does anyone else with FIBRO suffer from severe pain in upper arms and shoulders?

ive got it at moment. its like my arms have been strapped to a bed and pulled in opposite directions.... Gp has advised to use ibuprofen and wear support bandages but they make it worse...... il try anything!!!!!! im on daily and nightly dosages of Pregablin but thats not doing much

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16 replies

    jessam
    jessam

    Hi Cherrypie, I get terrible pains in my shoulders and down my arms, I went to the Dr before Xmas and she gave me an e.c.g as I was worried it was my heart but all was ok then she sent me for an x ray on my neck, again all ok, so it seems it's down to old fibro and taking painkillers, I also find a heat pad or a neck warmer that you put in the micro is very good

    summerlite
    summerlite

    Hello cherrypie. I really suffer with my upper back, shoulders and arms. It's really bad when I'm particularly fatigued or when I've overdone it. All I can recommend is taking the meds, especially the tramadol. I try to limit my daily intake of painkillers so when I'm really struggling they can hopefully kick in and ease the pain. But I do know how horrible it is when you have burning muscles and aching bones, I totally empathise with you. Hope it gets better soon, S x

    cherrypie
    cherrypie

    When you get pain,is it symetrical-down both sides of your body???bith my arms,shoulders and neck hurt in same places

    KazF
    KazF

    I had this - worse in left arm / shoulder. some days I could barely turn my neck, and felt a robot I was so stiff and sore! I put up with it for ages. Eventually mentioned it to my GP, who sent me for an xray - showed nothing, but the consultant who looked at it decided I needed an MRI - showed nothing so I got sent for physio. Luckily the physio I saw is an expert on shoulders and elbows - pretty much all she does. She did an ultrsound, and showed me exactly what was wrong. It wasn't the fibro, and although I have a bit of OA, that wasn't the problem. It was bursitis, with synovitis complication, and a steroid injection sorted it out. Wish I'd gone months before! So, my advice would be to get it checked out by someone who can do an ultrasound and knows what they're looking for.
    Kaz
    xx

    summerlite
    summerlite

    Hello again. Yes I have like a short cardigan effect, you know like a bolero, of pain!! At the moment my skin is sensitive too. Sometimes I give up trying to cope and get in a hot bath, soak and then go to bed. It's a horrible pain/ache isn't, one you can't really explain to anyone. I think I've learned to know when to cut things down to keep the worst at bay. But I do have a busy home life and I'm a single mother of three, so sometimes overdoing it is something I can't prevent! But , I do try to go with the flow and keep my stress and frustration to a minimum. S x

    jjojay
    jjojay

    Hi ,, yes I do , I also get breast pain and underarm pain. It's totally unbearable. Doc advised ibrobuphen , it just takes the edge off my shoulders but arms neck and breasts are still terrible . I had it on and off for three months breasts were so severe I couldn't wear a bra. I just got plenty of warm baths and lost even more sleep . I wasn't diagnosed at the time so I didn't know what it was. Everyone thought if started with the change . Am 44 was tested and wasn't even in pre menopause . So it's most probable it's fibro it's been better over last month . I used organic primrose oil got it on amazon . Maybe it helped but loosing weight may of helped too because I felt better after I lost weight , sorry to hear of your discomfort. Upper arms felt like sooo sore and bruised . I had to lay in bed exsteemly carefully and darnt move. If I have it again I'm going to ask doc for something much stronger , amatriptaline is apparantly good , it will be wrong spelling no doubt but I've heard it's pretty good in pain relief for fibro related pain x

    cherrypie
    cherrypie

    Thankyou everyone.it helps knowing im not the only one going thru tjis

    guineapig
    guineapig

    I do and have severe pain in the tops of my outer thighs as well, I have fibromyalgia but also Polymyalgia Rheumatica which affects the tops of arms, thighs. I was referred to rheumatolgist and have been on steriods for over 2 years, I have flare ups of bursitis in hips and shoulders and get steriod injections, asked to be refered to rheumatologist you night need steriods I am 44 which is young to get PMR but i have and nothing works apart from steriods good luck x

    Jjudith
    Jjudith

    YES YES YES!!!!
    I tried to get a MRI scan of my neck in UK and couldn't (doctors in Dubai don't like it when patients know more than they do), but I came to Dubai and had an MRI scan and it showed positional cervical cord compression which is associated with Fibromyalgia (71% of fibromites have it) and the good news is it can be treated - I have been having therapy for 2 months and I can concentrate better now than for a couple of years. The MRI also showed that I have compression of the nerves in two places as well, and that is the reason for the pain and weakness in my left arm and the tingling in my right arm. So really do try to get an MRI scan of the neck, both straight and extended. Google Prof Andrew Holman PC3 and you will get all the info you need.

    monkeej2106
    monkeej2106

    Hi Cherrypie...I have been suffering with this for about 3 months now. I find it difficult to sleep with the pain...and I struggle to lift my arms to wash my hair in the shower. I describe it as feeling like I've been swinging on monkey bars...it feels like a burning pain when you have done to much exercise but then it turns into more of a tingling sensation. I'm off to the docs again next week to see what they say. In the meantime I'm just taking ibuprofen!!!

    druss
    druss

    hi cherrypie, going for mri scan on the 14th, have neck injections every 3 months, they do help but still have pain in shoulders arms and wrists and hands, feel for you i try to find the bits that don't hurt, good luck hugs to the bits that are pain free

    Druss

    cherrypie
    cherrypie

    Thanks all.ive had the crappyist night in a long time....ive got a TENS machine im gonna try out too

    Artmix
    Artmix

    I have a lot of pain in my left shoulder, across my chest and down my left arm. I have just had a stress test. I was told I could have angina, if not it will be a combination of Cardiomegally ( enlarged heart) and Fibro. I often feel like I have pulled muscles in my ribs and its agony when I bend over. They said it doesn't help that I have a walking stick in my left hand and that could cause stress on the shoulder joint. I take tramadol and have some liquid Oromorph for when its bad. At the moment I also have angina medication and asperin an a spray, I use a wheat pack and warm baths and analgesic rub on creams. They don't help much. Sometimes I just lie in bed in pain. It all sounds pretty miserable but I do try and put on a smile.

    anbuma
    anbuma

    Hi Artmix

    I was told last sept that I could have angina and underwent tests in cardiology dept at hospital taking angina meds and asperin spray .mine turned out to be gallstones as picked up on ultrasound when i saw a private DR as mine wouldn't do a scan apparently gallstone symptoms are similar to that of angina

    fairycazzie
    fairycazzie

    hi cherry pie
    yep am afraid so and i am on Lyrica a high dose now had since feb 2011 and almost 2 yrs of pregabalin which for me has been a life saver for the tingling and pain but now onto pain management. i take co-dydromol every 2 hours along side it and i have to say i nearly gave up on pregablin but it takes time to get into your system,
    i can take codeine or tramadol too but the combination of lyrica and co-dydromol help me but i can not miss a dose as it is pretty bad.

    maybe you could ask your Dr to change the pain side of meds rather than the pergabalin?
    i use heat pads, i have a tens machine too, wheat heat bags and creams and i relax the best i can (not easy as i have a very busy life style with work and home)

    take care and hugs to you xxxxxx caroline

    PennyUK
    PennyUK

    This question and answers have helped me understand my own problems better. I have had really bad pain in my upper arm and shoulder, not symmetrically, At first it was my left arm and I was taken to hospital with a suspected heart attack, Later my right arm succumbed and was far worse, still hurts badly although I take lots of tramadol, naproxen and cocodamol. I also get tingling, slightly different from usual in that it feels as if I am sprayed with pinpoints of icy water. I thought I must have badly pulled muscles although I had no recollection of any event that could have done that. Now I realise via these answers that it is just fibro!

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