My siblings will not accept that I have an illness. We share the care of our mother but most time I can't help because of the pain etc.

[lambsie]

I am devasted because tonight my husband has become a victim because I was too sick to go to my mum's at the weekend. I'm shattered by this. My mum God love is trying to understandd but she is being constantly brain washed at how bad a daughter I am. Please help.

[Hidden]

Why has your husband become a victim?

You need to get something printed out about fibro hun and show to your siblings, its not fair on you to have the added pressure of disbelief and trying to care for someone else as well.

My brother has the same as me so he is the only one who really understands i think and the others just think i should learn to live with the pain and stop being so miserable.

So as you can imagine i dont have much to do with them aas you need to tke all the negative influences out of your life as much as possible.

Please try not to worry, talk to your mum and explain when your other silings are not there, i am sure she will understand.

Hope things work out for you. x

[lambsie]

My husband is a self employed mechanic who works out of a garage belonging to my sister. She phoned tonight and told his to get his stuff out of the garage and not come back. All because I couldn't make it to my mum's at the weekend. I have talked to mum tonight on the phone and she is really annoyed by their attitude. She wasn't on her own, my brother came and stayed with her and she was quite happy with this. I am sick to death explaining what is wrong with me but they don't want to hear. It's been ongoing now for some time as they expect me to be at my mum's at certain times and days, but as you know with Fibro, you don't have that luxury of planning ahead. You have to see how you feel on the day. Just can't believe they have taken it out on my husband. This has devasted me. Thanks for listening.

[Hidden]

Thats what we are here for.

Thats awful of your sister, some people are just very selfish.

No i had to explain to a friend yesterday that i cant give a definate answer about plans on friday as i dont know until i get up that day how bad i will be. I was reasonably ok yesterday enough to walk around the house etc, today i could barely move and missed my physio.

I tell ya hun this condition is one of the worst you can have as there is never any real let up is there. No remission. Even if one day you feel able to do something you know that you are going to pay 10fold the next few days.

I knew your mum would understand, i just hope things work out ok for your husband.

You take care ok. xx

[lambsie]

Thanks for your help and understanding. As the saying goes, it is only those who have walked the mile know what it is like. I also have osteoarthritis in many joints and my upper spine is pretty bad. I have a C curve of the spine and bony growths plus disc disease. All of this gives me a lot of pain and has done for a long time now. It's just that when anything needed doing in our family, my home was the first port of call. It's only recently I have learned to say NO, and that's because I couldn't do what was expected of me. Oh well, one day at a time, things will work out. As long as my mum knows and understands.

Again many thanks. xx

Marian.

[Ermintrude75]

Sorry to hear that Marian.

I ve been through a similar experience with the selfishness of other family models.

Hope things work out for you x

[lambsie in reply to Ermintrude75]

Thanks. You'll know only too well what it's like. I've had to accept this illness and if anyone else can't accept that I am sick, then that is their problem. I think I'm beyond caring anymore. As long as my husband and sons are there for me and continue to give me the great help and support that they do, it's all I need.

Take care. x

[Ermintrude75 in reply to lambsie]

If there was a like button Id click it.

Less stress to have that attitiude.

x

[pottydog]

Aw, biggest hugs too you and your husband, what a rotten sister!!! My elsest sister has ME, she used to be an OT at management level and loved her job. She batteld against so much biggotry and disbelief and even though I couldn't relate to her at that time, I never disbeieve her and have always done my best to support her. Shame you can't choose family.

Glad your feeling a bit better today, ooodles more hugs

BW

[lambsie in reply to pottydog]

Thanks for your support. It means so much to able to talk to those who understand. Hopefully we will have a support group here in the City up and running in September. I've recently finished a course on Managing the Challenge for Fibromyalgia suffers and it has really helped me and changed my outlook, so I'm not letting anyone take me back to the dark days fo no hope. As long as my husband and sons are here for me that is what's important. Thanks again. x