I am really hoping someone can help point us in the right direction. Hubby and I have 5 children in total all of them ours biologically except the 2 eldest boys who are my hubbys but the boys mum died when they were very little. Our two boys are almost 14 and 12 and were both diagnosed roughly 5 1/2 years ago after much fighting from us. We were told son no1 has full FASD and son no2 has ARND but except for giving us a few web addresses we were sent on our way with nothing. Over the last 18months or so both of their behaviours have gotten worse and are displaying very worrying, albeit different behaviours. We have been working with their school in trying to manage these at school however getting a lot of the teachers to even accept that the boys have a condition as they don't really know or understand it is very hard and we are having to supply them with the information as none of their training is about FASD. However when we recently tried getting a referral back to the Paediatrician in the hopes of getting a more detailed diagnosis and therefore knowing where we can turn for help we were told by the local Paediatric team that they do not deal with anyone over the age of 12, which automatically rules out son no1 and that as son no2 is almost 12 they won't deal with him either. We were then told to ask for a referral to CAMH only to be told that they won't look at son no2 UNTIL he's 12!!!! Then yesterday we were informed that there is a 50 week wait to access CAMH, we cannot wait a year for help because by that point both boys are likely to be in very serious trouble with either the school or police. Can anyone offer any advice as to where we can turn now.