Hey everyone newbie here ๐Ÿ˜Š

Well I got diagnosed with absence seizures last year, and was told I could of had it for years and went unnoticed (very very common with my type of seizures). The hard part is so called friends have walked away claiming they can't cope with my seizures makes feel so isolated horrible that no one even understands it. I'm the only one in my entire family who is epileptic too.

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  • Hi Carrie, I'm sure you will learn to cope with the seizures. You are better off without the friends you describe. Build up new contacts on FB maybe. Your family need to educate themselves about your illness and how to support you. Remember you are probably in shock yourself about the diagnosis. Things will get better as you come to terms with it. Good luck ๐Ÿ€๐Ÿ•Š

  • The stigma is all too common I'm afraid. But you really are better off without friends that don't want to stick around. Some will probably come back. The ones that don't are shallow minded and unlikely to be rewarding to be around anyway. There is nothing wrong with you it really is their problem. I understand the family thing. I was diagnosed when I was 6 or 7 and was the only one in my family too (cause still unknown). Your family will come to terms with your diagnosis but it will take a bit of time. It is natural to feel isolated but please start sharing your feelings about it with your family when you are ready. This will help them come to terms with it as well. Wishing you the best

  • Hi thanks for the replies wish you both luck and wellness too

    I should of added that my family are great with it. Dad has looked into myepilepsy, bought books, goes the appointments with me so that's good. And my mum understands as best as she can she has her own health issues. I don't really know much about the Fb side of things I've looked for groups and things but they haven't posted in a longtime.

    Slothlike; I found out this week that the cause of mine is unknown too ๐Ÿ˜Š

  • Great that your family is so supportive. Mine were too. This made such a difference to me.

    Welcome to the cause unknown club and I hope you can start managing your seizures soon. Mine were a mixture of types including absence but I'm now controlled and have been seizure free for many years now. Good luck and I hope you will get a positive outcome soon.

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