Starting my third year of seizures
Since then I’ve been in the ICU numerous times for grand and petite mal seizures. No known cause has been determined and I’ve been diagnosed ...
Some Things that have have helped my son have less seizures.
As a mum and carer to my 38 year old son who has grand mal epilepsy and learning disabilities. His quilt is feather ( from IKEA ) his mattres...
Anyone do an epilepsy test?
I'm being admitted to the hospital August 20th to be tested for epilepsy because I've started jerking a lot the past two weeks. But they thin...
Daughter recentky diagnosed with epilepsy age 19
Hi all im new to all this and devastated for my daughter . my daughter started keppra on the 9th of december and has been to accident and eme...
Has anyone ever experienced severe depression a couple weeks after hospitalization for grand mal seizures?...
After Callum having a few seizures his medication has been changed to Keppra, 750 mg twice a day. He has been having migraines is this normal...
Epilepsy, frustrations, poem.
I have posted a couple of my poems on here, relating to my epilepsy and a few people related and understood what I had written, which made me...
RSL caused by too much acid in the body
Hi, I've just joined this forum so excuse me if I'm posting in the wrong place. For over 10 years I also have been a sufferer of RSL....
Anyway I realised that she hadn’t read my notes properly as she would of seen that I had a bad reaction to keppra and that is why the dose I ...
Embarrassing side effects with Fycompa [Perampanel]
I have been on Fycompa [ Perampanel ] for juvenile myoclonic epilepsy since Christmas 2016, my testosterone levels are at an all time high, i...
Short term memory loss, switching words?
Hi everyone I’ve been successful in managing my seizures ( simple partial, spikes in temporal lobe ) with the keto diet and cbd/thc oil, and ...
Hi all, it’s been a while since I checked in as life has been busy and thankfully pretty manageable for the last few weeks. I think someone w...
Epilepsy and anxiety....mother and daughter
She is really very light sensitive and I wonder if there are glassess available to minimise this specific trigger....
NONE OF US IS MAD
Yes there’s trauma but it’s FND diagnosis first and trauma caused by the medical profession thinking we are faking seizures for attention. Ti...
How do you explain to people what epilepsy is?
Hello there, I have only recently been diagnosed with epilepsy in Nov 2017, and I'm on medication to help ( it's not )....
Recent diagnosis, really looking for guidance.
Beginning of January I started my new job ended up only beeing there a day as the following day I started having seizures....
Hi all, I'm still coming to terms with the epilepsy diagnosis & could do with some advice please. Both seizures I've had have been when I've ...
To me the curse of FM is sheer horrible heartbreaking mindblowing loneliness....
Any Help Please?
Basically I fall to the floor & am confused afterwards My night supervisor has suggested I check out whether I've gt epilepsy or not, but kno...
Living with epilepsy
I was diagnosed with grand mal epilepsy in 1972 at the age of 15. Long term meds do really play havoc with your body but as an epileptic we d...
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