How common is misdiagnosis of liver d... - Living with Fatty...

Living with Fatty Liver and NASH

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How common is misdiagnosis of liver disease?

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My doctors missed my fatty liver then I was diagnosed as iron overload which was wrong and it was 5 years before I got a cirrhosis diagnosis. Has anyone else had trouble getting a proper diagnosis?

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Sallywolf profile image
Sallywolf

I have no idea how common it is, but most doctors don't seem to believe in NAFLD. In my case between the ages of 17 and 33 I had chronic low cholesterol and my doctors assumed that was a great thing. They ignored the fact that I had symptoms of chronic fatigue, digestion problems, nausea, depression, anxiety, gradually weakening skin, was becoming slower to heal all the time, and so on. I did my own research and years into it finally got my new doctor to let me see a liver specialist. One biopsy later and I had stage 3 fibrosis no one had ever looked for or treated because one of two expected blood factors weren't present so they just labeled be a hypochondriac.

So while I have no statistical info for you, anecdotally I can tell you it does seem a common attitude among doctors that if you test negative for what they first suspect that you are fine and just complain too much

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