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Epilepsy Action

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London Marathon 2024: Meet team Epilepsy Action

Catrin Jones, 26, from Caernarfon in Wales, is running for her daughters Esmi, 5, and Nanw, 3, who have both been diagnosed with epilepsy. Learn more here...

Catrin Jones, 26, from Caernarfon in Wales, is running for her daughters Esmi, 5...

EpilepsyAction1

Partner•6 hours ago

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Fix medicine supply chain or risk patients’ lives, warn charities

Charities and pharmacists are calling for a complete review of the medicine supply chain as shortages continue to put people’s health at risk. Epilepsy...

Charities and pharmacists are calling for a complete review of the medicine supp...

EpilepsyAction1

Partner•2 days ago

2 Replies

new symptoms

Back in February I had to do another change in prescription for my epilepsy medication. Ever since I finished it back in March the eight week cycle I’ve had...

Back in February I had to do another change in prescription for my epilepsy medi...

JDQuinn75

•7 days ago

1 Reply

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new symptoms

Back in February I had to do another change in prescription for my epilepsy medication. Ever since I finished it back in March the eight week cycle I’ve had...

Back in February I had to do another change in prescription for my epilepsy medi...

JDQuinn75

•7 days ago

1 Reply

Lacosamide increase

Last night was the 3rd night of increasing lacosamide. It doesnt seem to be agreeing with me as each night since i go to bed with a terrible headache and this...

Last night was the 3rd night of increasing lacosamide. It doesnt seem to be agre...

Dawn43

•14 days ago

1 Reply

Colds and epilepsy

My husband has passed on his cold to me. I started with a tickly cough, now nose is bunged up, coughing is rattly, more so on the right side and head feels...

My husband has passed on his cold to me. I started with a tickly cough, now nose...

Dawn43

•21 days ago

5 Replies

Talk and Support Virtual Groups

Our online Talk and support groups are a great way of connecting with others who have experiences of epilepsy, in a safe and relaxed environment. We have our...

Our online Talk and support groups are a great way of connecting with others who...

EpilepsyAction1

Partner•25 days ago

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myoclonic absence epilepsy

My son (now 15) was diagnosed about a year ago, on Lamotrogine. We are constantly increasing his dosage, it makes him extremely tired and he is still having...

My son (now 15) was diagnosed about a year ago, on Lamotrogine. We are constantl...

Myamazingboy

•26 days ago

7 Replies

New drug

Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been controlled with other drugs although both Lamotrigine and Oxcarbazepine kerbed...

Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been...

LakeshoreDriveKing

•27 days ago

4 Replies

I just want to talk to someone who understands

I'm really struggling with everything epilepsy related at the moment. I was having my 1 to 1 chats with a volunteer through Epilepsy Action and that was more...

I'm really struggling with everything epilepsy related at the moment. I was hav...

KaiKai_B

•28 days ago

7 Replies

starting lamotrogine and side evfects

Hello folk, my husband ( age 69) was recently diagnosed with epilepsy and prescribed lamotrogine. Waiting for MRI and first outpatient appointment. We’re now...

Hello folk, my husband ( age 69) was recently diagnosed with epilepsy and presc...

Lochsandary

•1 month ago

6 Replies

carbamazepine- brain tumour

hello everyone. I do not have epilepsy. I’m hoping this community can give me some insight into Carbamazepine. I have a brain tumour that is pressing on the...

hello everyone. I do not have epilepsy. I’m hoping this community can give me s...

GGourmet

•2 months ago

6 Replies

Energy drinks

hi, my daughter 16 at the time, was diagnosed with epilepsy in October last year having had 2 seizures (that we know of) within a couple of hours of each...

hi, my daughter 16 at the time, was diagnosed with epilepsy in October last year...

KezzaCM16

•2 months ago

4 Replies

Gelastic seizures advice

hi I’m a foster carer to a 2yr old boy who we have had since birth,who has a lot of underlying health issues . He suffers from a lot of issues with his gut...

hi I’m a foster carer to a 2yr old boy who we have had since birth,who has a lot...

Heather2010

•2 months ago

1 Reply

A Search for Underlying Causes

Hello, How many of you have taken the journey for underlying causes via blood tests and hormones and nutrition? We refuse to live with medicating the...

Hello, How many of you have taken the journey for underlying causes via blood t...

apache31

•2 months ago

18 Replies

Covid booster vaccines planned for spring 2024

People with epilepsy will be offered a Covid booster vaccine this spring. The Joint Committee on Vaccination and Immunisation (JCVI) recommended a spring...

People with epilepsy will be offered a Covid booster vaccine this spring. The...

EpilepsyAction1

Partner•2 months ago

Be the first to reply

seizure control-briverictam & lamotrigine

🫤 I can’t remember what the epilepsy nurse I spoke with last week said when we spoke about this. I’d asked her how long it should take for the increased dose...

🫤 I can’t remember what the epilepsy nurse I spoke with last week said when we ...

Hidden

•2 months ago

3 Replies

Is non-alcoholic beer safe

hi, My son is 18 and has had epilepsy for 7 years, He was seizure free for a few years but the last year we have had a few. He likes to go out with friends...

hi, My son is 18 and has had epilepsy for 7 years, He was seizure free for a f...

KarenB2411

•2 months ago

4 Replies

I am floored with depression.

Something I learned last year when I participated in a IV Ketamine study for Refractory Epilepsy . For seizures meh 🫤 maybe less intense but the mood ! Wow! I...

Something I learned last year when I participated in a IV Ketamine study for Ref...

Hidden

•2 months ago

1 Reply

Diagnosed at 61

I had a my first tonic clonic seizure June 23. I'd been having focal seizures for 10 years but didn't know what they were, so never saw the doctor. I've had...

I had a my first tonic clonic seizure June 23. I'd been having focal seizures f...

TheCoulerPurple

•2 months ago

16 Replies

Epilepsy license

Hi I got my provisional license taken away from me when I was 17 it was cut up in front of me by the police I was told it needed to be 2 years without a...

Hi I got my provisional license taken away from me when I was 17 it was cut up i...

ANSWERS12E

•2 months ago

3 Replies

SSRI’s for Anxiety

Hi all I was just wondering if anyone has any experience of SSRI’s (Citalopram etc) taken for anxiety. I am suffering from anxiety now that I am...

Hi all I was just wondering if anyone has any experience of SSRI’s (Citalopram ...

Jubilee36

•2 months ago

8 Replies

Epilepsy and beauty treatment contraindications

hi I was just wondering if people knew why epilepsy is a contraindication for some beauty treatments? I can understand the reasoning in some of these, eg...

hi I was just wondering if people knew why epilepsy is a contraindication for s...

Happygolarry

•2 months ago

2 Replies

No Support…

I had my first seizure 4 years ago. I thought maybe it was a one off but 18 months later it happened again. Since then I’ve had another 4 seizures. In those 4...

I had my first seizure 4 years ago. I thought maybe it was a one off but 18 mont...

isthatamanda

•2 months ago

11 Replies

Focal seizure on face only?

Has anyone ever experienced a focal seizure on the face only? This last few months I have been experiencing brief episodes of pins and needles /tingling around...

Has anyone ever experienced a focal seizure on the face only? This last few mont...

RR25

•2 months ago

5 Replies

Funny turn

I woke up from my sleep last night and felt very sick. I tried to get to the bathroom but couldn't keep my balance and fell over. I managed to get up and...

I woke up from my sleep last night and felt very sick. I tried to get to the bat...

Spam72

•2 months ago

1 Reply

breakthrough seizures

Hi, new here. I have a brain lesion & since having surgery 8 yrs ago have only had 2 Tonic Clonic’s which have since been completely controlled with...

Hi, new here. I have a brain lesion & since having surgery 8 yrs ago have only ...

Benay76

•2 months ago

4 Replies

New mum with epilepsy

hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain AVM in 2007. I started with tonic clonic seizures in 2006 but was put on...

hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain...

Lily123456

•2 months ago

8 Replies

epilepsy linked to hormone changes?

so I was diagnosed with epilepsy as a teenager after only even having 2 grand mal seizures, ever since then I suffer with partial absence seizures which come...

so I was diagnosed with epilepsy as a teenager after only even having 2 grand ma...

lauraloveschocolate

•2 months ago

8 Replies

Med change

My son has been on Carbatrol for decades and has developed osteopenia from it. We tried oxcarbazepine but he had an immediate adverse reaction that required...

My son has been on Carbatrol for decades and has developed osteopenia from it. ...

Benmom

•3 months ago

13 Replies

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Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

London Marathon 2024: Meet team Epilepsy Action

Fix medicine supply chain or risk patients’ lives, warn charities

new symptoms

new symptoms

Lacosamide increase

Colds and epilepsy

Talk and Support Virtual Groups

myoclonic absence epilepsy

New drug

I just want to talk to someone who understands

starting lamotrogine and side evfects

carbamazepine- brain tumour

Energy drinks

Gelastic seizures advice

A Search for Underlying Causes

Covid booster vaccines planned for spring 2024

seizure control-briverictam & lamotrigine

Is non-alcoholic beer safe

I am floored with depression.

Diagnosed at 61

Epilepsy license

SSRI’s for Anxiety

Epilepsy and beauty treatment contraindications

No Support…

Focal seizure on face only?

Funny turn

breakthrough seizures

New mum with epilepsy

epilepsy linked to hormone changes?

Med change

Search posts

Pinned Posts

Latest poll

Why Did you join this community?

Topics

Archive