Devastated ๐Ÿ˜ข: After going for our... - Fertility Network UK

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Devastated ๐Ÿ˜ข

Jenkins89 profile image
Jenkins89
โ€ข22 Replies

After going for our 9 week scan yesterday we found out we have lost our baby.

We were ecstatic that our first round of ICSI Ivf had worked but found out after the second scan the baby hasn't been growing.

Hospital think it's something called a molar pregnancy. Never heard of it. Anyone on here ever had one and what do I do. I'm crying all the time.

Xx

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Jenkins89
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Aimaim77 profile image
Aimaim77

I a so sorry to hear your news did they not give you any information as to why this happened ! When was your first scan Hun .? Did they say all was ok then ? Xxx

Daisy14 profile image
Daisy14

Hi, I am so so sorry this has happened to you. Although not molar, I had a miscarriage at 9 weeks after my first ICSI cycle in November last year.

It is totally normal to not be ok and really look after yourself. I promise time does heal, it's a total cliche but take a day at a time for now as it is true.

I found the Miscarriage Association to be incredible, they had lots of info and allowed me to talk to other women to feel less alone and justified in my feelings.

Do message me if you need anything or have any questions. Take care xxx

pm27 profile image
pm27

I'm really sorry to hear this. Finding out that you've lost your baby is awful. I had a missed miscarriage discovered at 12 week scan and I was in shock for days.

The Miscarriage Association website had lots of helpful info and I used their helpline. They may be able to explain what a molar pregnancy is.

Take lots of care and make sure you look after each other at this heartbreaking time.

Hollibob profile image
Hollibob

I'm sorry :-(

Someone I got chatting to that was going to the same clinic as me at a different time was told that they thought she was having a molar pregnancy.

They sent her to the hospital because they said their scanning machines were better.

When you read up about a molar pregnancy it doesn't sound good to be honest, so this lady was terrified.

She went to the hospital and it turned out it wasn't a molar pregnancy and now has a little boy to show for it.

I know it's not the same in your case, but I just wanted to let you know what they think is the case may not be.

If you can't face looking up information or speaking with people, would your partner be up to asking the questions or maybe a close member of family or friends?

Look after yourself X

Lamb82 profile image
Lamb82

I am so very sorry for you both, it is so heartbreaking. I cried almost solidly for 5 days when we had a missed miscarriage at first scan. Like daisy said time truely is the only thing that can help you heal. Let yourself grieve and know there is not a right or wrong way to deal with this just do what you need to do. Thinking of you both and always here for a chat if you want. X

misswinky34 profile image
misswinky34

Hello

My cousin had a partial molar pregnancy, she got most of her info from this site, which is a shame as she should have got all the questions she had answered by the hospital. In the end she got a d&c to remove the tissue. Which then had to be tested:

She has gone on to have a healthy boy and girl after that. Completely normal pregnancies. She found out at her routine dating scan. It's particularly cruel because you just have no hint of anything being wrong. She was sick and tired any everything else you would expect.

My with my cousin, hers never developed into a baby, the sac was there but just a mass, that needed removing.

i don't know if that's what's been suggested to you?

Here's the link to the site my cousin read up on.

Hugs xxx

nhs.uk/conditions/molar-pre...

Rose-la-Milli profile image
Rose-la-Milli

I never had that, though I did have a miscarriage earlier than that before and I know how devastating it is when you have finally got your BFP. My sister at the time tried to keep me positive and said, at least you know that your uterus did the right thing and you were able to accommodate the embryo - and that did give me some hope, and should for you too. I'm currently on week 10 one year later after that miscarriage and every time I go for a scan (I'm going privately every 2 weeks) I'm preparing myself for the worst, but so far so good.

Give yourself some time to grieve but remember that lots of us have had these experiences and there is still hope xx

Sorry to hear this. Take care of yourself X

Madcatlady55 profile image
Madcatlady55

I've had an anembryonic pregnancy, whereby I had a sac but nothing in it. They weren't sure if it was a reabsorbed partial mole, so they did the erpc and then my hcg levels were checked every 10 days or so, until they returned to normal, which was about 4 months. I was also told not to get pregnant for at least a year xx

baby2016 profile image
baby2016

So sorry to read this ๐Ÿ˜“ Its hard enough to even take in what their telling you, and its appauling that they have not given you and more info on molar pregnancy. When have they asked you to go back? And have they discussed various options with you? From knowing a friend who had one I think you will sadly need to have a d&c of which eveything will be sent off for testing. She then had to go for weekly tests and various appointments at a clinic in london, she was told not to get pregnant for a year,due to the risks it can cause, mainly to yourself, however she was pregnant 3 months later and all went well with that pregnancy. This is horrible for you to have to go through, and you may not feel like fighting for anything, but I would ring the hospital and push for more answers and what they plan to do, your health is very important now and demand those answers. Thinking of you xxx

sukij82 profile image
sukij82

Sorry to read about your lost. I had an ectopic pregnancy nearly two years ago. Time will heal your lost, I know this as it has for us.

Try again when you are ready and good luck. Xx

Hi Jenkins

Any loss at any stage is a major. I am sorry I know exactly how you are feeling all too freshly. We gave birth to our perfect little boy in Monday only he was born too soon.

We had 4 failed cycles and this was a DE cycle which worked first time all self funded.

Nothing can prepare you and nothing will make it better.

Try getting through minute by minute anything else is too long xxx

Big hugs ๐Ÿ˜˜

Mantaray75 profile image
Mantaray75

So sorry. x

Becks72 profile image
Becks72

Hi Jenkins

So sorry to hear your news, also had a miscarriage after our first round of IVF.

I happen to be a midwife as well and you really should have some follow up if they think it was a molar pregnancy, are the hospital seeing you again?

Take care

Becks

Jenkins89 profile image
Jenkins89 in reply to Becks72

Yeah I have to go back to the hospital on Monday. They did bloods on Friday go back for results and the op to remove it.

nicknick profile image
nicknick

I am sorry for your loss. Sending mu hugs

MonkAK profile image
MonkAK

So sorry for your loss Jenkins. Hope you get answers soon. Xx

sum1sweeta profile image
sum1sweeta

Awe I'm sorry for your loss it's an awful thing to have to go through. I also suffered a loss a 12 weeks via icsi. I know it's not easy, but you will get through it with the support if family and friends. Take time for your self x

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Jenkins89. I am so sorry to hear that you have suffered a molar pregnancy, not at all easy to get your head around to, considering its complexity. I know you will receive support here, but also, I hope that your hospital will explain and support you through this. Thinking of you. Diane

Jenkins89 profile image
Jenkins89

I have just been back to the hospital I am booked in Wednesday for an operation to remove it then they will be sending it off to Sheffield to get tested. I have now been given lots of information and feel a little more calmer about things. Still a little terrified for the operation. ๐Ÿ˜ข

MrsTM13 profile image
MrsTM13 in reply to Jenkins89

So sorry to hear your news. I had a miscarriage in January although not a molar pregnancy i can understand how you must be feeling. Although it probably isn't of much comfort to you right now, you're not alone.

I had to have a D&C and like you was terrified. I can honestly say I know I did the right thing as having to wait for it to happen naturally and then seeing everything would have finished me off I think. I didn't experience any pain just a bit of discomfort. I hope everything goes well for you on Wednesday. x

Hollibob profile image
Hollibob

How are you doing?

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