Unexplained infertility what did your... - Fertility Network UK

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Unexplained infertility what did yours end up being in the end?

sammejayne profile image
23 Replies

Hey everyone just feel very deflated tonight, a bit about my story, I am 30 9 years ago I was ttc with my then fiancé, after 19 months the stress got to me and we need splitting up but dr found no reason why nothing happened, I have now been ttc with Husband almost four years again can not find a reason, my husband had a daughter and tests all fine, now I have been told today my ex now is having a baby, I feel devastated because this clears up the fact it has to be me with the problem but why can no one find what it is 😢 has anyone had unexplained then found out what the issue was/is? What has yours been?x

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sammejayne
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23 Replies
Minnie92 profile image
Minnie92

Hey sorry to hear about the crap time you’re having. We were diagnosed with unexplained infertility by our gp and then gynaecologist after initial bloods, semen analysis and hsg test which all showed nothing. Then we were referred to the fertility clinic for ivf where they do more in depth tests and found that I had a low egg reserve and my husband had low sperm morphology. They said it’s about a 1% chance of us conceiving naturally but it could happen. One month I may release a good egg but sperm is deformed so won’t fertilise and the other way round. By this point we had been trying for so long we didn’t wait any longer and got started with ivf. Had our first cycle started in March and we are now 15 weeks pregnant. Good luck with your journey, I generally find fertility clinics do more research into the problems! X

Nodds profile image
Nodds

Hi Sammejayne, I’m so sorry to hear what you’re experiencing. It sucks doesn’t it. My story is nearly a mirror image of yours, except I was married, had x2 ICSI due to male factor, divorced due to stress of it all, and I’ve been ttc with my husband for x3yrs. We’ve had x3 IUI and x1 IVF and have been told it’s ‘unexplained’. I heard the other day that my ex has had a baby with his new partner. It made me feel pretty useless. It’s taken time and soul-searching to accept it. I decided to look at his new baby as motivation. If he could do it (with a poor sperm count) then we could do it. I wouldn’t wish infertility on my worst enemy (or my ex-husband!) so I’ve accepted that what is happening is happening for a reason and everything is perfect and as it is as it is supposed to be. I’m using the fertility journey as an opportunity to learn more about myself and strengthen our marriage.

On a practical note we’re now exploring Reproductive immunology to try and help provide some clarity/ answers.

You’re definitely not alone, and you’re stronger than you think.xx

sammejayne profile image
sammejayne in reply to Nodds

Yeh it’s an odd one, I’m

Not upset because I’m jealous I’m just sad for me so I guess I’m just being selfish but it’s hard not to be x

Nodds profile image
Nodds in reply to sammejayne

It’s completely normal that you feel that way. Cut yourself some slack, it will happen and it will be perfect for you.x

sammejayne profile image
sammejayne in reply to Nodds

Hopefully one day x

I’m so sorry facing unexplained infertility is so very frustrating.

My story is long I’ll try to keep it as short as possible.

Ours was also unexplained infertility for 5 years & 10 months when I had a laparoscopy which endometriosis was found & treated. We conceived afterwards but miscarried symptoms of endometriosis returned so I had 2 more surgeries ( last one with endometriosis specialist) 2 months later I conceived & went on to have a little girl who is 3 weeks old.

If you haven’t already I’d push for a laparoscopy to rule out/treat endometriosis. It can only be diagnosed via laparoscopy.

All the best xoxo

sammejayne profile image
sammejayne in reply to

Thanks Hun, I’ve recently moved drs and I’m Hoping to push for that, also as moved dr this means different hospital and I looked on there ccg and it states they help fund for couples if has a child from previous relo that doesn’t live with them so I’m hoping this isn’t too good to be true x

in reply to sammejayne

That is good news definitely a new fresh eyes can really help. We were lucky I got referred to another fertility specialist thanks to a general gynaecologist & his Colleague found the cause & thanks to him & his referrals we have our daughter. Our first fertility was dismissive & because I have a son already from another relationship was told it was trying or IVF & we won’t fund it 😢 I know how awful it is when you hit that brick wall like this an easy journey anyway. 😢

I really hope you can get some answers & treatment if you need it. Everyone has the right to be a parent & I find it disgusting how fertility treatment funding varies throughout each county & how less of a priority it is seen as 🙄

Keep us updated good luck xoxo

This was like me. Was trying with my ex then split up and tried with hubby and nothing then ex had a baby. It completely devastated me as I was convinced it must be me but we were also unexplained xx

sammejayne profile image
sammejayne in reply to

Have you conceived since? It’s a real kick in the bits isn’t it x

in reply to sammejayne

It’s horrible. He’s also a completely idiot. God knows why I stayed with him for so long lol. I have a little girl via IVF xx

sammejayne profile image
sammejayne in reply to

Congrats, due to postcode lottery and because I have a step daughter we weren’t entitled to help

But have recently moved gp to get a second opinion and there ccg says they fund for couples to have a child previously but doesn’t live with them... just so worried they will just say no x

RockPig profile image
RockPig in reply to sammejayne

When I first went to my GP was most insistent that we wouldn’t be entitled to NHS funding because my husband has grown up children from a previous relationship. I knew this was mince and insisted she check. Got an embarrassed call later confirming I was correct so my advice would be to double check with your local funding board regardless of what your GP says. If we had relied on GP advice we would never even have made it past the start line!

sammejayne profile image
sammejayne in reply to RockPig

Hey thanks for the comment, the hospital where I went at my previous dr 100% did not fund for couples that Have living children whether they live with you or not, but recently moved to another dr and it has a different hospital and ccg and they actually fund if the child doesn’t live with you, would they help us? Or because I was told no from a different gp and hospital would they still reject?x

RockPig profile image
RockPig in reply to sammejayne

Hi, I’m in Scotland and the rules are different here so I really don’t know how they would apply where you are. My point was really just that if you don’t like the answers you’re given it’s worth double checking because don’t always know what they’re talking about. Hope you get the answers you’re looking for and good luck with your journey.

fridayfever profile image
fridayfever

Hi sammejayne

Not quite the same situation but yes unexplained fertility also.

All I know is my egg reserve is low but other than that no other cause which is so frustrating as nothing we can do to help solve it.

Please don't go down the road of blaming yourself, I've been there and it doesn't solve anything.

Ask for a referral and go from there xx

We are also unexplained - which I find a lot of crap in regards to our situation. I am so fed up with consultants 😭 I hope we both find answers soon xxxx

Hoping2019 profile image
Hoping2019

My only positive came after getting treatment for my high immune system and thyroid. Recommend the immunology tests but gp won’t do them and ask your gp for the thyroid blood test - should be below 2.5. Best of luck x

MissSaoPaulo profile image
MissSaoPaulo

I don't know if we'll ever get a definite answer for why we couldn't conceive naturally but I guess it was something 'mechanical' stopping eggs and sperm getting together, although nothing really showed up on tests - but when we did IVF our outcome for fertilization and development was very good. Doing the IVF, Dr wasn't happy with my progesterone levels during the 2ww and put me on loads of extra support so now I wonder if some of my 'late' periods were in fact chemical pregnancies my uterus couldn't manage to hold on to due to low progesterone. Like I said, we'll probably never know now, but thanks to IVF our first baby is due end of July and we have 3 frosties still. So even without a definite diagnosis it doesn't mean that IVF can't have good results. Best of luck with your journey hon, it's tough, incredibly so at times, but you've got to be in it to win it xxx

glt01 profile image
glt01

Sounds like you're having a bit of a rough time at the moment. Hope you're okay.

We got told we have unexplained fertility despite having numerous scans showing my ovaries being polycystic. My husband has a high sperm count so the fact hes got slightly off sperm apparently doesn't matter because of the high number of them so they put it down to me and unexplained fertility. When we had our first cycle of IVF I ended up with mild OHSS prior to egg retrieval and Moderate post. They've now said I've got polycystic ovaries but not PCOS which is possibly why we've never conceived naturally but it took a cycle of IVF for that to be realised.

sammejayne profile image
sammejayne in reply to glt01

That’s interesting as I’ve been told the cysts don’t effect ttc, as I have been told

I have pco

But not PCOS! X

Tigr profile image
Tigr in reply to sammejayne

Depends if you ovulate. Sometimes cysts mean you do not ovulate at all and this is why they are hanging out in the ovaries. We still run under unexplained infertility although I have been diagnosed with pcos and husband with azoospermia (which in my eyes does explain not conceiving but well...).

sammejayne profile image
sammejayne in reply to Tigr

Apparently I do ovulate xx

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