I am 51 years old and had a history of really bad periods and pain throughout my life. At 21 was diagnosed with IBS.
After having two children my periods were so bad and painful ( and fainting due to aneamia) i had a hysterectomy but, as they were healthy my ovaries were left. They also couldnt remove my cervix either as it was stuck to my bladder and the op took much longer than expected. My Gyne apologised to me as he thought he may have damaged my bladder in the process, luckily he hadnt
I continued with really extreme pains which was always put down to the IBS, however after many many years at 49 the pain became so unbearable and I had started to bleed from my bowel and had some spotting from my front I decided to go to my GP.. As i was in BUPA I got referred to a Gastro Dr who after doing a cat scan referred me to a Gyne Dr as the scan showed cysts on my ovaries. The Gyne Dr didnt appear to believe how much pain i was in but after a lot of deliberation decided removal of both ovaries might be best.
I was in the operating theatre 6 and a half hours and the Dr came close to stitching me up and asking my husband to sign a consent to have my bowel removed. He said he had not seen as much endometriosis in someone before and that i had a large plaque of Endo on my bowel (sigmoid) and he had had to leave it there as the alternative would be to take my bowel out. He said the Endo should die off as it was now starved of Oestrogen. As I was still having bleeding from bowel i had a bowel camera procedure which showed nothing, no haemorrhoids etc just a lot of spasm and that was it, I was discharged.
My op was 17th March 2012 and over 12 months on i still have extreme pain, bowel bleeding, vaginal spotting, lower back pain. Sex, lifting heavy bags etc can set the pain off or it can just start on its own. Sex can also be a little painful too. I feel like im in labour and the pain just feel like a small animal has climbed into my body and is eating away where my womb should be. Its is showing no sign of dying off.
When will this "die off" or is that a myth. I have heard of a hospital on the Wirral that specialise in Endometriosis on the bowel and where bowel and Gyne Dr's work together to relieve it. If so can a GP refer you?
Im beginning to think i would rather lose my bowel than put up with this forever.
Can anyone offer me any advice or has the same problem they can share?