Have You Found That Anything Over The... - Fibromyalgia Acti...
Have You Found That Anything Over The Holiday Period Has Affected The Level Of Your Fibro Making Your Pain / Fatigue Worse? Multiple Choice
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I have rather over eaten (I am so greedy at Christmas) and I have had more migraines due to flashing Christmas lights, and I am worn out due to so many visitors. Mind you, I love it really! x 
Hi Ken
I think a little of what you fancy does you good so don't be hard on yourself if you've over eaten!
I've always loved Christmas and having had Health issues for the last 31 yrs with 3 young children ( now with grandchildren!) I'm always depleted afterwards but I love it so it's worth it. Having family round on Christmas Day & Boxing Day did wear me out and I've been incapable of much since but the sense of achievement is irreplaceable. My lovely husband had a stroke/ epilepsy last year at this time (we're 59) so I feel blessed were still able to keep our business going between us working from home.
God bless you and all on here, keep strong!!!
Thank you that is genuinely appreciated. I am so genuinely sorry to read about your husband, and I would like to sincerely wish you both all the best of luck and have a wonderful and pain free 2016.
All my hopes and dreams for you
Ken
The stress of so much going on and fights with people cause you are stressed and in more pain.
Not being used to social occasions since having Fibro I find them exhausting after the event. They tend to send me into a flare and migraines too.
Eaten too much flashing lights and more family round. I loved it all but the exhaustion and pain was unbearable Just kept smiling but glad it's all over for another year. Happy new year to you all and I hope you have a pain free year x
Ugh the flu jab...made me ill all over Xmas
I am so genuinely sorry to read this and I sincerely hope that you feel better soon. Please take care of yourself. x
glad you said that i debate whether to have one as i have had reaction in the past few years so did not have one this year and just staying away from people .so far so good
I am so genuinely sorry to read that and it does not agree with everybody. Please take care of yourself.
Hi me too apparently the hn1 swine flu was in the jab this year am not going to get it again next winter as apparently causdeing horrible time for CFS and fibro suff so herbal things next winter has anyone else had problems with the flu jab take care
I'm hearing now of so many ppl that aren't well that are refusing the flu jab. I don't know if I'll bother again, but defo not on top of Christmas again! xx
Being expected to join in everything, be 'Mum' to all, cooking, looking after grandchildren, putting on brave face and knowing people don't understand when a normal festive day means I can't do anything for two days afterwards. Just general feeling of aloneness with this awful illness
I am so genuinely sorry to read this and I sincerely hope that you feel better soon. Christmas really can be too much work sometimes! Please take care of yourself.
hi yes i feel exactly the same the expectations of being mum now are just the same but make for unbearable pain days after . and i need to join a a commune cant stand the silence of the four walls .
Yes I agree, by the time I do it all I can't eat and no one understands why
It's so lovely to hear I'm not alone. What you've described sums my Christmas and New Year up to a T. I feel about 90 and all I want to do is sleep to escape the pain and stress. No one else seems to understand! I have a bright, articulate family who are all capable of reading up what they need to know about me But it's getting to the point where I have seriously thought about writing a summary myself and distributing it. I'm totally fed up! Sorry for that rant. At least I can get it off my chest here!
I am so genuinely sorry to read that and I sincerely want to wish you all the best of luck. Please take care of yourself.
I too have a very articulate family and when I felt I wasn't being listened to or they were not hearing what I was saying, I wrote a piece of what it is like to be me saying I am nor lazy if I don't want to do things and ask for help, I am not old or boring if I want to sit out of the next round of outings or games with the grand children, I am merely exhausted or in pain. I am not dead if I don't answer my phone at 9am. It's because I have been up all night and have just about managed to nod off for a while and so on and so forth. I put this A4 sheet in the hub of my home, the kitchen, with the heading "Please read, This is ME"! They seemed to get the message in the end. I hope you have some luck in getting through to your family and good luck with everything.
Don't be alone high roost and don't think we don't understand, I'm sure we all do. Bless you, I totally understand where you're coming from, a place of sheer exhaustion!
You know you love your children & grandchildren & youre putting on a brave face. You want to be who you used to be without the health issues, it makes you feel angry & helpless but you ARE coping ( even if only by acting) and your grandchildren will have lovely memories of Christmas because of you!! Sending you much love & I pray you will balance as well as you can soon.
Take care x
I find I increasingly prefer my own company (pooch exempted) for two reasons. The effort required to maintain a facade takes its toll and big reason for facade is not wanting to bring loved ones down. When I'm on my own, it doesn't matter how I feel and what I do. It's hard for my wife as she has the brunt of hands on re grandchildren (ages 4,4 & 3) and her mother who needs increasing attention.
I have hardly any energy reserves, at least I can self care. Almost everything I do, tires me out. It's so hard to communicate that and for others to understand. I know everyone here understands but what we cope with is hard to impart. My memory of feeling normal recedes, I know I once was actually very capable. I'd never describe myself as dynamic but there was a time when I had some zip about me. That me is long gone now. I posted recently about the joy of acquiring my mobility scooter to enable proper 'walks' for my dog. It's tired me out though! Can you believe that, sitting on a scooter takes its toll.
The other strange thing for me is when others talk about flares? It doesn't feel like this to me, I'm sure I'm on a continuous downward trend and have been for some time, an inexorable decline if you will. Been up since 0230 as couldn't get comfortable in bed. My arms ache so much from shoulders to finger tips. It makes me fidgety, restless and agitated as I cannot find a comfortable position. Then my leg starts to spasm, and still is. Waiting to get so tired that sleep will be the outcome.
I am so genuinely sorry to read this and I sincerely wish you all the best of luck. Please take care of yourself.
Sorry you are feeling extra low. I agree I feel better when on my own and do not have to make that extra effort to be human. Miss my cat though, she died in September . Hope you feel better when we get some sun.
Sorry to hear you lost your cat it really is hard when a muched loved pet dies as they become such a comfort to us when we are so ill. I know I could not be without my two cats as they are always with me and they dont mind what I look like and that I cannot do anything! Perhaps you might consider getting another cat when the time is right for you. x
I am so genuinely sorry to read that you lost your cat and I want to sincerely wish you all the best.
using a scooter can be painful and tiring, but is preferable for me to trying to walk a little in pain, or not going out or shopping or seeing another person!
these new blue led lights on cars or decorating houses give me instant migraine. - as do halogen ovens.
I found that a scooter was too painful and went for a power chair, just a simple one. I can sit without leaning forward and having to steer. The only thing that i move is my right wrist.
I can spend most of the day sitting in it.. with a lot less pain then i got just in one trip around the supermarket.
Food for thought. ?
I spent months researching what to go for and did consider a power chair. Presently (and hopefully for some time) I'm okay indoors furniture walking and using stick as necessary. I can generally walk a fair distance but increasingly slowly and my knees under increasing strain. Got fed up of feeling so vulnerable and felt I was cheating my pooch. My class 3 scooter will enable me to venture further should I wish. Looking forward to better weather. Indoors I move little so realise that getting scooter out of garage and all associated movements getting out and back are requiring muscles little used to do their bit. I'm having to steer one handed as I hold dogs extendable lead in other. I swap hands as necessary and have been amazed at how well my dog has adjusted. Pavements are atrocious, endless undulations, holes, inclines. Scooter is great though, new lease of life.
Megan also adapted quickly to walking at the side of my chair. Only needing one hand to steer leave one hand free for the mutt and i agree about pavements. I would love to have words with whoever was responsable for putting a drain in the centre of a dropped kerb. 
Burnham on sea is the worst i have found to take wheelchair round and Mablethorpe the best.
Hi siffter iam so happy that your scooter is making a difference for you and pooch I feel awful as my 2 wee ones are having to do with a 5 min out the back got 2westies ones nearly 12 so not so bad for her but the other 7 and really needs a run been about 5 weeks since been able to go to park were I bench dodge and they chase the squirrel's so enjoy time walkies take care no speeding now 😊
Hi Maria
Thanks for that. I love Westies! My little chap is a cairn cross and people are always asking if he's some sort of golden Westie. As weather permits I'm venturing further. We have some playing fields nearby that will incur a fair distance for him to get there, then I'll be able to let him off lead and follow on the scooter.
That's what Julie has but she complains it makes her ache. So she hardly ever uses it unfortunately x
I over did it getting ready for Christmas and catching bug and to many hospital appointments leading up for Christmas 😩
I am so genuinely sorry to read that my friend and I sincerely hope that you feel better soon x
I hate not being able to do what everyone else is doing because of the fatigue. Enjoyed going to the rugby on Sunday but the walk to and from Twickenham meant I was in great pain all night and the fatigue has wiped me out for the time since
I've found an increase in everything resulting in a terrible flare. The combination of working more to make sure everyone is seen before the xmas break, the cold, choosing, buying and wrapping presents, visiting and having friends and family over. So exhausting and debilitating especially when trying to give everyone a good time and not letting the fatigue show too much. I will not go down without a fight!
I am so genuinely sorry to read this sand I sincerely hope that you feel better soon. Please take care of yourself.
I like to be in my own company. Too many people really stress me out. This Christmas I didn't even go down for dinner. I just stayed in bed. I also didn't get to go and get any presents as I wasn't that long out of hospital with pneumonia
I am so genuinely sorry to read this and I sincerely hope that you feel better soon. Please take care of yourself.
I agree completely about liking my own company. I cope so much better as I only have myself to please. It can be very lonely too. I think there is a huge difference between being alone and being lonely. One doesn't necessarily go hand in hand with the other. I can be in a group of friends and still feel lonely. That will be absurd to some 🐸
I so agree with that. I have said it hundreds of times
Not to me. I absolutely understand that feeling. I much prefer being on my own so I can just be me, tired, in pain and able to show it, I can cry and not have to explain why.
This is a horrible thing we suffer from. I wouldn't wish it on anyone. I'm only 58 and haven't been able to work for seven years and I don't think I'm going to be around much longer if it carries on getting worse like it is at the moment. The worst of it is, I actually don't mind because the thought of another 20 or so like this are unthinkable 😱
Hi yip me too can just lie about in pjs and not think about what house looks like or as you say putting a face on it it only stresses you out and makes things worse iam 57 and not been able to work for 4 yrs loved my job as support worker/ carer like yourself I feel like I want to scream how much longer can this go on to the degree it has been this last 3 months I just want to go into hibernation till it ESES. Up a bit hope you feel a little better soon 😴
That makes perfect sense to me my friend. I have often said on the forum that I can feel all alone in a crowded room and yet, over crowded in a room of one person x
I couldn't vote because I'm so very fortunate that nothing bothered my fibro. Not true for my bipolar agitation though. (Where's that vote?)
I am delighted to read that you were fortunate enough not to have your Fibro inflamed but I am genuinely sorry to read that the agitation of the holiday period affects your bipolar. I want to sincerely wish you all the best of luck and please take care of yourself.
Your vote would come under other on the voting chart
Desperate to feel normal i have accompanied my husband to visit friends in France. Sooo tired and pained after flight. Wish i had asked for assistance but did not due to embarrassment when travelling with friends. Friends understanding when i have disappeared off to bed mid day/early. Pain intolerable at times but fatigue debilating especialy when you see others who lead a normal life having fun and enjoying themselves pain free. Still, im grateful i managed to come as i have been really poorly on the lead ip to christmas hence my absence from the site!! Bon Annee to you all! Heres hoping 2016 is full of good health and happiness for us all xx
I had noticed that you had not been around? I am so genuinely sorry to read how poorly you have been and then having a bad flare. I want to genuinely wish you a speedy recovery from this. Please take care of yourself.
May I also wish you a happy, wonderful, pain free as possible 2016 x
One day I didn't get adequate rest, went to the Star Wars movie which was very loud, stimulating and excellent, found myself pushing to get through the day and by evening was trying to hold up my end in a card game while my son kept up an irritating noise repairing a toy gun for a few hours right near me. This noise and the fussing of one of the children kept working on my last nerve until I thought I was going to explode. It was due to my exhaustion and agitation of my bipolar disorder added to the irritants I already noted. We cut the card game short which saved my nerves and that of a few other people. Tragedy averted!
I find when I don't get enough sleep that I can't talk properly even though I think I am. Even worse when I fall asleep in my dinner
Until now I was the only person I knew who did that! I just fall asleep sitting before my dinner. Aren't we a pair!
i also meant to tick, to much or to little excercise
I've just not been able to keep up with everything like I used to. ....it's all been a bit much even though I love Christmas and my family.
Due to, too much moving about, New Years Day lots of pain in back and hips, could barely walk. I ended up taking to my bed for the day, lots of pain killers and hot wheat bag.
I am so genuinely sorry to read this and I sincerely hope that you start to feel better soon my friend x
As (any other) mines is mainly stress and being under pressure . Stress over Christmas however enjoyable it is can be inevitable. Things like your wages not being paid on time to friend inviting you out buy you just can't stand the thought of being in loud bright crowded areas etc . The minute I become stressed my symptoms become more intense. Happy New Year to you all .
I wish there was a distinction here between too much and too little exercise. Sitting about watching TV has increased my leg pain and dampened my mood.
stress with being on my own.
The non stop rain makes me bad
I think the rain and the changing hot and cold weather here( near Washington DC) was also a problem for me. My migraines and my arthritis are affected by that
I am so genuinely sorry to read that my friend and it has the same effect on my arthritis and migraines. Please take care of yourself x
I am so genuinely sorry to read that and I also would love a long fry spell now. I want to sincerely wish you all the best of luck.
Had a very busy Christmas with family was determined to enjoy every minute of it and did, pain levels are through the roof and not sleeping, but have enjoyed my family time. happy new year.
The general noise of a lot of family and friends all talking together.
Especially screamy little ones. 
I am so genuinely sorry to read this my friend and I know only too well how this can make you feel. Please take care of yourself x
The atrocious weather is affecting me as well as the low light.
I don't really "like" but I agree!
I am so genuinely sorry to read this and I do wonder how much worse our Fibro is simply because of the change in seasons? Please take care of yourself.
Excercise (too much). Money worries like most of us, Family expectations and last but by no means least The Weather!
At least I have a year to recover. I love Christmas, but I am utterly washed-out now.
I am so genuinely sorry to read how you are feeling and I want to sincerely wish you a speedy recovery without having to wait until next Christmas! x
medication,diarrhea has cause my entire body to hurt, I can't think or say what I want,everything seems so confusing and I have extreme fatigue,
I'm badly affected by loud noises and when a large number of people get together it's only natural that things get louder. Having said that, I had a wonderful time with my family and friends and gave myself a full day of recovery just resting.
noises affect me too. just recently sounds and music are distorted. I know it will return to "normal" soon, but it's horrible right now.
I am a little surprised that there was no choice for the work that is involved over Christmas, for women especially! I have had six people to shop and cook for for a week and one of them for two weeks - he leaves today, thank goodness. I am totally exhausted and aching all over!
Exactly! Bless you for doing what must be done! I'm sure you do hurt ...
Even with help, there is so much to be done to shop, decorate, prepare, etc. And though my Hubby offers to assist in any way possible, there are times he just can't do some things I do (or want done in a certain way: yes, I'm quite "particular" ~ probably my O.C.D. at work ~ so that's my own fault).
Gentle hugs to you and all ... bk
I sincerely hope that you are feeling as well as you possibly can be today?
As I was saying to stilzski in my reply to her; I cannot discriminate between male and female on the forum as many men undertake domestic duties in this day and age, as do I. I do all of the cooking, shopping, washing etc at home as my wife has Primary Progressive MS. In the past I have received complaints from members when I have separated the perceived gender roles. I want to genuinely and sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken
My apologies, Ken! I did not notice your response before writing.
I have known of Julie's MS for awhile since joining the site, and had assumed you have taken responsibility for most all the household duties. I have great respect for you, and any/all men who do the same, or handle even part of running the household. In fact, my own husband is a Godsend in this regard, and assumes many extra chores. And please know that I definitely understand your position regarding posing the questions.
I do fear, though, that my small attempt at humor (re my O.C.D. and in essence not being able to relinquish my hold on decorating for Christmas, some gift selections, etc., pertinent to the Holiday Season) was lost =(. I am ultimately my own worst enemy by not allowing Hubby to help!
I sincerely hope you and Julie had a very Merry Christmas, and I wish you both, and all our friends on this wonderful site, a Happy and Healthy* New Year!!!
* or perhaps "Healthier" is the better word ... !?l
Please, there is no need to apologise x
Yes, I am exactly like you..I try and delegate but can't switch off and everyone wants Christmas to be just as it always was...as I do!
I am so genuinely sorry to read this my friend and I sincerely hope that you feel better soon. Unfortunately when I am creating the polls there is only room for 8 choices so I could not fit on work. There were other things I would like to have added but have tried my best to cover it all in the 8 choices available to me. I cannot discriminate between male and female on the forum as many men undertake domestic duties in this day and age, as do I. I do all of the cooking, shopping etc at home as my wife has Primary Progressive MS.
I want to genuinely and sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken
For me it is simple, I do too much trying to get ready for my family coming for Christmas dinner This year I tried making it easier by doing things earlier so I didn't get as stressed
I like the sound of that my friend! I will have to try this next year x
Doing too much has really kicked off a flare. The worst one I have had so far. I suppose I learned a hard lesson. I didn't follow my own advice in. I didn't pace either Christmas or New Year. It was my own stupidity that caused it. I could easily have explained why I needed to take it easy, but instead I threw caution to the wind hoping I'd get away with it. If I had stayed at home to take it easy yesterday instead of meeting friends I may have got away with a mild flare. instead a steam roller has run me over 🐸
Worried about losing my job.
Under the any other section, less sleep. Or being so tired I stay in one position, and then feel very stiff and sore in the morning.
The colder weather upsets me. I find it really difficult as I am freezing one minute then boiling and sweating profusely the next.
I am so genuinely sorry to read this my friend and I sincerely hope that you are not suffering too much as a result of this, please take care of yourself
I work on a big Christmas project - used to be 300 people in 4 locations- almost doubled this year - to 575 and 7 locations. My job is gifts- getting them, getting them wrapped( buying supplies for wrapping), organizing wrapping sessions and getting the gifts sorted and distributed ( that is in a central location, thank goodness). There is another smaller component - 200 toiletry packets. Anyway, the stress of doing it this year seemed to make everything going on with me worse- my hips, my stomach, my head. I look forward to better health( and pain control ) in 2016.
I am so genuinely sorry to read this my friend and I sincerely hope that you feel better soon. It is a rush and the stress can play havoc. Please take care of yourself x
I've done too much this Christmas and New Year. I've over done food and alcohol, etc but had a good time and Monday when I'm back home I will regroup and get healthy........errrr!
getting in and out the car more often and just being on my feet more sets it all off worse than ever .
walking makes me worse not better short distance walk makes me feel like ive done a marathon .
I am so genuinely sorry to read this my friend, and I sincerely hope that you feel better soon. Please take care of yourself.
No money worries, but a bit of everything else.
Iv jus realised Iv included drinking, but I don't touch it, except in cherry brandy chocolate sweets! Perhaps that was my downfall. Either too many or not enuf!!
Yes, I know I like a glass of wine with meals especially at Christmas, but I know it will be pay back if I am tempted to have some. I also feel that I have felt more tired because I have been staying up later, especially New Year's Eve. I felt washed out yesterday. It seems to aggravate symptoms.
I am so genuinely sorry to read this and I sincerely hope that you feel better soon. Please take care of yourself
Other issues - staying up late and not enough sleep. Also sleeping in different beds at relatives houses, beds and pillows too firm very uncomfortable for me who is used to a memory foam topper.
my parents have feel out with me because we made our own plans for Christmas day this year and it didn't include them
I find that writing xmas cards very painful, it affects my : hands, fingers, elbows & with leaning over the desk to write them, my neck & shoulders hurt, Plus its the same with wrapping pressies.
Other issues,has anyone else had this horrible throat and chest bug that's going around.Been ill now since 16 th dec and still feel rubbishy.Tried my best over Christmas but boy I've never felt so tired.Go to bed and an hour later walking around like a zombie,how come we can be so physically tired and yet not sleep?Throat really really sore and coughing a lot of the time ,tried to get to docs ,phone up just as surgery opens and all appointments gone ( how can that happen )told to phone again the next day,a and on it goes.small meals when I can but my best friend has been a Paracetamol and sudofed,and the occasional brufen.Also pinched hubbies inhaler.Fibro on its own is enough to cope with but throw something else at you and it's unbelievable how low you can get.happy new year to everyone and hope you all feel good for the start of a brand new year xxxxxxxDawn
Snap! Could have been me writing!
Don't need anything else with Fibro to deal with!
On plus side, since I got this 5 years ago I have had virtually no bugs. Don't know why. Might be something to look into.
Happier, healthier new year!
I am so genuinely sorry to read this and I sincerely hope that you start to feel better soon. I have had a bad cough and chest infection but I think it is related to something else? I want to sincerely wish you all the best of luck and please take care of yourself x
Just the sheer volume of work involved in preparing the house for a full load of visitors, trimming up everywhere, cleaning, food preparation, cake baking etc. We went from being a household of two, to having 4 Staying, plus an additional 2 for Christmas Day and a further 3 for Boxing Day. My husband's work means that I have to do virtually all the preparation for Christmas.
Did too much in the run up to Christmas - decided to be crafty and make things for nephews & nieces and didn't realise how much I'd taken on. Was still finishing stuff off on the day!
Lonliness
I am so genuinely sorry to read this, and I sincerely hope that you are not suffering too much because you are lonely. Please take care of yourself. It may be beneficial to try and find a Fibro group in your area so you can meet other people?
I have pasted you a link to the FMA UK Fibro group pages:
fmauk.org/contactsmenu/supp...
I want to genuinely wish you all the best of luck.
Ken
I ate to much was cooking all over the holidays for my children and grandchildren loved seeing them but was glad when they went home just curled up in2 a ball was so sore
fireworks NYE messed my sleep & added to pains!!!! bah humbug!!!!!!
I've had migraines, pain definitely been worse too x
I am so genuinely sorry to read this and I sincerely hope that you are not suffering too much as a result. Please take care of yourself x
Lack of sleep
I am so genuinely sorry to read this and I sincerely hope that you are not suffering too much as a result. Please take care of yourself
Hiya every one happy new year well I hope it is for you all.
This is one of the best Christmas ever. Usually we do plans who coming and when but not this year.
My son tryed to organise a party on Boxing Day at our house we said no for the first time ever.
Only plan we had was stepson house on Christmas Day which is ever year after that we wouldn,t make any at all.
We just wanted a quiet one. Well Boxing Day we went to my sons just about 1/2 mile away that was lovely took dog came home when we had enough just great.
Stayed in watching films tues got an invite to my sons for tea. Yes please another day don't have to cook.
Then invite to stepsons on New Year's Eve, another yes please.
The great thing about not making any plans at all is no worries don't feel like it don't go and you can come home when the young ones get a little to much.
As for the food Ken I have put 6 pounds on so back on myfitnesspal for me on Monday.
It is usually us that do everything.
Any way on New Year's Eve my son was there as well with the Grandchildren.
Before we left I did a little speech say thank you to both family for a love Christmas and new year and that we would not be doing any parties again as it was to hard work for us.
I has a little cry but the best thing out of it they all said just leave it to us now you have done it for years and now it is there turn.
Wow what a great start to the year.
Glynis.
Not being able to sleep at all ,not even two hours
My Christmas was really bad. Could t sleep at my sons house Christmas night and could only manage to go for a a little bit over lunch then home to lie down.On Boxing Day we go to our middle child for the day .I had such a bad back I couldn't sit or lio on back so I had a hot water bottle on my back .On top of that a very very bad sore r
Throat and all the top of my pallet and a mouth full of ulcers .So you can see how fun my chrkstmas was,I really hope yours was better Happy New Years sweet friends xx
The weather in Texas really exhibited its changeable nature in extremes this Holiday Season ... as Regnofibro showed in a "weather forecast" post! The blizzard coming thru New Mexico, to W. TX and eastward caused us to detour, and do a "horseshoe trip" returning home Sunday, narrowly missing the devastating tornadoes that came through less than a mile away Saturday evening ... surely caused by the 30+ degree drop in temps as the cold & warm air met.
We are Blessed to be spared in the midst of all the destruction and loss that we see around us: it is truly heartbreaking.
Just not being able to go on, have rest time at our planned destination, took a physical toll ... I am experiencing headaches, along with back pain & other distress.
I do love Christmas, but I am sad that its memory will forever be marred by this event.
Guess I should have said that those weather changes from day to day took their toll, too, on my Fibro, spine ~ esp. the cold. But you all know how that can be ... right?
I am so genuinely sorry to read this and I sincerely hope that you are not suffering too much as a result. Please take care of yourself x
I got myself in a right tiz...because I was so excited and I wanted everything to be perfect and it was apart from I had bad days. Typical! But positive thinking I actually had some good....HAPPY NEW YEAR to you all and to all a good night 🐵🙈🙉 xx
The constant wet and rainy weather...waking up for work in the dark...leaving work in the dark....my body clock isnt working properly!!! Insomnia and stress. I need a holiday somewhere hot and sunny please!!! 😂😂😂
I found before Christmas I felt horrendous, absolutely no energy, beyond fatigue, simply flat. During Christmas I felt nauseous, light headed and spaced out. I really wanted to go to bed.
Full credit to my family, they went the extra mile to understand fibromyalgia, read the paperwork and was so empathetic.
I am so genuinely sorry to read of how poorly you were feeling before Christmas and I sincerely hope that you are feeling better now. Please take care.
changes to my sleep pattern, late nights and lie-ins have disupted my delicate sleep pattern and now I have bouts of insomnia and crushing tiredness
Plus worry about my bipolar partner who I basically have to manage, as she is not allowed to have her own tablets for her own safety (long story), worry about forthcoming doctor's appointment to discuss possible/probable prostate, and trying to learn to drive have made my fatigue and pain both tiring and sore (did you see what I did there ?
That's my yearly unlurk in quick
We are pagans and don't celebrate Christmass but the winter Solstice instead. We didn't make a meet this year due to me fluffing up the date, it changes each year. Just a nice meal at home lots of talk and tales and of course the kids get a present, especially when they worked out there are two solstices! Hope every one enjoyed the season as much as they wanted and how they wanted.
That sounds really interesting! I was born a day after the summer solstice. Thanks for sharing
Stress triggers the fibromyalgia for me and puts me down for days with pain and migraines.
I am so genuinely sorry to read this and I want to sincerely wish you all the best of luck. Please take care of yourself.
people chatting thinking I'm really enjoying the interaction, and self exhaustion and the maintaining of a happy facade!
I am so genuinely sorry to read this, and my heart sincerely goes out to you as I can understand this so well. I truly believe one of the greatest curses of Fibro is the ability to strip us of social interaction through exhaustion and fog. Please take care of yourself.
Isolation, in the middle of nowhere with no access to immediate medical care makes the worry worse, and in turn the pain and fatigue. The small children and constant arguments make the stress worse which has the same effect. Exhausting being around too much family.
Doing to much work to make Xmas happen for family
I am so genuinely sorry to read this and I want to sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken
Chi Ken I wrote other but didn't clarify as Pagans we don't celebrate Christmas but have an interesting view point to how harassed, stressed and under immense pressure. What should be a well earned break seems from the outside to be an exhausting chore with no church involved anywhere.
But I hope all of you that do celebrate had a restive festive time 😃
I agree with you completely, in the vast majority of cases it is the truth of our lives today!
To me it is about eating so much that I fall asleep! I love turkey
I feel that the cold weather effects me. Also the bright Christmas lights really hurt my eyes and then leads to migraines.
Not doing any exercise except walking due to all the holiday stuff
I am so genuinely sorry to read that and I sincerely hope that you feel better soon now the holidays are over with.
All my hopes and dreams for you
Ken
Main for me was that I didn't exercise for a month over the holidays. Everything took place the 10 days before Christmas. Visitors stayed to long and another said they might just turn up which I didn't want (they don't look after their kids and let the wonder and they are noisy) and I was worried it would escalate to having to invite them for dinner. 😓
I am so genuinely sorry to read this and I sincerely hope that you feel better now the holidays are over .
All my hopes and dreams for you
Ken
Stress I think? I'm a musician so gigging was very tough. Plus a beautician with 3 children. My pain hit me like a hurricane.
I am so genuinely sorry to read this and I can imagine that the holiday period is a very hectic and stressful time in your line of work. Please take care of yourself.
All my hopes and dreams for you
Ken
My other is being out of a normal routine and difficulty in being able to pace myself
the stress of trying to cook christmas dinner. still managed to forget to cook the pigs in blankets and left the cauliflower cheese in the oven. I found it the next day, fortunately I'd remembered to turn the oven off.
i was on my own over Christmas as i do not have a family it was sad x
I am so genuinely sorry to read that you spent Christmas alone, and I was wondering if joining a Fibro group may help you? I have pasted a link below to the FMA UK cache on groups:
fmauk.org/contactsmenu/supp...
I want to genuinely and sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken x
Dear Friends,
My name is Yvan De Schrijver, founder of "Netwerk voor Fibromyalgie" in Belgium & the Netherlands. As you we find that adequate research is an urgent need... We are calling Europe to unite around this matter and to act to find a solution for the miljons of Europeans who suffer every day of Fibromyalgia & CFS. Can I ask you to support our petion, sign and share ? Thanks a lot!
A virus which me and my son have had.Still feel like I,be just been knocked down by a bus and my son is now back at school .
