Fatty Liver pain that doesn't go away - Living with Fatty...

Living with Fatty Liver and NASH
4,151 members878 posts

Fatty Liver pain that doesn't go away

Superkates
Superkates
21 Replies

Is it supposed to be a continuous thing? It's throbbing pain, seems like in fire, but it doesn't go away. I would only have few minutes of break then it's gonna come back. Is this how it's supposed to be? It doesn't seem to end. You think I'm misdiagnosed or way worse or ate/drank something?

21 Replies
oldestnewest
Walkingcats

A liver biopsy doesn’t lie ..... go to liver specialist and also get a complete physical ..... of your organs....go to your primary care doctor. God is good.....

3 likes
Reply
Superkates

Sorry, forget to mention the tests I got so far. I only had Ultrasound and Lab tests. I'm planning to seek another opinion and perhaps a biopsy.

3 likes
Reply
ReeTaylor

My doctor did an Ultrasound and said I had fatty liver and acted like it was not a big deal. I insisted on a fibroscan. I found out I had a high amount of fat on my liver which was 386 with the top being 400. I have pain constantly, as well, but on the left side. You should just ask for a referral to a hepatologist. Your general doctor will give it to you. Good luck and I hope that your pain subsides.

2 likes
Reply
Riggsy1
Riggsy1
in reply to ReeTaylor

Hi Ree

My pain is always on the left side not the right. My oncologist says the pain can radiate to the left. I also have severe ibs which can also cause pain.

Reply
ReeTaylor
ReeTaylor
in reply to Riggsy1

Thank you for letting me know. My doctor keeps telling me he doesn't know what it is. Going back for more blood work this week. My RBC seems to be getting higher. I hope you are feeling better.

Reply
nash2
nash2Administrator

Hi Super

Generally pain from fatty liver disease doesn't come on suddenly or with great intensity. It could be something else entirely. I can't advise you but sudden intense pain that persists may need attention. Self diagnosing it as liver pain can be dangerous in the case of a bowel blockage as just one example.

3 likes
Reply
Superkates
Superkates
in reply to nash2

I only had ultrasound and blood tests. Perhaps I need to see another specialist. I read some posts here saying that there are cases where misdiagnosis happens. My anxiety is through the roof as Im worried of misdiagnosis. I guess being sure and asking for another opinion won't hurt me. Your response is enlightening. Thank you, sir!

1 like
Reply
nash2
nash2Administrator
in reply to Superkates

Misdiagnosis is common unfortunately. Ultrasound and blood are not adequate to diagnose liver disease. The best they do is suggest that further testing is warranted. Since your doc has pointed you in the direction of liver disease your best bet is a hepatologist or a gastro doc with a liver specialty. Primary care docs are inadequately trained for diagnosing liver disease generally.

2 likes
Reply
Peaches-N-Cream

Don't be anxious. My dad was an alcoholic and his fatty liver didn't cause his death at age 78. Stop the Tylenol, eat your greens!

Reply
Schnappy
Schnappy
in reply to nash2

Or, gallbladder

1 like
Reply
Superkates
Superkates
in reply to Schnappy

Yay! Got my new tests today and one of them says that I have a gallbladder polyp.

Reply
Schnappy
Schnappy
in reply to Superkates

so, what does that mean? Instead of liver disease? My gallbladder is barely functioning but I don't have polyps so my doc and I have decided to leave it in place unless the pain starts.

Reply
anthesis2

There are many gastrointestinal conditions that are misdiagnosed. Many of them are overlooked in favor of liver disease. My PCP was admittedly unqualified to diagnose my condition and referred me to a GI. The pain I experienced apparently is similar to that which you are experiencing. It is often referred to as epigastric pain and is often centered in an area of the liver known as the hepatic hilam. The pain I experienced was from obstruction of bile and billiruben that decends from the liver through the common bile duct to the pancreatic duct. Excretion of hepatic and pancreatic enzymes is controlled by the sphincter of Oddi. When there is a dysfunction of the sphincter of Oddi, pappillary stenosis can be the result. This stenosis causes a feeling of billiary hypertension that may be causing the pain you are experiencing.

The many articles I have researched in the medical literature (pubmed.gov) gave me the clues I needed to resolve my condition without medical intervention. The changes include exclusion of certain foods from the diet, eating organic low sugar/carbohydrates and saturated fats (ketogenic diet), exercise, adequate sleep, elimination or reduction of toxins in your environment (pesticides, household chemicals), GMO foods known to be unhealthy (high-fructose corn syrup, unfermented soy protein, among others). So the treatment for you condition requires you to be informed and fully engaged in your treatment. It is imperative that you self educate so that you can better collaborate with the physicians with whom you may confer.

FYI, I expended well over 500 hours of my time researching the medical literature to discover the cure for my condition. Be prepared to learn hundreds of new medical terms.

In conclusion, I am pleased to report that my recovery is well under way. I firmly believe anyone can beat liver disease if they are willing to diligently research the medical literature and act upon the information you discover.

You may also benefit from the YouTube videos that Dr. Mark Hyman has produced about fatty liver.

2 likes
Reply
utep99

I never had a issue with pain, but it is a good idea to see a Gastro Doctor to see what else might be going on.

1 like
Reply
RavensongNH2018

I have very similar pain as you've described. HOWEVER, if I have one more doctor palpate my liver and tell me that the liver has no pain receptors I think I am going to explode. I DO understand that perhaps the liver itself would not, but Glisson's capsule (surrounding it) DOES have pain receptors. When I ask about it, I get patted on the head and they treat me like I'm there for drugs only. I don't DO any pain medications whatsoever! Unfortunately I get frustrated because no on will actually listen without making some sort of assumption or give me the deer in the headlight looks and announce "see you in 3 months, we will keep an eye on it". Aaargh -- so frustrating!

1 like
Reply
Peaches-N-Cream

I think it's the weight of the actual fatty liver putting pressure on surrounding tissues that causes the pain.

1 like
Reply
Superkates

I feel you. Being a proactive patient, sometimes they see us as aggressive patients! They don't take us seriously.

2 likes
Reply
Peaches-N-Cream

I take a Chinese herb that takes the pain away for me. It's called Schisandra. I get it on Amazon.

1 like
Reply
Superkates

Hello! Just an update.

Took another set of blood and urine tests. Most results are normal, some are not. I asked my ultrasound exam. It still says that I have fatty liver but now, it also says that I have a gallbladder polyp. Found out that the pain is similar to fatty liver pain, and in the same location.

Im grateful with your responses. It truly encouraged me to be proactive. I am asked to take multiple herbal medicines but I think I will just eat right.

Thank you again!

Reply
TrueW

Hi Super, I also have a Non- Alcohol Fatty Liver I was diagnosed in July 2019 with 30% fat & 5% Cirrhosis in my liver. I did many blood test, UltraSound, and when I took the Fiborscan that's when I got the Diagnosis. As other people on this site have mention to you please go see a Hepatologist Doctor. Mine is excellent I did the research he told me to diet but I was already doing that when I went to him so he told me to continue. He just didn't help with the diet, which I have Trainer & I do weights 3 days a week, water cardio for my knee (4 days) and walk 10K plus steps daily, walking or elliptical. I have bad knees, so I do some type of machine at least 2 or 3 days along with everything else I am doing. I have lost 24 pounds on my own its been 13 months but I am still on my Life Style Program. I eat as clean as possible 5-6days per week. Of course it has not been easy and I have tried losing weight off and on for 2 years but when I received the results I am totally determined to lose the weight I have 25 more pounds to go. NALD came from eating Junk food and taking Tylenol and Omeprazole 40mg twice daily 2 years for IBS. When I had my Colonoscopy in May 2019 this same Doctor lowered it to 20 Mg once daily. My Gastro Doctor at the time put me on it I also have diverticulosis. I am thankful that I am getting better with my New LifeStyle Mediterranean diet and Keto. Please get A hematologist and the test completed if my doctor had not pushed me to get the test I would not know. Remember God is good and he will help you. God Bless You!

1 like
Reply

You may also like...