Spent 5 weeks in a specialist Epileps... - Epilepsy Research...

Epilepsy Research Institute

2,336 members670 posts

Spent 5 weeks in a specialist Epilepsy Hospital and wrote a poem at one of my lowest points.

Nicole1 profile image
16 Replies

Trapped in my Body.

When you know what's capable,

But your body won't give.

When you need brain activity,

So you are able to 'live'.

The brain is so complex,

And so far from peace.

So you lie awake until midnight,

Straightening out every crease.

Your minds screaming out,

Please let me fit!!

But your body is thinking,

'I'll make her wait for a bit'.

So I sit in the hospital,

Praying I seize.

My family and friends all keep me at ease.

But all that I want,

Is truely to be,

100% completely fit free.

Nicole ❤❤💪💪

Written by
Nicole1 profile image
Nicole1
To view profiles and participate in discussions please or .
16 Replies
Lj08 profile image
Lj08

What a fantastic poem it’s exactly how I feel you have read a lot of our minds I’m sure. My family are so happy when I don’t fit but I get so tired physically waiting for them to come.

Again it’s fantastic you hit the nail on the head I love it 😍

Nicole1 profile image
Nicole1 in reply to Lj08

Thankyou so much ❤❤xxxx

SJClaverley profile image
SJClaverley

An amazing poem, this will touch many people’s hearts or should I say brains 😄👍 you have great talent. X SJ

Nicole1 profile image
Nicole1 in reply to SJClaverley

😂 Thankyou so much ❤❤xxx

Cavallo profile image
Cavallo in reply to Nicole1

You certainly have a passion and feel for words.

Nicole1 profile image
Nicole1 in reply to Cavallo

Thankyou very much ❤ xx

rustypen31 profile image
rustypen31

Very well done. I too suffer from epilepsy and also write poetry.

rustypen31 profile image
rustypen31

Nicole, you have considerable talent. Have you ever thought of doing an Open University course? I think you could do a course in Creative Writing. I managed two of them

Nicole1 profile image
Nicole1 in reply to rustypen31

No I have never heard of that course, I often only write when the feeling strikes 😂 thankyou xxx

SJClaverley profile image
SJClaverley in reply to Nicole1

You should think about doing an Open University course with your talent 👍😄 I also have epilepsy, hence being on this site, but do not have any talents an OK rounder! X SJ

Nicole1 profile image
Nicole1 in reply to SJClaverley

Thankyou 🙈❤❤ xxx

matthew2909 profile image
matthew2909

Hi Nicole im Matthew i have epilepsy too and thats how exactly i feel and my family are the same and i have absences tonic clonic and drops

Nicole1 profile image
Nicole1 in reply to matthew2909

I don't have any drop seizures, I have right temporal lobe, focal and partial seizures (my diagnoses from the hospital) but we are all on the same brain wave with this horrible condition ❤ xxx

matthew2909 profile image
matthew2909 in reply to Nicole1

Awww yh

Lisali216 profile image
Lisali216

Nicole love this.

Nicole1 profile image
Nicole1 in reply to Lisali216

Thank you so much