Epilepsy Research UK and Epilepsy Action u... - Epilepsy Action

Epilepsy Action

3,016 members1,128 posts

Epilepsy Research UK and Epilepsy Action user survey: tonic-clonic seizure alarms

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action
7 Replies

Epilepsy Research UK and Epilepsy Action frequently receive enquiries about tonic-clonic seizure alarms, but impartial information about the various 'makes' is hard to come by. Epilepsy Action supports Epilepsy Research UK's efforts to carry out independent research into people's experiences of using different tonic-clonic seizure alarms. The aim is to develop unbiased information document for both websites. We hope that in the future this will help people with their choices.

If you have ever used a tonic-clonic seizure alarm, or cared for someone who has used one, we would be extremely grateful if you would complete this survey.

epilepsy.org.uk/tonic-cloni...

Written by
EpilepsyAction1 profile image
EpilepsyAction1
Partner
To view profiles and participate in discussions please or .
7 Replies

Thank you for including survey for others to complete. Regret, I have never used a tonic-clonic seizure alarm, as I doubt if these are even available in South Africa, where I am based.

I would be grateful for a link to share on my Facebook Page if you are acceptable to my sharing the survey for others to complete.

Kind Regards,

Les

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action in reply to

Hi Lesmal

That would be great if you wanted to share the link on your Facebook page. It is a UK survey but I am guessing that’s not a problem. Here’s the link again: epilepsy.org.uk/tonic-cloni...

Thanks.

Cherry

Advice and Information Team

in reply to EpilepsyAction1

Hi Cherry, I am based in South Africa. Please VISIT & LIKE the Page to check it out before I load the link... I would rather you check out the page first... Follow the link: facebook.com/EpilepsyMotive....

I look forward to your response in due course.

Regards,

Les

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi Les

We’re happy for you to post the link. But we can’t post on your page. So feel free to go ahead with it and hopefully some more people will complete the survey.

Cherry

Advice and Information

Hi Cherry,

Thank you! Link will be loaded!

Les

Hi Cherry,

When trying to load link, am told 'Page is not found'.

Please advise further.

Thank you.

Les

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi Les

Sorry that didn’t work. Another way would be to go to the home page of our website epilepsy.org.uk and just follow the link.

Hope that works for you.

Cherry

Advice and Information Team

You may also like...

Help - first time seizure mum - Tonic Clonic

admitted. Consultant said he had text book Tonic Clonic seizure. We are seeing specialist on...

Night time awakenings

missed a few doses that resulted in three tonic clonic seizures. As a result, her neurologist...

A Search for Underlying Causes

Juvenile Myoclonic First onset seizure: 7 mos ago Type of seizures: tonic-clonic Frequency: 1...

Left sided loss of feeling

hemiplegia in '96, I developed grand mal epilepsy with tonic clonic seizures. Horrible!!!!...

Can absence seizures cause long term memory loss?

diagnosed with them until I had a tonic clonic seizure in 2010. (I’m 23 years old now) And I’ve...