Has anyone else felt anxiety or had flashbacks after tonic clonic/generalised seizures???

Hi,

The last time I had a seizure I had three generalised tonic-clonic seizures in one morning, two at home in the bathroom and one at the hospital as they were trying to take blood/hook me up to some intravenous drugs.

The weird thing was that when I was coming round/waking up I had, for the first time, a feeling like I couldn't breathe and in my confused state I thought I was dead.

It wasn't the first time I have had generalised seizures, though I also have auras/focal seizures where I don't lose consciousness, it's taken me a little longer to get back to "normal" this time.

In the months afterwards I started to get flashbacks to the period where I was waking up from the seizures just as I was falling asleep which would wake me up again. It made me really anxious about going to sleep, and in the end I had to ask for some medication from my GP to help me sleep (lack of sleep is one of my triggers).

It has taken a while, but 6 months later I don't have the flashbacks any more (and I can sleep without pills), I am still a bit more anxious about day-to-day going out etc. than I was before but my confidence is getting back to normal.

Has anyone else had a similar experience of flash backs or anxiety?

1 Reply

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  • Hi,

    Not quite the same, but I suffer from epileptic seizures and non-epileptic seizures. The neurologists think that my non-epileptic seizures are linked to my anxiety, so it may be worth talking to your consultant about this :)?

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