Which Medication/s are you taking spe... - Fibromyalgia Acti...
Which Medication/s are you taking specifically to manage ONLY your Fibro
641 Voters
Like many others you have all been a "light at the end of the tunnel" to listen to regards the medication im rather restricted only on co codamol because of Epilepsy and the majority of others dont mix,and rather confusing for the Doctors with me having the Osteo arth/spodylosis, as one said qouted regards our FIBRO "its only muscular pionting to a book behind him" ill say no more.
But chin up as they,Lavender x
ps if ever in doubt regards your medication ask your pharmacy ,they can be helpfull
HI lavender, after writing my post I see you have epilepsy, Im on topirimate for fybro which is an epilepsy drug but I dont have epilepsy. What treatment are you on, because I found this drug fantastic? I have had fybro for 14 years, I do have arthritis but now I can tell the difference in pain between the arthritis and the fybro where as before I sometimes could not.
Hi soo19 ,im on Topamax or Topirimate as you call it and tegaratoll for my Epillepsy,was put together after a few yres work to control seizure by a wonderful Lady ,top neurologist of uk,but since comming back into scotland all doctors want ot interfere and i say no,and added pain releif Co codamol,as various other dont work with our epilepsy medication,Fibro ive had since 2002,the lose of strenght in the muscle/pain you canct put in to words as you well know ,and the Osteoarth,spondylossis the pain and deformity of the body as basically i see and feel as wee all know its within,
but my dear soo19 thankyou for the inforamation regards medication ,thats good to know as they say !!!!!! thankyou
Bless you I do feel your pain, yes it is with in, the only pain deep pain relief I get is from heat patches the deep chilli ones which i buy whenever i see them I first bought years ago in malaysia, I try not to use painklillers as I thought i lost my mind went for tests for dementure as I was sure I had it until they proved me wrong!! keep smiling 
deep heat cream i find responsive pending were the pain is "but use with throw away gloves best" also electric heat pad,whatever is best for you,a favoirite teddy,good music and some nice candles often does the trick,the spelling is the side efect memory loss not me ok take care
Can't stand any kinda of heat/cold sprays..etc. Too sensitive :((
there is a product called "dog oil", dont laugh its true.x I dont know why it helps as it only contains rape seed oil. But it is neither hot or cold and I find it useful. buy it at Holland and Barrett
i don't like it when i first get in the shower how painful it is when the spray hits me, my skin is so sensitive to hot and cold and itches like mad. I couldn't live without my long handled back scratch er.
Ask your GP about Pregabalin. It's for Epilepsy but also really helps with the fibro too! It's from the USA but is now used here in the UK as well. Good luck!
I take on Venlafaxine due to FM and Lansoprazole due to the medications for FM
I take this also for depression , but Doctor thinks it can help with pain too ...
I have taken Venlafaxine for years and I do find it helps. But I still get days when I am depressed.
Like-wise for me too - For years though I was on the lowest dosage and getting no better - then when I moved and has to join a new surgery I got them to triple the Venlafaxine dose from 75mg to 225mg a day - 3 years on and I'm finding their effect waning more and more - so next week when I need to renew my meds I'm going to ask for a change of antidepressants.
Don't want to frighten you, but if you are planning to come off venlafaxine you really need to do it slowly. If you go on patient.co.uk you will see it is the most talked about drug in terms of what people go through when coming off it. Last year I was on 225 mg and as it wasn't helping any more my GP and I decided to come off it and try something else. She took me off far too quickly and I had a psychotic breakdown and ended up in psychiatric hospital. I was completely delusional, even got arrested at one point. In fact it was due to this that I got the help I needed because the police doctor insisted that I be admitted to hospital. I am sorry if this is upsetting but I would rather tell you and you be prepared than let another human being go through the hell that I went through.
Hello Whippet, gentle hugs.
I'm so sorry you had a such a dreadful experience last year and I hope you are doing well now and are on the right meds for you.
You've not frightened me at all sweetie, I've gone cold turkey on meds before and suffered the consequences for doing so - fully aware of what to expect I'd go through - I have a strong constitution and most drugs have no effect on me - good or bad and I am fully aware of what coming off Venlafaxine can do coming off them full-stop. I will wean off them slowly as now with all illnesses I have, going cold turkey is not an option! - I will let my doctor know though, than I need something that will do the job properly.
Thanks for being thoughtful and caring enough to let me know.
Carol x
I agree with whippet_lover - I was taken off venlafaxine cold turkey and it was horrendous. I ended up in a&e and was told by the doctors there that it is akin to coming off heroin cold turkey. The annoying thing is that it was working for me at the time - I just went to the doctors after about 2 years on it and I'd had one instance of lightheadedness & rather than bothering to investigate, my crap doctors (where I was living at the time) decided that it was obviously the venlafaxine affecting my heart and took me off it. it was the most scary thing I've ever experienced, so please, please ensure your doctor weans you off it really slowly. xx
I take arthrotec to combat pain in my legs (side effect of pregabalin)
I also take clonazepam at night - muscle relaxant which also helps with sleep sometimes - I wouldn't be without it - it was one of the first that Prof Davies when he was still working for NHS prescribed.
I take diazepam as a muscle relaxant and to help me sleep. I'm not happy about it. For the gastric reflux that comes with Fibro I take omeprazole and Gaviscon Advance.
Gracie i agree and found this highly helpful but then learned it is highly addictive and not recommended long term. i choose to use it at times of extreme anxiety and stress, which compound my symptoms to torturous. i am also have been diagnosed with me/cfs plus fibromyalgia. i tend to believe they re different conditions my cfs/me i see as degenerative but the fibro not.
I've been trying to come off diazepam for nearly 10 years. Not fun.
Gracie/ Have been taking these since 1955. Had post natal depression which wasn't recognised in those days. My daughter is 52 now and I'm still taking them. They're part of my chemical make upnow. Dont want tocome off them as I feel they still do help me. Dont think they get the bad press they deserve.
Hi Happe , I have been diagonised with fibro, , but my fatquie is really really bad,does that mean I hadve cfs ,I always expalin my fibro to people as chronic faqtuie with chronic pain .
hi lynr, who is right or wrong seems confused on this. from my road to treatment, i see cfs/me as dysfunction on the most systems especially immune and hormones. fibro i seems to focus on the two central nervous systems. both inpact geatly on fatgue and pain, but its the differing types of pain and sub conditions i think are different. it's so confusing. i mock its like living with chinese tourture. but we all know either way its no joke.
Hi Happe
My fm is degenerative as I am now in a wheelchair. The pain from the fm and osteoarthritis is now so severe i can not differentiate between them but my doc will only give me paracetamol. I have been on lots and lots of different painkillers including the patches (which burn my skin) and none of them really work.
I take diazepam as a last resort , when my restless arms and legs get too much and I am exhausted.
I was given Diazapam at first as a muscle relaxant, my GP and others were reluctant, but boy did it help !! The GP got to a point when he would not prescribe me any more, so....out of desperation ( I am not a stupid person ) I started to buy over the internet. I became addicted to it and the day I told my GP, I was taking 60- 80 mg a day. That was a year and a half ago and I am now weaned down to 5 mg a day.
I would just advise everyone to be very careful with this drug as it is EXTREMELY easy to become dependant on, and take so long to come off.
I know what you mean when you talk about desperation.I'm amazed how you have been able to wean yourself down to only 5 mg from those high amounts. 8 mg at night is where I've been at for years, but when I was given amitriptyline, I was able to stop Zopiclone completely. I should take a page out of your book Annaley, and try to reduce the nightly dose of diazepam though.
I take Diazepam ( or as called in the old days, Vallium) I get 14 tablets every 6 weeks to 2 months - as my doc trusts me and knows I won't abuse. But have found over time that even 5mg doesn't help me now - especially when it comes to sleep. When I'm in France, I always pop into the chemist and tell a little white lie and tell them I use Tetrzepam ( a true and proper muscle relaxant) and that I've left my prescription in the uk. They usually oblige ( although it's needed with a prescription) Sadly, for some reason, they don't give here in the UK. Also in France you can have remedial massage...another HUGE bug-bare for me here in the UK...massage helps!!! Is cheaper than endless meds and harmful. Yet, here in the UK, they don't see it as worthy of using some of there budgets on. I'm ina fortunate position and know a really good masseuse who does me a neck/shoulder massage for a tenna (£10) and she's very clued-up on Fybro..so no deep tissue...so, back on track, sorry for the ramble..lol. yeah. a decent night's sleep, and it make a whole world of difference. just ask my darling hubby! *gentle hugs*
I also take diazepam. I lived in France for some years (moved back this year to the uk) and tetrazepam were far superior, but like most things medical in France were.
I only take a small dose of diazepam at night to get to sleep so my legs and neck relax and it does help. I also take Buprenorphine up to 8 a day and they help too. I did get similar in France and the doctor here has given me them and I am so grateful. One of the things i did dread and that is not getting the same tablets i was on before.
It has taken years though to get anything that works even just a little and think thats half the battle coping with fibro..etc I do not intend to come off any tablets that are helping and don't mind becoming addicted for the last 20 yrs of my life i might have left, if i am lucky, as long as i have peace from pain the odd time, that' ll do me..!
Feeling that you can't do anything about it was torture for me, but now i can almost plan and know that if it gets really bad then i can get some relief. I did get some relief with tramadol also but i was taking far too many of them and it seemed counter productive.
Oh i remember the massages very well from my physio in France... now if that was on the nhs, what a dream..!!!! That helped me lots, although would have had to have it every day for to benefit from it, but nice to look forward to..!. now a tenner sounds great for a masseuse...!!
*Gentle Hugs* to everyone.
i also take oxeynorm 20mg and 10mg for pain manegment but its not on the list jenny 1939
I take 450 mg Pregabalin per day but it doesn't do enough so I'm roping up with co-codamol every day, I wake every morning in absolute agony too 
Kirsty I found the co-codamol didn't work enough so my doc put me on co-dydramol if that helps?
Hi Kirsty
I take the same amount of Pregabalin and co-codamol effervescent 8/500mg. On really bad days I can take 30/500mg, but you can only get these from your GP and these do help. I also tak 40mg Citalopram daily. Not suggesting you take that much, but my GP suggested this to start in small doses to help my energy levels. I am still managing to hold a full time job down at the moment (fingers crossed). It has helped.
Hi GillieB, went back to Gp yesterday as decided it was time to change!!! The conclusion was slowly reduce the Pregabalin So now on 300 mg per day, and now been give Tramadol to try, and when I go to pain clinic speak to them re steroid injections!
Watch this space ??????
ah yes...Tramadol. There 'go to' med. personally I find it an evil drug..put me in hospital and I nearly died from a blocked bowl..due to being put on 100mg, thrice daily. just watch your bowl movements as it's very well known to constipate you. Good luck. *gentle hugs*
600 mg pregabalin a day, as well as oxynorm as a breakthrough pain killer and a regular dose of oxycontin 30mg twice a day, as well as 1 other pain killer which i take when its really bad. I can not get any sleeping tabs off docs as they not treat pain with sleeping tabs. My docs are fantastic, done a 30 day pain management course and i gfet injections in my neck every 3 months. I have fibro BAD and faigue BAd.
I was in the navy and had a small accident, 6 weeks off and back to work, since then my body has been working against me.
Di-hydrocodeine to hope also with the pain- only thing is these make me feel yucky the following day and constipated!
i also take naproxen and dihydrocodine
I also take venaflaxine too as well as the amitriptyline
Amitriptyline caused me to gain 2 stone in 4 months !!
I came off it and within 2 months returned to my healthy weight.
Weight gain can worsen Fibro.
Weight gain led to osteoarthritis of the knees and ankles for me. And the more weight you have to carry around, the more it adds to the fatigue of fibro. And many pain meds make the fatigue worse too. When I went to see an orthopaedic surgeon, he told me he wasn't keen to do knee replacement surgery on me because of the fibro. So I am slowly (and painfully) trying to lose weight and keep it off - with regular weigh-ins at the hospital and exercise on referral.
For now I just take co-codamol when I need it as it takes the edge off the pain.
i also take Baclofen(muscle relaxant) and Prozac.
sorrey my memorey not too good i also take diasapam night &morning to try & relax my body zobeyeclone for help to sleep and omeprazle.
Also take omeprazole and a muscle relaxant that I cant remember the name of for the life in me LOL
I take Meloxicam and Fluoxetine
i was on gabapentin .now slowly comming of it as not helping much. take co-codamal 30-500mg
I'm another one who takes Omeprazole and Prozac - am wondering whether to speak to my doc about relaxants for the muscle twitches.
Morphine when the pain is really bad.
I take Pregablin, Venlafaxine and Celebrex this is also ment to help with the arthritis in my knees!!
I found the co-codamol was not helping enough so my doctor put me on co-dydramol for the breakthrough pain - but it may be some arthritus in my hips that its for, not sure.
I take Gabapenti, Amitriplyn and cocodamol and it only takes the edge off it.
Nothing helps my knees.
i take codydramol and naproxen but they dont seem to be working any more
oh and lansoprasol lol
Dapsone & about to commence Hydroxychloroquine next week in addition but with the view to remove Dapsone when/if the Hydro has a beneficial effect or has no adverse reactions (I have been unable to take Methotrexate & Leflunomide.
BuTrans Patch and Melatonin for sleep
Cazie - what is Melatonin?
Hugs
Spirit x
A hormone related to the sleep-wake cycle. If you don't have enough seratonin in the system, then the production of melatonin goes down. Melatonin helps you drop off to sleep. I do it slightly different. I take 5HTP which makes you produce more seratonin. Seems to be working......zzzzzzzz
I take 12hr slow release Tramadol..omeprazole..ibuprofen..slow release citalopram..diazepam for breakthrough pain & ropinerole for RLS, the FMS seems to make my RLS worse.
I was put on Tramodol but after a while they weren't shifting any pain. The doctor then put me on MST ( slow releasing morphine) & Oramorph (liquid morphine) for when needed. Some days I feel in so much pain all I do is have hot baths, so not to take any more meds. Will see how long this lasts for . x
Fluoxetine for pain and a combination of vitamins incl. Multivitamin, co enzyme q10, evening primrose, Vit B complex, Calcium and vit D and cod liver oil.
I also take oxazepam - co-codamol and Diclofenec
all of the above and citalopram (taken at night) to help with FM
Duluxatine,Meloxicam,Omeprazoleslow release Tramadol, and other meds for side effects next step morphine which im scared of doing, i have Fibro and Oteo Arthrits cervical Spontilitis and to top it im having really bad headaches which they have out down to my sinus,s i only get up walk the loo (5 steps) and the tops of my legs feel numb just a full nights sleep please
i take co-codamol and ibuprofen for pain but it gets very bad soon after,i also have very bad and not under control epilepsy.five to six fits daytime,but the night is worse my wife as to use rectum diazepam. iam not on here very often. i do need someone to comment on what i should do please help thanks.
hello.. am new here & glad 2 hav joined... was diagnosed fibromyalgic in 2000 and was put on paracetamol 1000mg 4x daily; plus citalopram 40mg... 2 years ago i was referred 2 a pain management clinic and hav been put on fentanyl patches now @37mg per 72 hrs..added to paracetamol twice a day & daily citalopram .. recently started gabapentin in addition to patches, paracetamol & citalopram . fentanyl & paracetamol lessens sharp burning pain & heavy fatigue but does not sort out sleeplessness. Citalopram helps me calm down;-- cant say yet gabapentin result except drowsiness... am still fibromyalgic! ...
hi,
how are you finding the fentanyl patches now for pain? I have been on them for years as my GP and I spent months possibly years trying all different combinations of medicines as I cannot take Non-steroidal anti-inflammatory drugs as I'm allergic to them. I'm now on 125 mg of Durogesic D trans (Fentanyl) which is a little stronger than morphine,every 72 hours and take paracetamol to top it up, I also take sevredol, gabapentin, 900mg 3 times a day, diazepam, amitriptyline,efexor and I'm still in a lot of pain, I feel like a walking zombie. Hope they work for you, gabapentin makes me woozy for a little while and I talk a load of s***e.
(((gentle hugs)))
just been given mst continus also to help with pain of fm and other illnesses x
specific for fm i am on dosulepin. [antidepressent that is suposed to replace amatriptoline as it has less side affects such as weight gain which can in itself cause problems] but there are other meds to fire fight the other stuff that joins in. like back and neck and dislocated knee cap that has decided to start hurting again after 17 years. and pubic synthesis that has also got worse not better after a break of maybe 4 years between the birth of my last child 11 years ago and now. also all the bowel problems that join in. so all in all i cant tell which is FM and which is being 50. i have diazipam at bed time so i dont wake up in a ball of tense agony [just a slightly more relaxed ball of milder agony] and i cant take 30/500 co codimol anymore as they make me twitch and jump.. [so they gave me diazipam to stop that and i dont need the co codimol as it does a better job] however i do take diclafenic too so thats for all over pain so thats probably FM but could also be isolated as 'all the places that hurt' pain instead. certainly for the benifit of the DLA form they are all isolated big pains not FM. . during the day i take diclofenic and paracetamol to combat what i discribe as repetative strain disorder through out my entire body just through wandering about....
however i have started a vit campagn that i had forgotten i used to use and started taking collegen and aloe vera and Q10 and Iron because i have a low iron absorbion problem and have to go to the docs to have blood checked before she will let me have more... so i have to come off for over two weeks first.. which means i cant get out of bed or function i am so tired. then she waits a week and says 'yes you are chronically under the normal levels' like i couldnt have told her that with out putting me through it. so i told her last time it was abuse of a vulnerable person and now i buy the stuff.
i also should take the one begining glycoso something or other and the other one chondu something... but they are usually huge. there are only so many tablets a person can take before the throat gives up and throws them back in the sink....hahaha.
Dihydrocodeine and also citalapram
Magnesium for leg cramps and RLS, 5HTP for depression symptoms, Bcomplex for nerve endings
buprenorphine, paroxetine, diclofenac, amitriptyline, oramorph
these are all for fibro, I have another couple for my thyroid, and diazepam at the moment for severe muscle spasm in back and neck
be careful with this long term. it is meant to only be used very occasionally and will cause constipation and aggravate any IBS.
Remember that not everyone gets every side effect of every medication. I have taken co-codamol on and off for years (at one point it was a regular prescription for me) and have never had constipation because of it for example.
lyndsey fair point. as long as used in moderation i think ok. doctors and nurses have told me it is not a long term medication? there is so much said it is hard knowing who is right. i don;t like the fact we have to take long term meds to control our pain. i wonder what damage they might do.
lyndsey and team well done for creating an excellent health site xxx
i have taken Co-Codamol for about 10 years 8 a day every day and have never had any problems with them.
i have been taking co-codamol for 10 years , and have not had side affects
I only take Solpadol as this helps with the pain.
I take paracetamol/dihydrocod and naproxen along with duloxetine to help with the pain.
Citalopram and Naproxen, although the Naproxen is giving me indigestion lately.
I took Naproxen for about 18 months and was not given stomach lining tablets to take with them. I ended up with a bleeding ulcer and spent a night in hospital. Please I urge you to get yourself checked out if your not on these. Can't stress enough to go!!
Sharon xx
Oh poor you! I take Naproxen for osteoarthritis, but I was already on stomach-protecting meds. My doc reduced the dose and I really miss it, but I know what its side effects are. It causes mouth ulcers too. My GP wants me to stop Naproxen altogether. I tried once and failed. Thinking about trying again.
I take Naproxen which doesnt seem to be helping much
Naproxen is an anti-inflammatory drug. It's pretty pointless taking it for fibro because there is no inflammation with fibro. I take it to deal with inflammatory osteoarthritis. It helps with that, but doesn't touch the fibro pain. Did your doc prescribe it for fibro or something else?
I take Diclofenac for Fibro, it does help with the pain and its an
Anti-inflammitory. May be worth a try for you.
My GP refused to prescribe diclonfenac for me as it raises blood pressure and mine was already too high - another reason to lose weight! I was disappointed as I responded well to diclofenac after carpal tunnel surgery and asked to swap. Naproxen can also lead to an increase in blood pressure, but it's under control at the moment. I would like to reach a point where I can give up the naproxen too.
i am on a hi dose of moprphine i have arthrites as well as fibro and dont which pain is from which condition
im the same lol xx
I take Co-dydramol. This helps to take the edge off!
I take Clonazepam at night...1 and 1/4 of .05 mgs which is an anti epileptic drug used to relax muscles, it helps me sleep better. No other drugs at tthe moment, I can't get any satisfaction from drugs as a rule. Especially anti-depressants
I take Co-Codamol as well as Gabapentin, couldn't survive without them. I antideppressents and found they did nothing for me.
Tramadol and Citalopram I'm a walking zombie and the leg pain is unbearable. Im waiting for "Zivadol" to become available, a natural new therapy in a gel cap for fibro patients comprising of Vitamin D and Zinc, available end of Feb, hav'nt heard anything as yet but sounds promising! There is hope for us
I take zomorph, para, amitriptilyne, meloxicam, mirtazapine & oramorph. all for fibro and its various symptoms
I also take Citalopram and Co-codamol for the pain, as well as the Amitriptaline. Plus my new nutrition regime - complex carbohydrates as opposed to white carbohydrates, protein rich foods and plenty of vegetables. See my blog post Nutrition and FMS.
also take prozac. to help with depression and mood swings due to the fibro
I suffer from terrible depression and vile mood swings ! I thought I was just bad PMT, No-one has ever told me that it is connected to Fibro !!
All this time I thought I was just a moody cow, now I know different,
THANKYOU ! x
At present i only take prevailing and fluxodine
I also take Nortriptelyne and Baclofen (muscle relaxant)
Co-codamol for pain, but feel have reached tolerance so looking form something more effective. Zopiclone for helping with sleep, but only take them very occasionally.
gabapentin & co-codamol
I also take imipramine at night. I have not come across any else using this. I believe it is like amytriptiline, but a newer version.
trazodone and zopiclone for sleep, citirizene for senitive skin/allergies due to fibro, paracetamol and morphine MST (slow release) and morphine oral solution for the pain,
Codeine and Diazepam but body becomes addicted to them
I'm currently not on anything (don't need it), but have tried quite a few things in the past. For me, Pramipexole and Clonazepam were the most help, with paracetamol & codeine for breakthrough pain. I also take Imigran for migraine treatment.
I was given OXCONTIN to help me cope with my fybro.
Dihydrocodeine for pain relief
I also take melxocam and omoprazole
As well as 50mgs Amitriptyline at bedtime, I take Solpadol, which is like Co-codamol. I also take Methocarbamol when my pain is too bad to manage.
My GP is going to start me on Gabapentin. I take Tramadol and Diclofenac also.
Can anyone tell me about Gabapentin ? Has it been good / not, side affects ect ? Thankyou.
I'm on Gabapentin, have been for a few months now. It helps me sleep and I take along with Ropinirole for my restless legs. Haven't had any side effects. hth.
Am I the only one here that has tried topirimate for fybro? I actually asked for it as read the trails on it in the states and have felt 100% better , have been on it now for a year after suffering fybro for 14 years, I now have my life back.
Worth looking into thank you! x
i take neufopam, which i believe is high on fibro meds? should you put it on man list.
I tried pregablin and it didnt do anything for the pain, just made me put loads of weight on in a very short space of time. I wasn't very happy with that particular sideaffect.x
i think that's it Christine, what ever you take it only takes the edge off.
I take Ropinirole for my RLS and it works well for me. Tried Pramipexole (sp) but it made me feel sick so came off it and was put on Gabapentin. Both Ropinirole and Gabapentin work well for me but if I forget to take them, it's terrible, restless legs go mad...... Also take Prozac and thyroxine.
i take oxycodone paracetamol gabapentin (which i think has stopped working) oramorph whenever im having a really bad time... celebrex twice a day doulsepen they have given me a new one to help me stay asleep called nortriptyline which im scared to take because i have really bad reactions to alot of medication i also take ommeprazole cycliziene (anti sickness) certizine hydrochloride to stop the oramorph from making me itch. i also have thyroide problems where i take 200mcg of levothyroxiene i have to a form of penicilllin everyday becasue i have no spleen and then fluoxetine and propananol and folic acid...
gosh when u right it all down it sounds awful
i cannot take slow relese morphiene or tramadol i get really rare side affects from it and im allergic to morphiene the only good thing about oramorph is that it doesnt stay in your system a very long time
Gosh, you must rattle when you walk! LOL. Sorry about all the side affects - you don't know which is worse at the end of the day. Frustrating isn't it? All the best. x
thankyou...yes my friend keeps saying im going to be rattling soon anticonvolsunt medication (mainly used for epilepsy) is meant to be very good for fibro if your doctor is telling you you are a hypercondriac that is so very wrong i would complain or change gps dont give up if the pain gets worse my concotion seem to be wokring but yes your body builds a tolerence up and it gets quite frustrating lol all the best to you too take care xxx
Paracetomol and Ibuprofen from the U.K. chemists don't do anything for me. Diclofenac was fantastic for about two months and then did nothing more. I take 40mgs Amitriptyline at bedtime only when pain too much for too long. (Too scared to use it too much coz my Fibro beats anything I try after a while). Take Stergeron when I get vertigo. I would love to try tramodol but feel my doctors already think I am a hyperchondriac so too shy to ask. For my headaches and pain in the day I take Copa-Dol tablets from South Africa (over the counter). They consist of Paracetmol, Doxylamine succinate, Caffiene and Codeine Phosphate. They work fairly well especially for the headaches.
hi Frotbanana i think you should change your gp.you need to get your pain under control i am taking 50 to 75 mg of amitriptyline every night as well as my other meds .you need to be under your gp when taking meds long trem as you may not now all side afects and how they mix with everyday life and don't feel bad about going to gp as that is why he is there
"(Too scared to use it too much coz my Fibro beats anything I try after a while)" Oh, how many times have I been through this sinario and also heard of my mates that also suffer Fybro say the same thing! I hear you.... *gentle hugs*
Thank you! Much appreciated. x
hi there i take duloxtine,clonazaprm,tramadol,co-codamol,diazapam,zoliclone,and dislefenic. i only take the diazapam when i need it mostly for giong out in stressfull sitations,use the sleeping tablet occationaly but they dont seem to work first night,co-codomol when pain not as bad and mostly tramadol,clonazepram are for my restless legs and dislofenic anti imflamatry.so combined thing s here the new one is dueloxitine 60mg thats realy nocked me for six but shall continue for month for fribo/cps x
I am currently using Amitriptyline to help me sleep. Tramadol for the pain with Naprosyn.
I take dosupelin to help me relax enough to sleep although lately despite an increased dosage i can't sleep. I have zoplicone to take but because i work full time and they have such bad side effects for me, i can only wait til the weekend to take any. I took tramadol for years and coming off it was the hardest thing i ever did, i was so ill for over a fortnight but being on so many painkillers made my head swim and i felt like i was walking around with my head in a bucket. Ibuprofen/naproxen helps ease the pain on really bad days but nothing takes the pain away completely...... I find it so hard to be a mum to two young girls and hold down a full time job but also know i can't afford to be relying on medication alone to help me......xxxxxx
i use codine 30mg x2 3to4 times a day most days
I am new to this site, so hi everyone. I was diagnosed with fibro in 2010. I also have ulcerated colitis & crohns disease which are inflammatory bowel diseases. (worse than IBS) no fun I can assure you. I take dulxotine for depression, anxiety and stress, thyroid tablets for under active thyroid and Zapain for the pain in my back, legs, frozen shoulder. Recently very bad headaches which seem to be lasting for up to 5 days. Urticaria is very bad so I take telfast 180 daily. I have just applied for DLA and I'm preparing myself to appeal if I need too. I'm in pain every single day and have just finished 4 weeks of steroids which helped loads but now the pain is back with a vengeance
I'd love to hear from anyone at all.
I am on Fentalyn patches that worked extremely well for me.
i to take co codamol for breakthrough
I take Venaflaxine after the Amitriptalene stopped working. My Dr put me on 75mg a day to begin with but that sent me absolutely spaced out and slept all the time. After two weeks he reduced it to 37.5mg and that was ok for a while but am now on 37.5mg twice a day and that seems to help. I also take paracetamol and ibruprofene. I have non alcholhol cirrosis of the liver so cannot take anything stronger as my liver cannot break down the nasty bits as it is too badly damaged (a transplant is on the cards but not until I'm at final stage!!). I also have oestoarthritis in my hands and knees which is very painful and restricting. To top it all I have Diabetes and high cholestrole too. I have just applied for DLA but am also expecting a fight, something I could do without. Wow sounds like I'm a proper wreck lol. It is good to know I am not alone anymore and can seak to people who know how I'm feeling.
Shirldeanne, my mum was on Fentalyn patches for pain control (have since lost her 
) I wish I'd kept some for myself ! Also my daughter takes Baclofen and has 6 monthly Botox injections in her muscles as she has Cerebral palsy, think I might nick some of that too. x
i have an underactive thyroid to add to the mix have any of you had same probs ? its hard to tell if its fibro pain or through thyroid latley , all i know is the pain just wont go away
i have to say, as someone who previously never even took paracetamol for headaches, the serious number of meds and antibiotics has not only given me terrible side effects but concerns about long term health?
what do you think?
Sadly I can only take Codipar pain killer for both Fibromyalgia and Arthritis. This is because I also take warfarin as I am prone to blood clots and have to be careful what I take. Plus be careful what veggies I eat as again they interact with warfarin..like any green veg in the cabbage family, because of the high Vit K which is also a blood thinner.
I also take Venlafaxine 75mg a day for Fibro pain .
sa well as all the other meds anot pregab tramadol and 1000 paracet i am on napranoxin and most of time it will keep edge of so i can have a bit well tast of normality ' i am hoping that we can get a combo that will cut some of my meds down or off al together
I was officially diagnosed with Fibromyalgia in August 2011 after many years of debilitating symptoms all too familiar with this horrible illness,thank goodness i now know i'm not mad or crazy!!! I already take Lofepramine for Cyclothamia(A BiPolar disorder of which the great Stephen Fry also has!!) My G/P suggests it is beneficial in the treatment of Fibromyalgia.I have been taking Gabapentin for about 6 months now, i am currently on 300mg 3 x times a day it has eased things somewhat and i sleep much better than i have done for many years i still get what i call 'flareups' and take Cocodamol as and when i need to.My G/P is pretty reluctant at present to have me take anything deemed addictive such as Zoplicone or Tramadol longterm.I am also Asthmatic!! Eeeeeek!! I sound like a crazeeeeeeee person!!!
Sorry i forgot to say 'Hi' i am new to this site and look forward to some moral support etc for one another and some extra insight into Fibromyalgia as most of my family and friends just don't get it at all, not sure any of us do at times!!!!!!
me too
reading all the above comments i think the meds list needs expanding?? what do you think?
yes
your welecome ChristineEls x
I am on Nortriptylin... apparently, it's a more primitive form of Lyrica. I cannot take Lyrica, because I have kidney issues and there is something about the conversion from Nortrip. to Lyrica which makes it dangerous for people with kidney problems. The Nortriptylin has been a lifesaver for me!
Naproxen, propranolol
so different veiws in medicines from here to the states, I felt I got better care back home, I have been on co-codamal for ages although the equilevant I got from the states did not bother my tummy as bad also I was prescribed 800 mg tablets of Ibruprofen over there so I still take it at nite
Im also on Co codamol and Naproxen too
I take Amitriptyline, Ibuprofen & Meloxicam
I currently take max amount of Pregabalin 600mg, 200mg P/R Tramadol, 3x 400mg Ibuprofen (only when I'm very bad as gives me reflux!!!) I use to take tylex but Tramadol are better. I take Sertraline 100mg for depression and still get such bad pain @ night can anyone recommend anything??? Dr wouldn't put me on Amitriptyline she said its for older people and I'm only 26 although i feel 90!!!!!!!!!! I literally can't sleep until I'm absolutely exhausted!!!!
i also take meloxicam for my joints
I take ropinerole for rls witch fms aggrivates, also diazepam occasionaly for pain management.
how come we all have differant tablets , some i've never heard of , i asked my doctor for lydica, and was told no, because the pain consultae i saw 10 years ago , had not recommended it , it is the same answer i get for every new tablet i want to try, and ease this monster ,
Time to change your doctor!!! Can't say this enough!! They have no loyalty to you..so why should you have loyalty to them!! This doc sounds like a idiot and very uncaring! I wish you luck. It's easy to change...just don't give the reason that your not happy with your doctor...as, I was told by a really close mate of mine ( who works in DLA - appeals)..that all doctors in your immediate area..all know each other and word get's around. But please..there is no need to suffer any more than you do..there are some amazing drugs out there that can help and more coming on to the market every day...there's a lot of research now in to Fybro..and dedicated meds are on the way. Good luck. *gentle hugs*
i take co codamol in the eve... co dydromal in the day and domperidone to stop me feelin sick .... i have tried many others but didnt find they helped!!!! the gabapentin... well what can i say they made me worse was a walkin zombie didnt know what the heck i was doin and my fibro felt 10 fold!!! never experinced anythin like it .... i took my son to nursery and didnt even know what day it was then sat on one of the childrens chairs and spaced out for half hour... lol the teachers where all lookin at me wonderin what i was doin!!! was so embarrassed as i didnt have a clue what i was doin ther etc and my son wasnt even in class that day hahahah... i laugh now lookin back but at the yime it was very scary!!!! thought i was losin my marbles!!!! fibro fog was an understatement on them things!!!!
On really bad days I also have morphine.. but can't stay awake during the day nor sleep at night!
Perhaps I should have added that I take maximum dose of gabapentin, tramadol (slow release) anti-biotics for skin problem down to the fm and anti-depressant to help with sleep pattern, however they don't work for that. I am constantly tired but there again CFS is another problem within FM. I just hate having to ask for help.. can't wash my own hair or cut my toe nails let alone do the housework and gardening.
I also had to have a brain tumour removed 2 years ago followed by 4 more surgeries to reconstruct my forehead. The constant pain just wears me down physically and emotionally.
My doc's won't let me have any sleep meds...as I was on Nitrazepam for over 6 years and had terrible withdrawal. My biggest problem is sleep..and yet no-one 'hears me' :((
Been on Co-codamol 30/500 for years. approx 6 a day..hate taking it..it's screwed-up my liver ( and no, I'm not a drinker) yet when I ask for something else..I get nothing! Then the other day had a terrible headache..lasted 3 day's my doc said it was the codeine and told me to stop taking it...so now just have paracetamol..and it does nothing. Thank God I'm at the pain specialist on Tuesday. :((
Hi, I am new to the site.
I got diagnosed in 2007.
I take
600 mg's Gabapentin 3 times a day
100 mg's Amitriptyline on a night
Co-codamol to the max most days
20 mg's Omeprazole twice a day for gastro-resist
On top of that I take
200 mg's Topiramate to prevent the migraines that come alongside the fibro
200 micrograms Levothyroxine sodium for the under active thyroid
and
20 mg's Cetirizine for the Angioedema.
I am constantly tired, have IBS, am still in constant pain, have pins and needles in my feet, numb hands and have just had my re-newal claim for DLA refused.
Apart from that life's a peach!
Appeal your DLA re=newal they hardly ever give it first time around. I was only awarded the care component and really need the mobility element too but scared of losing what I have if I claim again and yes life is a peach
I have written to appeal and am waiting for a reply, I have seen my GP who is amazed that I have been refused and is contacting them by letter to show his concern so hopefully that will help.
hi is anyone taking duloxitine? i read through most of the posts and i could not see anyone who is also taking this med i would be interested to compare notes on it its also known as cymbolta
Hi everyone, i am new to this site. I was diagnosed with FM in November 2011 after what felt like an eternity of tests, x-rays and various consultants. I also suffer from depression/stress/anxiety, IBS and nerve damage in my left leg which was caused by pregnancy. I also have temperamental discs that slip all the time and an ovulation cycle that has a mind of its own.
I have taken prozac which made me what to hurt people who come within touching distance of me and my child (also very weepy), amitriptaline which gave me day mares (i wanted to stab a family member in the back with a glass bottle to see what would happen, and because they lived remotely they have gas bottles and i wanted to mess with them so it blew up the house and everyone inside, i knew that i had to stop taking that medication). I was then put on to cipralex 20mg which made me itch but worked so i was given fenofexidene 180mg. I was on those for a while and i thought i was getting better. I was also under a pain management Doctor, and still am, (been under his care for the last 7 years), I have had 8 epidural injections for for pain relief in my leg and back, along with 2 steriod injections into the facet joints, neither of them worked. He the prescribed my Pregabalin not sure on the dosage but he also prescribed gabapentin which would have been up to 1000mg a day. I am a single mum and i still have to work and because of the side effects that i was getting i told my doctor that i would rather put up with the pain and be in control. I have been to pain management which was great as it showed me that although i am in pain it wont actually cause me any more damage, as they give you different techniques in which to use to help you deal with it better. Also as the years have gone on i suffer terribly with colds and serious chest infections to the point that i now have to have a flu jab, and i was also given a pneumonia injection, and this is the first year for as long as i can remember that i havent been floored by a chest infection. My last one was that bad it was nearly a hospital job.
I am currently taking 120mg duloxtine, for depression.stress/anxiety it also helps with the pain believe it or not. 20mg of omoprozole, 150mg slow release diclofenic and an antihistamine as there is an ingredient in one of my tablets that makes me itch to the point my skin looks like i have welts and can last for up to 2 hours before they finally disappear. I am quite lucky that my GP has been fantastic and when i ring up for an appointment i am flagged a FM patient so i am see that day. The only problem that i have taking all of the above is if i don't take my medication by a certain point of the morning i have a headache from hell and all i want to do is sleep. I work full time, as i cant afford not to, and i would love to have a night sleep where i am not disturbed because my back has gone into spasm or a have turned onto my left side and caused me leg to go numb. AAAAARRRRRGGGHHHH
Hopefully i haven't bored you too much, and i look forward to chatting,
i take morphine tablets day and night and top up with oramorph,tried everything else with no luck.
Have been taking co-dydramol 10/500mg 8 x a day for the past year and find that it can be very helpful some days, although I need to take more of it now than I used to (could get away with 4 x a day then!), and sometimes doesn't help for long, although all my fibro symptoms have worsened considerably in the last few months. A friend of mine (naughtily!) sometimes gives me some of her straight 30mg dihydracodeine tablets and I actually find these tend to work very well, but I've never had the courage to ask a GP for them!!
I actually spoke to my new GP (I moved recently) about my fibro symptoms today and she has now started me on Amitryptiline 25mg again (and said we can go up to 150mg if necessary) - I was first on it in 2006, but when I became very depressed I stopped taking it and stored it up instead then overdosed on them. My heart stopped, and it was only that a concerned therapist couldn't get hold of me (and knew I'd been very low) and called the police and ambulance to my flat, that my life was saved - after several days in intensive care. Until now no GP would prescribe them for me, and it feels a little bit weird to see the packet again!!
My new GP is also referring me to a fibro clinic here - I didn't even know there was such a thing! - so I'm hoping that can help. I think she said they help with things like learning to pace yourself and stuff?!
Oops, when I say 8 x a day and 4 x a day, I mean 8 tablets and 4 tablets! Usually 2 at a time. Bloomin brain really isn't all with it tonight lol.
I can not get sleep meds, they say i can not sleep as i ahve pain, and they will not treat pain with sleeping tabs. so i use a natural grown special plant which can be smoked, and it eases the pain and helps me drift off, i only use it when needed though, not a daily thing, maybe at weekends were i can sleep in with no getting my daughter to school.
I take Sertraline, which is an antidepressant, + cocodamol for pain..it takes the edge off the pain, but certainly doesn't prevent it.
I take Oxynorm Diazapan Gabapentin Zoplclone to sleep. It would be interesting if anybody else takes these as some of them are not on the list.
I am on Morphine patches, 20 mgs per week, plus Codipar 15mg,with Paracetamol 500mg. 2 tabs. 4 times a day.
2 dihydrocodeine tablets 4 times daily, doctor is now talking about morphine patches & attending a pain clinic.also on pregabalin & paracetamol for face pain & migraines.
i have just been put on Naproxen, 500mg.
I take lots of different med for blood pressure etc. and I can't get any pain medication other than paracetamol. My doctor took me off all my pain meds.
I am so depressed now as I have ended up in a wheelchair due to fm and can only go out if someone is at home to take me.
i also take codiene and naproxen
hi im new this site i have been on MST slow release (morphine sulphate) twice a day for 6years and oral morph for flare ups just changed from gabapentin to pregabalin what do you think of pregablin
I have had fms since 2004, every year iam going considoratley worse i only go to my daughters home on my own the rest of time i have to have someone with me i feel so helpless at times but do have great support from my family my husband and sister are amazing they work hard and are always there for me
i take mixture of meds everyday mst, citalopram, oramorph, pregabalin, naproxin, paracetamol, plus many more for other conditions.
i look forward to hearing from others getting advice trying new things listening to others and perhaps offering a little help to others gentle hugs to everyone xx
For those of you just taking co-codamol, you can mix in Ibuprofen with it, it seems to tackle a different kind of pain so gives you wider coverage.
Lets face it, nothing short of Morphine takes the pain away but at least it makes it all more livable. I feel that if I'm going to be in pain anyway, I might as well be doing things as lying around, but it's the tiredness (CFS) that knocks me for 6 more than anything. Nothing helps that.
Kate xx
i take mst (slow release morphine) and oralmorph and my pain never drops less than 7, i had tried almost everything else and pain clinic said this was next step and 7 is the best i can expect i know what you mean about the tiredness (CFS) people dont understand how bad the tiredness can be gentle hugs to you.
Tracey xxx
I have recently come off 10mg Butrans patches and changed to Temegesic 2 ever 6 hours (morphone) based.May dull the pain but doesnt give any noted relief
I take zomorph & oramorph, seem to take the edge off the pain to make it more bearable :0)
I also take MST 40mg which are slow release morphine capsules. I have also had a successful infusion from the pain clinic in the west midlands. I take a top up of oramorph when needed, which I haven't needed to take since the infusion.
I have also tried amytriptyline, gabapentin, pregabilin, tramadol, dihydrocodeine, naproxine and head injections.
I've taken co codamol since I was diagnosed, I agree it doesn't cure but it does take the edge off. I do find it causes constipation though but what I've discovered is if I take my last tablets early evening and can then last through the night without taking any my constipation is alleviated - strange but true. I often joke with my boyfriend that life should not be a constant choice of poo or pain lol!!! x
i take co-codamol 30/500 2 4 times a day. also take sertaraline 150mg for the deperrison that can be because of fibro
i take BuTrans patches (buprenorphine) 10 micrograms for pain, nortryptine 50mg for sleep, spasams, restless legs & this also helps with my ibs, citralopram 30mg & paracetomol.
i'm finally getting the help ive been asking for but its been along time coming !
i've taken gabapentin. amytriptiline and loads of others but nothing seems to work on fluoxetine at the moment as well as naproxen, it sort of helps x
Cocodomol 30/500......8 a day.
I take Codydramol up to 8 per day depending on the day and the pain etc. I alo take duluxotine, omeprazole and adcal d3.
I also have Di-hydrocodeine and liquid morphine for the very worst days. such a concoction along with tramadol, paracetamol, pregabalin and citalapram. Honestly I rattle all the time!!!
I take clonazepam to help with my sleep
I was taking Co-Codamol 500/30mg - 2 every 6 hours for many years...no help. So I upped the meds myself to 3 pills every 6 hours, which barely took the edge off. Then 2 and a half weeks ago I went back to the doctor - new one as of moving 3 years ago - She more or less dismissed me ( I miss my old doctor - SHE made an effort with me and helped me every-time I saw her. We found the - almost - perfect concoction of the many meds I was on for different things besides Fibro - that did not interact with each other - And it was all going well until the Co-Codamol's were not any help alone. - However, after nearly getting into an argument with this "new" doctor - there are many to "choose from" in the surgery - as she had not really read anything of what was in my records - She finally agreed to "try" me on Pregabalin - an anti-epilepsy drug that can also be used for treating Fibro suffers. It's be used for Fibro in the USA for 7 years or so - I'm not sure how long it's been used here in the UK. - She - the doctor - did not say I could not or that I could - take the Co-Codamol as well as the Pregabalin - nor did my brain fog lift enough for me to ask. But as she only prescribed lest than the start up dosage - I'm taking 1x50g pill in the morning and 1x50g pill 12 hours later at night. - I was surprised to find they did help - noticeably so about 1 and half to 2 hours after taking them - though within the first 6 hours and the 6 hours after taking the night-time pill, the pain was back with a vengeance. - After 2 days of this, I gave in after the first 6 hours and took 2 Co-Codamols - and the kept me going until the night pill was due. Roughly 6 hours later the pain and restless legs would have me awake weeping - so I'd take another 2 Co-Codamols - They, again, helped until I awoke and took the morning dose of Pregabalin. I've now continued to do this alternating and in 2 weeks will be reviewed at the doctors - I want her to either up the dosage of the drug to 1x50g pill every 6 hours or let me continue with the alternating. - Having said they help that way, some days can still be very bad pain-wise - especially when the weather is very bad - and on those days I just sleep the pain away. The doctors will not allow me any sleeping pills for the nights - so I take herbal sleep aids with a hot chocolate along with my night meds, sit at my PC playing a word game that also helps unwind me some until I get drowsy and then I hit the sack. I do wake on and off throughout the night on these horrible days and I'm left shattered then next day - This cycle continues until the weather changes for the better and so my "health" improves as well. An the better days I do as much as I can getting out of the house (panic attacks permitting of course!)
I've yet to take back the full control of my body - But by hook or by crook - I'll do it or die trying!
Love and gentle hugs to all xxx
I have tried what the doctor gave me and after reading the side effects I rather stay with what I know. Clayton xxx
I take pregabalin and oxycodone for fibro. I'm also on meds for asthma, high blood preasure and depression so my medi box looks like a small branch of boots
SERTRALINE, DIHIDRACODINE, CETRAZINE, MEBEVARINE, PARACETAMOL, IBUPROFEN
citracylapam, naproxen, depomedrone injections, as well as the ones on the list I have checked
Lyrica
oh and Hydrocodone
Aswell as pregablin, im takin diazepam and zormorph
im on dihydrocdine 2 tabs 3times a day but can take another 2 if i need to i take methocarbamol 750mg for spasms im on mirtazipine 30mg at night to help me sleep and for depression i also take diazepam when i need them i take some otrher meds for different ailments x
Im on alot of meds, because I have afew illnesses, but my main pain relief med is morphin slow release tablets, and a morphin liquid I take as a break through med, for when the pain gets too bad, or if Ive fallen over, like I am doing alot at the moment
co-codamol
I have Baclofen for dreadful muscle spasms to extent of legs, arms and fingers curl up and I have no control as theyve told me it's controlled by parasympathetic nervous system.
Zolpiderm for sleeping at the right time(when it works)
co-codamol to help with the in-between tramadol times.
diclofenac-for fibro induced tendonitis
furusemide-water retention in legs causes me not to be able to my fixed leg splints on
betahistine-vertigo caused by fibro.
i have tried, co-codamol, tramadol, amitrityline, zopiclone, temazapam, diazapam, parecetomal, ibuprofen, & had constapation & cracking of the skin, severe anal pain, violent headaches, sore eyes, & cannot stand the light wear sunglasses all tjhe time on meds at the moment are zomorph 30mg x 2 daily, lansoprazole 30mg daily, oramorph as needed, tramadol 50mg x 2 when needed, nefopam 50mg x 3 times a day, & nortriptyline 30mg x 3 at night.
i still cant sleep, lose the feeling in my left leg, have pain sore eyes, violent headaches, i often feel so low i am afraid of what i could do, dont get out much as i am monitered since OD last year with the pain
its true no one else cares about me sleeping to ease the pain loss of good restorative sleep.
i have evn stopped driving my car because i get severe cramps in the legs & buttocks, my neck pain, back pain & in winter my hands swell up, but what else can we do 5 years the dr has tried loads of stuff.
lets hope some day we may get something to help us all, billy whizz
8 x tramadol a day and then Paracetamol and Ibuprofen when I need a bit extra!
I have 2 small children so having tablets for sleeping would not allow me to get up in the night if/when my little ones need need me!
I also struggled to wake up when I was on Amitriptyline!
Nortryptilline- less polarising side effects than amytryptilline.
COcodamol 30/500 when pain normal
Dihydracodeine 30/500 when pain severe
Naproxen PRN
Amitriptyline 75mg
Solpadol 1000mg
Methocarbamol 1500mg
Ibuprofen if I need more for a migraine.
I am taking morphine, not sure that it is better than any other dug I have tried
I've been taking cocodamol 30/500 ( 2, 4 x a day )and Tramadol prolonged release 100 ( 1 or 2 x a day ) and Amitriptyline 50 (3 x a day) for about 3 years. Today my G.P decided to change it to stop the cocodamol. Now I will be taking Tramadol prolonged release 100 (2 x a day) plus 1 or 2 50mg Tramadol up to 4 x daily as needed. Also on naproxen at the mo for a fractured coccyx. Does anyone know why the change? Or if this will be effective? Doctor says its because Tramadol and cocodamol are the same, but it was her who prescribed them together in the first place! Just a wee bit worried as pain was bearable on the previous drugs.
The family tree is Paracetamol cocodamol tramadol morphine. Ur doc wasprobs trying to keep u on a lower dose of tramadol, hence using the cocodamol too. Now u need more of the stronger tramadol slow release is good as long as ur on the correct dosage. I've been on slow release morphine for 2yrs. It's NOT addictive so don't worry if u end up on it too but it does work. Just make sure ur not late with a dose as 1/2hr late can mean 3hrs to catchup & more pain whilst u do. Good luck
Co-codamol, but it doesnt help
dihydrocodine aswell as tramdol
MST=CONTINOUS (morphine) and ora morph as a top up but not just for fibro for osteo and rheumatoid arthritis
Prozac - see my blog for more details
I use co-codamol and Tramadol, plus Clonazepam and Melatonin to help me sleep
Also sometimes use ACUPAN, but have severe side effects so use sparingly.
Taking coodamol 30/500.
Quinine - brilliant for controlling muscle spasms, co codomol, amiltrip,arcoxia,omeprazole,sertraline, rizatriptiline, buscopan, lactolose.
Read your dissolvable co-codamol packets, there is over half your daily allowance of salt in them if you take 8 a day. Many Fibromites' bodies do not break down these crystals during high intake, so they get sent to your extremities, I suffered with terrible pain from this before looking into gout conditions, as soon as was put on codeine phosphate the pains went away and only recur if I have too much salt.
I know this won't affect everyone, just thought I'd let people know.
Co-codamol 30:500 has just been prescribed, but I'm saving that for the really bad days. Generally I taken amitriptyline, solpadeine max (in the day) and syndol (at night).
Sara xx
what can i say, please pain go away and dont come back another day.
How we would love to be pain free, but some how itis not meant to be.
I would just like to say, with all the med's you take, try meditition , it does help, i do a self help meditation for myself ie visualising a healing white light going all through my body to take the pain away, does not hurt to try, you have nothing to lose
I take Sertraline, amytryptyline, gabapentin, ibrufen & paracetamol alternated and have been prescribed tramadol, but often get blinding headaches with it :/ used to have diclofenec which worked well but they don't want to prescribe me that anymore.. Also on HRT due to (early? Peri?) menopause and Vit D as was deficient in that and the symptoms are almost the same as fibro and I was much worse the last few months in regards to pain, exhaustion etc :/ but hate the weight gain from amytryptyline and gabapentin, went from a 10/12 up until I was 41, and diagnosed at 42, although ive had symptoms for years, now up to a 16/18 at 46
I'm on 1000mg paracetamol 3 x a day,200mg gabapentin 2 x & 300mg at night plus 30mg morphine slow release (MST) 2x & 60mg atnight. This isdaily then I've got oramorph as a top-up and Citalopram, quinine & 400mg ibuprofen when needed. I also increase the dailydoses if needed but try not to.
Ive tonnes of other meds for the side effects such as ibs, constipation etc
Amitriptyline, duloxetine, codeine/paracetamol, oramorph, butrans patches (main pain relief)
For 5 years I was only offered Diclofenac and Paracetamol. Then the local PCT said they were not going to prescribe this for me anymore and offered Naproxen. Initially being "put off" by the huge list of side effects I chose to buy Volterol and Ibuprofen myself. I am finding things so difficult now I have given in to the Naproxen; only started 2 days ago will have to wait and see. My main worry being the letter advised a blood test about a month after starting - I never had one with Diclofenac so was concerned about this.. Hey ho sometimes the pain takes over and you have to give in.
i use cocodamol with the gabapentin and the voltarol gel for point pain
My daily intake is : cocodamol 30/500=8tabs , naproxen 1000mg, duloxetine 60mg, gabapentin1500mg, (gabapentin recently replaced my amytriptyline now no sleep 2=3hours day, but hey less spasms ) tramadol 3oomg, sumatriptain as required (for migraines) and movicol x 3 sacht for side effects of all analgesia. but I havent been confirmed or denied as having fibro yet been on this for 2 out of the 3 years since I had a virus .
on zomoroph 60mg daily, pregablin, Amitriptyline, dicolofenac. oromorph solution, propanolol and dizepam
I take zomorph amitrptyline and oramorph and paracetamol.
I more than one of these, is this ok. I have tramadol, gabapentine, duloxetine and ibuprofen
Nortriiptylene co codamol. Vit d sertraline
My meds used for fibromyalgia are as follows!!!
Fentanyl patches 75 mg
Amitriptyline 40 mg
Diazepam 5 mg allowed up to 3 times per day
Zolpidem Tarttate sleeping tablets 10 mg x 1 nightly
Deep freeze gel or spray
