i have an extremely rude specialist that doesn't like to answer my questions, and it seems like he just wants to get me out of his office each time i go there, for the past 8 months i have been having seizures daily ( 5 - 20 ) maybe even more, i haven't been told what type of epilepsy i have, and to be honest i haven't been told anything about epilepsy.
i was just given tablets and told to come back in 6 months time.
firstly he put me on sodium valproate 200mg tablets, which did nothing for a good few months.
then i went back.. and he basically shrugged his shoulders and put me on levetricetam accord tablets, which i have been taking for around 2 months now, and nothing has changed.
it has been 9 months now, having seizures everyday, iv had to quit my job, and i have no social life now.
literally everything triggers my seizures, emotions ( laughing, happiness, sadness, arguing, excitement ect. ) also adrenaline also triggers them, even doing usual daily tasks like making a cup of tea can cause them.
flashing lights do not effect me in anyway.
also i do not sleep, i cant sleep, i don't get tired, and my specialist told me '' sleep does not effect epilepsy '' ?!?!
yet when i dont sleep, the next day my seizures, last longer and i have twice as many..
when i have my seizures, its like all my strength just disaperes, yet im fully conscious of everything around me but cant move or speak, first my face will turn, then my knees give way, usually i can keep myself standing and make it to a chair, but cant move my arms at all.
lately my seizures are slowly getting worse, i have asked my GP to send me for a second opinion, but the waiting list is soo long its unreal! it makes it worse that its been 9 months and i still no nothing about whats wrong with me, and its just frustrating which leads to a seizure..
i feel lost and i don't know what to do about it.
i would appreciate if anyone could, leave me a message / reply with any information or even what you think it could be that i have, or if you have the same as me or feel the same as me.
thank you, Nathan.