Hi, at the moment the type of "fit" I am having is either part of me jerks but I am more and more having whole body jerks where my whole body jerks at the same time. Since seeing a neuro they have got worse. Yesterday I had the worse one to date. After it happened I got a overwhelming feeling of fear and I was in tears. I tried to write a note but I couldn't write at all nor could I text and I wasn't making any sense when I was talking. I then spent the rest of the afternoon and all of last night asleep. I got hold of my daughter who was so worried she got the doctor round.
The doctor who seems to think I did have a fit and has told my family I can't be left alone anymore is this true. I would hate to have to be with someone all the time and my daughters (21 & 18 yrs) have there own life
Is it right that everyone with epilepsy has to have someone with them and if this is so do people do this . Does everyone have big families who can help out or is there help out there.
I am already unwell with fibromyalgia along with other things. I get ESA but that's it so I don't have the funds to pay someone.
I hope someone can give me some advice