Phenytoin iv: Good day all. Just really... - Epilepsy Action

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Phenytoin iv

Samantha_ profile image
8 Replies

Good day all. Just really curious about this. I'm on 1600 epilim a day and still have seizures. My husband took me to the hospital on Sunday morning after having seizure almost whole weekend. They put me on an Iv of phenytoin and after about 10 minutes it started burning really bad. Went to tell the doctor and he said it's really strange cause no one ever complained about it burning. After more complaints from me he reduced the speed of the phenytoin. Now Tuesday and my hand is still swollen.

Can anyone tell me if it's normal to burn that way or was it just me being a sissy. Thanks in advance

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Samantha_
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EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi Samantha

That sounds like a unpleasant experience. I do hope you’re starting to feel better now.

The burning sensation is not something we’ve heard of before so I’m sure it’s not a normal experience. The reaction may have been something to do with the drip. Or it may have been a sensitivity to the phenytoin.

Hopefully it will go down soon.

Regards

Cherry

Epilepsy Action Helpline Team

Samantha_ profile image
Samantha_ in reply to EpilepsyAction1

Thanks Cherry. I think so too. It's still swollen but it's getting better. Just that my whole arm is sensitive to touch. Hopefully it will all be over soon.

Seaotter2020 profile image
Seaotter2020

I had potassium and it burned nasty. I think the speed does make a difference. I later found out that they can put an anesthetic in the IV to number your vein and slow it down..😣. sorry you had to go thru that...

Samantha_ profile image
Samantha_ in reply to Seaotter2020

Thanks Seaotter

I did some research and it was the speed. Thanks for advice and concerns. 😀

Jenny25 profile image
Jenny25

I had an iv that had 'blown' and that burned and swelled up really badly. went down quickly as soon as it was removed though. also had an infection in the needle site once too which again really hurt and swollen but cleared up with antibiotics

Hope you feel better soon! x

Samantha_ profile image
Samantha_ in reply to Jenny25

Thanks Jenny

Still have no idea why my hand was swollen but at least the swelling is down. Still sore to touch though. But thanks for all the advice and support

kerryblue01 profile image
kerryblue01

Hi I take eplim was 2500. Now 1000 but have never had any burning sensation

I suffer from epilepsy because of a brain injury. When I am in the hospital, they always have to give me iv Dilantin but right away it burns like hell. Also, I have really small veins but they are deep and it says that Dilantin through the iv irritates the vein because it is so potent. Also they are able to slow down the rate of the drip but it will still burn. If you have anymore questions or concerns, text me at 661-360-2374

Thanks,

Kristina Geeting

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