Hi everyone. This is my first post here. My D... - FASD Support

FASD Support

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Hi everyone. This is my first post here. My DD, age 7, has recently been diagnosed with FASD.

hooker profile image
10 Replies

She already has a diagnosis of attachment disorder and we have secured a commitment from our LA to fund therapy. In light of the new diagnosis I am not sure attachment therapy is the most appropriate intervention

Does anyone have any advice on what we should be asking for?

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hooker profile image
hooker
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10 Replies
Joygirl profile image
Joygirl

Attachment therapy may cause more problems. You would be better getting speech and language therapy and social skills group as it is often inappropriate social interaction and struggles to express emotion.

Joygirl profile image
Joygirl

One other thing these kids emotionally developmentally are usually approx half their age.

hooker profile image
hooker

Thank you joygirl

Her speech is good but socially she is way behind her peers. She can have very violent outbursts

We had very bad outcomes from previous therapy and I am wary now of child psychology

Is there any therapy known to help or parenting courses?

I feel that having the LA willing to fund something is a once in a lifetime chance and would like to use the funding if there is anything that is appropriate

Joygirl profile image
Joygirl in reply to hooker

The FASD Trust runs parenting workshops. Speech and language are the ones who give help with social skills. get her receptive language tested; that is her ability to understand what is said to her. Therapy tends not to work with this group

Topper profile image
Topper

I can thoroughly recommend the FASD trust parenting workshops. Also support groups held at numerous locations around the country. In my experience speech is usually good but is often phrases they have heard and repeat often in context but don't understand. Speech and language therapy is a must.

BernieBubble profile image
BernieBubble

I agree with the others, good speech often masks poor understanding. I would contact Dr Raja Mukhergie ( hope this is correct spelling ) he is an expert on FASD and could be a great source of advice .... You are right this is a great opportunity and needs to be used well... Good luck x

petuniaave profile image
petuniaave

my AD aged 5 has FAE and also attachment disorder for which she is shortly to begin psychotherapy so i am a bit disturbed to read above comments. she has severe social and emotional difficulties and is aggressive and violent to everyone she comes into contact with. we are having the most horrendous time imaginable and was pinning my hopes on treatment

hooker profile image
hooker

I had a telephone consultation with Dr Raj Mucherjee

Anyone can do this- just look on line for the surrey clinic

He said the problem is that CAMHS and other therapists typically start therapy with out a full comprehensive assessment. This is what happened with my DD with very extreme consequences

I did feel that the therapy was a 'one size fits all'

He said that no therapy was wrong just that a full assessment is needed and a very good understanding of FASD

I think they need too a good understanding of attachment issues

Petuniaave- how did you find your therapist?

petuniaave profile image
petuniaave in reply to hooker

the psychotherapist just seems very focussed on an attachment disorder, the FAE hasnt really come into it. i am so confused. due to start the therapy next week. i am at breaking point with her behaviour so am hoping we see some improvement.

hooker profile image
hooker

My DD is 7. She has always been very violent and has been going to CAMHS since she was 3

I dont think they are specialised enough for her

We have reached breaking point and now have a support package in place

If you want to discuss this further, including how we got to this point Petuniaave PM me and I will happily discuss

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