FASD

[Caz2caz]

Hi

I have SLG of a little boy who's 4 years and has just been recognised as having FASD

And would like to speak to anyone as this is my first time on here lol

Many thanks

[biffyfan]

Hi my adopted son is also 4 and diagnosed with FASD. What are your issues/concerns/needs? Have you looked into your nearest support group ran by the FASD Trust (I run one for the trust) they are invaluable to meet other children affected by FASD and talk to other parents and carers. Also look at the 'parenting the FASD child' training offered by the trust on their website and the book just released by Julia Brown. All very information, practical and helpful.

[Caz2caz in reply to biffyfan]

Hi

I live in Wisbech so I think perhaps Peterborough is my nearest unless you know any where nearer my most constant worry is my little one hits and pushes a lot mostly towards other children same age can be adults and he is due to start school I have already have experienced lots of mums complaining about this and I constantly praise him when he does not hit but bit lost as to know what to do

[BernieBubble]

A very good thing is that you have recognition early, I would have a meeting with the school befor the start of term and make sure they are aware of FASD and are proactive in looking ar strategies beforehand, and if you join the Facebook FASDUK group there are wonderful people on there who will support you when it gets tough. I would ask for the school to do in service training on FASD to realise that it is a disability caused by brain damage rather than a behaviour issue. I have a 7 yr old (attachment) whose behaviour is awful in school he is in year 2 and has been excluded 4 times.... My advice is don't apologise for the little one ask " how can we help" ... Good luck

[Caz2caz in reply to BernieBubble]

Thanks I will make an appointment next week

[SLHC110]

Hello! I also have a 4yr old boy with FASD. How are you finding things?

[SLHC110]

Sorry I just read down the replies! My son has a habit of throwing things and no amount of telling him not to is making any difference I think you need to get in quick at school and explain the situation. Our community paediatricians have been brilliant in instigating higher needs funding - my son really shouldn't be left unwatched - and a statement for my older daughter. If you don't have one you can be referred through your doctor. And as BernieBubble says join all these groups as it's such a relief to hear others with similar stories. Good luck

[Caz2caz in reply to SLHC110]

Wow have a meeting at school with little mans Teacher and SENCO before he starts school on Monday that was quick work but will wait and see what happens . I have also got some one from Norfolk Parent Partner ship to go with me so that might help

[Caz2caz]

Our paediatrician has already sent a letter to the school so I am hoping this is going to help

[FamilySupport]

The FASD Trust has a booklet for teachers, drop a note to Sue at [e-mail]. You might find your school is already aware as a number of Cambridgeshire and Peterborough schools are due to the amount of training the Trust has already carried out.

Your nearest support group is Peterborough; several families there who live out your way. The Peterborough group next meets on 28 September, 1-4, in Little Miracles Centre.

Get a copy of Julia Brown & Mary Mather's book, whole chapter in there on how to deal with the issues you are raising, Details here, fasdtrust.co.uk/news_item.p...

Speak to your Paediatrician and see if you can get a referral to Occupational Therapy and once seen, ask them to go and assess him in school as well and provide input to yourself and school. Some of the behaviour will be sensory related.

re hitting and throwing, no,point simply saying no, tell him why he is supposed to do with the objects, eg we do not throw toy cars, we push them on the floor.

[biffyfan]

Hi definitely attend support group and read and research. Get the school to look into the training for teachers the FASD Trust does. My sons teacher and SENCO and myself are attending one soon. My sons school have been great so far. Regarding your little one hitting and pushing others, my son does that too. He also goes up to total strangers (usually other children) and goes close to their face and touch their face. He seems to have episodes of it and going through one currently. He does it at school to peers and teachers when he gets sensory overload. We just firmly day 'no do not hit/push' and then tell him the appropriate action (depending on who it is....family member/friend/teacher).