Fertility Network UK
14,299 members23,524 posts

Anyone with Hydrosalphix

Hi all,

Anyone been for a laparoscopy to investigate what looks like a hydrosalphix on a scan and want to share their experiences...

I'm confused and angry about it all. The consultant says they come from anywhere, and could have been undiagnosed appendicitis. At the moment the consultant doesn't seem to care where it came from. I know my friend had blood tests for various STI s when they where investigating her issues so hoping they can check everything out for me.

The only reason ive got this far so early on is i came across an old scan in 2011 when I was experiencing pelvic pain. I recently discovered that this scan stated hydrosalphix on my paper work but no one told me this at the time, I had this or that it could be a problem in future. I wss just told back then that I just had a cyst and that it was so small it couldnt cause me pain and that it was probably emotional distress causing pain during intercourse. So angry but I know its a waste of time.

Anyway back to now I have this and they are going in to look at it in a couple of weeks. So confused and scared about the outcome.

Thanks

25 Replies
oldestnewest

Oh gosh where do i start. Me and my partner trying to conceive for 2 years and nothing. I had a hsg which showed i had hydros in both of my tubes. I had a lap to drain and open them-failed.... i was in denial so much that i didnt listen to have them removed. With a hydrosalpinx its fluid in your tubes and makes is nearly impossible to conceive as the fluid can stop an embryo implanting.

I recently had that tube removed and hopefully will be successful with ivf.

This is a lot of information to take in... i advise to take it day by day... listen to your consultants advice.... this diagnosis does not mean you will never have a children.... its just a different journey. Also, if its in just one tube you still have th need other one so natural pregnancy will still be possible.... good luck my love.... and please dont spiral into depression as that happened to me... as there are other options xxx

Reply

Thank you for sharing, it means a lot. So you had it in both tubes but they only removed one in the end?

Did you ever find out why you got them?

Thanks

Reply

They said it could be a previous sti or my appendix. I caught an sti in my late teens but had it treated as soon as found out but thats the most likely reason unfortunately😢

Reply

Oh I'm sorry to hear that. Hope you made peace with that.

Ive never had an STI as far as I'm aware. But this is concerning me that I could have got something towards the end of a difficult relationship with my ex if he was unfaithful. I need to let go of all that I know, its done now

Reply

Yes i have my dear... its not a definite conclusion... but life throws things at you so you just have look past it and move forward xx

Reply

Absolutely ! Thank you x

Reply

Hi LaurajaneF. So sorry to hear that you have this problem. It can be an issue when trying to get pregnant, as there is a natural lubrication in your Fallopian tubes. Any excess usually leaks out through the open end, and if it can't, it has o go into the womb. It is widely believed that this excess fluid can prevent the implantation of a developing embryo, so often it is decided to either clip or remove the offending tube(s). Lots to talk to your specialist about, as to what you will be having done. Blood tests are usually taken to check out for STI's at some stage. Obviously, I wish you well with whatever is decided. Diane

Reply

Thanks for replying Diane, your wording is very helpful, something I can use to explain to friends and family who ask me what the issue is. There is a lot of unpleasant terminology around like 'hostile' womb and 'toxic balloon' which doesn't help matters.

I would like bloods for STIs for peace of mind so hopefully I can request if they don't offer them.

Thanks again

Reply

Hi. Glad it helped. I'm pretty sure you will get checked out at some stage for several STIs. "hostile" womb relates to secretions leaking into it. and the "toxic balloon" relates to the fimbriae at the open end of the Fallopian tube being stuck together and looks a bit like a crocus flower before it opens. Unfortunate terminology as you say. sounds like you've been on a day trip to a nuclear power station!! Diane xx

Reply

Hi there,

I was diagnosed with hydrosalpinx in both my tubes earlier this year, and like you, I have absolutely no idea how it happened. I've never had an STI, I don't have any other problems. The doctor just said I "may have been born that way" which didn't really help me!

In any case, I understand it's a hard blow, especially when you start Googling and seeing tube removal everywhere... in my case I came round to the fact that my tubes were no good to me anyway, and if it reduces conception via IVF by 50% I knew I had to absolutely get them removed. I had the operation in April and already waiting to start my first FET transfer in July.

I know it's scary but there are options. Feel free to private message me if you need. xx

Reply

Thanks so much for sharing your experiences. I hope you recovered quickly from the op and all the best with the next stage of your process!

What with feeling so awful now before I even know the full situation makes me wonder how will actually react if I do have to loose both tubes, which is ridiculous ...

Thanks again x

Reply

Thank you. It took me 2 weeks to fully recover from the op and was grateful for that cos it meant i could get cracking with IVF soon afterwards. Having that plan in place definitely helped me mentally. Try not to get too down about it, there are options available. I said to myself, well if my tubes no longer wanna work with me well then they can eff right off! 😂 The things we say to make ourselves feel better! Seriously hun, it will be ok. Xx

Reply

Maintaining a sense of humour is definitly the way forward, they can eff right off indeed if they don't work. I joke about all my leaky tubes (I have sinus trouble too! ) with my husband.

Just temporarily mislaid it this week and mostly just crying!

Thank you !

Reply

Hi Laura,

I was diagnosed with a hydrosalpinx in my left tube in march of last year after being admitted into hospital with suspected appendicitas. An ultrasound scan showed the fluid in one of my tubes. I had tests done which came back that i had no sti’s etc, my gynae did regular scans for about 3 months, and put me on antibiotics incase there was an infection that had caused it, on the 3rd scan it showed my hydrosapinx had “disappeared” however my gynae was concerned about what state my tube was in and prepared me for the likeyhood of the tube being removed, i had a lap and dye which showed no fluid but both my tubes were blocked and was told i could have PID or been born with them both blocked.

Its absoloutly broke my heart knowing that both my tubes were blocked and our chances of concieving were so slim and it took me a long time to accept it.

I still have both my tubes because my gynae decided not to remove it as there was no sign of any fluid, but refered us for IVF which we start at the end of this month. Xxx

Reply

Thanks for sharing, its so common to hear the hyrdo plus something else ( PID etc)or it seems common to be in both tubes. I'm being realistic about the prospect of it being in both as they don't always show up if I'm correct. Although my husband and a few friends are encouraging me to be positive its really hard. I'm praying one is alright, because I'm not sure that IVF is something i would do, but I don't fully understand it all right now so not going to say never. But respect others who do it of course.

Thanks again. It means so much to talk to other women going through the same thing

1 like
Reply

Hi LaurajaneF! I have been recently hospitalised for an ectopic pregnancy (which resulted in the loss of my right tube) and at the same time informed that my left tube shows an hydrosalphix (however, no one explained to me what this was and had to do quite a few scaring Googling myself, making perhaps the wrong decision of not removing both tubes in the same laparoscopy :|).

Diane has already explained in plain English what this is, and, regarding the causes, I suggest you forgetting about them. As they did to me, you will be widely tested for STIs but, most likely, this was an infection (I've been told usually Chlamydia) that you had a while ago (perhaps without any symptoms), and it may have been already resolved/cured somehow, so nothing will show up.

In my opinion, you should not look back: you cannot change your past, but you can influence your future. I know that this is hard, but you should stay (or try to stay) strong.

Hugs!

Reply

Thanks MofM - I think I've moved back out of the why and how thinking and indeed back to the let's move forward ! Youre absolutely right.

I am so sorry about your eptopic pregancny - how awful, I hope you are recovering well physically and emotionally. It sounds incredibly difficult, and to have the hyrdo diagnosed at the same time !

My husband keeps telling me you don't have to be hopeful right now if you don't have the resources , just be neutral, so fight fear and negativity. So I think that's what trying to stay strong is for me.

Reply

My partner was telling me exactly the same things: do not look back, fight fear and fight negativity, and wait to see what happens. While the emotional part of me was shouting and crying, the rational part of me knew and knows that he was right.

After the surgery, I had a long chat with my best friend (we have been knowing each other for 20 years!) and she said that life is a war, and, as any other war, it is made of battles. You enter the battlefield, you lose a tube, you discover a damaged one, you retreat and plan the next move. It does not matter how many battles you lose, but what matters is that, at the end, one way or the other, you win the war --and this victory could also be accepting a childless life. Wise words, I agree, but nevertheless difficult to digest.

Reply

Yeah, good analogy , I'm in retreat and recover stage at the moment, think ive just past through rock bottom last coupple of days so its up from there now. I totally agree with what you are saying. You are not defined by the situation but how you move out of or deal with that situation in the long term, so I know what im going through is temporary. And that I'm not alone. Thank you

1 like
Reply

Hi I had hydro in both my tubes which resulted in both my tubes been removed I was absolutely devastated, don’t give up things really do work out im currently 23 weeks pregnant with a little boy :)

Reply

Thanks for your message. Congratulations ! I hope all goes well for you .

Reply

Hey, just to say that if you want to be checked for STIs sooner rather than later you can either make an appointment with your GP (at my surgery it’s the nurse who does it) or just go to your local sexual health clinic and get the full range of tests done. Some are tested with bloods and some through swabs. You don’t have to wait to be offered this if you’re worried, you can be proactive about it. Don’t forget that your partner may need to be tested too. Good luck 💜

Reply

Hi Lizzie, I had them done before and after my partner and I got together. My partner had them before too. My friend had blood tests for clamydia in Germany which showed up positive even though swabs were negative - something to do with it not being active but shows you had it at one point ...who knows could have been lost in translation a bit...I'll ask the consultant when I see them I guess. Thanks for your advice!

Reply

Sounds like you’ve already followed that all up x

Reply

Hello. I had a hydrosalpinx diagnosed in January of last year and had surgery in Dec to clip my left fallopian tube. I’ve had previous surgeries to remove an ovarian cyst and endometriosis and they think mine could have come from infection or as an after effect of surgery. I had a laparoscopy in Dec to clip the left tube and my consultant found my right tube was completely blocked too but wasn’t a hydrosalpinx so he chose not to clip that one too and left it as it is. I am now 7 weeks pregnant after a cycle of ivf so there is hope after a hydrosalpinx. I’d probably had mine for quite some time but it never caused any pain or discomfort, I didn’t know it was there. Good luck xxx

Reply

You may also like...