Hi, I'm writing from New Zealand. My ten year old daughter has been diagnosed with nocturnal epilepsy since five years old. She is currently having 10-25 seizures a night. We have tried many medications but the seizures have never stopped for long. Epilum, Keppra, Tegretol, Phenytoin (terrible side effects) , Clobasam, Topiramate (terrible side effects) , and now we are slowly building up in dose with Lamotrogine. Her EEGs showed a very subtle abnormality and her MRIs are normal, but are showing parenchymal volume decrease from all the seizures. She is a spunky happy little girl but this is all affecting her schooling and we are all exhausted from all the restless nights. I would love to hear from anyone else going through similar seizures. Have you tried anything other than medications? We have even tried rubbing essential oils (Frankenscence) on her feet and forehead. Love to hear from you
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