Endometriosis UK

Has anyone tried accupuncture for severe endometriosis with any success?

Hello, I suffer from severe endometriosis, and have just had my last zoladex injection, has anyone tried accupuncture and had success with pain, or to conceive? Thankyou

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10 replies

    Starri
    Starri

    HI, I tried accupunture. The NHS pain team in Nottingham gave it to me but it didn't help, if anything it made the pain worse so we stopped. However they woman doing it was usless and kept looking in the book all the time. I can't afford to have it done anywhere else so I don't know if done by someone compitant it might help. I have heard a lot of good things about it. xx

    Embo
    Embo

    Hello, I know of a multibed acupuncture clinic in Birmingham that offers cheaper acupuncture for people who can't necessarily afford private treatment, or prefer the multi-bed setting. They keep the costs down without reducing the quality of care. It might be useful for you to try the website www.acmac.net to find out if there is one in your area? I've heard a lot of success stories about acupuncture helping with pain and fertility, but haven't got round to trying it out for myself yet!

    Starri
    Starri

    Thanks Embo I will look into that :)

    Tootingbelle
    Tootingbelle

    I have regular acupuncture with a 5 element practitioner who is lovely and very skilled. I've tried both this style of acupuncture and the more modern version called traditional Chinese medicine (TCM) which sounds like a version of what Starri would have received (obviously inexpertly done) on the NHS and I find 5 element to support my whole body, mentally as well as physically, which as we know is very important when you suffer from endo.

    I have a great deal of pain and a massive lack of energy with my endo and my practitioner really helps me with both of these symptoms. I'm also hoping to start trying for a baby soon and 5 element acupuncture has a good success rate with women who struggle to conceive.

    I'm based in London so don't know who to recommend for your area but there is info online and you might be able to find someone local to you. It can really improve your life but it does take some time to take effect. It's certainly not a quick fix solution.

    I wish you lots of luck with whatever you do.

    x

    hknight
    hknight

    Thankyou girls for your reply's, I think I'm going to give it a try, anything is worth trying, to not get the pain back, that I had post op. I'm in kent, and I have found a good practitioner, but its obviously better to hear from people who have tried and tested it. X

    heather1
    heather1

    I have had it...and after i felt great a bit dizzy but painless...after a couple of hrs it would ware off and the pain would return! i say give it a go and see if it helps you as everyone reacts differently to it! good luck :) x

    Zolta
    Zolta

    I truely believe my acupuncturist made it possible for me to conceive my 1st, only 4 months after finishing a course of 3 month zoladex injections - I only have one tube and one ovary, and endometriosis in the ovary I have. I have been going for 9 months and it helped with the pain before my laparoscopy last year, I would definatly recommend going to see one :) Breaking the good news to her on my next appointment in 2 weeks time am now 7 weeks :) x

    hknight
    hknight

    Omg zolta, that is excellent news, I bet you are over the moon hun. I conceived my first with no problems and without trying, but I have been struggling for 4 yrs to conceive number 2, and finally got diagnosed with severe endometriosis last year. My consultant said he got it all, so I'm hoping I can conceive when my periods return. I'm willing to try anything, thanks for the success story and I hope u have a happy and healthy 9 months. Thanks to all the other girls too xxx

    Bernie86
    Bernie86

    I have tried it, and unfortunately, pain and symptoms getting worse is the first sign that it is working. Things improved for me, though it didn't sort it out completely. I had it while on Decapeptyl injections, like Zoladex, and before that when I was merely on the pill. I found that it helped me a bit, and possibly made things better for a little bit, which was good as I was doing my final exams at uni!

    I paid for it myself as it wasn't an option for me on the NHS....like most things!

    I hope it helps you if you try it!

    Margo45
    Margo45

    I have had accupuncture on a monthly basis for about 2 years and couldn't manage without it. The main difference (not pleasant to talk about) is that my bleed is clot free, red and runny as it should be but without acupuncture I have huge black clots that cause enormous pain. I went from not being able to walk and in bed for days on end to up and dressed and walking around house but still having to take as many pain killers as possible but a definite difference. Good luck. Expensive but worth it. x

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