Is fibromyalgia recognized by the nhs... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Is fibromyalgia recognized by the nhs pension also osterotheritis in spine and thumbs. Iv put in for ill health pension and been refused.

Dexmar13 profile image
13 Replies

I'm putting a n appeal in and would like to know if anyone has done this and got it . Many thanks this has been a stressful time x

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Dexmar13 profile image
Dexmar13
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13 Replies
TheAuthor profile image
TheAuthor

Hi jplascje

I sincerely hope that you are feeling as well as you possibly can? I am so sorry to read that you were refused an ill health pension. I personally do not know how anything like this actually works but I have pasted the NHS own ill health retirement requirements page to give you some idea of what is required and the FibroAction page on benefits. I sincerely hope that you find these two pages useful.

nhsbsa.nhs.uk/1308.aspx

fibroaction.org/Pages/Benef...

Good luck with trying to achieve this and please keep us all informed as to how you get along.

Ken

Dexmar13 profile image
Dexmar13 in reply to TheAuthor

Thank you Ken I will certainly have a look and I promise to keep you informed. I'm not having a good day hence no sleep so il get my partner to look and explain it to me he is my brain lol .

Thanx again for your kindness

Aura1 profile image
Aura1

Good morning. I was medically retired from my post with the NHS Following 28yrs service with Fibro/CFS . I also got my private pension . Do you belong to the union ? I found them very helpful. I had to prove that my department could not provide what I needed for a safe comfortable working day . Over a period of 1yr. I had put on my records with HR any visits to GP hospitals etc. Any change in medication , generally keeping them up to date on every health issue . I hope this helps you .. Good luck in betting what you want xx

Dexmar13 profile image
Dexmar13 in reply to Aura1

Thank you aura 1 I wasn't in a union. But work did redeploy me and I still couldn't manage the new job I also put as much information in as I possibly could ie go report and consultants reports. I hadn't been diagnosed with fibromyalgia when applying for ill health it was for osterotheritis in my spine and thumbs . Did you get your tier 2 because of fibromyalgia. I am appealing I have spoken to tpas who are going to try help I just find it hard to understand because of how I am pain tiredness ext it's all exhausting. Thank you for your reply and support x

in reply to Dexmar13

Something that I discovered yesterday was to make absolutely certain that for ALL your illnesses you have the diagnosis in writing from either your doc or specialist The asessor I saw yesterday told me that the powers that be tend to `overlook`any symptoms that don`t fall into any other diagnosis that you do have proof of.....sue

Milynda profile image
Milynda

I would also like to know if Fibromyalgia is recognised by the department of work and pensions

Shortnsweet54 profile image
Shortnsweet54 in reply to Milynda

Hi Milyinda,

I hope the following throws some light onto your question. I copy this and sent it with all my ESa forms etc... just to remind them of the rules !!

The Department of Work and Pensions (DWP) has restated that they recognise Fibro as a potentially significantly disabling condition. This isn't the first time they have officially stated this, but up-to-date reiterations of this can't hurt when people with Fibro are still being led to believe that Fibro "doesn't count" when considering eligibility for benefits.

To find the link/info go onto ...theyworkforyou.com/ ....in the right hand side search box type in "fibromyalgia and dwp" or "dwp recognises fibromyalgia" click go then scroll down to the 3rd/4th result , if you click the blue headline it will open it up and you can read from there.

Results 1-3 of 3 for dwp recognise fibromyalgia

Written Answers — Work and Pensions: Work Capability Assessment (18 October 2011)

Chris Grayling: DWP recognises fibromyalgia as a real and potentially significantly disabling condition. Where a clinical diagnosis of fibromyalgia has been made full account will be taken of its disabling effects as part of the work capability assessment.

Written Answers — House of Lords: Chronic Fatigue Syndrome and Myalgic Encephalomyelitis (26 April 2011)

Lord Freud: The Department for Work and Pensions (DWP) recognises Chronic Fatigue Syndrome (CFS) and fibromyalgia as real and potentially significantly disabling conditions. Where a clinical diagnosis of CFS or fibromyalgia has been made, full account will be taken of their disabling effects. The term "functional" in the training module refers to the effect of a condition on a person's ability to...

[Mr. Roger Gale in the Chair] — Fibromyalgia (5 May 2009)

Roger Williams: I congratulate the hon. Member for Reading, East (Mr. Wilson) on obtaining the debate, which will come as a great encouragement and boost to the morale of many who suffer from fibromyalgia. They will take satisfaction from the fact that the illness has been given prominence through this debate. Part of the problem for sufferers is that the condition takes so long to be recognised by the medical profession.

Hope this helps

Take care Jan x

"

Mdaisy profile image
Mdaisy in reply to Shortnsweet54

Thank You Jan

Just in case anyone struggles to find the post, here's the link to a post here on HealthUnlocked;

healthunlocked.com/fibroact...

Milynda profile image
Milynda in reply to Shortnsweet54

Many thanks Jan

The problem yesterday was that although I had been diagnosed by a neurologist it was not on any of the letters or reports that I had sent with my PIP form. possibility of fibro. but no CLINICAL proof. Luckily i had a recent letter from a rhumatologist that did have have a diagnosis of fibro on it. And was i told that it would count as clinical proof. sue

avimay profile image
avimay

I worked many years for the NHS but because of the Fibro/ME I only ever worked part time, so never paid in to a pension scheme. However when I became very poorly and had many months off work with the condition I was told by the Occ Health Doctor that in his view my condition would not change and therefore I was not going to return to work. He said at that point he would recommend to pension me off (if only I had joined the pension scheme) so in answer to your question above, yes its recognised. Good luck

Dexmar13 profile image
Dexmar13 in reply to avimay

Thanks hun x my occy health said the same she was the one who recommended it put a good report together and they still refused it, but I hadn't been diagnosed with fibromyalgia then just the osterotheritis.

Thank you to everyone for there support every bit helps

fibro profile image
fibro

It depends on the exact type of pension scheme you are in. There are various different schemes depending on when you started. Look up on the scheme website to see what the appeal board will be actually looking for.

Some schemes accept that if you are incapable of your normal job and will be until pensionable age, other schemes require you to be incapable of any work until you reach your normal pensional age.

Depending on your age, you may just be able to claim your pension early, but they do deduct money to take into account the additional years they expect to be paying it.

Please also be aware that if you are in receipt of benefits (excluding DLA or PIP), it may effect your benefit.

Good luck xx

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