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Epilepsy Action
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Simple partial seizures

Does any take any medications for focal seizures that last quite a long time as in 30 mins + ? I only have 1-2 a month now due to med increase etc. Now when I do they last quite a long time. My main symptoms is a weird feeling down my left side and a strange feeling in my head, unable to concentrate, focus, alertness. It leaves me so drained the longer it goes on. I have been tempted so many times to go to my gp to ask can I have something to stop it but not sure if they would give a 'rescue medication' as such for that seizure.

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I too like you suffer from complex partial seizures which occur in my left hand temporal lobe, and have done for me years now.

Epilepsy makes us all tired for hours and sometimes days at a time. That’s just the nature of the beast. Yes it can make us feel down but I suppose after going through a ‘rough patch of epilepsy this will often be true.

Likewise there is no quick fix of something that we can take.

The main things always to remember are always get a good 8 hours or sleep every night. Also always eat proper meals and not snacks. The essential ingredients to help to keep us well are sleep, proper meals and trying not to think about epilepsy too much because if we do will get ourselves on a downwards spiral to depression. Try to think positive thoughts and and you can keep yourself close to the surface. As you may already know alcohol and epilepsy just do not mix.

I know from experience that some of the aforesaid is not always possible when seizures begin.

I wish you well and I hope that this has helped.

Richard

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Hi RR25

It would be a good idea to talk to your epilepsy specialist about your prolonged seizures. If you are not under a specialist, you will need to ask your GP to refer you.

Your epilepsy specialist could review your epilepsy treatment, look at other possible reasons for why your seizures are still happening and if needed, prescribe you with emergency medicine.

epilepsy.org.uk/info/treatm...

epilepsy.org.uk/info/firsta...

They may suggest trying a different epilepsy medicine. If you have tried various types of epilepsy medicines, it may be the specialist could look into other treatment options for you.

epilepsy.org.uk/info/treatm...

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm.

Regards

Diane

Epilepsy

Action Helpline Team

Reply

Thank you for the very helpful advice. I am waiting on my epilepsy nurse to get back to me and if I do not hear from her in a few days I intend to see my gp.

Although, because I have a neurologist and epilepsy nurse my gp will not do anything. Would that be the case??

Reply

Hi RR25

When you have an epilepsy specialist and epilepsy nurse it’s unlikely your GP would alter or prescribe new medicine for your epilepsy.

In some situation, such as when a person isn’t due to see their specialist in the near future, a GP may contact the epilepsy specialist for guidance.

Regards

Diane

Epilepsy

Action Helpline Team

Reply

Thats good to know. I will keep trying the epilepsy nurse then in the hope she gets back to me 🤞

Many thanks for the advice and guidance 😊

RR25

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