I almost feel like I have been betrayed by not, one, but at least two neurologists that I have seen over the past few years. They convinced me to go on two medications that I wasn't sure about, but I followed their instructions and took the medications to the best of my abilities. I have taken the medicine for years now, but what I have noticed is that I have received very few blood tests. The occasional test regarding how much of the different medications are in my blood stream, but nothing more thorough than that. Well, recently I started seeing a new Internal Medicine Specialist as my PCP. She requested a thorough blood test because I'm in my mid-30s... The time for all things good to begin... Well, my ammonia levels were twice as much as they should have been and at critical levels. I didn't know this could happen or how to understand if it was happening. I was always very open about any side effects, but just basically brushed off. What if the medication was poisoning me this whole time, and yet no one payed attention to look? From now on, no matter my PCP or neurologist, I will always remember and take from me this: only you can really control your own health. Read about your medication and ask questions if you have any, ask your pharmacy, your PCP, your neurologist, and even the nurses... Let them make sure you feel comfortable with what you are doing, understand what you are taking and it's side effects. Lastly, I will always remember to request a yearly comprehensive blood test around my birthday. It will be my birthday present to myself.
That is not my medical opinion, but my experience from dealing with epilepsy for the past dozen years at least. Good luck to you all.