Light cotton clothing without buttons or fastenings -for those days when ur all fingers and thumbs and it hurts to do put on clothing.
Rubber crockery which wont break when you drop it for the millionth time
Water & scald proof gloves to wear on days the muscles in your hands are on strike and you continuously drop crockey and spill scalding hot cups of tea on yourself
A personal inflatable safety mat which is triggered everytime you trip slip or fall
An inflatable partner who is programmed to understand your condition & your moods and who can be inflated or deflated on command.
A knowlegable and understanding gp (with friendly non nosey receptionist) who does home visits.
Fruity flavoured meds with no horrid side effects
Fashionable trendy supports and aids designed by top name designers which co-ordinate and accessorise with our outfits.
Family,community & world fibro awareness training
Esa Dla benefits awarded on diagnoses without ritual humiluation fight stress and need for appeals..
A shower stool as I can't stand that long (all of 6 minutes when I need to wash my hair). Bagpuss Beany as an alternative to hot packs - just so that I can cuddle it as well as put it on my shoulder.
For me, my £10 TENS machine - I know it doesn't work for everybody but it does for me - even if it's only to sooth me to sleep with a gentle pulse on the lowest setting.
Arnica cream for my bruises due to being unsteady and foggy.
My dear and supportive friends who care for me even when I'm a bit - well - wrong.
All of you, whatever you say, whoever you are for when you agree with me and when you don't.
Tips like seamless bras as I may soon have to wear one 7/7 just to look normal.
I would have to add my kids as they are so helpful when I'm having a bad day. They hold me up, help me off the sofa and hang on while I get over the dizziness, my son cooks the tea and makes me cups of tea. They are brilliant and I couldn't do without them especially this last year after I split from my husband.
Oh marmite how lovely it is - has any body seen the new gold bottles of marmite? And your right Liberty none of this is possible with out the good reliable laptop x gins
We had the Jubilee and Olympic Marmite jars in our local supermarkets with the Union Jack flags on the labels. Haven't seen the gold version! The jars never last long in my house, the largest jar goes in less than a week which isn't cheap at over £3 a jar! I love Marmite!
is it sad but my pain medication is the box set of gilmore girls?? obv a dvd player and tv to go with it. whenever i'm in pain i like to concentrate on something else and as gilmore girls is my fav series it makes sense! x
Fantastic and I have to add a sence of humour I seem to have left mine somewhere in the past (mostly), I'm sorry to say, I think its because this fibro takes presidence, I say we should rout him out of our minds anyway impossible I know I feel like chanting "Get fibro out, get fibro out" (of our bodies i mean)
Anwyway what else would I like to have that has'nt been mentioned (brilliant by the way all of you!), to deal easier with my fibro! hmmm let me think
Hard to add to all your sugestions honestly, I just have to agree with them whole heartedly, apart from wishing I had a magic mat you know like alladin had so I could float around the house and the shops, would'nt that be brill xxx gentle hugs fellow fibro soldiers xxxxx
my laptop,v pillow and my latest wonderful purchase,a wheat pillow that can be microwaved or frozen depending on you preference.I think I cooked mine the other day though as it was steaming and smelly and a funny shape lol ! well it didn't come with instructions .That's my excuse and I'm sticking to it !
lol I love the list I too cooked my wheat pillow shame as it had begun to smell like popcorn which I love !
I would add the following :
Ice chips to crunch on when I feel hot and bothered in the night and with my IBS I dare not have what I think of as real munchies before laying down
My favourite teatree oil products , one I use to soothe my restless legs , the other I use as a breathable bandage on the sores I get from wearing my fentanyl patch and on my feet which despite being out of my mobility scooter for almost a year still do not like to walk in shoes !
some sort of pop up banner that appeared like a thought bubble above my head to warn others I just need some quiet time or that I am simply overloaded - now that could be useful !
* My girls and grandaughter and dogs to give me a cuddle.
* I love my american fridge freezer for chilled water and ice always available.
* My TV
* My laptop
* My BF Dave - he is wonderful!
What I'd like :-
* I would like as a pressie boxed sets of all the Star Trek TV episodes (there are still some DS9 and Enterprise episodes I've not seen) and the films. Also every John Mills film and TV appearance.
* Automatic front row tickets to the Osmonds (you don't say), David Cassidy, David Essex, Bryan Adams, Bay City Rollers and Leo Sayer. No more getting up at silly o'clock and chasing down tickets that got released early, or champing at the bit for the ticket day.
* I'd love a nice warm swimming pool and jaccuzi please.
* A Noonoo (from the Telebubies) to do all the cleaning.
* Lorraine Pascal to come and fill my freezer with scrummy food every week.
* My own chauffer driven car, a nice Bentley would be fine. Chauffer must be personable and easy on the eye.
* More Mr Bloom on cebeebies. When he says "ullo tiddlers" I get a big grin on my face and come over all un-necessary!
And most of all :-
* The DWP to be supportive and understanding of the trials faced by the Chronically ill and disabled.
i personaly would like a very fit, lean, tanned hunk of a man to wait on me hand and foot..........that should take my mind off fibre for a nano second x
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