DLA for chronic constipation?

[Njay1991]

DLA

Hi I have a 7 year old with chronic constipation/faecal impaction due to withholding poo. He soils and wets himself up to 9 times a day. Also has daytime and night time wetting due to the constipation. Was wondering if anyone ya successfully claimed DLA for their child. I have been told by the continence nurse my son is entitled to it but we were refused. My son clearly has care needs above and beyond a child of his age.

[Hidden]

Yes we get middle element

[Njay1991 in reply to Hidden]

I have applied twice and on both occasions have been rejected because my child does not have a learning disability nor does he have a care plan at school. His school had supported my claims but still rejected? I’m really disappointed

[Hidden in reply to Njay1991]

Our son doesnt have a learning disability or care plan

[Njay1991 in reply to Hidden]

Hmm I don’t understand why my sons claim got rejected. I need some help for mandatory reconsideration if you or anyone can please help me. I’m going out of my mind with high bills due to Washing, drying new clothes etc..

[Hidden in reply to Njay1991]

We went to money matters and they fill in the form. If u dont have that .... maybe citizens advice

[Njay1991 in reply to Hidden]

Thanks Stephanie 😊

[Hidden in reply to Njay1991]

No probs hope u have better luck

[Njay1991 in reply to Hidden]

Thank you

[Jeyam12 in reply to Njay1991]

Hi I have just been to tribunal for my 14 year old daughter who suffers with chronic constipation, faeal/urine incontinence, chronic back pain caused by the years of Constipation, she has zero pelvic floor muscles has been under physiotherapy teams for over a year with no improvement. She suffers with severe anxiety, panic attacks and low mood and she didn’t get any element of care or mobility. She struggles to even carry her school bag, she can’t stand or walk huge distances due to pain. Her attendance is very low and education and progression is affected daily. She needs attention through the night with her pain and anxiety but she got a big fat NO from tribunal because she doesn’t have any learning needs! I don’t get why this is of any significant my daughter has physical and emotional needs but hey they dismissed it all

[Lollypop1 in reply to Hidden]

Iya hun any tips on this am going to a tribuneral next week my nerves are gone x

[Hidden in reply to Lollypop1]

Hi no we just went to money matters and they filled in everything on form about our son. And it was awarded and then renewed also. Good luck hope it goes well ! X

[Lollypop1 in reply to Lollypop1]

How did you get on at Ur tribuneral plz X

[Ciaraivy]

To be honest my daughter has stopped holding now thank god she just needed that one clear out to realise every stool won't be so hard to push , the odd time she might get scared and try hold it but every day she's going without any meds , it's so stressful and I just got to the stage where I gave the meds and just ignored the toilet thing until she was ready the more pressure I put on her made her hold more

[Njay1991 in reply to Ciaraivy]

I have tried everything with him. Last week I had to take him doctors because his gut was so big and he was in a lot of discomfort. Basically it was because it was full of poo. He refuses the Movicol because it gives him stomach cramps. Day and night he has to wear containment products.

[Ciaraivy in reply to Njay1991]

Would u take him to local hosp ? She had to get X-ray done her bowels were swollen and one badly blocked up , my gp told me she was ok the same day and 4 days before the surgeon in hosp also had to have a look at her before we left and explained to stay on movical I didn't as she hadn't had any other problems going just the diet they said stay away from everything White like bread pasta patatoes etc plenty of water

[5568]

Yes I got it when my child was younger send all your information in he needs more looking after than any other child

[Njay1991 in reply to 5568]

I have applied twice. Sent in everything I had. But for some reason was turned down twice. On both occasions have told me me not awarded because he doesn’t have a learning disability. Apparently it’s normal a 7 year old wets himself day and night according to the DLA decision maker.

[Lollypop1 in reply to Njay1991]

I was told the same when I applied for DLA for my 5 year old they said it was assessed by a physio therapist and they think he needs no more care than a normal 5 year old am under going a tribuneral at the minute got agurned in Nov as they wanted evidence from school and 2 years gp reports I got my date today for march am dreading it tbh x

[Lollypop1]

Hi just wondering how you got in did u apply AV been told my son needs no more care than a avarage 5year old which is wrong x

[Jayjay-1]

If you google cerebra dla guide they have a excellent free online guide to filling in the form correctly. X

[Lollypop1 in reply to Jayjay-1]

Thank you X.

[Amanda-87]

My 4 year old daughter has been denied this aswell for chronic constipation and allergies (multiple food allergies) I have applied 4 times on advice from her GI nurse and peads consultant x