What hurts the most...: It is now... - Fibromyalgia Acti...

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What hurts the most...

gemarella profile image
3 Replies

It is now sinking in that I may not ever recover from this. It hurts more than the pain itself. I have fought so hard for four years... now what? This week, I begin Advanced Rehabilitation Physiotherapy and I am looking forward to it for many reasons, but I fear that this is going to be painful. I used to be so athletic and I've begged the doctors to fix me so that I can play football with my son again. Now, I am face-to-face with the foot of the mountain, I am terrified.

The doctor has taken away my painkillers because of my young age and his fear that I MAY one day get addicted to them. If I am not addicted to them after four years, I'm pretty sure I'm safe, however, I am now in excruciating pain with nothing but anti-depressants o depend on. (Like they are not addictive...)

So, it's another sleepless night. My head is filled with all sorts of worry, my body aches all over and I've not properly left the house in nine days. I am, however, thoroughly relieved to have found a place to 'let it all out' without dumping my problems on people that don't understand.

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gemarella profile image
gemarella
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3 Replies
julieevh profile image
julieevh

This fad amongst doctors to withdraw painkillers for fear of addiction has to be the most stupid and spiteful idea out when they leave suffers high and dry.

Please go back to your doctor and demand different painkillers - there are plenty on the market.

If you find it difficult to be assertive with the doctor (I know I often do) then take your stroppiest friend or relative along to push your case (my boyfriend does it brilliantly) and get some action.

It might also be worth printing off the NHS website entry on Fibromyalgia and stuff that under his/her nose.

Feel free to have a good moan here , we know what you are going through here and as you say sometimes you have to just have a rant, a moan or a good old whinge about this wretched condition and the others we seem to be lumbered with just to keep us on our (aching) toes.

((((( gentle hugs )))))

Julie xx

Extremelygrumpy profile image
Extremelygrumpy

Hi, I think you are going through the grieving stage for what you used to be.. I went through this two Years ago when I asked my rehemetologist when I was going to get some sort of my old life back and he very nicely explained that I would never got my old life back,, it was like a blow to the stomach. The most important thing to cling to is that under the pain your personality is still there you are there under the pain... Sometimes I rant on here ... But I try to let my personality out on other occasions and try to have a laugh about it all. I remember some one sayingonce... Who is that bubbly person over there who is so happy. Yup me pre fibro.... On here I let my personality out I have been described on one hand as refreshingly honest and by others grumpy by name. Grumpy by nature and told to butt out .. The negative.. Not by people who still post here I add... I am going to see my gp on weds.... To talk quality of life over quantity cos he said he wants me to wean myself off my meds .... I,m only on 2 and neither are pain killers I can't find any that suit.. If he tries to take me off my others I will have very limited quality of life. Please don't give up go back to your gp or see another. In the month I have been on this forum I have reverted at lot back to the old me and am now capable of standing up to my gp..

Gentle hugs.. My body is a bit of a wreck this morning

VG xx

maz6870 profile image
maz6870

I completely feel the same. Was diagnosed in 2006 and ever since been in denial about " when I'll get better" it only dawned on my friends the other day why I don't go out drinking with them in town on a Sat night! They had thought I was just being unsociable, didn't occur to them I can only stand for 10mins then need to sit. Try finding a seat in a busy town centre pub on a Sat - yeah right. My GP has taken me off every painkiller bar Paracetamol, what a joke. I did manage to eek some ibu gel from her, and have to admit it does soothe the pain in my ribs for a little while. What is it with these GP's - bet it boils down to money!! My pain of course is alot worse since the damp cold weather started again, all I want to do all day is wrap myself up in a blanket and hibernate.

It's not a nice feeling , knowing there is no cure. But I have to say, reading the other posts on here knowing other people do understand and know what you're going through, has helped me a little. My consultant psychiatrist ( just getting over a major bout of depression after being sacked from my job for my sickness absenteeism) has prescribed pre-gabalin to see if that helps with the nerve pathways for pain. I'll let you know how I get on.

gentle hugs

Maria

PS yes a good pushy friend when going to the GP works wonders!

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