Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,633 members • 52,124 posts

Sort posts by:

Sorry if this is depressing 😞

I feel trapped. I had my laparoscopy surgery in February and I was diagnosed with endometriosis. Since the surgery my pain has leveled up, it’s so much worse...

I feel trapped. I had my laparoscopy surgery in February and I was diagnosed wit...

Law94

•6 hours ago

2 Replies

Work Support

Hi everyone. I wonder if anyone has any advice on how to communicate with their workplace? I have a rather rocky but ok relationship with my manager and...

Hi everyone. I wonder if anyone has any advice on how to communicate with the...

HSBhere

•8 hours ago

1 Reply

Trouble emptying bladder

I'm waiting for surgery for laparoscopy for stage 4 endometriosis found on my ovaries, uterus and bowels. I've been really lucky that I don't get really bad...

I'm waiting for surgery for laparoscopy for stage 4 endometriosis found on my ov...

hobbitty

•11 hours ago

2 Replies

Want to take advantage of all our features? Just log in!

Daughter College Trip Discrimination

Hi all my 17 year old Daughter suffers terribly with endometriosis already one lap in. She’s currently been studying A levels at college and they have been...

Hi all my 17 year old Daughter suffers terribly with endometriosis already one l...

Dolly0710

•21 hours ago

4 Replies

Do other people experience vaginal bleeding with a bowel movement post lap??

Hi, I am 6 weeks post lap surgery. I was bleeding for about 2 weeks post surgery then it sort of reduced to spotting. My first period since op lasted 12 days...

Hi, I am 6 weeks post lap surgery. I was bleeding for about 2 weeks post surgery...

KittyTherapy

•22 hours ago

Be the first to reply

Working with endo - when's best to let an employer know you have endo when applying for jobs?

Hi everyone, I recently lost my job due to the amount of time I had to have off sick because of my endo. It was a bit of a shock really, and my manager and HR...

Hi everyone, I recently lost my job due to the amount of time I had to have off ...

GrouchoSparx

•22 hours ago

7 Replies

Costus root powder: side effects and efficacy

Is there anyone here who has experience with this herbal remedy? It’s supposed to regulate hormones and reduce inflammation.

Is there anyone here who has experience with this herbal remedy? It’s supposed t...

AnnaMae

•1 day ago

Be the first to reply

Rib pain after surgery

Hi, I had a laparoscopy two days ago and I've been getting a pain when I lie down in my right collar bone and right lower side ribs. It gets worse when I...

Hi, I had a laparoscopy two days ago and I've been getting a pain when I lie dow...

Giraffegreen

•1 day ago

6 Replies

Bowel Resection - what to expect?

Hi everyone I've got Stage 4 Endometriosis which affects my ovaries, colon and appendix. I've had a laparoscopy to remove endometriosis from my ovaries for...

Hi everyone I've got Stage 4 Endometriosis which affects my ovaries, colon and a...

MD54999

•1 day ago

4 Replies

surgery

has anyone ever had surgery on the nhs to be told they didn't see endo then went private and had the surgery for them to find endo?

has anyone ever had surgery on the nhs to be told they didn't see endo then went...

KirstyCham94

•1 day ago

Be the first to reply

how do you deal with the bad days?

hi all, diagnosed with endo last November after a laparoscopy after about 14 years of symptoms and pain. Even though I’m glad to have the clarity about what...

hi all, diagnosed with endo last November after a laparoscopy after about 14 yea...

ar1497

•2 days ago

5 Replies

periods on mirena but no pain

I’ve had 2 laps for endo, have tri cycled the pill and been on tablets such as naproxen. Ive been so luckily that having the coil fitted during my 2nd lap has...

I’ve had 2 laps for endo, have tri cycled the pill and been on tablets such as n...

Luna-24

•2 days ago

Be the first to reply

Hysteroscopy For Fitting Mierena

Hi all, saw my NHS Gyne the other day. He has booked me in to see him in July to have a Hysteroscopy, in order to fit the Mirena Coil. From my previous and...

Hi all, saw my NHS Gyne the other day. He has booked me in to see him in July to...

PunkyPeanutButterCup

•2 days ago

10 Replies

Pain management

Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy and have prostap injections but as I can only have them for 6months and a...

Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy a...

Sammy455

•2 days ago

8 Replies

just wondering how everyone is… happy Tuesday!

I’ve been moaning for a month so thought I’d post a more upbeat post! Things to be positive about instead of the normal endo doom and gloom :) Today I’ve been...

I’ve been moaning for a month so thought I’d post a more upbeat post! Things to ...

endotheline

•2 days ago

3 Replies

I need help/advice

My daughter has just turned 16. Since christmas she has been so unwell in unbearable pain. She was told she has Endometriosis and has been reffered to...

My daughter has just turned 16. Since christmas she has been so unwell in unbear...

Lillysmum

•2 days ago

23 Replies

Surgery - Stage 4 - Increase in fertility?

Just wondering if anyone has had any experience of egg quality increasing after surgery? I have stage 4 endo with kissing ovaries. I went through a round...

Just wondering if anyone has had any experience of egg quality increasing after ...

Behind_Hazel_Eyes

•2 days ago

6 Replies

TTC ovulation pain!

morning everyone. This is about our 3rd month of TTC. I have endo and adeno. I am currently 3 days past ovulation and I have a lot of aching in my ovary area!...

morning everyone. This is about our 3rd month of TTC. I have endo and adeno. I a...

Rosiehannah1

•2 days ago

Be the first to reply

Is this endo belly?

Hi everyone, I'm still only at the 'endo suspected' stage as I've been on a waiting list for a specialist centre since August last year. But I've got a new...

Hi everyone, I'm still only at the 'endo suspected' stage as I've been on a wait...

CitizenErased

•2 days ago

3 Replies

Waiting list & starting Provera

Following on from my 2 week fast track referral. I got called Friday to see if I could come I today to see the gyno consultant following my high ca125 levels...

Following on from my 2 week fast track referral. I got called Friday to see if I...

Faylen34

•3 days ago

2 Replies

kirsty

has anyone ever had the 3 month prostap injection and if so when did you get your period? Had the injection 9th dec and last bleed/ period was week before...

has anyone ever had the 3 month prostap injection and if so when did you get you...

KirstyCham94

•3 days ago

12 Replies

Post Laparoscopy update

Hi all, I hope everyone is doing as well as possible. I recently posted to express my anxiety about an upcoming laparoscopy. I’ve been on the waiting list...

Hi all, I hope everyone is doing as well as possible. I recently posted to e...

Greenflame

•3 days ago

4 Replies

Period flu?

Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening...

Just wondering if anyone is experiencing what I am. I underwent excision surgery...

Ps-endo

•3 days ago

4 Replies

Endometriosis changed my understanding

I was diagnosed with bowel endometriosis and two months I couldn't stand up and walk from pain. I had two surgeries for endometriosis and cysts removal in the...

I was diagnosed with bowel endometriosis and two months I couldn't stand up and ...

Alteja2009

•3 days ago

2 Replies

Best supplements

I’m looking at introducing some supplements to my routine to help manage my symptoms of endometriosis. What’s the best out there, that don’t cost the earth?

I’m looking at introducing some supplements to my routine to help manage my symp...

victoriaat1611

•3 days ago

12 Replies

Pudendal nerve block

Has anyone had a pudendal nerve block? My endo specialist wants to give it ago to see if it offers me any relief from the chronic pelvic pain? I'm scared

Has anyone had a pudendal nerve block? My endo specialist wants to give it ago t...

En89

•4 days ago

1 Reply

Consultant won’t operate for pain.

Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbearable pelvic pain throughout my period and ovulation and periods so heavy I...

Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbeara...

Pecanpie11

•4 days ago

8 Replies

Constipation & Deep infiltrating endo any tips?

hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got...

hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout p...

Menopausal7

•4 days ago

7 Replies

Mirena Coil

Hey all, I have an appointment tomo with my NHS gyne. He's going to see if he'll be able to fit the mirena coil 'normally' or wether it'll have to be done with...

Hey all, I have an appointment tomo with my NHS gyne. He's going to see if he'll...

PunkyPeanutButterCup

•4 days ago

3 Replies

Please help/ endometrioma cyst

Hi all, my recent scan has shown a benign cyst called an endometrioma. They have made a referral to gynaecology but I was told I have to wait a year to see the...

Hi all, my recent scan has shown a benign cyst called an endometrioma. They have...

SabZi

•4 days ago

22 Replies

Write a post or ask a question

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Sorry if this is depressing 😞

Work Support

Trouble emptying bladder

Daughter College Trip Discrimination

Do other people experience vaginal bleeding with a bowel movement post lap??

Working with endo - when's best to let an employer know you have endo when applying for jobs?

Costus root powder: side effects and efficacy

Rib pain after surgery

Bowel Resection - what to expect?

surgery

how do you deal with the bad days?

periods on mirena but no pain

Hysteroscopy For Fitting Mierena

Pain management

just wondering how everyone is… happy Tuesday!

I need help/advice

Surgery - Stage 4 - Increase in fertility?

TTC ovulation pain!

Is this endo belly?

Waiting list & starting Provera

kirsty

Post Laparoscopy update

Period flu?

Endometriosis changed my understanding

Best supplements

Pudendal nerve block

Consultant won’t operate for pain.

Constipation & Deep infiltrating endo any tips?

Mirena Coil

Please help/ endometrioma cyst

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive