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Epilepsy Research Institute

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Diagnostics tests clear but still having seizures!

Hello everyone, I’ll try and keep it brief as possible but currently feeling at...
WillemRush profile image

Side effects of Lamotrigine - too high a dose?

I was seizure-free for 4.5 years until I got pregnant, and my medication was dou...
Jadorecats profile image

I am new

I was diagnosed with epilepsy at 12 and am now 59. I have two daughters with f...
Trelissa profile image
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someone has to know!

my wife ( 69 yes old) is having episodes for four years, we have seen numerous ...
Needhell profile image

Epilepsy,Anxiousness and Fatigue

Hi all , I’m Antonio and I’ve never really chatted with other people who have E...

burnt hand

hi Rachel, I was unfortunate enough to suffer third degree burns whilst having...
6002athome profile image

Legal status of lamictal in uk

İ will be moving to uk soon and I am using lamictal for years. I do not know if ...
Ozaydin profile image

Vagus Nerve Stimulation VNS

My partner (45yo) has epilepsy which is not well controlled with medication. He ...
Tuesando profile image

Tonic clonic seizure alarms (Good/Bad??)

Hi, hope everybody is keeping well. I have a young daughter who has epilepsy I w...
Xandria11 profile image

UK Epilepsy PSPS survey - NOW OPEN!

The UK Epilepsy Priority Setting Partnership is a landmark national survey gathe...
EpilepsyInst profile image
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Epilepsy Dissertation Study

Not sure if this is allowed if not please delete. I am a university student stud...

Epilepsy Surgery Research Roundtable webinar

Join us at midday on Tuesday 31st August for a Research Roundtable webinar on ep...
EpilepsyInst profile image
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Padding for bed wetting

Someone please correct me if I’m wrong.... I’m sure that if you’re epileptic you...
Huggybear123 profile image

#ALifeInterrupted

Join our #ALifeInterrupted campaign to: • Highlight the disruptive, interruptiv...
EpilepsyInst profile image
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Totally Cheesed Off

Once again my husband & I saw the Consultant in the Stroke Clinic & once more he...

Sodium valproate and sexuality

Does sodium valproate affect your sexual life. Does it stop you ejaculating?

Switching from sodium valproate to Lamotrigine

Is it a good idea to switch from sodium valproate to Lamotrigine?
Kofi1 profile image

Found Out Something Interesting

Had a letter from the doctor regarding another health matter & originally he sai...
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Zonisamide

Anyone taking Zonisamide experience bad reactions of weakness and shacking?
sloan44 profile image

Temporal libe

Hi Has anyone had surgery for mesial sclerosis on the temporal lobe?
Tenerife1234 profile image

Really Confused

Last Sat my speech went really slow & I couldn't swallow easily plus use my righ...
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National Epilepsy Week lineup

The ERUK National Epilepsy Week line-up is as follows… Grant Award profiles each...
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Really Scary Time

On Tues I had a really bad seizure thanks to a virus I have round a friends whic...

Mood changed due to medication

Hello, A few years ago I had extremely severe depression. Then one day I had a t...
Zazateki profile image

Slightly Confused

Had my phone appointment with the Neurology dept yesterday & the doctor said tha...
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Double vision

I have recently been suffering from double vision shortly after taking my medica...

Pre seizure feeling.

Hello, First of all I want to apologise for barging in on your group as I dont ...
Ynwa92 profile image

Lamotigine

Hi i just wondered does anyone have experience of taking Lamotrigine. My son ha...
Lovingdean profile image

Scary day yesterday

Hi, Its very rare I post on here but after yesterday I thought I would as I feel...
LCFC0812 profile image

Possible Hope

Saw the Neurologist whilst I was in hospital for a small stroke & he's upped my ...
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