise/light. Slightest touch is vey painful in arms. Terrible lower back pain ( although that could be the osteoarthritis and Scoliosis) terrible pain in the feet. Also my feet feel as though they are buzzing !!!. Tinnitus and itchy eyes. Sometimes a bit wobbly, like I'm going to fall over but haven't yet, thankfully. Sometimes get a feeling of water moving in my head, weird I know.
Muscle spasms, increased sensitivity all senses especially hearing.
Overall pain, nonrestoreative sleep, cant stay asleep for more than an hour or two, weakness, nervousness, sore jaw, infections in ear or/an bladder, frequent urination, mucus trouble, depression, anxiety, boredom as mostly unable to do anything, suicidal thoughts, no energy or enthusiasm, extra pain after doing anything even walking a little, hurting lying down on myself, hot an cold extremities, permanent runny nose, sensitivity to touch, hot flushes, sweating, itching, numbness, sore or itchy eyes, cramps, bad circulation, pins an needles, cant get comfortable when trying to relax or rest until exausted, medication side effects, etc, etc...!
I'm pretty sure there is more that I regularly experience an suffer from but have not remembered.
Blurred vision, dizziness, can't stand for more than a few minutes, fit for nothing, have become pretty much a homebound hermit, no social life whatsoever, unable to enjoy life at all thanks to this FmS/CFS/ME illness...!
Remembered an edited these last few in after reading other peoples comments. Let me know if others experience as much as this please, as I'm not exaggerating here...! thanks.
Hughbro, N Ireland.
Yep, that pretty much wraps it up. Its amazing how differently people treat you too! Like your not worthy, or putting it on. I have terrible ibs and use the disabled toilet becauseim so embarrassed. Yet the looks i get when i do, particulalrly from our older population.
I experience most of the symptoms on your list plus a few more like sensitivity to noise, light ,touch.....and more.
Home bound hermit, yup, no social life, yup. Walking about is painful. Horrible pain from Sacroilliac joint and some facet joints like having several tooth abscesses at once but in my lower back. So hard to do ANYTHING.
Tonight I feel like I've been flat on a cobbled road and another load of cobbles have been used to batter me.
Sending you a huge amount of EMPATHY.
Hidden Hi hughbro, I have insomnia etc., etc., but do you ever feel as though your whole body is on edge, you cant sit still, can be bothered to try and distract yourself watching TV? I find I cant even get me head into a book beyond a few pages and I am known as a book addict? I feel as though I could sleep if only I could relax! soon as i lie down the legs start dancing, spasming, you know what I mean Im sure, but its the general feeling on edge. Like you, I tend to stay in more than I ought unless my friends insist on dragging me out. May I have my life back please? Stay well, Lyzzie x
Hiya Lyzzie...
Yep, I certainly well know all those feelings, wriggling about until totally exhausted an then only being able to sleep for one or two hours, then it all begins again...!
Then by the time I get over the morning pain an stiffness I'm shattered again an ready to lye down, even watching tv I can't sit apeice, among my other meds I've just had my Pregabalin increased to 300mg morning an night an seem to be getting a little sleep but energy eise I'm fit for nothing.
I'm praying an looking forward to some relief soon though, font think I could be any worse than I have been over these last few months...!
Always hopeful
Hugh
Hidden Hi hughbro, its 2,15am Ive tried to lie down and go to sleep but between the leg spasms and the pain from my legs ulcer this evening I simply got up again and Im watching the TV and chatting to you!. I really would like to just got to bed, feel sleepy and go to sleep like normal people. I do hope you get some relief soon, Im sick of living my life upside down, though lately I dont even sleep in the day..sorry, Im moaning again. Take care, Lyzzie x
Hiya Lizzie...
Hope you eventually got some sleep...
I found that Methocarbamol 750mg muscle relaxants help greatly with the RLS and also can help with sleep...!
Maybe worth giving them a try...?
I take 2 about 10pm then another 2 about 2am shortly before gping to bed.
Blessings
Hugh
Ambien is also great for restless legs and sleep. Ive been on Ambien for probably 10 years now. I have to convince my GP every 6 months that I still need it, which is ridiculous as he knows all my symptoms, but fortunately I'm still getting it. If not for that, I wouldn't sleep at all.
I have been having trouble reading lately too, and I LOVE TO READ!
fibromite35 I would be lost without reading, what do you like to read? I have very varied tastes, Im not a book snob and read what takes my fancy. I do enjoy Nora Roberts, and herother books under JD Robb, I dont lke blood and guts books, I just enjoy reading, do crosswords as well, except Cryptic ones, cant do them at all!, my bungalow is full of books, my friend Angie always says I wouldnt stand a chance if it ever caught fire!...Take care. Lyzzie x
I am like you in that I like all kinds of books. True stories like Wild and Band of Angels are among my favorites. But I also read a lot of fiction, probably too much in fact. Fill my head with a lot of junk! I have had a lot of trouble focusing lately. I don't know if it's me or the material, just getting bored with fiction I think. I need to take a turn into something historical maybe, or more true life stories, something that really gets you from the start and holds you til the end. Haven't read a lot of those lately. Got any suggestions?
I also catch infections easily as my immune system is weak
I also have trouble swallowing food which can be frightening when eating and sometimes its embarrassing so i dont eat out very much!
I have that too love n the same with fluids...I use a straw if I ever go out for my drink. X
I also have sciatica, depression, anxiety, suffer panic attacks, psoriasis, osteoarthritis, vertigo, feeling dizzy when i exit a lift, constant infections with my sinuses, pins and needles from head to toe including my face on the one side, twitching in my upper body, unexplained bruises that appear from nowhere, excessive sweating and itchiness all over that I break the skin and bleed. I've suffered with fibromyalgia for over 9 years now although only finally diagnosed this year and that was a physiotherapist that picked up on it.
Eyesight getting worse, dry itchy eyes when reading, muscle spasm in calf, knee pain, can't stand longer than it takes to make a drink, sciatica for 9mths., scoliosis of spine, pain in shoulder, muscles in arms hurt to raise them, can only sleep on left side cos of shoulder, hip n rib pain, I don't have flares, it's constant, always tired n have to sleep most afternoons, need wheelchair if I ever go out, not bothered about going out, don't like crowds, hubby is my carer n has to do everything. Get depressed if I don't use my hooka! Other than that I'm ok x
I also have tinnitus which is more rampant around 6-8 pm in the evening but is also very evident during the night, adding to sleep disturbances. I wouldnt wish this illness on my worst enemy. Like others have said previously, It changes your personality and outlook on life immensely. Wishing everyone a comfortable, pain free day
I suffer all currently but have no issues getting to sleep. I also have nerve pain all over my body and bladder pain. - not yet sure if these are related to Fibro symptoms. I also get Fibro fog occasionally and have difficulty concentrating from time to time. I have a constant itch in my wrists and sometimes my ankles, likely related to nerve issues. Dry eyes and light sensitivity. My thighs are tender to touch and I have frequent painful inner elbows. I suffer all over tendinitis and Tinitus, with periods of dizziness now and then. Vertigo, whilst sitting minding my own business.
I remember getting periods of fatigue to start, with all over pain. I thought I was imagining my fatigue as I would feel okay then this wave of tiredness would come over me and lift at times and then appear again. I felt like my head was in this tiredness bubble. TMD (Jaw pain), facial neuralgia.
affects walking have difficulty in walking up steps. Have raised blood pressure, raised cholesterol, edema and tinnitus.
My left eye became dry and inflamed 2 years ago also I have been told it's an allergy but if that is the case I would guess it would effect both eyes . I am on prescription eyebrows daily. It is more manageable now thank goodness but my eye does look different now. I have also been diagnosed in June with vestibular migraines, slight Vertigo and menieres disease. It was a sudden symptom of ear fullness and dizziness. Had several appointments and mri to rule out ms . My ear is unable to equalize itself . It's like constantly being under water. I'm still managing to work but I get home in the evenings in shock lol at how I manage. Also hayfever , asthma which I had under control before fybro diagnosis as was super fit and over the last 2 years despite me trying to stay motivated I simply cannot do what I used to.
I too have vestibular migraine, originally diagnosed Ménière's disease, they then after many years said it was vestibular migraine. I am at the moment laid up in bed with an attack. As soon as I try to walk head and balance all over the place. Can take weeks to get balance to something like normal. So this and many varied symptoms we all get with fibro can really drag me down.
It seemed to start in teenage life with blinding headaches and from there I think stress has brought it all on. And now I cope with it every day.
Jaw pain,itchy skin
Tinnitus occasional speech problem
I did not know that Fibromylgiain involved IBS AND RLS
Asthma and low B12
Cluster headaches
Anxiety and panic attacks
Rib and chest pain
Painful bladder syndrome
Blurred vision
Dry eyes
Rhinitis
Skin irritation, heartburn, dry mouth amongst others!
OMG, we can go on forever.................... x
I have become a recluse, having always been a people person. It is partly the physical aspects of FM but also the need for peace and freedom from loud noises. I am lucky in that my husband, children and friends understand this and don't crowd me, but this change of personality is strange.
Dry mouth exacerbated by amytriptyline. Pain mainly in legs disturbs sleep. I don't think it has changed my personality but I am not as sociable as I used to be because I become so tired. Tiredness can make me a right grouch!
Forgot haha! I have considerable problems with balance and vertigo. I am clumsy and walk into things, furniture, walls, doorframes. Bending down or looking high up start my world tipping. Not nice.
Me too! 🐸
I used to get told by my old boss that I could trip over the pattern in a carpet! Sums up my clumsiness. Glad I'm not the only one with random bruises appearing every GP I've mentioned it too has brushed it aside saying I must've knocked it on something - my response is generally 1. How do you knock your inner thigh/arm on something and 2. I have fibro believe me if I've knocked into something I'm feeling it for hours!
My other comments would be depression and anxiety xx
I find the fatigue worse than anything else. Working full time, 9 hours a day 5 days a week and a busy lifestyle its hard to stay safe and concentrated when at work and driving etc
I am increasingly suffering with anxiety - any stress situations can lead to an emotional breakdown, and also continuing depression. These mood problems have worsened since I have been taken off autoimmune meds and put on Nortryptaline.
Morning - other symptoms include vostochondritis, reynauds, chest pain (helped by magnesium supplements) breathlessness (helped by Vit b12 and Vit b3) gluten sensitivity, chemical sensitivity and noise sensitivity ... 😖🙄
Also get. Sweating. Jaw pain. Itching. Painfull feet. Throbbing toes. Balance problems. Back and shoulder pain. Costacondritis. Depression. Painful hands. Clumsy. 😭😭
over active bladder , eye problems , anxiety , depression, allergies
Light, noise and smell sensitivity which can be quite bad especially smell sensitivity, I also have underactive thyroid/diabetes
I have a tendency to drop things, like small change, cutlery, mobile phones etc. My balance is terrible, and my anxiety levels are through the roof. As well as all the above. Apart from that, the chronic asthma and type 2 diabetes, caused by medication for above ailments,and extremely high blood pressure, I'm fine lol.
I also have problems gripping and holding things,and problems with clenching my jaw and phantom toothaches.
I often think that even though my life can sometimes make me feel sad I know I live in a country which does at least try to find things which can help me(NHS).So when I see people on the news such as in war torn countries and so on I think surely there are many people who if they have not yet will obviously get what I have,they have no help though.
I also get dry eyes and dry mouth my skin is very sensitive to touch it's in differant places and varies in the degree of sensitivity. I also have problems with my eyes when I have been looking at a screen like my kindle or colouring books for a while my eyes go blurry and won't focus properly it can take hours sometimes to get back to normal. My balance is of and I walk into door frames a lot. There are so many little things that I have it's hard to remember them all. Plus I have big problems with over heating for no reason even in the winter I seem to run hot
Depression, heat sensitive. Weakness in hands ,painful arms ,
My previous comment is proof of one of my symptoms.. losing focus and thinking of almost another subject.
I also suffer with flu like aches and pains, hand pain with reduced strength in hands, pain in feet and hips
I have noticed that my muscles (especially shoulders but all over to a lesser extent) are constantly tense as if I am protecting myself against an anticipated impact. I relax them but then they tense again.
Hi Andy...
Was wondering if you have tried methocarbamol 750mg muscle relaxants tablets, they are available for short term use on prescription, might be worth a try bro...!
Hughbro
Spinning head. Jaw pain. Flu like feeling most of the time
Weight gain also
TMJ, dry eyes, tinnitus
Other symptoms : bruxism (teeth grinding), overactive bladder, depression, general anxiety.
It he's would be numb limbs vertigo. Black outs. Sesativity to light sound. Sensitivity to touch and other various things.
Thanks for posting this Ken.
I also suffer with increased sensitivity to sound, and smells. Also, lack of body temperature control.
Take care.
GP. 😊😊
Thank you
Fatigue, pain and stiffness is horrible as well as restless leg. Trouble sleeping most nights
I have a Daughter who has Down Syndrome she is 20 I have to get up in morning to get her ready for her centre Tuesday and Thursday morning I have felt sick and exhausted had to cancel dental appointment Tuesday couldn't go to a funeral Thursday on these days I need to go back to sleep ,Does anyone else get this ? it happens to me all the time making it difficult to make arrangements I also sweat don't know if that's part of fibro or due to me being on morphine I hate this illness it has completely changed my life .x
I can sleep with the aid of medication but at the minute it is broken sleep, could be worse, I could be up all night keeping you all company
Very painful swollen hands & forearms they sometimes don't feel like they belong to me. Painful calfs ankles & feet to the stage I feel they can't hold my weight. Lower back & hip pain.
I'm not diagnosed with fibro. Although I have been to docs a few times with symptoms and asked if that's what I have. Was told NO! I been tested twice for rhuematoidarthritis but tested negative. Been prescribed amytripteline which helps but no further forward. So I take each day as it comes and get through each day as best as I can. Best wishes to all. Love this support group. Makes me feel less lonely. Xxx
Horrible horrible symptoms of the dreaded fibro
I suffer from nausea/vomiting, swollen ankles, dizziness,poor immune system.
I get swollen fingers and wrists and sometimes my ankles swell up and can never work out why!
Sensitive to change in the weather and always cold (frozen to the bone)
I hate the brain fog and feeling of balance all the time not sure if anyone has this. Wishing you all a happy day. 🤗
Im sorry everyone suffers like this, but you have no idea what a relief it is to know Im not alone in this mess. I have talked about bladder problems with my nurse, but find it too embarrassing to mention to my doctor, Im not incontinent or anything, but when it needs to go its all of a sudden and it doesnt want to wait about thankyou very much!. I get 9/10 of the symptom you all describe, I enjoy this site because they do understand and you dont have to explain yourself, justify yourself or prove yourself!!. more power to you guys. Lyzzie x
I get a lot of hip pain, my legs are my worst part and the migraines Ouch! I wouldn't wish on anyone. The cognitive function is horrible I feel so stupid some times.
Love to you all. Xx
I truly understand that "stupid" feeling. I know I'm an intelligent person. I have a nursing degree. But it just seems like things don't soak in anymore. I look back on nursing school and don't know how I did it! I used to be a singer and memorize dozens of songs at a time. Now I can hardly memorize anything. It sucks!
sorry for being graphic, but my monthlys omg since forever they were bad, after i had my son even worse, and although i am post menopause, i am still losing every day, endo ? or fibro ?
sensitivity to noise this has been a nightmare for me.
numb limbs horrifically painful pins and needles. wayyyyyyy above normal pain of pins n needles
anxiety and depression
urge and stress incontinence
i have 26 and a possible 27 things wrong with me. how am i still alive lmao
Hi Woop, I also used to have terrible 'monthlies', one monthly used to end as the next one started. I had an ultrasound scan and was found to have fibroids, though not big enough to be operated on. I saw a female gynecologist consultant and she was lovely, she understood how debilitating it was to be constantly on a period.
She offered me the choice of having a coil fitted, or an hysterectomy! I'm repulsed by the idea of having a coil but felt that an hysterectomy was a bit extreme, even though I did not intend to have any more children. She then suggested a 'cervical ablation'. (I hope this isn't too graphic for you) - basically they fill the womb with water and 'microwave it' to kill off the lining of the womb; the part that thickens and then sheds when you have your period. I had that done and was comfortably back at work a week later.
It isn't normal to still be losing in the way you describe, you must see a Gynecologist xxx
omg its like reading about me, i had the cervical ablation, and for a while it worked but then it was back to normal. but i also have another problem. i have crohns and i have an unidentified haematoma well i have 2 one is really really big. and my bowel is fused to my womb, so i cant even have a hysterectomy so frustrating. but maybe if they operate on my bowel the womb might settle. i just dont know. all i know is i hate it. im sick of it. why cant it shivel and drop off after menopause. hahahaha
Pain above one eye. Sometimes generally feeling unwell.
Jaw pain next to ear.
Heart flutter, weight fluctuation
The only thing I don't get is restless leg syndrome. I get all the others including muscle stiffness. For me the worst thing is migraines as I have them every day
I have terrible itchy skin, I can't stand it. Sleeping is awful, I look very tired all the time and in the morning, I get shaky and walk into things. Not getting my brain in gear is awful too, I say things which I know doesn't make sense then have to correct myself. No one understands and they just laugh!
Whole body itching, Tinnitus, disphasia, eyesight problems, varicosities, costochondritis, TMJ, flu-like symptoms, sicca symptoms, sensitivity to light, noise and smell, muscle twitching, sleep difficulties and many more.
Yes ticked every box and others are similar to what a lot if people are reporting includes dry eyes, cold stiff hands, constant neck pain, sensory issues like sensitivity to light, sounds, smells etc. Irritable bladder, bruxism, sleep issues, nerve carpel pain, just recently developed sensitivity to sun and had two episodes of PLE after sun exposure this summer even with factor 50 on. I could list about 10 more issues as reading through comments I'm going yes, yes it yeah forgot about that one !...but have come to accept that this is me and try get in with it. The brain fog and tiredness is the hardest thing and I think I've been in pain for so long I've forgotten what pain free feels like. it's always there in the background even when having a good day and no flares. I also have hypothyroidism, some pituitary issues and inflammatory arthritis and osteoporosis. So add it all together I've been called a puzzle by several very senior consultants and professors. I'm past putting labels on what's causing which symptom and just treat what I can. Thankfully and luckily I have doctors who feel the same and are very helpful and supportive.
I thought I'd be depressed looking at all these symptoms when you list them all out but am actually proud that I'm still getting up each day and getting through it and having a semblance of a normal life. My only regret is I'm crankier and more prone to anger from being tired and in pain and others have said it's changed them and I totally agree. I can't be the mother, wife, friend etc. that I wanted to be as I don't have the same energy but am not beating myself up about it anymore and just trying to do my best.
Ive got constant pain that never goes away much worse at night ...fibro for 3 1/2 years now since bungling hospital messed my daughters birth up...she has to live with epilepsy and behavioural problems me with fm... i also have loss of neck curvature which really drives me crazy...worst part has to be dizziness and lack of sleep as it really hurts lying down.....hugs to you all xxxx
Tinnitus/ Burning/scalded scaly/Jaw joint ache/ Shoulders ache/arm muscles ache/Fingers,elbows,wrist ache/hurting ribs/problems with swallowing/sonstant pain in /along spine/severe joint pain in hips/muscle pain all along legs from hip joint to knees/scalded skinfeeling in both legs below knees/numbness/tingling in shins/ etc.etc.
Fatigue is extreme for me. Also mild tingling all over, pain in joints, aches all over, inability to stand up for very long as feel lightheaded and back starts aching like mad.
I have numbness in my legs below the knee
also dry eyes, sore jaw, hurting ribs, very sore shoulders and arms, sore thighs, sore hands and wrists, sore neck, itchy skin
does anyone else have problems with standing up for more than a few minutes? before experiencing the fainting feeling and increasingly aching back?
Also difficulty in regulating body temperature in unsettled/damp weather, getting too cold brings on shivers and a flare-up.
Other is Peripheral Neuropathy
One thing that springs to mind is problems with my eyes. I have problems focusing to read that are not solved by glasses. I have been told it's the eye muscles that not allowing focus for any length of time. Some days are better than others as with all Fibro symptoms. Prisms in the lenses of glasses won't work as its not double vision, the lines swim. I would be interested to know if anyone else has this problem. My eyes also get very dry and scratchy which seems to go hand in hand with the focusing problems.
I am riddled with trigger points all over my body and get a lot of muscle and joint pain. Thankfully all my fibro symptoms have lessened since I had a hysterectomy for adenomyosis 7 weeks ago. I don't know if it's because I've not been working and resting so much following the surgery, the growths in my uterus were causing inflammation throughout my body, or a bit of both, but I hope I stay feeling better. The fibro fog is still there though, as annoying as ever!
So many of you mentioning dry eyes - I get that too, but it didn't occur to me that it might be connected to fibro! Thought it was just age!
I have Crohns Disease
Sensitivity to smells and odours. Hot flushes and severe perspiration. Anxiety attacks. Sensitive skin and itching.
Like others I itch and also bruise easily.
mobility- lying to sitting, getting in/out of bed, pushing up with legs to stand, raising arms above shoulder height, aching eyes, bladder control, swallowing, chest pains from oesophagus, excrutiating pain if anyone touches or I scratch a muscle.
I also suffer from temperature, light ,smell and sound sensitivity ,unsteadiness and fall.
I also suffer with spacial awareness. I walk into doorways and furniture.
Working 35 hrs a week at moment feet and knees double in size and they feel like they are burning elbow hurts like hell on morphine patches now but still hurts so wish I didn't have this as I've got a lot of health issues xx
I hope this is ok ???
I also have tinnitus, but I think that is down to the low B12 rather than the Fibro. Have just had a mammogram today and it was agony!! Anyone else find this?
I forgot about the dry eyes and dry itchy skin!
I suffer also with joint pain, particularly in my knees, ankles, feet, hips, elbows., shoulders. My knees 'click' also.
Pretty much a typical fibro person o guess
I suffer with fibromyalgia, also pernicious anemia, small vessel brain disease, arthritis, asthma.I also get tinnitus, migraine and have balance problems, my legs often spasm during day/night this syndrome is a living nightmare, best wishes to you all love Kim x
I have chronic fatigue as well as fibromyalgia and suffer with these other joys as well. Sweating, itchy skin, noise sensitivity, painful skin even to light touch, hot hands and feet, cold feet, flu like symptoms and depression. Not necessarily at the same time thank goodness.
I also suffer from severe tender spots all over my body
weeks i have been getting a tingly vibrating feeling over my right shoulder blade the last few
I also have low vit D and B12 .. common in fibro, carpel tunnel ... common in fibro and neuralgia in the side of my head.. common in fibro.. see the theme here ??
We have to be so careful everything is not just blamed on fibro.
Irritable bladder, skin colour change when temperature changes. Extreme depression. Anxiety.
i sent before i finished typing sorry. iwas saying i get a tingly vibrating feeling over my right shoulder blade the past few weeks does anyone know if its the fibro please.
Forgot to say tetchy skin. Itchiness. Collar bone pain.
I also get burning pins & needles in fingertips plus an aching numbness in the fingers themselves, which gives rise to clumsiness and inability to do anything requiring detailed fingerwork, like threading a needle or doing up a clasp etc. It is an odd combo, rather like chillblains, in that you could jab me with a needle and I wouldn't feel it, because I'm already reeling from the aching and burning in the hands!
The other major issue is pain exploding like a firework from my solar plexus area. No warning. It just radiates out suddenly along my arms and down into my groin and legs. The heat bursts upward and outward in a rush too (a bit like the menopause I went through years ago) so I perspire to the tips of my hair and tips of my toes. I end up beached like a starfish, counting and deep breathing to ride it out.
Muscle stiffness sores in mouth sore eyes shouders and back pain chest cant breath sore throat rashes hair falling out increased weeing knees killing me and the worst pain ever felt in my inflamed ribs and night sweats increased urineing red hot flashes gum jaw pain balance probs
Joint pain , sensitive to cold , water in shower feels like shards of glass , other issues are because od MCTD ☹️
Started itching recently but probably always had itching because back has always itched. Have OA in both knees, both hands, starting in ankles and both feet, neck, shoulders, back. Did I leave anything out? When STRESSED - hot spots like blisters on elbows and sometimes inside nose. Fatigue and fibromyalgia fog are particularly bad.
Have to add to this - joint pain, particularly in my wrists, knees and elbows together with swelling. I probably get this more than the muscle aches. It usually precedes fatigue. It's very odd. Hope these polls help in showing medical professionals how different fibro can be for different people.
Pernicious anemia, hyper mobility,
I have Reynauds disease, prolapsed disc. Xxxxx
I also suffer from heat sensitivity so that I get hot and sweaty in a room over 20 degrees C or at even slight exertion. I could happily sit in a room at 18/19 degrees C and I rarely wear a jumper or cardigan in the house during winter. This is strangely at odds with a common underactive thyroid symptom (which I suffer from) of feeling the cold. I take my temperature regularly and it is usually under 36 degrees C so I cannot figure out why I feel hot so much of the time!
Hello I have all of the above plus facial and jaw pain. Shoulder rib back hip eye pain as well as cramps in my feet.
I encounter slurred speech and also burning 'acid' around joints and shoulderblades. Thank you for these polls.
I have had Therese for a long time but when one play up they all do and boy it knocks you for six
some weird neurological problems which in some ways resemble stroke symptoms which last varying times this is being investigated as my GP doesn't want to put it down to fibromyalgia until it has been investigated and other things ruled out.
That's an interesting one Lizziesmenagerie keep us informed on that one pls. It's just that when I've had bad flare ups, I used to think my right side of my head & eye would feel kind of numb & it used to feel like my eye would close on its own & i actually said, I wonder if it's what a stroke is like !. So yes, be interesting What your gp says
Luv Jan ☺
balance problems, tinnitus, carpal tunnel
Sensitivity to heat. Painful joints in hands and ankles first thing EVERY morning
Sensitivity to heat. Pain/stiffness in hand and ankle joints every morning
Lord, that's a full set. I also get a bit of tingling which I wondered might be some sort of neuropathy. Not all those on my list are severe.
Any other symptoms = irritable bladder, feeling cold, weight gain, anxiety
Burning knots of pain; taut, locked muscles that will not work; a crawling sensation in muscles on my back as if a worm was crawling underneath my skin. Tight, burning muscles that feel like rocks and keep my shoulders hunched up higher than they should be. Loss of full range of motion for my neck. Charley horses. Deep muscular pain that doesn't go away. Tight muscle pain that pulls my neck to the right or left. Being unable to write due to tight or non-functioning muscles in forearm and hand.
All of the above plus problems swallowing, multiple skin allergies with the random and sometimes severe itching, depression, anxiety, tinnitus, temporomandibular joint, myofascial pain, Maybe more but cant think of anymore at the moment!!
I have all all them symptoms but not the headaches. It is a terrible illness to live with and sometimes I think why me! I also have fractures my spine and I had vertoplasty that helped the fractures it is a procedure where they put cement and two fractures. So I have one more operation in October where they will Lazor The nerves either side of my spine and also inject steroids your side as well. I will be happy after the operation because the surgeon said that he will be able to reduce a lot of the pain in my spine. 😀 But I still have to live with the Fibro neuralgia. 😢 I must say that I am better than some people that I have read about. I wish you al well from the bottom of my heart. 😘😘
Hi everyone , does anyone suffer with burning sensation , or a feeling that their skin has been in the tumble dryer and no longer fits . I sometimes feel like this .
Happy days
Bipolar kit
Hi Kitza I do not have this myself but I many members appear to suffer with this issue. if it is something new or becomes persistent it is always best to get it checked out just to have other medical conditions ruled out of the equation. I want to sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken
I have insomnia since I was very you because of reasons I don't want to go into .I suffer daily with fibro fog and I have RLS which is horrible and when it's bad it's all over my body . and that hurts a lot and can go on for weeks . Headaches , ankle pain and leg well let's face it we hurt all over , all of us that is . I hate the chronic fatigue and the flare ups the most and the foggie feeling . 😇
Ps I forgot the itch .
Sensitivity to products used on skin, audio sensitivity, emotial sensitivity, irritability,
I presently have a frozen should which my physio says can happen with fibromyalgia
I get sticky joints and also feel like I have been mentally switched off.
Balance , mobility
Tremors
Poor temperature control. Bloating.
When tired difficulty in the articulation of words , clumsiness ,
Altered gait unsteady balance occasionally.
Depression.
It has also affected my pelvic floor muscle
My "other" symptoms are altered sensation, pins and needles/tingles, muscle spasms/twitches, the inability to move limbs when I have overdone things, and I can induce pain by overdoing it as well.
I have had FMS for many years. 1987 actually and it has not got better in that time I diagnosed myself as my doctor was calling it soft tissue pain throughout my body. Today I find it hard to walk, cut my toe nails and generally do all the normal things in life. Bob. I am again going to another rheumatologist, sorry but to say bought the tea shirt is just a small part of the answer. I woul e be surprised if they will. E able to help. ! Sorry to be so down but what else can you do when you can hardly climb stairs in your house without going onto all fours to grt to the top.
irritable bladder
I suffer most of the above symptoms..... I also have depression due to fibro.... I also have no control over my body temperature... when I am cold I am shivering and difficult to get warm.... when I am warm I sweat continuously and difficult to cool..... fibro has about killed my social life.... My heart goes out to all invisible diseases sufferers.... x
Iv had all these symptoms for five years iv not been myself at my life as changed so much I'm not the same person everything is true to what's in this poll
Soreness, trigger points, muscle lock ups.
joint pain dizzieness depression anxiety staying asleep clumsyness
Irritable bladder
I am also extremely sensitive to dairy, any form of sugar, soy, legumes. These result in migraines which then leads to extreme upper-body muscle pain.
Also very bad depression and low mood.low tolerance to noise.
Also I have severe depression,low tolerance to noise and lots people chatting.
I'm hot all the time but mainly at night... I rarely get more than four hours sleep. Yet again blood tests show non sufficient levels of vit D and folic acid... My body feels like Iv been filled with sand... So heavy and obviously all the fibro pain and fog...
Love to you all xx
I replied but do t know where it went! 😂😃 x
Sensitivity to noise & light, TMJ, blurred vision on waking, twitching muscles, CTS, joint pain (though also have OA) to name but a few!
Tingling and itchy feet, sore scalp, tinnitus, anxiety, sensitivity to noise and smell. Let me add, jaw pain, muscles twitches, sore hip, sleep apnea and sleep problems (difficulty to stay asleep for more than 2 hours). headaches upon waking up. Muscle tightness, lipomas on abdomen. Sensitivities to exercises (takes about 4 days to recover from exercising mildly (not even cardio)). Calf tightness toe cramps, plantar fasciitis and heel Spurs. Low back pain on and off that last about 5-6 weeks at a time. Low thyroid. Geographic tongue.
I suffer from severe electrical shocks in all parts of my body! I also drop things a lot!!
Hi this is the first time I share about this in a forum, and feel weird but I want to doit
I have most of the symptoms except migraines. I get deep pains that don't let me function. I get over Al my body a superficial pain that feels like bruises. This makes difficult get dress, hug ,or cope with my little boys cuddles what makes me angry. I don't s,eep well, almost never. I am straggling with work. The worse is the severe fatigue. I kind of control the fibro fog, I have some strategies for it. But I agree that they are a challenge. Does anybody have experience of working from home? Does anybody knows a reliable site where look for vacancies? Thank you
I suffer terrible with my neck and shoulder pain.The pain at times is so bad it comes right around my neck and even in my throat.I feel that I am going to choke.Also I can't lift my legs up very far as the pain in my groin is very bad.Does anyone else suffer from this
Yes me to doddsy it comes & goes in my shoulder & neck, sometimes worse than others. Same with groin pain, it stops me in my tracks sometimes, it doesn't last long but is excruciatingly painful. I have had injections in the past, which did help somewhat. Now my hip area is very tender & aches constantly, along with lower back pain.
Luv Jan ☺
Depression. Emotional stability. Socializing. Problems gripping things e.g. pen, phone, kettle, ect.... Pins & needles, numbness, trapped nerves. Balance. Co-ordination
I suffer with so much but people just do not understand why it can be a different part of my body from day to day.
I would also add, Itching, numbness, dry eyes/watering eyes, vision problems, sensitive to light & noise, muscle pain, lumps & bumps & lastly terrible cramps..
Peace, luv n light
Jan
Dizziness; numbness; acute hip/back pain causing discomfort sitting/laying down and walking.
I also have increased sensitivity to noise, lights and smells. I suffer from itchy areas, Sjorgen's Syndrome (excessively dry mouth and eyes) and Costochronditis which are all common to many fibromyalgia sufferers.
The fatigue/ extreme tiredness is a nightmare add on the insomnia and I feel like a zombie some days! 💤💤 4 am I finally went to sleep and my darling daughter woke me at 7:30! I then spent the day out with family and am exhausted but will I sleep tonight?? I very much doubt it! Tomorrow is probably going to be a nightmare b cause when I am super tired that's when the fog likes to sneak up and take hold! Those are my 3 yr old favourite days I think because she gets me in such a tizzy that I will say yes to almost anything lol last week she conned me into her eating 2 chocolate bars one after the other!!! 😳😳🍫🍫
I also have multiple food intolerances & those foods I am able to eat give me very bad heartburn. I am anaemic, have lost all my teeth to soft gum problems, have constant sinus problems, thinning hair.
I'm also hypothyroid, have Diverticular disease, vascular disease causing necrosis in my foot, stage 3 kidney disease, angina & I think various other things I've forgotten but as the preop nurse said the other day, I'm still here!
yes all ,plus don't forget the mood swings .I get really crabby with the pain xxx
don't forget mood swings .I suffer real bad with the pain and real crabby xxx
oh my goodness, no wonder the rheumy said it was the easiest diagnosis she'd ever made for me. i get every single symptom. and also have to wear sunglasses indoors like an idiot (or keep the curtains closed all the time) people think i'm weird cos i keep all the curtains closed, well i say never mind and it stops people looking in to see what i've got in me house!, not that i've actually got anything worth stealing haha.
Too hot/too cold. Muscle spasms, TMJ disorder, lack motivation, gained weight rapidly which has never gone, self doubt.
I also suffer from Psoriatic Arthritis, Blepharitis, Irritable bladder, dry mouth, runny nose, runny ears, tinnitus, multi chemical sensitivities, synotivitis, muscle spasms.
SassyShirl.
I have only recently joined the site and I feel better just knowing there are others like me, I was only been diagnosed five weeks ago after four years of suffering and my GP has started medicating me which is difficult because of my sensitivity to tablets, I am having chronic pain,fatigue and depression at the moment as well as all the other things .
Depression, due to suffering all the above and more!
Hello. I recently had so much pain in my left lung had loads of tests and the result is that its my fibromyalgia thats affecting my chest cavity, im in agony especially at bedtime. The doctor says I just have to cope with it. Oh well another one to ad to a very long list of ailments.😪
The fibromyalgia symptoms I suffer from are 90% of my joints are , painful being 10 well I am 15 , I also get really bad fibre fog it can hit in just seconds of feeling well, chronic fatigue , migraines , sleep is getting harder to find and my muscles get stiff and i also suffer from IBS, and it affects my brain I can't talk properly can't think straight can't tell what's right or wrong I don't get and break from it
I have all those symptoms above and many many more. Far too many to list. Unfortunately I also have ME and to be honest as I developed ME long before fibro I tend to put most of my symptoms down to ME.
I have everything you mentioned and many,many, more symptoms. Sorry to many to mention & to be honest my mind has gone blank & I cannot think of another symptom. Typical,sorry
I still have not been properly diagnosed, and don't hold out much hope as I think that our gps don't take me seriously having bipolar and tried to take my own life a couple of times.
Today I've had chronic leg pain , it's so painful making it hard to crack a smile, never mind theirs allways people worse off
Pins/needles,numbness, vertigo, memory, whole body burning sensation, sweating
I also suffer from dry eyes ,
stabbing pains, burning sensation balance loss falling over and all of the above, irritableness, mood swings, depression, and i segregate my self from people when i am really ill
Irritable/overactive Bladder, Endometriosis, Teziete Syndrome, itching, depression and anxiety. Just a few extras! Lol. Oh and Low Vitamin D.
Clumsy👜
All of the above, including Tachycardia and Anxiety. Doctor told me the increased sensitivity to pain was Allodynia.
Tinnitus- buzzing constantly and a tick tick sound, driving me insane!
Painful glands in neck and under arms, constantly. Although not swollen.
Fibro-fog is so embarrassing, i can no longer hold a decent conversation and my memory is dreadful! I told the doctor that i thought i had early signs of Dementia, but passed the test fine.
I have dry irritable skin. and I also am sensitive to noise and light . and I don't like interacting with people I don't know so don't socialise much or leave the house
I also suffer with over heating and sweating,
I ticked all of the above and also have depression, tinnitus and decreased hearing in right ear, blurry eyes, visual disturbances, dry throat and mouth with voice hoarseness, cramps, reduced appetite and electric shock like pains in many joints, itchy skin. Oh and Ive also had carpel tunnel surgery on both hands. There is more but can't think straight at the mo and this list seems endless and is depressing. I know it bores the doctors because they end up not listening.
mood swings, itching, tinnitus, decreased hearing in right ear, visual disturbance, dry mouth, anxiety attacks if I have to socialise, insomnia, dry eye, ulna nerve release on both arms, and more...
Also depression and chronic plantar fascitis
Other symptoms include unexplained pains which can be sharp like a knife or just an ache and can move when it chooses to any area of my body. Also sometimes all over aches and pains like flu symptoms.
Are there any meds that can help without any side affects
I have all these symptoms which are worse on a morning but when I go to bed on a night I get dreadful pins and needles in my thighs and pins and needles in my forearms and hands when relaxing on an evening. My hands feel tight like they're swollen most mornings and my back so painful it feels like I'll break if I move. I still work though have had to switch to a less stressful career and the fibro fog makes me feel like I'm loosing my mind some days. My only hope is that it doesn't get any worse.
I also suffer with burning feet with pins & needles type symptoms several times a day & night i can be standing,sitting with both feet on the floor or with my feet up & when i bend my knees it feels like they are being slashed with a knife & if i try & straighten them from a standing or laying position they go in to spasms.
I also suffer from difficulty swollowing and bladder irritation.
Crps, controlling body temperature, shaking hands
Also have sensitivity to noise and light, bladder problems, facial/jaw pain, constant tinnitus, blurred vision, extreme sweating, balance problems, clumsiness and bad co-ordination, rashes........ the list goes on...... my daughter makes me giggle when she says they are my "superpowers".
Also bad cramps, joints locking particularly fingers, and don't know if these are to do with fibro or just that I'm obviously a hypochondriac (don't know if I've spelt that right lol) but have terrible memory loss, hot flushes, severe pins and needles and panic attacks, fortunately not all at once and quite often none at all thankfully.
+ Dry, tired eyes and temperature sensitivity
I suffer extreme sensitivity to noise,including noise from domestic applianaces. Light and flashing lights,for which I wear tinted glasses. I have tinnitus and my dentist in forms me that I grind my teeth. I have localised nerve twitching,including in and around the eye area. I have the feeling that insects are crawling under my skin. However,in one particular area,where I burnt my leg when I was 7years old,the crawling and itching is quite intense.
Hi - Pain is my primary problem, muscle cramps all over back and up neck and jaw. migraines, neuralgia, nausea, tummy pain, diary intolerance (gosh i loved cream), painful feet for first 20 mins, brain drain (couldn't tell the time last week) not being able to say words is frustrating. I'm sure I've lost half my IQ.
My fatigue doesn't make me anxious, maybe I've mentally come to terms with it and just go to bed. However my life is easier than many's as i only work 2 days a week with flexi time. I also don't have children to worry about .
Sensitivity to sound is very very big for me
Also sensitivity to cold & noise. Cold weather often triggers pain and I' m intolerant of excessive noise.
Also have irritable bladder and excessive sweating and low self-esteem/mood.
Particularly hate the tiredness and fibromyalgia fog.
Dizziness, Tinnitus,
Dizziness, tinnitus.
Popping, moist ears, burning, fever, numbness, poor vision, temple pains,amplified senses. Jay
Cols
Cold most times especially my hands
Sweating and body jerking
Sensitivity to bright light and loud noises.
All of the above, plus night sweats, non stop postnasal drip, mild stress incontinence, aenemia.
Raynauds
Bladder issues which I think could be a symptom of fibromyalgia.
I also have blurry vision and really itchy a lot too.
I am over sensitive to noise, smell, sounds, light and taste.
suffer bad side effects from any medication i try to take ,every single part of my body is effected if pain subsides in part somewhere else takes over i have not had a pain free day for over 2 yrs havnt slept in a real bed for 3 years have to sleep on a airbed with 2 mattress toppers and an electric blanket also..
I find that taking all these meds leaves me with terrible constipation !! All bran is my saviour.
Lights and noise is painful
Bladder problems, unable to regulate my body temperature. Noise and light issues.
