Hi, in September 1999 I suffered a gran mal seizure, had my heart stopped after 2.5 hour fit. It took around 4 minutes to start me up again, and when I was brought back round 2 days later. I was placed on Tegretol Retard/carbamazepine? these tablets are anti depressant. The first 12 months I didn't know what had happened, and the taking of the tablets seemed pointless. But after a year things started to happen (i.e) heavy mood swings, extreme panic stricken anxious thought, toward everything I was hearing & seeing. Incredible depression, the ability to socialise became a conscious burden. To much thought and fear, about the situation I would be creating with someone else.
My career as a print finish engineer was destroyed, saying I wasn't allowed to be in the same room as guillotines working. The government then wouldn't supply me with incapacity benefits, and I got a very negative response from a lot of employers, when I mentioned the word Epilepsy.
Since then my family & friends walked away from me, and left me to sort it out pretty much on my own. In 99 I was a smoker, drinker, drug taker and tea drinker. Neurology in the entire time period I have had my epilepsy, have never mentioned to me about either of these drugs, and an effect it would have on me or the tablets? but the side effects that were created, and I had to cope with 24/7 was consistent epileptic thoughts, depression, anxiety and extreme panic stricken mood swings. From 1999 to 2008 I was a panic stricken mess, suffering constant epileptic seizures. A regular coming round on underground platforms, I fell 20ft off a walk way out side my flat that was above shops in Rayners Lane. My entire left side heavily bruised, the last 2 discs in my spine lost all there fluid. But I didn't break anything because I was in a state of absence when I jumped or fell, and came round thinking I was in bed, then opening my eyes looking up at my flat front door open lying on the high st floor.
It has taken me 15 years of extreme side effects that put me to attempted suicide twice, created a 24/7 voice in my thoughts creating epilepsy to monotonous sound, emotional stress.
In 2008 I ended up in Leeds, after a cousin I hadn't heard from for a long time got in contact with me.
My mood swings lost me a place at his, no one else wanted to know and I ended up at a mental health unit at St James hospital. My 1200mg per day of tegretol received an extra daily prescription of 1.5mg of Clonazepam, an insomniac sleeping tablet to supress the side effects of the tegretol. After 6 months the fatigue from the sleeping tablets was intensifying the tegretol, and creating heavy sleep loss. Even higher nerve activity, that was over whelming my muscles ability to cope with it at that time of the day.
At the beginning of 2010 I was on my knees crying my eyes out, praying to my grandma Rosa who had passed on 2006, asking her to help me understand why I was being punished so bad. I walked down to a bridge in Leeds that crossed over a dual carriageway , to find my answers if not put myself off the bridge. As I walked down to it I bumped into 2 lads from the Church Of Jesus Christ Of Latter Day Saints. The book of Mormon. Since then I have been going to church every Sunday, and I have been Baptised and Endowed.
Over the last 5 years I have I have come to fully understand what was happening, when and why to me in regards to the Tegretol. It was stimulating my nervous system creating epilepsy through the anti depressant in the drug, but locking my muscles solid with the anti convulsive side of the tablets, which was wiping out my concentration span, and short term memory. Making it even harder to cope with the deja vu confusion from the epilepsy.
I am now a qualified personal trainer, and have moved back down south from a council flat exchange. In the early part of 2014 I started work at LA Fitness in Leeds, but 6 weeks into the work the tegretol took over from the fatigue of the work, and the serious struggle to sleep from the side effects of the tablets.
I lost my job there but I demanded a change in my tablets to relaxant? I was put on pregabalin 300mg per day. At this time in all the consultations I have had with neurology, I have never been given a straight forward answer to anything about epilepsy? nothing but defensive reactions from neurology?
I should be still on 1200mg per day of tegretol, 1.5mg of clonazepam and 300mg of pregabalin. I am now just on 300mg per day of pregabalin. The gym is the answer to Epilepsy, it is very cardio respiratory condition that is created in a lot of people between 20-40 years of age because as you get older your lungs shrink, and your heart weakens which intensifies the nerve activity, weakens the oxygen level to the brain and the muscles weaken struggling to cope with bursts of nerve energy. Alcohol, nicotine and caffeine are stimulants that will raise your nerve activity in the wrong areas of the brain causing epileptic seizures.
And with my senses now being so acute from the, 15 years of tegretol 10 folding my nervous system.
I can now understand what our Heavenly Father is saying to me through my sensory senses. And show my faith through my emotional senses. Which brings me regular blessing in my life from the Holy Spirit, who entered my life by way baptism.