Hi all, I hope you are well!
I'm a 22 year old woman and I've been suffering from some odd symptoms for a while, but they've become very frequent since June.
I began getting dizzy, and experiencing weird sensations. I would have episodes of going weak, and losing sense of my surroundings. Things would appear tilted and I'd lose sense of distance. Cars would feel like they were about to hit me and the ground moved. Then it would fade away.
I developed eye floaters. I then began getting aura, seeing lights, halos, outlines of objects and pinpricks of light. These lights are now constant, rarely do I have a headache.
I've always been prone to nausea, so this continued. I'd get bad episodes of shaking and vomiting, accompanying the aura.
I have episodes where I just stare off into space, almost as if my surroundings are being muted out. I completely cut off from reality then abruptly return, to the confusion of people with me. I come back and sometimes say nonsense things. The other day at dinner with friends this happened, I was pulled back into reality when I loudly declared "Netflix!" much to the confusion of everyone around me...
I've began developing pins and needles (painless) and numbness, starting in my fingers and travelling up my arms and into my legs and feet. I've had tingling along my skull and the left side of my face has developed a large twitch.
My body temp drops very low (33.1 Celsius) and my vision blurs. I get very confused and feel drunk and afterwards I feel spaced out and drained.
Last week I awoke suddenly and dragged myself out of bed. My limbs felt incredibly heavy and I fainted twice, with ears ringing incredibly loud. I found myself vomiting in the bathroom and unable to communicate or speak to my boyfriend. It was as if my body couldn't respond to my brain, I felt trapped in. Then utterly exhausted I passed out. I had aura and lights the following day, for hours.
I get de ja vu and find myself staring off into space, stuck in a memory, whispering to myself. I occasionally get a strong sense of smell, or smell things that aren't there.
I have aura most days, but I have never had a big seizure that is often associated with epilepsy, but I am now wondering if this is a possibility for me?
I am seeing a neurologist in May and have been told I have migraine aura, but I am unable to find a doctor that can understand my constant aura and these weird physical episodes.
Any advice greatly, appreciated! Thank you very much