Epilepsy, frustrations, poem.
Nicole16 days ago
I have posted a couple of my poems on here, relating to my epilepsy and a few people related and understood what I had written, which made m...
9 Replies2 Likes
Nicole110 days ago
Can anyone relate to this. I have had seizures all last night and today, I am currently getting this 'hanging' feeling. As though I am just ...
How do you explain to people what epilepsy is?
EllarBee20 days ago
I have only recently been diagnosed with epilepsy in Nov 2017, and I'm on medication to help (it's not). As a 26 yr old I'm find...
I’m sick of being a test subject to Epilepsy and neuropathy.
aharrod6523 days ago
I’m tired of taking 8 pills in the morning and night time. I’m sick of Drs and pharmacy’s telling me my Vimpat (AED) that’s finally workin...
Problems getting Vimpat filled in different states, now controlled?
aharrod6525 days ago
Who else is having problems getting their AED Vimpat? I’m going to be day 1 without tomorrow because? Insurance doesn’t cover me out of town...
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Looking for some advice.
LukasCAXa month ago
I was recently diagnosed with epilepsy (at 34) but have a suffered with anxiety, depression and psychosis most of my life.
My question is, I...
Stonesandshells3 months ago
Looking for advice on dosage for my daughter and can't find any professional help at all. Any advice?
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Swollen joints,l have been getting a lot of swollen joints,fingers wrist,and arm really painful been given different diagnosis but no treatm...
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EpilepsyMum3 months ago
On Wednesday, I attended a consultation with my daughter's neurologist and epilepsy specialist nurse. We were to have a discussion about my ...
Found Something Out
HeroOfChaos3 months ago
I may have had the absent seizures type since I was 12 yrs old & this caused me to get knocked over, but NOTHING was done about it until las...
simple/complex focal/partial seizures - epilepsy. Every scan known to man with no positive proof.
sjrw3 months ago
I'm new here.
What kind of epilepsy is this? If it even is epilepsy. HELP.
I know it's coming. My body slows down. My speech starts to slow un...
Spent 5 weeks in a specialist Epilepsy Hospital and wrote a poem at one of my lowest points.
Nicole14 months ago
Trapped in my Body.
When you know what's capable,
But your body won't give.
When you need brain activity,
So you are able to 'live'.
The brain is...
16 Replies4 Likes
Keppra slow release, possible?
Whyme894 months ago
I only started taking Keppra on 22nd September 2018, but I were just wondering if anyone knows if you can get 'Slow Release' keppra, like yo...
Long term effect of anticonvulsants with cognitive functioning
Marky784 months ago
Is there any evidence that the long term use of anti epileptic meds has an effect on ones cognitive ability? E.g. do they make a persons men...
Callummum5 months ago
After Callum having a few seizures his medication has been changed to Keppra, 750 mg twice a day. He has been having migraines is this norma...
Trapped wind ileostomy
Jan775 months ago
My mum is 8 weeks post ileostomy , she is still really tired some days as she doesn’t sleep right through the night , but the issue is she ...
Someone to talk to and there thoughts. Epilepsy
Kendra995 months ago
So I feel down tonight but sometimes even though Im really close with my parents it’s hard to talk to them because yeh they will try and hel...
13 Replies1 Like
Fosters12346 months ago
Hi i had my last sezure 2 years ago hopefully my last i am on keppra which is ok it took along time to feel good.The only thing i find takin...
Molly-616 months ago
Hi just joined I was only diagnosed on June first I feel unbalanced all the time when I'm out walking I look drunk so I tend to stay indoors...
medical canibise news please
Rourke123456 months ago
can someone tell me yet if medical cannabis is going to be legal for us to take soon?
Mordivor6 months ago
My son who is now 21yrs old has had OCD since he was 14years old. He has had know help with this form anyone, our health service CAMHS have ...
SJClaverley6 months ago
Hi, I’ve just joined this site. I’m currently on zonisamide, clobazam & Keppra which I have fully been on for 2 1/2 months. Hadn’t appreciat...
My fiance's seizures
That_one_girl7 months ago
My fiance just had a series of seizures he can normally control them but tonight was different and scared me to death. When he came too he w...
Very sore ribs and shoulder after seizures
Vinney157 months ago
Hello, I am new on here so I gonna answer on a few questions, as I need help..
I experienced 2 seizures 1 night after another and I was broug...
advice /Second opinions sought .
wul0047 months ago
helo everyone! would really like some comments please on impending Radical changes to my usual medication,(long term!), regime;- am currentl...
Callummum7 months ago
So after not having any seizures since November last week Callum had 2 major ones. First one while he was in the shower resulting in ambulan...
Wrong medication dose
Scotsguy417 months ago
After visiting my neurologist today whom is a new one nearer to me I have just found out that it was a good chance having wrong dose of medi...
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Possible nocturnal seizures?
DaisyBelle857 months ago
Hi, I've recently started experiencing what I can only describe as seizures in my sleep.
I'm a 33 year old mother of two, and It tends to hap...
Lj087 months ago
I’ve started having half a small teaspoon of marmite everyday in the morning along with my medication and some sort of breakfast, the marmai...
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