I have temporal lobe epilepsy so I know how it can play games with your emotions and mind, my auras are pure feelings of fear and once the seizure is over and everything I’m always surprised at how real it felt and it’s almost a little funny that I’m capable of those kinds of feelings. Anyways what occurred to me when I was reading your post is PNES. I think they get a bad stigma but they are as real as epileptic seizures and not something someone can fake. The only reason why I’m thinking this is because I believe auras should be seen on an eeg. So if it didn’t show up than maybe it could be you have PNES or epilepsy and PNES ( a small amount of people have both) I’ve heard it described as a software problem ( nervous system) versus a hardware problem ( which would be measured on an eeg). Also it sounds like you’re being proactive with your health! I know it’s hard, I get those feelings sometimes of being overwhelmed. Just remember there are so many who are dealing with the same thing and you’re not alone.

I’ve got Temporal lobe Epilepsy and I’ve had panic attacks, so I can fully appreciate how frightening it is for you. It narrows your life with the fear of taking another panic attack, I know. I too was put infront of my Neurologist by my GP.

To my astonishment my Neurologist said they were nothing related to my Epilepsy, but recommended I got a blood test for my Thyroid one now and another in two months time to get an average means, plus the Thyroid blood test had to include an antibody blood test each time with it. Plus a full blood count each time.

I’d go to your GP and insist to get this tested. Panic attacks and Thyroid problems are very common. Have a read up about it.

Oh and once I got tested and was found to have low Thyroid I got the medication and within a week- no more panic attacks! Bingo!

I truly hope that’s maybe a solution or something like that, to solve these panic attacks for you. You have my complete sympathy. Just be more be the patient that persists and says come on, this isn’t right- test me!

From also being a temporal lobe epileptic there are many different emotional states which take place. Anxiety along with panic attacks I have been through so much. My neurologist told me it was do to my seizures. In addition I was told an EEG can only reach a certain depth in the brain to where my seizure were not accessible through an EEG. It was certain though, it was seizures on my part.

Out of all I understand where you are coming from.

Auras don’t always show up on a scalp recorded EEG. If you had electrodes in the part of the brain where the aura starts then you would record it. They may have have said they weren’t seizures based on the description of the hat you were feeling

Derealization is actually a dissociative symptom but some epilepsy meds cause it, if you are on keppra these can be signs of D.I.D. dissociative identity disorder or another dissociative illness mention it to your Dr also panic attacks go along with Dissociative disorders. keppra and pro levatiracetam can over a long period of time cause these. Have you ever felt like your personality or mind went into the back of your head and nothing or someone else was moving your body? If so that would be co-conscious switching out. This has happened to me I was on keppra then switched to levatiracetam and over time eventually it happened I never even knew I was dissociating for 20 years. But even the first time it happened I had no clue until I heard a description of how it felt.

Hope this helps best of luck.

I had an EEG years ago to see if there was a problem, but my epilepsy is genetic, it is on my dads side of the family, strangely his generation was clear of it, but it came out in me and my cousin and 1 of her kids, in my family we inherit a predisposition, you can take it on or be none the wiser