Tick All Conditions That You Were Dia... - Fibromyalgia Acti...

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Tick All Conditions That You Were Diagnosed For Prior To The Diagnosis Of Fibromyalgia: Please Note This Is Just A Sample Of Conditions

TheAuthor profile imageTheAuthor352 Voters

Please select all that apply:

96 Replies
TheAuthor profile image
TheAuthor

I have been diagnosed with Rheumatism / Rheumatoid Arthritis  / Osteoarthritis and I have had multiple chest and lung infections due to Asthma and COPD. I had these conditions many years prior to a Fibromyalgia diagnosis.

All my hopes and dreams for everyone

Ken x :)

leslaki profile image
leslaki in reply to TheAuthor

I had my diagnosis of Psoriasis in my early 20s, then early in my 40s Psoriatic Arthritis was diagnosed, closely followed by diagnosis of Coeliac disease. I was diagnosed with Fibromyalgia just a couple of years ago.

Leslaki

TheAuthor profile image
TheAuthor in reply to leslaki

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Iona467 profile image
Iona467 in reply to TheAuthor

I had the same Ken, bronchitis three times a year, psoriasis for 20 years or longer, ear and mouth infections for 10 years (really bad), joint pains, recurrent glandular fever, spinal  problems, serious eye infections, kidney and lung infections,  gynechological problems and immune problems with my liver for over 20 years.  Finally diagnosed with Fibro and Lupus.  Had it been taken seriously and investigated much earlier things wouldn't have been so bad now.  Was treated as if an imbecile for a lot of it until one kindly doctor decided it was a lot to do with my immune system, 

TheAuthor profile image
TheAuthor in reply to Iona467

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Treewade profile image
Treewade

I have been on vitamin D for years with intermittent supper doses that just don't work well not for long. I also have ibs and ibd authority's but not rheumatoid and a poorly liver that is under functioning there is no mention of obesity and I got told that this was a factor by doctors maybe it's a side effect that comes through pain when moving.

TheAuthor profile image
TheAuthor in reply to Treewade

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

bluebell99 profile image
bluebell99

Severe osteoarthritis with 3 joint replacements, asthma, IBS, all things inflammatory, hypothyroid, lupus, Raynauds, Sjogrens, antiphospholipid syndrome, chronic urticarial, (hives), kyphoscoliosis, spondilolithesis, in remission from renal cancer, that's enough to be going on with!

TheAuthor profile image
TheAuthor in reply to bluebell99

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

I didn't and don't have any on your list.  I have Vitiligo from my late teens and was told it was an immune system disorder, with it came dermatitis but I honestly don't know if they are connected.  I also have neck damage but it could either be down to wear and tear or a car accident I had years back :)

TheAuthor profile image
TheAuthor in reply to

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

rubycat profile image
rubycat

I had glandular fever and yellow jaundice at the same time when I was 16. Looking back now that is when I stopped feeling well generally and have constantly felt exhausted.I was not diagnosed with fibro until I was 34.

Janet28 profile image
Janet28 in reply to rubycat

Interesting, I had glandular fever also many yrs ago and its so awful isn't it. I thought I was a gonna lol. Couldn't get out of bed for 3 wks..

But this was kind of all around the time I was also unwel with gynechological problems. 

Jan x

rubycat profile image
rubycat in reply to Janet28

I had bad gynae problems aswell. I always had bad periods and suffered for years until it was found I had endomitriosis and had to have laser surgery. I have recently gone into the menopause at 50 and am so relieved it has all stopped. I was recently told the fibro could have been behind all the gynae problems. Is there anything that is not connected to the Fibro ? !!!!

Janet28 profile image
Janet28 in reply to rubycat

Yes same as, but I didn't have endo although they did say I had cysts as well & went through menospause at 40. And they said to me it could have been to do with the severe infection and the op but as you say, they are floundering and finding reasons like PTSD or Virol Infections or Surgery. I mean, who hasn't had 1 of these factors in their lives at some stage. Do they all have Fibro ? No ! 

 

DAISYTHROWA1973 profile image
DAISYTHROWA1973 in reply to Janet28

Read mine Janet , your be surprised the menopause can do to us. I started mine at 21 xx

TheAuthor profile image
TheAuthor in reply to DAISYTHROWA1973

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

TheAuthor profile image
TheAuthor in reply to Janet28

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

TheAuthor profile image
TheAuthor in reply to rubycat

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Smith7 profile image
Smith7

I have sjorgens disease, rheumatoid arthritis, osteoarthritis, mild pulmonary fibrosis, under active  thyroid and fibromyalgia. But I'm Happy.

DAISYTHROWA1973 profile image
DAISYTHROWA1973 in reply to Smith7

How did you get a diagnosis of sjorgens, coz I have a lot of the symptoms more than FM x

Smith7 profile image
Smith7 in reply to DAISYTHROWA1973

My optician picked up eye problem, referred to an Eye specialist at hospital. Various tests, eyes drying out in 2 secs. Saw my rheumatologist who asked if I had dry mouth, vagina.  With eye results he advised  sjorgens.. Lower eye tear ducts eventually quarterised to help retain moisture. Gel for mouth. As I have several conditions that cause similar pain, I'm never sure which disease  is playing up. X

TheAuthor profile image
TheAuthor in reply to Smith7

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

ukmsmi4 profile image
ukmsmi4

I couldn't find ME on your list which is the biggest problem I have now and was before my Fibro diagnosis.  Also have bruxism, post nasal drip, mechanical degeneration in my lower spine and a small amount of osteo arthritis in some of my fingers.  Also get eczema and dermatitis.  Leading up to ME diagnosis had two bouts of iron deficiency anaemia and two of B12 anaemia, one of shingles and been vitD deficient and diagnosed with acid reflux.  Frequently get all sorts of viral, bacterial and fungal infections. Since my ME diagnosis, before the Fibro one, also developed orthostatic intolerance and myoclonus.

TheAuthor profile image
TheAuthor in reply to ukmsmi4

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

lynsu profile image
lynsu

Basically healthy active child, bit prone to chillblains, heatlumps, bout of psorais in teens, cleared with meds. For me 30s start of things, allergic rhinitus severe, allergy to penicillin, difficult pregnancies 2 csections,  poor health pain following second, years later intersticial cysitus diagnosed, ibs, later moderate athritus, asthma, copd,  cfs. Inflammatory and immune probs generally.Guess not good immune systems

TheAuthor profile image
TheAuthor in reply to lynsu

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

JayTon profile image
JayTon

I had swine flu six months before having ME and fibromyalgia! 

TheAuthor profile image
TheAuthor in reply to JayTon

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

widdershins profile image
widdershins

I have been diagnosed with osteo arthritus, diabetes, hypo thyroid, spondylosis, vertigo, fibromyalgia, "it's all in your mind", depression (ehich is actually sheer frustration!), and that is just some of it!

TheAuthor profile image
TheAuthor in reply to widdershins

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Claire133 profile image
Claire133

I wasn't diagnosed with any of the disorders listed on the poll. I was diagnosed with HMS and IBS and cerebellar tonsilar ectopia though.

TheAuthor profile image
TheAuthor in reply to Claire133

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Lizzielizzie0 profile image
Lizzielizzie0

I was diagnosed with FM in 2005 and have probably had it since late childhood.  I've just been to consult a Rheumatologist and he is the first (of many I've seen) to say that he'll test me for anything and everything.  He thinks I probably have Temporal Arteritis (the original reason for the referral) and that it's possible I might also have RA, and/or Lupus, and/or Sjorgren's Syndrome and/or Psoriatic Arthritis.  Reassuring and appalling all in one hit, although a huge relief to have a consultant not wanting to sweep everything under the Fibro carpet.  

TheAuthor profile image
TheAuthor in reply to Lizzielizzie0

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Hurtingmom profile image
Hurtingmom

Osteoporosis, osteoarthritis, spinal nerve compression, anxiety disorder 

TheAuthor profile image
TheAuthor in reply to Hurtingmom

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

fenbadger profile image
fenbadger

none of the above. It was pain to start with and among the investigations was vit D which I'm still short of. Strange considering how much I'm outside

TheAuthor profile image
TheAuthor in reply to fenbadger

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Shadows-walker profile image
Shadows-walker

Hi auto immune 😞 

TheAuthor profile image
TheAuthor in reply to Shadows-walker

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Sorebones profile image
Sorebones

That is a very interesting selection of conditions. I would like to be able to take it to my GP as I haven't been tested for most of these conditions.

I do have vitamin B12 deficiency due to pernicious anaemia, not through any of the options.

I also have severe osteoarthritis, diagnosed long before Fibro. Plus several other delights. I was tested for Lupus, but didn't have the antibodies, but all other symptoms. The skin condition of Lupus turned out to be Jessners Lymphacitic Infiltrate. 

My red blood cells are erratic. Previous blood tests have found them large and misshapen but no investigations have ever been done as to why they have changed. Or what that might mean. I think that when we present with so many symptoms our doctors choose an avenue of inquiry and forget about the rest 🐸.

TheAuthor profile image
TheAuthor in reply to Sorebones

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Carlinha profile image
Carlinha

I have been diagnosed with Rheumatism / Rheumatoid Arthritis / Osteoarthritis / mechanical degeneration in my lower spine ... so on...

I'm Struggling but managing. A good day to you all

TheAuthor profile image
TheAuthor in reply to Carlinha

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Noveltwisted profile image
Noveltwisted

I was repeatedly checked for an underactive thyroid and repeatedly diagnosed with depression, for which all the physical pain and fatigue was blamed and investigated for vasculitis before finally being diagnosed with fibro and then treated by my then GP and DWP assessors as though I was making a fuss about nothing. Also they did not look further for additional conditions until I insisted last year when they also diagnosed psoriatic arthritis.  Shabby, ignorant treatment for years. 

TheAuthor profile image
TheAuthor in reply to Noveltwisted

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

ampositive15 profile image
ampositive15

I had gastroenteritis in my teen's. had a hysterectomy when I was 32 after my 3rd child was born. a bit of psoriasis,  then gallstones when I was. 50. I had. my gall bladder removed

TheAuthor profile image
TheAuthor in reply to ampositive15

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Janet28 profile image
Janet28

Wow that's a very interesting poll. I was diagnosed with Polymyagia and then RA and was treated for RA and then told it was Ostioarthritis, then Fibromyalgia.

Degenerative nerve damage in my back and feet, something about bone density.

I originally had a hysterectomy in 1986 I had server infection for a time before the operation and afterwards,  was on large doses of antibiotics before and after the op. It is difficult to say if this was the start of my aches and pains because I was unwel for a long time before anyone would listen to me and kept getting  fobbed off and even back then was being totally dismissed as if I was a crazy women.

When I took matters into my own hands and saw a private consultant, he was shocked at why I wasn't in hospital, got an emergency op.3 days later, which had to be done in the old fashion way because it was only way to do it because of the severe infection. At this point I could barely walk. I would have waited 3 mths on an emergency waiting list if I had gone via NHS. Was told "Good Job I didn't wait".

So I presumed it was life threatening if I had waited for NHS.

After op I was given intravenous antibiotics and on going home a week later, more antibiotics because still had infection. Then 3 days after being home got rushed to hospital with high temp. Due to infection, more antibiotics. 

I do believe that all my problems revolved around the infections and op.before, but all around this time but i put up with it all because thought it was all to do with what I had been through.

Then when I had definite things, like not being able to put my foot to the ground, for days, then waking up 1 day unable to move my arm, then sleeping for days at a time etc.and being in terrible pain in my back. I then had a long hard, painful, stressful period of yrs fighting with various doctors and hospital specialsts, getting someone to believe me, it seems. 

Sorry didn't mean to write an essay lol just needed to put in perspective myself really and maybe others can relate to.

Peace, Luv n light

Jan x

DAISYTHROWA1973 profile image
DAISYTHROWA1973 in reply to Janet28

Read my sweetie, I can relate to you, still fighting Drs after 20 years now they just look at me as a junkie and a pain in the Arse really xx

TheAuthor profile image
TheAuthor in reply to Janet28

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Sad to see all the conditions we are struggling with, often without much support or recognition from the medical community. 

Diagnosed with fibromyalgia in January this year.

I have hypothyroidism, endometriosis, cervical spondylosis, hypolordosis, a "deranged" sacro ileac joint, steatohepatitis, b12 deficiency, currently being tested for pernicious anemia, other vitamin and mineral deficiencies, high cholesterol and poir kidney function. Had tumour in liver removed last year, IBS and migraines, finally labrynthitis! Wonder if a car crash 22 years ago triggered all this. 

Hope despite all our problems you are all having a good day. :-)-

TheAuthor profile image
TheAuthor in reply to

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

peck profile image
peck

Began 1992 depression, remember of g.bladder, dia. of Hep C as bile duct cut during g.bladder removal, tired and pain cked for lupus did not have in 11th month dia FM.I could have died from cut bile duct 2 days after g.bladder surgery totally yellow had ER Surg 1 out of 100 die.Its been a long road.

TheAuthor profile image
TheAuthor in reply to peck

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

skit profile image
skit

Great posts on this site Health unlocked. Much could have been added to poll Ken?

Stress over a long time? trauma?

I was told over 33 years ago I had some sort of arthritis /pain disorder.

My old GP gave me B12 injections for months. I had a virus long lasting  28 years ago they talked about ME then. I never was diagnosed with ME.

But I was a workaholic single parent for years then a married workaholic with teenage children!

I have been through much physio, many medics appointments including those for Cancer of breast and bowel when it was I discovered 11 years ago Fibro!

IBS was there years ago pain was there decades previously it was an orthopaedic consultant that put the jigsaw pieces together after another consultant elsewhere was prepared to do a neck op with 50/50 chance of living in a wheelchair.

So my Fibro friends new pain? Get it checked out. When told its all Fibromyalgia ask the experts us patients!

TheAuthor profile image
TheAuthor in reply to skit

Yes, unfortunately there are only 8 slots for choices but I shall be running similar polls with different conditions at some point. I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

looneysue profile image
looneysue

I was diagnosed with hypothyroidism, osteoarthritis, kidney problems, vertigo all before fibromyalgia was diagnosed.

TheAuthor profile image
TheAuthor in reply to looneysue

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

RIBBONPINK profile image
RIBBONPINK

HI BEFORE DIAGNOSIS OF FIBROMYALGIA ARTHRITIS .IBS.UNDERACTIVE THYROID.LOW BLOOD PRESSURE.HIATUS HERNIA. GASTRIC REFLUX. WATER RENTENTION IN LEGS.

TheAuthor profile image
TheAuthor in reply to RIBBONPINK

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

CarolineC57 profile image
CarolineC57

Interesting poll. I haven't been able to tick any of the boxes as none of my other illnesses were diagnosed PRIOR to the fibro diagnosis, though several of them have been diagnosed AFTER.

My fibro diagnosis was somewhat rushed - just the 18-tender point test and no other tests done. It's only since that diagnosis, when I found out that many of my symptoms didn't actually "fit" with fibro, that I kept pushing the doctors for more tests and have finally had other diagnoses. I'm now diagnosed with hypothyroidism, adrenal problems, osteoarthritis, low vitamin D and, most recently, calcific tendonitis. I do wonder if I have RA too as it runs in my family and I have all the symptoms. But my rheumatoid factor is negative so the doctors won't currently entertain the fact that I might have sero-negative RA.

I do firmly believe that a lot of these conditions go hand-in-hand.

CarolineC57 profile image
CarolineC57 in reply to CarolineC57

Oh, forgot to say, the only thing I was diagnosed with before the fibro diagnosis was ME - but that isn't on your list.

Janet28 profile image
Janet28 in reply to CarolineC57

Totally with you Caroline, I'm convinced I've got seronegative RA too. 

TheAuthor profile image
TheAuthor in reply to CarolineC57

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

sweetiepie profile image
sweetiepie

I've been treated neurotic female syndrome for 17 years.

TheAuthor profile image
TheAuthor in reply to sweetiepie

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

sweetiepie profile image
sweetiepie

soz. I've been treated for neurotic female syndrome for 17 years.

Mad_scientist_ profile image
Mad_scientist_

None of those listed, although there was variation between consultants regarding having osteoarthritis in my shoulder and I was diagnosed with chronic fatigue syndrome in my teens and depression (with exactly the same symptoms as when I had the CFS diagnosis, but a different doctor) years later.

TheAuthor profile image
TheAuthor in reply to Mad_scientist_

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Hartleyhare2 profile image
Hartleyhare2

Just goes to show that Fibro rarely comes on its own! Pre diagnosis I had pneumonia three times in hospital but no auto immune follow up. Back surgery for three compressed discs in lower back and prognosis of two bulging discs in my neck. Also peripheral nerve damage so corporal tunnel operation done plus elbow operated on for trapped ulna nerve. I wonder if these last two needed doing if I had been diagnosed with Fibro at that time?

TheAuthor profile image
TheAuthor in reply to Hartleyhare2

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

I've been diagnosed with IBS, FIBROMYALGIA, OSTEOARTHRITIS,DIVERTICULITIS,DEPRESSION,& ANXIETY.

ALL THIS STARTED 12 yrs AGO WHEN I SUFFERED AN ANEURYSM AND HAD TO HAVE BRAIN SURGERY. MY WHOLE LIFE CHANGED OVERNIGHT BUT I FEEL THAT I WAS ONE OF THE LUCKY ONES. 

IN BETWEEN TIMES IVE HAD E COLI, PNEUMONIA, VITILIGO, TINNITUS YOU NAME IT.

I AM UNABLE TO WORK BECAUSE OF NUMEROUS PROBLEMS IVE BEEN LEFT WITH & FEEL CHEATED THAT MY INCAPACITY BENEFIT  STOPPED 2 YRS AGO. I DID APPEAL AND WAS SUBJECTED TO AN HOURS HUMILIATION WHICH LEFT ME ILL FOR WEEKS.

HOW PRECIOUS IS YOUR HEALTH AND TO BE ABLE TO WORK WITH DIGNITY?

REGARDS JAN 😻

TheAuthor profile image
TheAuthor in reply to

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Lima6MCT profile image
Lima6MCT

I was tested for a few of the listed conditions but not diagnosed. I've been convinced for years I have underactive thyroid (family history of it) but results have always just been within "normal" UK limits. I had TMJ, Tinnitus, Carpal Tunnel Syndrome & IBS  diagnosed prior to FM diagnosis - I also have OA (hips, hands & fingers) & Spondylosis (Lumbar, Thoracic & Cervical).

TheAuthor profile image
TheAuthor in reply to Lima6MCT

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

DAISYTHROWA1973 profile image
DAISYTHROWA1973

I'm having all the tests afterwards. I know don't make sense, first they blamed it on having cancer at 21 having a radical hysterectomy so no estrogen , and having ostiopina of the spine and hips, told to go away do weight baring exercise and take fozzymax once a week , then dr leaves, move Drs meds get changed and I was taken off HRT coz I was overdose on it and levels went up to 800 when should be between 100 too 200, now my fibromyalgia is severe where my heart is affected . Had an angiogram in my wrists coz of angina pains. No angina but my arteries goes into spasume and can still have an heart attack, I now suffer from high pressure behind my eyes had to have a brain, head and eye scan, all now to do with my anxiety levels what I don't think it is. I had to beg for MRI on my lower back and do have osteoarthritis of my lower back and spine, I'm now going for a dexta scan coz I haven't had one for 10 years and then was when diagnosed with ostiopina, I do have a kidney that don't work propa from radiation therapy that burnt my tube so that hurts every day , I missed 2 apps to see a urologist coz I was having a mental breakdown and couldn't leave my bed . See got loads of test to have , my last blood test showed my inflame retries was up and my gaba GT was high and was told to cut down drinking alhahole when I don't drink!!!!! Still get shingles like Iv had the last 10 months but my GP wouldn't listen that my jaw had a lump and the connection bit clicks and is swollen. It got so bad after 10 months I wanted to take my own life coz I thought I was dieing but now I suffer TMJ and was put on strong antibiotics that an out of hours a dr gave me, I'm now under a new practice and being referred to a rumertoigst at last, oh they said having bad shingles when I had cancer that covers the whole of my left side of my face could of caused me to get FM, and trauma from losing my nan in 2007, my ex father In law to brain cancer and my late husband being diagnosed with terminal brain cancer who he died 18 months ago  oh and was put on meathadone as well to be told that it's made my condition worse to be put on diamorphine that gave me the mental breakdown so Drs consultant s look at me as a junkie and a pest when most days I can't get out of bed. Lost my family too due to my arratic moods but also diagnosed with panic disorder and bipolar what I'm not being treated for so at 42 still very much menopausal and turned away from any mental health coz Iv been on meathadone coz no one was listening too me why in severe pain all over but had no choice to look after my dieing husband and do his chemo and bring up 3 teenage boys, now I have swollen fingers that are in so much pain and the soles of my feet where my big toe his throbs, my arches of me feet hurt, Iv put on 2 stone due to being on pregabalin what made my lower back even worse especially just tripping over indoors and chipped a bone out the bottom or is it a hole they don't know lol so roll on my bone scan!! Xx

Janet28 profile image
Janet28 in reply to DAISYTHROWA1973

Wow that's a hell of a lot for anyone to cope with, no wonder your in flipping pain girl 😕 The mental health team are totally useless unless you are at risk of harming yourself or others, they do nothing, well nothing worthwhile 

I have a friend with severe bipolar & she doesn't leave her house for mths and doesn't eat, drink, wash, dress, lays in bed all day, gets up about 8 pm watches some tv and back to sleep. 

Her family don't do anything to help her because its easier to let her get on with it and they don't understand her illness at all. 

She has Mental Health worker etc. She be in darK with no electric or food and she won't even go shop or get someone else to go.

Her life has been a hellish roller coaster ride for last 4 yrs while going through menaspause and she's been sectioned so many times in this period, ive lost count. 

I think it's disgraceful how mentally ill people are treated and just hope that all this cash thier ploughing into it actually makes change.

It also infuriates me the way anyone can look down on anyone like they are better than you. Don't even get me started on that one lol.

She is same age as you too.

Luv Jan x

DAISYTHROWA1973 profile image
DAISYTHROWA1973 in reply to Janet28

Awww thank you for getting back too me, yes the mental side of things are not helping me, my and your friends bipolar feeds into our pain, so I'm in constant pain, I'm taking my old GP hopefully to court , she never had my prescription ready so I'd be without any morphine, my beatablocker that I need as I wake up coz my hearts going mental, I live across the road from my Drs, she was never in, always on sick or leave and never left my weekly script, so I would wake up on a Tuesday morning in real bad pain especially in my back, I would have to get over the surgery every week in agony sometimes all ready withdrawals and I would have to wait until another Drs does my prescription, I don't leave my flat for no one or sometimes my bad coz I can't but had to every Tuesday,evry week, was anightmare , ....your poor friend coz I do feel for her, you can give her my email clairehavard9@gmail.com and maybe we can help each other out in some way....I understand just sitting or laying there not eaten, laid in my bed having a breakdown laying in my own poo wee and vomit all night coz I couldn't move until a mate came round, she sick too and my so called family all live in the same area , 2/3 mins away , I would never see my children suffer, even tho they are still grieving for there dad, I still say come over and if I'm in bed a mess, I'll still support them with words and a cuddle, but it's so hard for my boys nun of them drive and live the other side of Basingstoke or they would help me more , but all 3 don't get in from work till 7, then have there dinner then it's 9 o'clock they do text and ring me every day and the eldest understands but the other two don't like hearing me moan and want look up fibromyalgia at all, never mind , I must be strong to get this far . All the best Janet and all the love and peace Claire xxx

TheAuthor profile image
TheAuthor in reply to DAISYTHROWA1973

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Sniffer8 profile image
Sniffer8

I have a progressive spinal condition called Syringomyelia which most of you have probably never heard of.  It's rare, little researched and neurosurgeons tend to disagree over what to do.  America is ahead in its acknowledgement and knowledge, so I research those sources.  The guidance I've had with neurosurgeons has been woeful.  My current one suggests that my Fibro is related to my spinal condition.  I also have spinal osteoarthritis, hypertension, kyphosis and reflux.  Ain't life grand.  

TheAuthor profile image
TheAuthor in reply to Sniffer8

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

I had tinnitus, RSL, IBS, Gynea probs from teens, intercranial hypertention, pnumonia.  spinal degeneration, kidney infection that spiraled out of control and is now accepted as a fibro flare plus infection, but at the time the doctors were puzzled  about a diagnosis.

It is thought that the pnumonia triggered my fibro.  Im not so sure. As a child i could not control my temperature And gynea probs from word go.

My last GP always suspected that all of my problems were linked in some way but because i didnt have the pain and fatigue it wasnt diagnosed until after i had a bad flare that left me in agony for months.

I am lucky that i never had a doctor say that there was nothing wrong and all of them did their best to try and find a diagnosis.  My present gp thought that Fibro only caused pain but has now accepted that there is much more to it.

TheAuthor profile image
TheAuthor in reply to

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Bluewoo profile image
Bluewoo

None on the list but;

Hyper-Mobility Syndrome

Macro Prolactinoma

Sub Clinical Hyperthyroidism (treated with Radio Active Iodine)

Thyroid Adenomas (Benign)

Obstructive Sleep Apnoea (OSA)

Vitamin D deficiency

High Cholesterol (since young but not familial)

Low BP (since young but now normalised)

TMJ Temporomandibular joint  Dynsfunction (grinding of teeth)

Migraines

Stress

Accident causing; left sided sciatic pain, lower back pain, saddle area numbness, left shoulder pain 

Depression and Mental Issues (who wouldn't)

I thought that was enough before ending up with Fibromyalgia - which group do I join?  Thyroid, Fibro, Pituitary, Hypermobility, Depression, OSA etc etc.

I am just falling to bits..... 

TheAuthor profile image
TheAuthor in reply to Bluewoo

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

MrsCMH profile image
MrsCMH

'General malaise' was written on my notes along with depression. I was tested for thyroid, Cushings Syndrome, polymyalgia rheumatica, lupus, vitamin deficiency and many others for many years. Finally they settled on FM as all other tests were 'normal'.

TheAuthor profile image
TheAuthor in reply to MrsCMH

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

IBS glandular fever Raynaud' rheumatoid arthritis fibromyalga ostioatheritus plus tinnitus vertigo gosh that looks bad when you see it written down and I was born with two holes in my heart

TheAuthor profile image
TheAuthor in reply to

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Lesley_ann profile image
Lesley_ann

I was diagnosed with rheumatoid arthritis in 2002. Followed by raynauds then sjogen disorder. For the last 5 year's I have had vit d and b12 deficiency. Last year developed pulmonary fibrosis and diagnosed with fibromyalgia 2 months ago. 

I wad treated in 2011 for extreme post traumatic stress and I've read a few view's on that also could be a possible link. Linda

TheAuthor profile image
TheAuthor in reply to Lesley_ann

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Panda-Pants70 profile image
Panda-Pants70

I had a few episodes as a child with excruciating back pains, my legs were weak after P.E at school, to the point I couldn't move my legs. The doc said it was growing pains. That was in the 1970,s. I am also really bendy m flexible and did alot of Latin American, Ballroom dancing and gymnastics also as a kid. I thought o was special cos even though I was a bit chunky I could do things with my body that no one else could do, then I became ill out of the blue in 1996, I thought I had flu, joint pain, fever ect, then I started losing blood from my bum, I lost 3 stone in 4 months, I struggled to even go to work for fear of cramps and unexpected toilet need, I finally had a colonoscopy done to reveal Ulcerative Colitis. I was 28 had two young kids, working full time n now fighting colitis, I got better after a year and apart from flare up, I was coping. I unfortunately suffered domestic violence from husband, he got hooked on drink and cocaine, he was a doorman, built like a barn door and it went on for years until I finally left him, lost my home but luckily my mam let me and my 13 yr old son live at hers, I was under so much stress and it kicked my colitis off massively but now I was beginning to vomit alot, was losing blood from bum and stomach, I lost 7 stone, and eventually major bowel surgery in 2011. I was 41 and seriously ill but I came back fighting and initially was well for about 6 months then the joint pains returned with a vengeance, I had no energy so doc suggested seeing a rheumatologist,  in 2012 I was finally diagnosed with Joint Hypermobility syndrome, osteoarthritis, fibromyalgia, and hypothyroidism.  All I'm the space of 2 months I'd finally put all the pieces of my life together and it explained why I was ill as a child, the crohns /colitis ect. I believe the trauma of abuse from hubby, sexually abused as a child also, had confidence issues all my life and I 110% that it all was the cause of my various illnesses. I'm now 46, I got retired from work due to ill health and capability, my pain is at an all time level, just been to pain management clinic so om hopefully to get some for of relief. Sorry it's so long, but trying to explain the connection between previous traumas and chromic illnesses,  thanks for reading x

TheAuthor profile image
TheAuthor in reply to Panda-Pants70

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Macberts profile image
Macberts

I had a really unusual childhood illness which affected my blood (can't remember the name) if you touched me I bruised! I was in hospital for two months. I then contracted Lymes disease in 2010 whilst living in Norfolk maybe this triggered it??