I need help!!...

[imthebest1]

please help me i am 34 years old borm with epylepsy i know that seizures are concerning but i am very well in health and i can manage my own self i think my neurologist is involving too much in my life i have no privacy at all my familly has gone out of their way because they were controling me .i also lost my kids because one nurse said i wasnt taking them in which i was their in a box they come everyday!!!NO FREEDOM.I feel haunted depressed because of it and crying my eyes out please any advice or help will do.p s i love my kids very much.

[TMarisk]

Goodness, apologises I have to go to library to use internet and have not been well so sorry you haven't had a reply yet. Sounds like you are living a nightmare within a nightmare. I am not sure but are you a single parent, and therefore don't have close support? I haven't experienced what you are going through, but I know I have great regrets when I was looking after my mother I was definitiely over protective and this restricted her life, I was terrified she'd have a fall and I was not well myself. I suppose what I am trying to say that if your family have been supporting you with this condition all your life it may be hard for them to see things from your point of view. I fell scared currently of losing control of my own life and this seems something that's happening to you.

What to suggest-well it may be hard to thing straight with all this happening, but you need to have some kind of sense of control back and one way to try is have a plan, to think of some strategies to slowly help yourself get stronger, mentally and physically. Maybe you have a good friend, or a church member or someone at an epilepsy group who could help.

I suppose its also important to try and see things from your family's point of view, and try and get stronger and enable them to see that you are. It won't happen quickly and you need loads of support. The various helplines can help in different ways- there also I am not sure the exact name but its the Spine and head, or head and spine organisation, that has nurses staffing it who will ring back. You need support from various organisations. Perhaps that can be part of your plan.I know its extremely hard to get motivated when you are exhausted and at the bottom of a pit-but see if you can do just tiny little things, like you have done now-that's incredible really that you managed to do this post-use that anger-the energy to reach out and think what things can help, even if it's little treats for yourself.

Hope this isn't patronising and I'm thinking of the top of my head, but just trying to think of things that can help. Also see if you can just write and write everything that's worrying you down, you can tear it up later-just try get it out of your head.

I just wish you luck and post how you are getting on, but just be aware I cannot reply readily,

[imthebest1 in reply to TMarisk]

thank you but no im pretty dependant on my own idk why im just the kind of person that loves to be on her own.i am not afraid of my seizures and all i can say to myfamily is fuck you....they never been there before and not wanting them now.i dont need an instiution because i have my own place i may be a person with seizures but miss im pretty capable of doing all kind of things.without depending on no onethats including i know how to pay my rent my bills take care of my kids.evrything else.on my own.im basicly very smart.dont know why but when i feel fed up thats when i start having problems with my emotions and shutting down posiibly get seizures and like i mention i love my kids and im not gonna let my kids go to the state.im VERY ALERT of my seizures i know when im gonna get them.and when im out i do alert others when im having i do not fear i do go to church this is why i say dont judge others as of the neurologist she can fuck off too😂😂😂